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help needed !! desperately

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Old 07-01-2011, 04:22 PM   #1
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help needed !! desperately

hi all i am a 35 year old bipolar mother of 4 children, 3 of who have behavioural difficlties and autistic spectrum disorders , the problem i am having is that my oldest son is having such a hard time he is 12 and has been home educated for the last 3 years due to a complete emotional breakdown where he tried to end his life due to being bullied. My child has always had social problems being that he has a tremendously overactive imagination which has now taken over his life he has an alter ego called phoenix who is a superhero who slays monsters and demons that are all around. He has this notion that he is able to save people as he cannot be harmed as he is a tremendous warrior he is a very large 12 year old boy and you can imagine what its like when we are shopping and he is slaying his monsters that he has admitted that he sees and he is fearful of them.
Me and his dad have spent the past 3 years back and forth from health establishments trying to find out what is wrong with our son so we can help him the best possible way we can he has had art therapy where he actually opened up to the therapists and told her that he sees these monsters and that he must slay them or they will slay him, we thought at first he may have an autistic spectrum disorder as he has other characteristics of this he doesnt make lots of eye contact , he doesnt carry out tasks when asked usually doing only half ( had his ears checked too many times as we thought it may be a hearing problem) is very obsessive about what he wears (only red or black ) doesnt like to try new foods etc likes a routine has a terrible temper causing outbursts for no apparent reason, doesnt understand irony at all, is very overfriendly to the point of becoming obsesed with someone who he has only just met, is very vunerable in many ways, but is very highly intelligent especially at maths and is great at lego will sit for hours just doing this, uses words that he doesnt know what they mean or not in the right context its almost tv speech as if he is a character anyway we had an appointment this friday just gone to see an autistic spectrum specialist who said he does not have asd we are also under a mental health team who thought he had aspergers syndrome i am at a loss now as they are wanting him to go back in to a school setting but without knowing what it is that is wrong with him i cannot get him the help that he needs. Where we live there is something called a statement of special needs this entitles the child to recieve extra help/support within either a mainstream school or a specialist school but without having some kind of diagnosis i cannot get one of these, i dont know what else to do i am wondering if anyone on the forum has a child who has some of these symptoms or knows what it may be as it is getting me sooo depressed i feel i am just being messed about by the system and my son is 12 now he only has 6 years before hes meant to go out in the big wide world himself and i am so scared if anyone could possibly help me i would be most greatful many thanks

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Old 07-02-2011, 07:53 AM   #2
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Re: help needed !! desperately

Its so hard to make a diagnosis at this age..Is he on any meds? Sounds like he may have schizoafective and OCD..

Old 07-02-2011, 08:15 AM   #3
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Re: help needed !! desperately

I'm sorry to hear about your problem I have two brothers with autism one has asburgers one not the one with asburgers was hearing voices and seeing things on occasion bit after trial and error with meds we have it under control it sounds like symptoms of autism and schizophrenia however I do not know if you can have both nor am I a doctor my family has history of slight mental problems and I and my brothers one who is adopted have the worst of it I experience visual and audible hallucinations along with delusions which have dimmed down after stopping medication I do not know how to offer help or explanation but do alot of research and talk to alot of people there are many symptoms that come with autism I'm sorry I have trouble explaining things but my brothers have all kinds of symptoms maybe a trip to the nurolagist I know my brother had to do that they found epileptic problems too he will kinda go blank it's like auto pilot which I believe has caused a few of his car crashes but he is very particular likes HIS routine is very flustered if it changes and will have very bad breakdowns he was home schooled for a long time and public school helped him I introduced him to friends and he did pretty well but I would work on a diagnosis I'm sorry you are going through this and I sympathies with your children and you just don't give in to everything the doctors say they get something and run with it i hope you find some help I'm sorry I can't help not a doc just see alot of them

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