It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....




Lightbulb

Search   Advanced Search
Showing results 1 to 50 of 122
Search took 0.03 seconds.
Search: Posts Made By: xtine04

Alternative to Searching: Try our message board index!
Board: Celiac Disease 07-11-2012, 08:12 PM
Replies: 4
Views: 2,607
Posted By xtine04
Re: GI doc says I don't have Celiac

i have similar symptoms and they diagnosed me with crohn's disease.. i don't actually fully accept it and have wondering about celiac as well. i gave up the gluten and my aches and pains have...
Board: Inner Ear Disorders 05-02-2012, 04:01 PM
Replies: 15
Views: 5,325
Posted By xtine04
Re: Perilymph Fistula

well- i did but the dumbass dr. i saw locally (i'm in canada) didn't patch me.. long story as he basically screwed up. i didn't bother with it again since i thought just the op could help in wound...
Board: Inner Ear Disorders 05-02-2012, 03:04 PM
Replies: 15
Views: 5,325
Posted By xtine04
Re: Perilymph Fistula

just if i can jump in.. look for a nuero-otoligist who is skilled with PLF surgery. i know of a couple.. i myself am in canada but was willing to travel to the US for surgery. I go my PLF from...
Board: Inner Ear Disorders 12-03-2010, 09:39 AM
Replies: 55
Views: 55,686
Posted By xtine04
Re: Perilymph Fistula

i saw him. he's a good dr. and you're in good hands. not sure what tests he'll order but he does his own unique tests as well (glycerin test). best of luck.
Board: Inner Ear Disorders 11-21-2010, 07:21 AM
Replies: 4
Views: 5,596
Posted By xtine04
Re: Perilymph Fistula Sufferers? (and the joys of BPPV)

stay strong- i couldn't find any doctors in canada to help- i had to travel to the US. trust yourself and your symptoms... doctors will try to convince you there is no such thing as PLFs.
Board: Inner Ear Disorders 11-21-2010, 07:19 AM
Replies: 55
Views: 55,686
Posted By xtine04
Re: Perilymph Fistula

hi frank- how are you doing post op now?
Board: Inner Ear Disorders 04-18-2010, 10:03 AM
Replies: 55
Views: 55,686
Posted By xtine04
Re: Perilymph Fistula

hi sandee.. congrats on finding a good dr. and getting surgery. i saw dr. lehrer for a diagnosis... he was the only doc. to believe in PLFs.

i'm sure you'll start to feel better soon... just...
Board: Inner Ear Disorders 04-17-2010, 06:55 PM
Replies: 55
Views: 55,686
Posted By xtine04
Re: Perilymph Fistula

tomfla- you will learn very quickly that good doctors are hard to find. it you have the means, i really do recommend travelling to see him. i am in canada and will have to pay out of pocket to see...
Board: Inner Ear Disorders 04-14-2010, 11:04 AM
Replies: 55
Views: 55,686
Posted By xtine04
Re: Perilymph Fistula

hi tomfla- his name is Dr. Gianoli. If you have any ear issues and can see him I highly recommend it.

i am glad you found the info helpful... anything i can do to help others makes me feel...
Board: Inner Ear Disorders 04-09-2010, 06:24 PM
Replies: 55
Views: 55,686
Posted By xtine04
Re: Perilymph Fistula

vin- i haven't had the surgery but from what i've heard from my friends that have recovery will be 6-8 weeks... it depends on a lot of factors but the most important thing you can do is follow...
Board: Inner Ear Disorders 04-09-2010, 06:20 PM
Replies: 61
Views: 55,734
Posted By xtine04
Re: Perilymph Fistula Sufferers? (and the joys of BPPV)

thanks for the update and good to hear you're better.

i became unexpectedly pregnant and am due to deliver a baby in may. my fistula has healed enough on it's own that i might not require...
Board: Brain & Nervous System Disorders 04-09-2010, 06:10 PM
Replies: 4
Views: 38,560
Posted By xtine04
Re: Cerebrospinal Fluid Leak

i have had a CSF leak for years. i have improved with bedrest and so far have gone undiagnosed by any physician.

if you think you're leaking CSF it's best to see if you improve with following...
Board: Inner Ear Disorders 12-06-2009, 07:22 PM
Replies: 3
Views: 2,149
Posted By xtine04
Re: How to deal with hearing loss at 17 yrs. old?

best if you can find a good neuro-otolgist to review your scans as well.

i am in Canada and plan to see a Dr. in Baton Rouge LA... the good ones are few and far between.
Board: Inner Ear Disorders 12-06-2009, 07:19 PM
Replies: 4
Views: 1,419
Posted By xtine04
Re: I get muscular aches and nauseated when I hear noise. What is wrong with me?

look into the symptoms of a perilymph fistula... also check into something called tullio's phenomenon as i'm pretty sure that is what you're referring to.

best of luck,
christine
Board: Inner Ear Disorders 10-10-2009, 07:17 PM
Replies: 5
Views: 107,438
Posted By xtine04
Re: Dizzy After Flying

symptoms triggered by pressure changes can indicate a perilymph fistula. there are only a few doctors in the US who really understand and know how to treat this. LVAS can cause a PLF and delay it's...
Board: Inner Ear Disorders 10-10-2009, 07:14 PM
Replies: 7
Views: 7,601
Posted By xtine04
Re: confused whether suffering through dizziness or some brain malfunctioning

u can get better but it depends on what is wrong and for that you'll need a firm diagnosis.

i only know of a handful of doctors who i would recommend and i have to go out of my own country for...
Board: Inner Ear Disorders 10-08-2009, 12:27 PM
Replies: 7
Views: 7,601
Posted By xtine04
Re: confused whether suffering through dizziness or some brain malfunctioning

these symptoms can all be due to vestibular damage. please seek out a good neuro-otologist.
Board: Inner Ear Disorders 09-17-2009, 12:16 AM
Replies: 1
Views: 1,361
Posted By xtine04
pregnancy?

anyone here dealing with a pregnancy while dizzy? or has gone thru one while dizzy?:wave:
Board: Inner Ear Disorders 09-17-2009, 12:09 AM
Replies: 14
Views: 15,629
Posted By xtine04
Re: Problem with Rocking Sensation Please Help

you might want to also look into the symptoms of a perilymph fistula... good luck
Board: Inner Ear Disorders 09-11-2009, 07:44 PM
Replies: 2
Views: 1,750
Posted By xtine04
Re: I finally get to a neuro-otologist - no help

have you looked into the symptoms of a perilymph fistula? these are all the symptoms that i experience. pay close attention to what triggers your condition... that's a big clue. my started by...
Board: Inner Ear Disorders 07-16-2009, 09:30 PM
Replies: 4
Views: 8,414
Posted By xtine04
Re: visual disturbance off balance

i have similar symptoms to you and have narrowed it down to a perillymph fistula...

i hope that helps.
Board: Sinus Problems 07-15-2009, 09:35 AM
Replies: 5
Views: 10,736
Posted By xtine04
Re: Right sinus pressure, ear "fluttering", ear/eye numbness

have you looked into the symptoms of a perilymph fistula?
Board: Inner Ear Disorders 06-08-2009, 08:58 PM
Replies: 1
Views: 1,673
Posted By xtine04
Re: Painful cracking in ear

see an ENT as you might have an infection or injury. i hope that helps...
Board: Anemia 06-06-2009, 07:31 AM
Replies: 1
Views: 3,145
Posted By xtine04
Re: breathing problem

well.. if u were tested +ve for anemia then i'd make sure to remember to take your iron. i seem to get quite a bit of heart related stuff as well as shallow breathing from my low iron. i'm sure the...
Board: Anemia 06-06-2009, 04:12 AM
Replies: 1
Views: 7,519
Posted By xtine04
why is my iron low?

why is my iron low and how do i begin to figure this out?

i seem to build iron slowly but as soon as i stop supplements my symptoms return... i decided on my own to cut back on iron as i was...
Board: Anemia 06-06-2009, 03:25 AM
Replies: 0
Views: 1,105
Posted By xtine04
Heme Iron?

Has anyone had much luck with heme iron supplements? i bought my over the counter and they seemed to have worked in the past but no one else seems to be taking the same sort of type as me.
...
Board: Anemia 06-05-2009, 05:14 AM
Replies: 8
Views: 9,832
Posted By xtine04
Re: Anemia.....Ferralet 90??

Oh my. I think this rapid heart beat has been happening to me. not so much from excerise but probably a combo of that and extra stress as i was helping my friend with her work ontop of my already...
Board: Anemia 06-05-2009, 05:04 AM
Replies: 4
Views: 2,551
Posted By xtine04
Re: Lab Results- many tests

thanks for your help. i guess i haven't been taking it for that long but i have been for a good 5-6 months. i did expect better results.

so, can i be iron deficent and not anemic but still get...
Board: Anemia 06-04-2009, 07:35 PM
Replies: 3
Views: 1,198
Posted By xtine04
Re: Scoped on Tuesday

basketcase over here!! i'm sure it'll all work out.... i can't offer much advice as i don't have much experience with your tests but i do know how u feel.

dealing with personal health issues plus...
Board: Anemia 06-04-2009, 06:38 PM
Replies: 4
Views: 2,551
Posted By xtine04
Question Lab Results- many tests

Can someone translate this for me? i'm not sure what i was tested for...

my iron was 3 (normals range from 11-27)
Iron binding capacity is 58 (normal 45-72)
SATURATION IS .05 :o (normal is...
Board: Inner Ear Disorders 05-30-2009, 06:11 AM
Replies: 13
Views: 24,339
Posted By xtine04
Re: If You Were Diagnosed with MAV-PLEASE READ!

you might want to take a step back and see what is causing the chiari. i have this too although i don't have a diagnosis... i have all the classic MAV symptoms although have discovered it's when i...
Board: Inner Ear Disorders 05-07-2009, 08:23 PM
Replies: 5
Views: 1,749
Posted By xtine04
Re: Trying to help my wife.

look into the possibilities of a Perilymph Fistula and or a CSF leak. A few weeks of bedrest might help her mend... follow the no lifting, bending, straining precautions.

I had horrible anxiety,...
Board: Anemia 04-30-2009, 01:47 AM
Replies: 12
Views: 5,384
Posted By xtine04
Re: Hair Falling Out... still???

thanks flowergirl! i'll follow up with my latest blood tests and request another thyroid check... after all, some of my aunts and dad have thyroid issues.

i'm beginning to wonder if my hair loss...
Board: Inner Ear Disorders 04-29-2009, 11:45 AM
Replies: 3
Views: 16,949
Posted By xtine04
Re: Weird static buzzing in one ear?

I have something similar... and it's a perilymph fistula. not saying you have this, but don't plug your nose and blow because that can cause damage to your ears especially if you have a PLF.
Board: Anemia 04-29-2009, 11:39 AM
Replies: 12
Views: 5,384
Posted By xtine04
Hair Falling Out... still???

Hi All,

Just wondering how long the hair shedding lasts typically. i still notice quite a bit of hair loss. last i checked (3 months ago) my iron was just getting into normal range. I just got...
Board: Inner Ear Disorders 04-22-2009, 07:03 PM
Replies: 5
Views: 5,280
Posted By xtine04
Re: Dizziness and Head Pressure - Please Help

did u fly to NYC... i would look up symptoms of a perilymph fistula.. hope that helps.
Board: Inner Ear Disorders 04-17-2009, 05:18 PM
Replies: 26
Views: 28,210
Posted By xtine04
Re: Surgery for Superior Semicircular Canal Dehiscence

i wish you all the best with a speedy recovery. do u think you're on the mend now? don't know much about SCD but i have a thinning bone on my left side.. although have a fistula on the right which...
Board: Inner Ear Disorders 04-12-2009, 04:40 PM
Replies: 20
Views: 32,994
Posted By xtine04
Re: veritgo, ear pain, enlarged lymph node in base of skull

just keep in mind that the test isn't 100%. i know of leakers who have taken the tests and have gotten negative results even tho they had leaks seen during surgery.

either way, i hope it works. ...
Board: Inner Ear Disorders 04-10-2009, 03:35 PM
Replies: 5
Views: 2,916
Posted By xtine04
Re: Help......Dizzyness ......Inner ear.....I am a college athlete

did you have any head injury which might have started all of this? you might want to look into the symptoms of a perilymph fistula. good luck.
Board: Inner Ear Disorders 04-08-2009, 06:33 PM
Replies: 11
Views: 10,981
Posted By xtine04
Re: Inner Ear Misdiagnosis? Panic Disorder? Looking for Opinions.

yes you me mentioned that you're worse after exercise and that's how it it for me. i get dizzy and disoriented after exertion or straining. if things get really bad or persist i lose CSF as well.
...
Board: Inner Ear Disorders 04-08-2009, 06:26 PM
Replies: 20
Views: 32,994
Posted By xtine04
Re: veritgo, ear pain, enlarged lymph node in base of skull

btw- someone with a csf leak told me that if you do find yourself in ER looking for help.. you can try an IV to help bring up your ICP.
Board: Inner Ear Disorders 04-08-2009, 05:55 PM
Replies: 20
Views: 32,994
Posted By xtine04
Re: veritgo, ear pain, enlarged lymph node in base of skull

wow. i could have written this word for word. i have been getting optical nerve pain recently as well as my increase of sinus pain is just to the right of my nose.... i've been taking it easy tho...
Board: Inner Ear Disorders 04-07-2009, 04:20 PM
Replies: 11
Views: 10,981
Posted By xtine04
Re: Inner Ear Misdiagnosis? Panic Disorder? Looking for Opinions.

panic and anxiety was one of my first symptoms and i have a perilymph fistula from an injury.
Board: Inner Ear Disorders 04-06-2009, 02:26 PM
Replies: 55
Views: 55,686
Posted By xtine04
Re: Perilymph Fistula

don't be hard on yourself... i've been to h#ll and back so i guess that's why the 'positive' approach. i also lose CSF so when i don't lose that i'm pretty happy that my brain is just staying put. ...
Board: Inner Ear Disorders 04-04-2009, 02:12 PM
Replies: 7
Views: 2,463
Posted By xtine04
Re: Neurootologist appointment

oh sunnybrook- i did go there.. the head guy kicked me out of his office for even suggesting what i think i have. he told me that my symptoms were a 'figment of my imagination, my dear' and that...
Board: Inner Ear Disorders 04-04-2009, 12:09 AM
Replies: 2
Views: 1,091
Posted By xtine04
Re: diziness, mild headache

make sure your iron stores are tested and even if you're on the lower end, you might benefit from taking some iron.
Board: Inner Ear Disorders 04-03-2009, 06:32 PM
Replies: 55
Views: 55,686
Posted By xtine04
Re: Perilymph Fistula

i know what you mean. i'd struggled for 2 years. i have a 2.5 yr old and 4.5 yr old. i stay home with them and not work.. i feel so guilty that i can't do what i can normally do. my 2 yr old...
Board: Inner Ear Disorders 04-03-2009, 05:01 PM
Replies: 55
Views: 55,686
Posted By xtine04
Re: Perilymph Fistula

geez. maybe i should travel to Alaska to get fixed :-) i'm in canada and it seems that many doctors don't embrace PLFs here.

i am lucky in a way because i can feel myself leak because i also lose...
Board: Inner Ear Disorders 04-03-2009, 10:16 AM
Replies: 7
Views: 2,463
Posted By xtine04
Re: Neurootologist appointment

is he in toronto? he sounds like my doc... i am to be 're-evalutated' in 3 months.
Board: Inner Ear Disorders 04-03-2009, 10:13 AM
Replies: 55
Views: 55,686
Posted By xtine04
Re: Perilymph Fistula

shawna- please be thankful that you know what you have and you have a dr. who is ready to help.

i suspect i have had a plf for 2 years now and i have gotten horrible treatment from my doctors. ...
Showing results 1 to 50 of 122

 







All times are GMT -7. The time now is 06:11 PM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2017 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!