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Board: Multiple Sclerosis 11-12-2017, 10:09 PM
Replies: 5
Views: 259
Posted By MSJayhawk
Re: My mother is having terrible symptoms

Hitmaker,

I would encourage you to introduce your mom to this site. Perhaps she would benefit from lurking or even asking things :angel:
Board: Multiple Sclerosis 11-12-2017, 10:07 PM
Replies: 5
Views: 259
Posted By MSJayhawk
Re: My mother is having terrible symptoms

Hitmaker,

Meds can add to our woes. There are lifestyle aides available to assist with MSers.. Speaking with her doctor, if you are able, can help her. Sometime a change in meds is necessary....
Board: Multiple Sclerosis 11-12-2017, 08:01 AM
Replies: 5
Views: 259
Posted By MSJayhawk
Re: My mother is having terrible symptoms

Thank you for sharing. One of the difficulties may be the fall your mom experienced as concussions can leave long term effects. I am not a doctor. but I think some of her problems stem from the fall....
Board: Multiple Sclerosis 11-06-2017, 11:17 PM
Replies: 8
Views: 616
Posted By MSJayhawk
Re: I don't know what has happened to me and need help (LONG)

Silver fillings have often be called into question, BUT this is a false theory. This has been repeatedly presented over the years. Many dentists have made money off of MSers needlessly. ...
Board: Multiple Sclerosis 10-30-2017, 12:55 PM
Replies: 5
Views: 435
Posted By MSJayhawk
Re: MS and cold

Rem4,

Nice update :) Glad you are headed in the right direction :angel:
Board: Multiple Sclerosis 10-29-2017, 11:17 AM
Replies: 5
Views: 435
Posted By MSJayhawk
Re: MS and cold

Rem,

When my colds/ etc overwhelm my immune system which is already in hyperdrive, I have found that taking 3000 mg of vitamin C 3-4 times a day helps me. I continue to take it 2-3 days after...
Board: Multiple Sclerosis 10-27-2017, 09:26 AM
Replies: 8
Views: 616
Posted By MSJayhawk
Re: I don't know what has happened to me and need help (LONG)

Rosemerryn ,

:wave: Welcome. Going to see the GP is a good thing, but because you were diagnosed with MS, your GP may have his blinders on when working with you. Those things you described do...
Board: Multiple Sclerosis 10-08-2017, 09:03 AM
Replies: 2
Views: 364
Posted By MSJayhawk
Re: PML risk, Tysabri and Lemtrada

Daphnie,

Being positive for JC throws a wrench into the situation. Even if you were not JC positive, you would still need to be vigilantly monitored. The fact that you are JC positive requires a...
Board: Multiple Sclerosis 09-27-2017, 12:50 PM
Replies: 3
Views: 651
Posted By MSJayhawk
Re: MS recent possible diagnosis

Purplekittens,

:wave: Welcome.

There was a time when an MS diagnosis was a cause to give up and wait for the end. Fortunately, we know more nowadays. I have had MS for 40+ years.

That...
Board: Multiple Sclerosis 09-20-2017, 11:05 PM
Replies: 3
Views: 371
Posted By MSJayhawk
Re: tissue loss/scarring with Copaxone

tiku67,

Some MSers might experience a reaction to the injection site, but it is impossible to know how long or whether or not you might experience a reaction. Site reactions are possible effects...
Board: Multiple Sclerosis 09-04-2017, 09:07 AM
Replies: 4
Views: 614
Posted By MSJayhawk
Re: MS related pain?

mickchick1962,

I would side with the arthritis angle, BUT I would also not dismiss the involvement or link with MS. The feeling of uneasiness/panic can be the MS link. Anxiety or stress can...
Board: Multiple Sclerosis 08-24-2017, 08:06 PM
Replies: 3
Views: 519
Posted By MSJayhawk
Re: Question for a friend who was diagnosed, then un-diagnosed.

firemom31,

If your friend met the Revised McDonald Criteria, then the diagnosis should stand. Another MS Specialist should be sought. That said, absent the lesions, the D deficiency could...
Board: Multiple Sclerosis 08-14-2017, 08:11 PM
Replies: 2
Views: 457
Posted By MSJayhawk
Re: Urinary Retention

Elle J,

Bladder issues can be stress and anxiety triggered too. Under increased stress, personally I have an increased bladder as well as bowel frequency. Also to be considered are dietary...
Board: Multiple Sclerosis 08-11-2017, 11:40 AM
Replies: 8
Views: 868
Posted By MSJayhawk
Re: Stuck between a rock and a hard place!

Rosebud45,

One day at a time is all we have. If she is under your roof, then there has to be an understanding. Food is often used as a tool dating to childhood control issues.

That said, ...
Board: Multiple Sclerosis 08-06-2017, 09:51 PM
Replies: 8
Views: 868
Posted By MSJayhawk
Re: Stuck between a rock and a hard place!

Rosebud45,

As she is a grown adult, it is difficult to effect a change without her cooperation. Given your national healthcare differs from that of the US, I am unsure if your daughter can get...
Board: Multiple Sclerosis 08-01-2017, 09:44 PM
Replies: 3
Views: 370
Posted By MSJayhawk
Re: Update

Nae948 ,

Your doctor needs to be addressing your Vitamin D deficiency. While the deficiency will not cause lesions, it will cause MS like symptoms which could cause you conflicts between MS and...
Board: Multiple Sclerosis 07-15-2017, 07:59 AM
Replies: 8
Views: 868
Posted By MSJayhawk
Re: Stuck between a rock and a hard place!

Rosebud45 ,

:wave: Welcome.

Isolation only feeds a cycle of depression which feeds onto itself. Staying in bed will only continue to weaken her and intensify the effects.
...
Board: Multiple Sclerosis 07-11-2017, 05:17 PM
Replies: 3
Views: 381
Posted By MSJayhawk
Re: Looking for a new Neuro in NJ

Reeny706

There is a search link in the stickies at the top of the forum page. It can locate an MS Specialist based on your zip code. :) :angel:
Board: Multiple Sclerosis 07-10-2017, 10:30 PM
Replies: 3
Views: 443
Posted By MSJayhawk
Re: Ultra-sensitive arms

CI1967,

My MS has been PPMS since I was diagnosed. My symptoms can start out slowly or strike quickly. There is no rhyme or reason. It might also be that you have had a symptom but your...
Board: Multiple Sclerosis 07-10-2017, 09:01 PM
Replies: 3
Views: 443
Posted By MSJayhawk
Re: Ultra-sensitive arms

CI1967,

There is no set symptom exclusive to one MS type. What you might be experiencing is the scar tissue interrupting the nerves. As a lesion develops and then heals, it can leave a...
Board: Multiple Sclerosis 07-03-2017, 10:30 PM
Replies: 5
Views: 695
Posted By MSJayhawk
Re: medication for bladder issues

Elle,

Welcome :wave:

For me, bladder issues arise from stress. As my stress increases, my bladder frequency increases. Do you know if you have any triggers? Medications are not always...
Board: Open to All Other Health Topics 07-02-2017, 06:24 PM
Replies: 6
Views: 493
Posted By MSJayhawk
Re: Confused

J,

:wave: Welcome.

I would encourage you to seek the opinion of an MS Specialist. A general neurologist may not have the real time experience working with MS diagnoses. The diagnosis follows...
Board: Multiple Sclerosis 06-07-2017, 09:29 AM
Replies: 1
Views: 3,608
Posted By MSJayhawk
re: MS Specialists and Resources

An MS Specialist can help you get answers sooner. Finding a doctor varies by country and location. The list below is a starting point for locating an MS Specialist.

1. United States. American...
Board: Open to All Other Health Topics 06-05-2017, 07:23 PM
Replies: 7
Views: 594
Posted By MSJayhawk
Re: Please help me figure out these new "attacks" I'm having

John,

Short time durations are typically not MS related, however, it can be subjective. When you have pain or symptom presentation, the tolerances may vary, but the presentation is long...
Board: Open to All Other Health Topics 06-04-2017, 09:44 PM
Replies: 10
Views: 559
Posted By MSJayhawk
Re: How much can a neuro exam show?

lizzie72

Medications and changes to medications or dosage changes can bring forth side effects.

As to a normal neurological exam, were it MS, there would likely be an abnormal result. BUT...
Board: Open to All Other Health Topics 06-04-2017, 09:35 PM
Replies: 7
Views: 594
Posted By MSJayhawk
Re: Please help me figure out these new "attacks" I'm having

John,

:wave: Welcome.

MS Symptoms are or can be all over the place. Lesion placement and existing scar tissue (old lesions) can be responsible for new symptoms. Also, you have to consider...
Board: Open to All Other Health Topics 06-01-2017, 03:11 AM
Replies: 5
Views: 632
Posted By MSJayhawk
Re: Is this MS, Lupus,tumor, adrenal disease?

Confusednut ,

:wave: Welcome.

Your anxiety and familial stressors both which your and your pregnancy may be linked.

I would encourage you to address any cardio issues first. Please...
Board: Open to All Other Health Topics 05-26-2017, 10:21 PM
Replies: 5
Views: 642
Posted By MSJayhawk
Re: Some Questions

dove062476,

When I sit down for awhile, my legs "shutdown" ; in the mornings it is like pouring molasses in January.

Sore and tight muscles may respond to hydration and stretching. For me, ...
Board: Open to All Other Health Topics 05-25-2017, 12:04 AM
Replies: 5
Views: 642
Posted By MSJayhawk
Re: Some Questions

dove062476,

Low Vitamin D and B12 are known MS mimicries. At one time EBV was studied as being the cause of MS, but this has never been proven. The EBV angle has repeated in a few "cycles" , ...
Board: Open to All Other Health Topics 05-22-2017, 09:08 PM
Replies: 2
Views: 532
Posted By MSJayhawk
Re: Is this MS?

braud001,


:wave: Welcome.

Some of the impediments which you shared could very well be linked to your scoliosis. The fact that your GF left can cause depression and stress which can mimic...
Board: Multiple Sclerosis 05-19-2017, 09:00 PM
Replies: 10
Views: 1,099
Posted By MSJayhawk
Re: Painful hips

greenteafiend,

I have hip and thigh pains as well as sciatic and back pain. These can all occur at the same time or vary. Many of my major pain issues come or present when my body is out of...
Board: Open to All Other Health Topics 05-17-2017, 07:45 PM
Replies: 12
Views: 682
Posted By MSJayhawk
Re: After this, no more doctors

dove062476,

Regardless of the situation, as you are D and B12 deficient, these will have to be addressed. If you are lacking lesions, you will likely need to correct the deficiencies and allow...
Board: Open to All Other Health Topics 05-16-2017, 04:24 PM
Replies: 12
Views: 682
Posted By MSJayhawk
Re: After this, no more doctors

dove062476,

Deficiencies can mimic MS. A vitamin D deficiency, for example, will begin to reverse, BUT it is not an overnight healing. You might not notice changes until your levels are...
Board: Open to All Other Health Topics 05-16-2017, 12:23 PM
Replies: 12
Views: 682
Posted By MSJayhawk
Re: After this, no more doctors

Hi dove062476,

Lyme disease can have false positives, BUT it could still be in play. I would encourage you to seek an infectious disease specialist for a definitive test. MS mimicries could...
Board: Open to All Other Health Topics 05-07-2017, 06:14 PM
Replies: 3
Views: 460
Posted By MSJayhawk
Re: speech paraphasis

abcwangfoo,

Speech issues can arise if MS or MS like lesions attack the part of the brain that controls verbal communication or the nerves that send communication between the mouth and brain....
Board: Multiple Sclerosis 05-04-2017, 08:01 PM
Replies: 7
Views: 1,003
Posted By MSJayhawk
Re: Before I respond to this e-mail...

Okiegirl,

You possess a great attitude. "if it gives me a feeling of fighting against the MS, then I will continue my therapy." Stick with that attitude and you will do well :) :angel:
Board: Multiple Sclerosis 05-04-2017, 08:16 AM
Replies: 7
Views: 1,003
Posted By MSJayhawk
Re: Before I respond to this e-mail...

Okiegirl,

My MS Specialist assists with the ALS clinic next to her office when they are really busy. Part of her diagnosis is to eliminate the possibility of ALS early on.

I see my doctor...
Board: Open to All Other Health Topics 04-25-2017, 06:49 PM
Replies: 19
Views: 1,405
Posted By MSJayhawk
Re: All of a sudden things change.

Blathanna,

Conspiracy thoughts aside, you have to meet the Revised McDonald Criteria, which the doctors do not appear to believe you have met the criteria.

You are not alone in your...
Board: Open to All Other Health Topics 04-15-2017, 07:45 PM
Replies: 4
Views: 546
Posted By MSJayhawk
Re: Numerous lesions and no change?

Blathanna,

MS is not an exclusive lesion producing concern and thus you could have MS lesions as well as other lesions. I am not acquainted with the vernacular used by the doctor discussing...
Board: Open to All Other Health Topics 04-15-2017, 03:54 PM
Replies: 4
Views: 546
Posted By MSJayhawk
Re: Numerous lesions and no change?

Blathanna,

Are all the lesions of the same cause. If they were or are, then you would have change. As the doctors do not seem to link the lesions, the answer is no interval change. The...
Board: Open to All Other Health Topics 04-12-2017, 09:54 AM
Replies: 2
Views: 325
Posted By MSJayhawk
Re: CT Scan

Blathanna,

Give it time to process through the weekend. Patience is always necessary. Sorry to hear that your CT was not comfortable. :angel:
Board: Open to All Other Health Topics 04-10-2017, 02:10 PM
Replies: 6
Views: 449
Posted By MSJayhawk
Re: CT Angiography.

Blathanna,

Best of luck :angel:
Board: Open to All Other Health Topics 04-10-2017, 02:08 PM
Replies: 12
Ms
Views: 574
Posted By MSJayhawk
Re: Ms

Blathanna,

There can be periods of no changes for many MSers. If the criteria are met per the Revised McDonald Criteria, then you can still be diagnosed with MS. :angel:
Board: Open to All Other Health Topics 04-09-2017, 04:11 PM
Replies: 12
Ms
Views: 574
Posted By MSJayhawk
Re: Ms

Blathanna,

I understand your frustration. I do not know the medical workings on that side of the pond. I do not know if all your MS Specialists have been true, certified MS Specialists. When...
Board: Open to All Other Health Topics 04-08-2017, 04:59 PM
Replies: 12
Ms
Views: 574
Posted By MSJayhawk
Re: Ms

Blathanna,

More lesions for your age group would be age related lesions. Lesions under 2 mm, for example, can be caused by migraines. Some with migraines do not have any lesions......

You...
Board: Open to All Other Health Topics 04-08-2017, 08:31 AM
Replies: 12
Ms
Views: 574
Posted By MSJayhawk
Re: Ms

Blathanna,

I do not know how your doctor thinks or his diagnostic process steps. Headaches and such can be MS related- OR NOT. If you keep a journal and list those symptoms which persist for...
Board: Open to All Other Health Topics 04-07-2017, 08:57 PM
Replies: 12
Ms
Views: 574
Posted By MSJayhawk
Re: Ms

Blathanna,

Normal lumbar punctures, normal VEPs, Negative Lyme......of the aforementioned, the only thing that can be for certain would be no Lyme..... That said, with the aforementioned...
Board: Multiple Sclerosis 04-05-2017, 08:48 PM
Replies: 1
Views: 635
Posted By MSJayhawk
Re: Struggling with stubborn father

fairykisses1991,


:wave: Welcome.

God bless you for all you have been doing. The truth is that stubborn Scotsmen are stubborn! If he has lived in the same area for many years, a change...
Board: Open to All Other Health Topics 04-01-2017, 09:17 PM
Replies: 12
Views: 621
Posted By MSJayhawk
Re: MS Specialist

Blathanna,

If this was your first MRI, there would be nothing to compare. Even if you have several MRI's, given that which you have shared, there were a number of misses and differences. A...
Board: Open to All Other Health Topics 03-31-2017, 10:23 PM
Replies: 12
Views: 621
Posted By MSJayhawk
Re: MS Specialist

Blathanna,

If you have seen an MS Specialist and they have seen your MRI, perhaps there is something else they are seeing based on their experience. You really will not know unless he shares...
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