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Congenital scoliosis

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Old 09-02-2017, 01:29 AM   #1
Join Date: Sep 2017
Location: Hungary
Posts: 1
Finnugor01 HB User
Congenital scoliosis


I would like to ask someone if he or she has or had about a same or something like mine problem, what kind of thretment, maybe surgery was done and how he/she feels after that? I am now a little sad, upsat and dissappointed because the doctors, whom i visited so far, told me, there is not mutch can be done, the neurosurgen said, only one option, full spine fusion from C1 to L5, but rather dont do it! Losing full flexibility and partially too, that's very bad news.

I have a complex scoliosis what i was born with, and would like to ask that, can it be somehow straightend? The lumbar section wouldn't be so important. I more worry about my Thoracic-cervical level because there is a vegdes vertebrae what is the cause of my neck problem. It hurts when i twist my neck, there was a some moderate finger and glutealis paraesthesia but at the moment it disappeared. And sometimes i feel back pain too. And an interresting thing, when i drop something or falls down to the ground and i try to lift it up so, the stuff is behind my ankles, as a bend down with my left arm, at a point this arm gets compleet paralisys foe 1 secund. Actually the diagnosis is C1-2 are fused together and at the upper cervical level some of my process transverses at the right side are fused togedher too. Between the T3-4 vertebraes is a vedged one. Thatwhy i have ( as long as i remember) decreased head movement, but it's fully okey, my neck was never so mobil as the other kids and i never suffered from this. The main problem as i see in the mirror, my neck goes slowly left, compared to the midline of my chest. I swimm and doing exercises to prevent this and it seems a little to work but i feel it wont holting it from bending too long. I fear to sleep a little because a mounth or som weeks a go too, when i woke up, i felt serious pain and i touched my neck and see in the mirror, it bent a little and was a little closer to my left shoulder. I felt is around 4 times in the last 4 mounth if i remember correctly. It seems the vedged vertebrae is the root of my problem..and the others above. My lumbar section has a vedged vertebrae as well but i can take it.

My question would be; Can this vedged vertebrae somehow removed or straithened somehow, as to save a little head turning flexibility? Maybe separating the process transverses and put in a bone graft between the T3-T4 section? Just thinking. I try to send some photos from it..

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