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Board: Bowel Disorders 05-22-2017, 10:36 PM
Replies: 4
Views: 540
Posted By NOTSONUTSO
Re: Coping with permanent ileostomy

Thank you!�� I see a therapist twice a month, and am on medication for depression. I know I will eventually come to terms with being a "bag lady." I don't really have a choice as I will not be...
Board: Bowel Disorders 05-20-2017, 05:56 PM
Replies: 4
Views: 540
Posted By NOTSONUTSO
Re: Coping with permanent ileostomy

Wow? Nobody here has an Ileostomy?😮
Board: Bowel Disorders 05-17-2017, 05:26 PM
Replies: 4
Views: 540
Posted By NOTSONUTSO
Lightbulb Coping with permanent ileostomy

I had colon removed almost 4 mos. ago due to severe nerve damage.
I have not regretted the surgery, but have had very difficult adjustment.
It is not getting any easier.

Anyone else with an...
Board: Pain Management 06-28-2016, 12:11 AM
Replies: 23
Views: 2,987
Posted By NOTSONUTSO
Re: Tapering off oxycodone after 16 years?

Thank you. I don't see a pain doctor. No pain clinics accept Medicaid where I live.

The oxycodone is not doing anything for my pain. Not has never been this bad. I plan to go to Urgent Care...
Board: Pain Management 06-28-2016, 12:04 AM
Replies: 19
Views: 3,921
Posted By NOTSONUTSO
Re: New FDA/CDC guidelines

That is very sad and scary.
As I write this I am in agony. Pain has never been this bad. I took my oxycodone and it gave me zero relief. I don't know where to turn to.
Board: Pain Management 06-20-2016, 12:35 PM
Replies: 23
Views: 2,987
Posted By NOTSONUTSO
Re: Tapering off oxycodone after 16 years?

Well, it looks like I won't be weaned off oxycodone 10/350. But my dosage has been reduced from 150 (last year) to 120 to 90 and now 60. I have no break-through medication. I am in agony a...
Board: Pain Management 06-20-2016, 12:19 PM
Replies: 19
Views: 3,921
Posted By NOTSONUTSO
Re: New FDA/CDC guidelines

Well, it has happened. My oxycodone 10/350 has been reduced from 150 (last year) to 120 to 90, and now 60. I am in pain every waking moment. I'm canceling my long-anticipated trip to Seattle. No...
Board: Pain Management 06-20-2016, 11:35 AM
Replies: 4
Views: 1,213
Posted By NOTSONUTSO
Re: Chronic pain and opiods

Let us know how it works out.
Board: Pain Management 05-27-2016, 01:11 PM
Replies: 23
Views: 2,987
Posted By NOTSONUTSO
Unhappy Re: Tapering off oxycodone after 16 years?

Thank you very much. I agree about the NP. She seems to have targeted me as a pill popper.

I wish I could take Lyrica, Cymbalta, trazodone, etc., but I have had bad reactions to all. Pain...
Board: Pain Management 05-20-2016, 09:33 PM
Replies: 23
Views: 2,987
Posted By NOTSONUTSO
Exclamation Re: Tapering off oxycodone after 16 years?

Was told by NP at recent appt. that the new doctor plans to reduce oxycodone from 90 to 60 pills. This scared me as I have not even had first appt. with her.
Board: Pain Management 05-10-2016, 01:27 AM
Replies: 23
Views: 2,987
Posted By NOTSONUTSO
Exclamation Re: Tapering off oxycodone after 16 years?

Found out yesterday, when I see new PCP in July, she will cut my oxycodone from 90 to 60 count.

My dosage is 10/350. Wouldn't it make better sense to reduce dosage before reducing number of...
Board: Pain Management 05-10-2016, 01:18 AM
Replies: 19
Views: 3,921
Posted By NOTSONUTSO
Exclamation Re: New FDA/CDC guidelines

I had appt. yesterday to get pain scrip and do urinalysis.

Found out a new PCP has been hired to replace my wonderful, compassionate doctor, who is retiring June 30th.

I was told by NP that the...
Board: Pain Management 05-05-2016, 02:09 PM
Replies: 19
Views: 3,921
Posted By NOTSONUTSO
Exclamation Re: New FDA/CDC guidelines

I get my Percocet 10/650 from my PCP who is retiring. Can't go to pain mgmt clinic because none here accept Medicaid.
My Percocet/0xycodone has already been reduced from 150 per month to 120, and...
Board: Pain Management 05-04-2016, 06:48 PM
Replies: 19
Views: 3,921
Posted By NOTSONUTSO
Exclamation New FDA/CDC guidelines

Has anyone had their pain medication reduced or cut off entirely with their doctor giving FDA/CDC guidelines as reason?
Board: Pain Management 05-04-2016, 06:40 PM
Replies: 23
Views: 2,987
Posted By NOTSONUTSO
Re: Tapering off oxycodone after 16 years?

I am unable to go to a pain mgmt clinic because the clinics here do not accept Medicaid.

Can you clarify how you were able to taper off pain meds despite having severe pain? Do you still have...
Board: Pain Management 05-04-2016, 06:26 PM
Replies: 23
Views: 2,987
Posted By NOTSONUTSO
Re: Tapering off oxycodone after 16 years?

Thank you. I doubt there is any chance of me getting this medication, especially since I cannot go to a pain clinic. Does this leave NSAIDS as only option? I hope the doctor does not try to force...
Board: Pain Management 05-04-2016, 06:21 PM
Replies: 23
Views: 2,987
Posted By NOTSONUTSO
Re: Tapering off oxycodone after 16 years?

Thank you. I cannot go to a pain mgmt clinic because none of them accept Medicaid (state of Louisiana does not mandate treatment of
Board: Pain Management 05-04-2016, 06:17 PM
Replies: 23
Views: 2,987
Posted By NOTSONUTSO
Re: Tapering off oxycodone after 16 years?

No, the UA thing I was talking about doesn't apply if it is your only med and prescribed to take on a schedule. It would be applicable if the short acting med was prescribed only as needed. In that...
Board: Pain Management 04-23-2016, 10:41 PM
Replies: 23
Views: 2,987
Posted By NOTSONUTSO
Lightbulb Re: Tapering off oxycodone after 16 years?

What a great response! I appreciate you taking time. You made me feel so much better.

Yes, the only pain medication I take is Percocet 10/350 X 3 per day. It is prescribed as needed. I decided...
Board: Health Insurance SSDI Issues 04-22-2016, 03:11 PM
Replies: 12
Views: 3,042
Posted By NOTSONUTSO
Board: Pain Management 04-22-2016, 03:00 PM
Replies: 23
Views: 2,987
Posted By NOTSONUTSO
Unhappy Tapering off oxycodone after 16 years?

Can it be done? How? I can't take NSAIDS because years ago a high dose made my stomach bleed.

I have severe abdominal/pelvic nerve pain, and fibro.

My wonderful, compassionate doctor is...
Board: Pain Management 04-22-2016, 02:30 PM
Replies: 12
Views: 2,846
Posted By NOTSONUTSO
Re: Horrible Doctor's Appointment

It's the new FDA/CDC guidelines that have doctors running scared.

There is a war on chronic pain patients, and I'm about to be caught up in it as my wonderful, compassionate doctor is retiring.
Board: Pain Management 06-24-2015, 12:51 PM
Replies: 1
Views: 1,115
Posted By NOTSONUTSO
Thumbs down Time Magazine cover story (this week)

"They're the most powerful painkillers ever invented. And they're creating the worst addiction crisis America has ever seen."

This article freaked me out. Once again the media gets it wrong. ...
Board: Neuropathy 07-30-2014, 11:57 PM
Replies: 0
Views: 1,174
Posted By NOTSONUTSO
Unhappy Anyone have abdominal neuropathy?

I have nerve pain in my abdomen that causes feeling of fullness & constant bloat, not to mention severe pain.
In April, I suddenly developed burning pain in my feet, hands & back. It feels like...
Board: Fibromyalgia 05-02-2014, 01:52 AM
Replies: 3
Views: 570
Posted By NOTSONUTSO
Re: H e l p!!!!

Thank you. I have been on gabopentin (neurontin) for over a year. It helps some with the abdominal neuralgia, but does nothing for the numbness/burning pain in feet & hands. Is neuropathy common...
Board: Fibromyalgia 05-01-2014, 11:02 PM
Replies: 3
Views: 570
Posted By NOTSONUTSO
Unhappy H e l p!!!!

I've had fibromyalgia for over 10 years. I was stable through 2002 to late 2012 when I developed abdominal neuralgia which caused excruciating pain, massive bloat sensation, early satiation &...
Board: Fibromyalgia 04-22-2013, 12:01 PM
Replies: 6
Views: 1,293
Posted By NOTSONUTSO
Lightbulb Re: Abdominal neuralgia/neuropathy???

Please, can't someone at least tell me if a neurologist can help me??? And is it true that rheumatologists do not treat fibromyalgia?

I had another agonizing night last night. I took 6...
Board: Neuropathy 04-22-2013, 11:57 AM
Replies: 1
Views: 1,627
Posted By NOTSONUTSO
Lightbulb Re: Abdominal neuropathy/neuralgia???

Please is there someone who can at least tell me if a neurologist can help me? I am desperate for the abdominal neuralgia/neuropathy to stop! I need to know if there are any treatments.

This...
Board: Fibromyalgia 04-22-2013, 12:03 AM
Replies: 6
Views: 1,293
Posted By NOTSONUTSO
Unhappy Abdominal neuralgia/neuropathy???

In late November, I developed constant burning pain in upper abdomen. I lost over 30 lbs because it hurt to eat. I thought it was gastro-related.
I had colonoscopy & stomach scope & was diagnosed...
Board: Neuropathy 04-21-2013, 11:42 PM
Replies: 1
Views: 1,627
Posted By NOTSONUTSO
Unhappy Abdominal neuropathy/neuralgia???

I developed burning abdominal pain in late November. I thought it was gastro-related. I had colonoscopy & stomach scope & was diagnosed with mild gastritis. I thought the cause of the pain had...
Board: Neuropathy 03-23-2013, 04:54 PM
Replies: 0
Views: 513
Posted By NOTSONUTSO
Lightbulb Neuralgia or neuropathy??

I have had numb "sensations" throughout body for years that cause occasional balance problems. I've also had nerve pain for years--was diagnosed with lupus in 2002, then undiagnosed. Was told I...
Board: Irritable Bowel Syndrome (IBS) 02-24-2013, 07:42 PM
Replies: 4
Views: 2,104
Posted By NOTSONUTSO
Lightbulb Re: Kind of an IBS newbie, feeling very lost & hopeless...

OMG, I read your post & just had to respond even though I don't have any advice. Are you feeling any better yet? If I were you, I would report that doctor to the Michigan Medical Examiner. ...
Board: Digestive Disorders 01-14-2013, 01:26 PM
Replies: 2
Views: 775
Posted By NOTSONUTSO
Lightbulb Re: H e l p ! ! !

I never heard of it. How is it diagnosed?

I have had no stool sample tests, ultrasound or even an upper/lower GI.

Just abdominal CT scans (2) stomach xrays & labwork.

In early 2000s I...
Board: Digestive Disorders 01-11-2013, 11:21 PM
Replies: 2
Views: 775
Posted By NOTSONUTSO
Lightbulb H e l p ! ! !

It is one month today that I began to experience constant abdominal pain.
I have long history of constipation & was on prescription Kristalose since 2002 until it began to myseriously make me ill...
Board: Irritable Bowel Syndrome (IBS) 01-10-2013, 07:23 PM
Replies: 2
Views: 2,433
Posted By NOTSONUTSO
Unhappy Pain is unbearable

For a month (starting Dec. 12th) I have had constant abdominal pain. I have lost weight due to pain/bloating/feeling of fullness.
When I force myself to eat, there is awful pain. I have very bad...
Board: Digestive Disorders 12-13-2012, 12:08 AM
Replies: 4
Views: 935
Posted By NOTSONUTSO
Re: Colon removal surgery?? !!! ??

Yes, I have been on percocet for years & was recently prescribed fentanyl patch. I was prescribed Relistor which did not work after 5 injections. It is for people whose constipation is caused by...
Board: Digestive Disorders 12-12-2012, 11:47 PM
Replies: 4
Views: 935
Posted By NOTSONUTSO
Re: Colon removal surgery?? !!! ??

I have a small bowel movement every 3 weeks or so. Loss of appetite due to the awful bloating. If I drank 3 bottles of magnesium citrate, it would give me minimal diahrrea at best. I know it is a...
Board: Digestive Disorders 12-12-2012, 05:44 PM
Replies: 4
Views: 935
Posted By NOTSONUTSO
Lightbulb Colon removal surgery?? !!! ??

I used/abused prescription and over-the-counter laxatives for over 10 years (enemas too). They do not work for me anymore.

Abdominal CT scan & xrays are normal. I had the first two xrays of...
Board: Bowel Disorders 09-28-2012, 12:31 AM
Replies: 7
Views: 1,265
Posted By NOTSONUTSO
Re: I've reached the point where I want to have colon removed!!

Thank you very much for your informative comment. I really am unable to have b/m without major help. The Kristlose I've been on for 10 years used to work great. Only thing is I never should have...
Board: Bowel Disorders 09-27-2012, 03:02 PM
Replies: 4
Views: 1,003
Posted By NOTSONUTSO
Re: Please help, starting to worry!

Thank you. I'm glad to hear good news--that you've had no more icky issues. I know it's embarrassing to post about stuff like this. I'd rather be boiled in oil !

I really do not think I have...
Board: Bowel Disorders 09-27-2012, 02:48 PM
Replies: 7
Views: 1,265
Posted By NOTSONUTSO
Re: I've reached the point where I want to have colon removed!!

I just realized you are in England. I hope the health system is not too vastly different than America. (doctors)
Board: Bowel Disorders 09-27-2012, 02:46 PM
Replies: 7
Views: 1,265
Posted By NOTSONUTSO
Re: I've reached the point where I want to have colon removed!!

YES!! PLEASE let me know how you got a doctor to do that for you.
Right now, I do not even have a gastroenterologist. I simply cannot
live like this. It's the digestive part but also the damage...
Board: Bowel Disorders 09-26-2012, 08:32 PM
Replies: 4
Views: 1,003
Posted By NOTSONUTSO
Re: Please help, starting to worry!

Sorry you did not get any response!!! I actually wish I could trade places with you. I have the opposite problem. Be careful with laxatives or you will end up like me. After 10 years of...
Board: Bowel Disorders 09-26-2012, 08:28 PM
Replies: 7
Views: 1,265
Posted By NOTSONUTSO
Red face I've reached the point where I want to have colon removed!!

Ten years of daily prescription laxative has ruined my digestive system. Seriously, I can drink 3 bottles of magnesium citrate & almost nothing happens. That would be enough to keep any "normal"...
Board: Digestive Disorders 08-29-2012, 05:29 PM
Replies: 5
Views: 1,784
Posted By NOTSONUTSO
Re: 80 mgms of Kristalose yesterday & today...and nothing.

Forgot to ask, what prescriptions have not worked for you?
Board: Digestive Disorders 08-29-2012, 05:27 PM
Replies: 5
Views: 1,784
Posted By NOTSONUTSO
Re: 80 mgms of Kristalose yesterday & today...and nothing.

It got even worse yesterday. 80 mgs of Kristalose did not work again (after not working on Sunday). So the bloating was unbearable & I drank another two glass of 20 mg Kristalose powder each. Got...
Board: Digestive Disorders 08-26-2012, 07:44 PM
Replies: 5
Views: 1,784
Posted By NOTSONUTSO
Lightbulb 80 mgms of Kristalose yesterday & today...and nothing.

I just read the post I wrote back in Nov. 2004 where I called Kristalose a 'life-saver.' I was prescribed two 20 mg powders (mixed with water) in May of 2002 after years, and I mean YEARS of severe...
Board: Pain Management 08-11-2012, 08:26 PM
Replies: 4
Views: 2,423
Posted By NOTSONUTSO
Re: Long-Term Percocet Use

I've been prescribed percocet since 2001. Started out with the "5s" & went to 7s & have been on 10/650 since Sept. 2007. I wish I could get on a long-acting medication. I do not have any side...
Board: Pain Management 08-11-2012, 08:16 PM
Replies: 4
Views: 1,376
Posted By NOTSONUTSO
Re: Nervous About LA Pain Meds

Wow, I wish I had your "problem." Sorry if I am minimizing your fear of opiates but there are many pain patients who aren't even given the options you have. I've been prescribed percocet since...
Board: High & Low Blood Pressure 08-11-2012, 08:06 PM
Replies: 1
Views: 921
Posted By NOTSONUTSO
Question High B/P at dr. appt. despite 3 different BP meds!

My blood pressure was 181/92 at doctor appt. last week. I have a home BP cuff & it was much lower the night before. This happens every time I go to the doctor--I very nervous & unable to calm...
Showing results 1 to 50 of 253

 







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