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Board: Multiple Sclerosis 03-14-2009, 08:31 AM
Replies: 7
Views: 4,015
Posted By Bearygood
Re: Cramps in feet

tkdted, I'd heard of this before (and before I had MS) but forgot all about it. I don't have cramping but I'm curious; do you find that it works for you and how much do you take and in what form?
Board: Multiple Sclerosis 03-13-2009, 11:31 PM
Replies: 4
Views: 1,756
Posted By Bearygood
Re: Women with MS

I am under the impression that the only official estriol trials that have been done are the ones spearheaded by Dr. Rhonda Voskuhl, who is the leader in this research. The dose in the the trial is...
Board: Multiple Sclerosis 03-12-2009, 09:19 AM
Replies: 5
Views: 4,156
Posted By Bearygood
Re: reflex tests in MS...

I don't have an answer for you but just FYI, what they look for in physical examination in dxing MS is actually HYPER-reflexia. I'm not saying if you don't have this or have the opposite it means...
Board: Multiple Sclerosis 03-09-2009, 02:22 PM
Replies: 8
Views: 2,120
Posted By Bearygood
Re: Possible MS?

Your husband's sx, combined with the family history, does sound suspicious for MS but it is up to a doctor to decide what it is or isn't. FYI, there are several other conditions that mimic MS,...
Board: Multiple Sclerosis 03-09-2009, 11:26 AM
Replies: 2
Views: 1,181
Posted By Bearygood
Re: choking

Hi, Neil. I've seen other people report this problem. It can (although not necessarily) be MS related and associated with a region of the brain. I've never seen anyone report this kind of reaction...
Board: Multiple Sclerosis 03-08-2009, 06:09 PM
Replies: 10
Views: 3,629
Posted By Bearygood
Re: Baclofen Pump..... Any information?

Hi there. You revived a thread that's a couple of years old and to the best of my recollection, I've only seen one person on this board with the pump and she's not been around for some time.

I...
Board: Multiple Sclerosis 03-08-2009, 05:49 PM
Replies: 8
Views: 2,120
Posted By Bearygood
Re: Possible MS?

Hi there. Right now there are regarded to be 4 categories of MS. The most common type is Relapsing/Remitting, which by very definition can result in even complete remissions after episodes.
...
Board: Brain & Nervous System Disorders 03-08-2009, 02:34 PM
Replies: 22
Views: 8,312
Posted By Bearygood
Re: Please help

Hi, skyhawk. I'm sorry that this is all still a mystery. It's hard to know that something is wrong and not to know what that something is!

If you're feeling like it might be visual, I'd suggest...
Board: Brain & Nervous System Disorders 03-06-2009, 01:58 AM
Replies: 1
Views: 1,012
Posted By Bearygood
Re: numbness

Hi, Morrone. What did your Rheumy say? Any clues? If you have a good primary care physician, I would definitely suggest keeping them in the loop and let them know about what's going on. If it...
Board: Multiple Sclerosis 03-02-2009, 12:57 PM
Replies: 4
Views: 1,334
Posted By Bearygood
Re: New ON & Prednisone

Lisa, I'm unclear -- were you officially dxed with ON? I sincerely don't mean to alarm you but I'm asking because according to the studies, being treated by oral steroids alone is actually not...
Board: Multiple Sclerosis 03-02-2009, 12:51 PM
Replies: 5
Views: 3,794
Posted By Bearygood
Re: Trying to make a decision...stay on Avonex or switch to Rebif

I'm admittedly far from an Avonex/Rebif expert but I have never heard this. It is my understanding the difference is actually that Avonex is stronger and because it is injected into the muscle, the...
Board: Multiple Sclerosis 02-28-2009, 08:43 AM
Replies: 12
Views: 2,879
Posted By Bearygood
Re: Maybe it's not MS? ( I have been gone awhile)

The last study I heard about (not sure if it's still going on) is in conjunction with Copaxone. Dr. Rhonda Voskuhl from UCLA is the one at the forefront of this research. On the hormonal front, a...
Board: Multiple Sclerosis 02-28-2009, 08:23 AM
Replies: 12
Views: 2,879
Posted By Bearygood
Explanation

The explanation given for why this is seen is hormones. I think largely because of what has been observed in pregnancy, there have been (and are) studies going on with estriol. What I've read about...
Board: Multiple Sclerosis 02-27-2009, 09:24 AM
Replies: 5
Views: 2,984
Posted By Bearygood
Re: Optic Neuritis First symptoms and how did you treat?

Here's the potential good news...IF the optic nerve is in good shape, recovery from ON is often the same as it would have been if you had gotten steroids; it will just take longer. Did the doctor say...
Board: Brain & Nervous System Disorders 02-27-2009, 08:38 AM
Replies: 22
Views: 8,312
Posted By Bearygood
Re: Please help

Re: the old MRI, make sure you have copies of the films and if the next MRI is NOT done at the same facility as the one in 2007, make sure to bring them the films! Answers often lie in the actual...
Board: Multiple Sclerosis 02-27-2009, 08:18 AM
Replies: 2
Views: 1,722
Posted By Bearygood
Re: Possible Multiple Sclerosis

I agree with MSJayhawk in that at least from what you've described, testing seems to be on the right track. Many (if not most) doctors are cautious about dxing MS -- there are many mimics. The...
Board: Multiple Sclerosis 02-27-2009, 08:15 AM
Replies: 5
Views: 2,984
Posted By Bearygood
Re: Optic Neuritis First symptoms and how did you treat?

My case was textbook. Started with pain behind my eye, worse upon movement. By the time I got to the eye doctor I was JUST starting to become blurry and it wasn't until I had the visit that I...
Board: Multiple Sclerosis 02-27-2009, 08:06 AM
Replies: 6
Views: 12,968
Posted By Bearygood
Re: how long does MS symptoms take to progress?

The statistic for death directly as a cause of MS itself is less than 5% of the population, those with Progressive Relapsing Multiple Sclerosis (PRMS), the rarest type.

As the others have said,...
Board: Multiple Sclerosis 02-27-2009, 07:49 AM
Replies: 3
Views: 2,477
Posted By Bearygood
Re: why am I so cold all the time

If you don't have MS and are experiencing neurological sx, make sure that thyroid is among the battery of tests administered.
Board: Multiple Sclerosis 02-27-2009, 07:47 AM
Replies: 6
Views: 1,614
Posted By Bearygood
Re: question about lesions

younggranny, it would probably be helpful to look at the McDonald criteria for diagnosing MS (updated in 2005). It will further explain what Carol touched on. While the sx you're describing could...
Board: Brain & Nervous System Disorders 02-26-2009, 04:23 PM
Replies: 1
Views: 1,410
Posted By Bearygood
Re: Possible M.S.?

Hi, calimac! MSer here. Your sx are somewhat non-specific and could be ANY number of things, including a low grade persistent virus. What were the findings with your thyroid? (Some of what you're...
Board: Brain & Nervous System Disorders 02-26-2009, 04:09 PM
Replies: 22
Views: 8,312
Posted By Bearygood
Re: Please help

Personally, I've never heard or read accounts of a difference with electrical sensations. The "standard" thing with MS re: L'Hermittes that you hear is that the sensations occur when your neck is...
Board: Multiple Sclerosis 02-26-2009, 11:58 AM
Replies: 13
Views: 2,765
Posted By Bearygood
Re: Diet and Exercise with MS

I'm taking a lot more D3 than that, Lisa, and my levels are still within normal range. I'm due for another blood test soon to check it.

Re: diets, the most popular ones for MS are the Swank and...
Board: Multiple Sclerosis 02-26-2009, 11:46 AM
Replies: 12
Views: 26,152
Posted By Bearygood
Re: Pain behind my left eye

lild4, if MS is suspected, I would strongly suggest you getting to an ophthalmologist right away. (In a perfect world, a NEURO-ophthalmologist but to start out, a regular ophthalmologist will do --...
Board: Multiple Sclerosis 02-26-2009, 10:10 AM
Replies: 6
Views: 11,838
Posted By Bearygood
Re: Brain MRI and IACs - MS diagnosis?

As to why they did the IAC, to a large extent, MS is a dx of exclusion as there are many other conditions that mimic its sx. Even with lesions --although MS lesions do usually have certain...
Board: Brain & Nervous System Disorders 02-25-2009, 04:27 PM
Replies: 22
Views: 8,312
Posted By Bearygood
Re: Please help

Hey, Scout! You know I pop in on your guys from time to time, LOL. Nice to see you!
Board: Multiple Sclerosis 02-25-2009, 03:56 PM
Replies: 13
Views: 2,765
Posted By Bearygood
Re: Diet and Exercise with MS

Very interesting! I'm with you on the artificial sweetener and additive thing (as you know, not everyone shares that belief) but Stevia??? So...what your doctor is saying is that any sweet taste...
Board: Brain & Nervous System Disorders 02-25-2009, 08:03 AM
Replies: 22
Views: 8,312
Posted By Bearygood
Re: Please help

Not the case. L'Hermitte's sign occurs in MS and is usually indicative of spinal lesions.
Board: Brain & Nervous System Disorders 02-25-2009, 08:00 AM
Replies: 22
Views: 8,312
Posted By Bearygood
Re: Please help

skyhawk, what you're describing can be symptomatic of Lyme or MS, but not those things alone. (In fact, sx of Lyme and MS can mimic each other to a 't'). That said, there are also other conditions...
Board: Brain & Nervous System Disorders 02-24-2009, 11:46 AM
Replies: 1
Views: 1,302
Posted By Bearygood
Re: another spinal tap/lumbar puncture

Hi, gopackgo. I've never had an LP but A LOT of people with MS have. If you head over to that board I'm sure you'll get lots of good pointers. (You can also do a search for lumbar puncture and...
Board: Brain & Nervous System Disorders 02-24-2009, 11:44 AM
Replies: 1
mri
Views: 1,053
Posted By Bearygood
Re: mri

Become a doctor or radiologist!

Without being medically trained, it's virtually impossible to read an MRI. If you do get an MRI, be sure to get a copy of the radiologist's report (and also the...
Board: Brain & Nervous System Disorders 02-24-2009, 11:41 AM
Replies: 7
Views: 9,730
Posted By Bearygood
Re: Shock going through body when going to sleep

Just generally speaking, Lyme and MS sx have a lot in common. I've actually seen people dxed with Lyme go on to be dxed with MS instead AND vice versa.

The symptom you're talking about MAY (not...
Board: Brain & Nervous System Disorders 02-24-2009, 11:37 AM
Replies: 2
Views: 6,648
Posted By Bearygood
Re: lesions in the white matter of brain and spinal cord

lund, need to know more about the findings (it looks like you've had an MRI). One of the keys with brain lesions is if they are demyelinating. Re: lesions in general (not necessarily demyelinating)...
Board: Multiple Sclerosis 02-23-2009, 09:29 AM
Replies: 13
Views: 2,765
Posted By Bearygood
Re: Diet and Exercise with MS

Hi, shelaghsc. MS is a very individualized disease in that how it OR something will affect one person is not necessarily the same way it will affect another. Even with things heat, while not...
Board: Multiple Sclerosis 02-17-2009, 07:10 AM
Replies: 12
Views: 2,405
Posted By Bearygood
Re: Anyone not on interferons? Dont know if I made the right decision!

Hi, lillyfields. Unfortunately, there is no one definitive answer in terms of the "right thing". As Snoopy said, the DMDs do seem to work for some people and not others but even then, there is no...
Board: Multiple Sclerosis 02-15-2009, 05:35 PM
Replies: 5
Views: 2,989
Posted By Bearygood
Re: What does some slowing in the optic nerve mean on VEP?

Hi, popstarrdiva. I'm not negating the possible importance of seeing a Neuro-Otologist but I would also strongly suggest you seeing an Ophthalmolgist rather than an Optometrist and that it would be...
Board: Multiple Sclerosis 02-13-2009, 07:12 PM
Replies: 7
Views: 1,753
Posted By Bearygood
Re: question regarding testing

When there is enough information to render a dx (again, based on the McDonald criteria), an LP should not be necessary. Same here, Carol -- dxed with lesions while in the midst of Optic Neuritis.
Board: Multiple Sclerosis 02-13-2009, 06:16 PM
Replies: 7
Views: 1,753
Posted By Bearygood
Re: question regarding testing

Re: the LP, it's what MSJayhawk said and more. Besides a negative LP not necessarily meaning no MS, the statistic itself is misleading. Any studies/statistics are (obviously) based on members of...
Board: Multiple Sclerosis 02-11-2009, 09:13 PM
Replies: 2
Views: 8,029
Posted By Bearygood
Re: Neck buzzing anyone?

Hi, Albertagirl. What you're describing can be sx of MS but not MS alone. To see other diseases that mimic MS, I'd suggest visiting the link in the post atop the board called "The Differential...
Board: Multiple Sclerosis 12-10-2008, 09:16 PM
Replies: 4
Views: 4,679
Posted By Bearygood
Re: Need an MS Specialist in Nashville

Hi, Donna. I don't have details but I've seen great recommendations for Dr. Fallis. Also, although this one is at Vandie, a recommendation or 2 for Dr. Harold Moses.

Just also wanted to mention...
Board: Multiple Sclerosis 12-10-2008, 08:28 PM
Replies: 30
Views: 6,859
Posted By Bearygood
Re: A little update for my friends on the MS boards

I'm not sure that this is what I saw -- I remembered it as being in NY but I might have been mistaken. In any event, if it ISN'T (and it very well might be) it seems like they would probably know...
Board: Multiple Sclerosis 12-09-2008, 11:42 AM
Replies: 6
Views: 1,556
Posted By Bearygood
Re: Ms Help!!!

Yes, it's hard not knowing and MS is one of those diseases that people might think they know about and it's not until it touches their lives that they discover they really DON'T know about it!! It...
Board: Multiple Sclerosis 12-09-2008, 10:52 AM
Replies: 10
Views: 2,453
Posted By Bearygood
Re: Is MS damage the result of inflammation?

Just wanted to add that D3 is the type of D from the sun. And also, that it functions in the body like a hormone. :)
Board: Multiple Sclerosis 12-09-2008, 10:48 AM
Replies: 6
Views: 1,556
Posted By Bearygood
Re: Ms Help!!!

Ah, countrygirl, I'm sorry to hear what you're going through. It might be MS but it might not -- just hang in there and wait for the test results. Make sure you get a copy of the radiologist's...
Board: Multiple Sclerosis 12-09-2008, 10:41 AM
Replies: 10
Views: 2,453
Posted By Bearygood
Re: Is MS damage the result of inflammation?

That is true and although it hasn't been proven conclusively, what DOES seem to be acceptable as a true finding is that a vitamin D deficiency makes a person at least more susceptible/vulnerable to...
Board: Multiple Sclerosis 12-09-2008, 09:05 AM
Replies: 25
Views: 3,420
Posted By Bearygood
Re: MS, Jobs, and Such--Prayers, Please!

April, good luck to you! I'll be looking for your updates -- hope there's good news on all fronts!
Board: Multiple Sclerosis 12-09-2008, 09:03 AM
Replies: 16
Views: 6,418
Posted By Bearygood
Re: How long did it take you to be diagnosed?what did the tests show? what were your

I was dxed because I was having a problem with my eye. Turned out to be Optic Neuritis. Had no clue what was going on or what this was. I was sent for an MRI of the brain (also had one of the...
Board: Multiple Sclerosis 12-09-2008, 08:55 AM
Replies: 25
Views: 8,037
Posted By Bearygood
Re: Question regarding Lhermitte's and Optic Neuritis

K26, great to see your update!! I missed that you were dxed and/or were starting treatment!
Board: Multiple Sclerosis 12-09-2008, 08:53 AM
Replies: 30
Views: 6,859
Posted By Bearygood
Re: A little update for my friends on the MS boards

I'm going to be waiting for your update on the doctors' visits! Also, I read some time ago about a center for rare/hard to be dxed diseases and I think it was here in the city. From what I remember...
Board: Multiple Sclerosis 12-09-2008, 08:49 AM
Replies: 12
Views: 3,018
Posted By Bearygood
Re: Help need some advice...is is MS?

Like I said, it's possible for lesions to show atypically. And I've seen many cases where one doctor might say the lesions are not indicative of MS but another one disagrees. Again, I'm not saying...
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