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Board: Anemia 03-20-2008, 08:51 AM
Replies: 16
Views: 18,543
Posted By JJ1
Re: Low Iron/Anemia and Gluten Intolerance

I saw a gastroenterologist to help determine the cause of my anemia. I was 48 at the time and because only a few years from 50 when they recommended doing a colonoscopy anyway, he said it would be...
Board: Fibromyalgia 03-17-2008, 06:59 AM
Replies: 7
Views: 1,648
Posted By JJ1
Re: Anyone else have mostly neuro symptoms?

I was diagnosed with fibromyalgia almost 8 years ago and I have symptoms much like yours. The aches and pains are only a minor part of my illness. I am most debilitated by fatigue and cognitive...
Board: Anemia 03-14-2008, 07:55 PM
Replies: 9
Views: 16,507
Posted By JJ1
Re: Starting Iron infusions

The dextran is done in one infusion that take up to 8 hours (mine earlier this week was only 4). You do not go for multiple visits, but get the entire dosing in one long office visit. If you are...
Board: Anemia 03-11-2008, 10:03 PM
Replies: 9
Views: 16,507
Posted By JJ1
Re: Starting Iron infusions

I have been getting iron infusions about twice per year for the last two years. This last one (which I had today) was at about 9 months and my iron levels weren't too low this time so it was a...
Board: Anemia 03-11-2008, 09:49 PM
Replies: 2
Views: 5,048
Posted By JJ1
Re: Anyone had iron IV Dextran? Hematologist gave me 2 choices..

I just had my twice-a-year iron infusion (jokingly refer to as my refueling) using Dextran today. They first give you a small amount to see if there is an allergic reaction. If you are going to have...
Board: Fibromyalgia 03-10-2008, 07:38 PM
Replies: 7
Views: 927
Posted By JJ1
Re: Physical Therapy - Has It Worked For You?

The physical therapist definitely made sure I had a routine that was geared to fibromyalgia. My favorite part was when we excercised in the pool. I really felt good after those work outs and when...
Board: Fibromyalgia 03-10-2008, 07:38 AM
Replies: 7
Views: 927
Posted By JJ1
Re: Physical Therapy - Has It Worked For You?

My fibromyalgia pain is intermittent moves to various parts of my body, with one exception. I had a continuing, gnawing pain in my lower back and hip. So my doctor prescribed PT. The PT really...
Board: Fibromyalgia 03-10-2008, 07:34 AM
Replies: 5
Views: 2,981
Posted By JJ1
Re: What are Fibromylgia symptoms

I have some of your symptoms and was sure I had thyroid defiency but was diagnosed with fibromyalgia when thyroid tests were normal. The symptoms can be very similar. it is possible that your...
Board: Anemia 03-10-2008, 07:27 AM
Replies: 9
Views: 10,127
Posted By JJ1
Re: Extreme Exhaustion low ferritin?? help

I have hemoglobin and ferritin levels that are slightly better than yours right now and I am also extremely fatigued. I cannot make it through a work day and leave early each day to go home for a...
Board: Acid Reflux / GERD 03-09-2008, 07:43 PM
Replies: 34
Views: 23,984
Posted By JJ1
Re: How long do you have to be on ppis for life?

Just wondering if you have had an endoscopy to see how bad your esophagus is. You may want to have one done if it seems like it isn't yet healing.
Board: Anemia 03-09-2008, 07:41 PM
Replies: 10
Views: 8,256
Posted By JJ1
Re: Period hemmoraging - sometimes 6 months long - any advice please?

Have you tried hormones to lessen the severity and frequency, such as birth control pills? My periods aren't extremely heavy, but still my docs surmise they are the cause of my anemia so they have...
Board: Anemia 03-09-2008, 04:13 PM
Replies: 9
Views: 10,127
Posted By JJ1
Re: Extreme Exhaustion low ferritin?? help

I don't have all the normal ranges memorized, but can say that your hemoglobin and ferritin are low, particulary your ferritin, which measures the iron stored in your body. It is good that you are...
Board: Anemia 03-09-2008, 12:17 PM
Replies: 9
Views: 16,507
Posted By JJ1
Re: Starting Iron infusions

The total time at the doctor for me for the iron infusion is usually about 5 hours. If this is your first time, they will first test you for allergies to the medication which will take about an hour....
Board: Anemia 03-08-2008, 07:19 PM
Replies: 3
Views: 80,691
Posted By JJ1
Re: how long after iv iron infusion will i feel better

It takes several weeks before the iron makes you feel better. I am given an IV of benadryl and a cortisteroid before I get the iron to help with allergic reaction. I still will break out in hives a...
Board: Acid Reflux / GERD 03-07-2008, 06:24 AM
Replies: 34
Views: 23,984
Posted By JJ1
Re: How long do you have to be on ppis for life?

Although I suspect Nexium to be at least partly the cause of my severe anemia, the doctors do not agree and think it is due to heavy periods. My periods are somewhat heavy, but have been all of my...
Board: Anemia 03-07-2008, 06:04 AM
Replies: 9
Views: 7,112
Posted By JJ1
Re: anemia and low WBC

I had to ask my hematologist to test for B-12 deficiency. I had to point out to her that my WBC is also consistently low. She said that the test showed I did not have a B-12 deficiency, but it is...
Board: Acid Reflux / GERD 03-06-2008, 08:24 PM
Replies: 34
Views: 23,984
Posted By JJ1
Re: How long do you have to be on ppis for life?

I have been on prevacid about 4 years and Nexium around 6, I think (ten years total on meds) for gastric reflux due to a hiatal hernia. About 8 yrs. ago I was diagnosed with fibromyalgia and now...
Board: Hernia 03-06-2008, 08:14 PM
Replies: 7
Views: 4,468
Posted By JJ1
Re: Reflux & Hiatus Hernia

About ten years ago I was diagnosed with a hiatus (or hiatal) hernia when I had an endoscopy done because of severe gastric reflux. The reflux (or GERD) is a possible symptom of the hiatus hernia,...
Board: Anemia 03-06-2008, 07:59 PM
Replies: 12
Views: 4,525
Posted By JJ1
Re: Anemic and have some questions

I did not test positive for Celiac, but the doctor decided to check for it while he was in there with the scopes. I supposed he checked for Crohns too but did not mention it. Many of my symptoms seem...
Board: Anemia 03-06-2008, 07:53 PM
Replies: 9
Views: 7,112
Posted By JJ1
Re: anemia and low WBC

I haven't had any leg cramping recently and I am currently anemic and scheduled for an iron IV next week (ferritin at 4.9 and WBC at 4.1 which is normal but on the low side of normal). I also have...
Board: Anemia 03-06-2008, 04:46 PM
Replies: 9
Views: 7,112
Posted By JJ1
Re: anemia and low WBC

A low WBC occurs with pernicious anemia, which is due to a B-12 defiency. If you haven't been tested for this, ask your doctor. I think when WBC and platelets are low, it can be aplastic anemia. I...
Board: Anemia 03-06-2008, 06:29 AM
Replies: 7
Views: 3,458
Posted By JJ1
Re: So how low is low?

dldunphy, don't be afraid of the iron infusions. They aren't too bad and they will help you feel so much better. I have had about 5 and will be getting my 6th soon. I am at the point now where I...
Board: Anemia 03-04-2008, 05:51 PM
Replies: 4
Views: 8,281
Posted By JJ1
Re: Do some just not absorb iron with iron supplements? The fluctutations are frighte

I see a hematologist for my anemia. I am also frustrated that no one but me seems interested in "why" I am anemic and they just pump me up with another iron IV every six months when it gets low. On...
Board: Anemia 03-04-2008, 05:41 PM
Replies: 12
Views: 4,525
Posted By JJ1
Re: Anemic and have some questions

I had a colonoscopy and endoscopy last year at age 48. It was two years earlier than you would normally have it done, but because of my continuing anemia the doctor wanted to rule out other possible...
Board: Thyroid Disorders 03-04-2008, 12:13 PM
Replies: 5
Views: 2,984
Posted By JJ1
Re: Thyroid Levels Normal but I Have all the Symptoms

My thyroid tests were so long ago that I don't recall the results. I do recall the doctor saying I was in the middle of the range and not close to either end of the range. I don't think I was ever...
Board: Thyroid Disorders 03-04-2008, 12:09 PM
Replies: 53
Views: 13,979
Posted By JJ1
Re: Was diagnosed with fibromyalgia, but think I may actually have hypothyroidism??

I must apologize because I started a new thread with the exact same issue. I should have read through the forum first.

I was diagnosed with fibromyalgia about 8 years ago although my symptoms more...
Board: Thyroid Disorders 03-04-2008, 11:48 AM
Replies: 5
Views: 2,984
Posted By JJ1
Thyroid Levels Normal but I Have all the Symptoms

Eight years ago I saw a rheumatologist for widely varying symptoms. I had a sudden rapid weight gain, was weak and fatigued, had rough spots on parts of my skin, was getting chills then sweats,...
Board: Anemia 03-04-2008, 09:35 AM
Replies: 6
Views: 1,386
Posted By JJ1
Re: endoscopy today and questions of celiac

There is also non-celiac gluten intolerance. I have read that this is much more prevalent than Celiac disease. The only way to test for it is to eliminate gluten from your diet and see if you get...
Board: Anemia 03-04-2008, 09:06 AM
Replies: 9
Views: 16,507
Posted By JJ1
Re: Starting Iron infusions

I currently have to get two iron IV infusions per year. For some unknown reason, I am unable to absorb iron from diet or supplements. I just got ferritin results back from my doctor and it was 4.9,...
Board: Fibromyalgia 02-28-2008, 08:53 PM
Replies: 8
Views: 9,005
Posted By JJ1
Re: menstrual cramps and fibromyalgia

My cramping seems worse since I have been diagnosed with Fibromyalgia, but I am 49 and perimenopausal and just thought it was part of getting older. My periods are also very heavy and I have trouble...
Board: Fibromyalgia 02-28-2008, 08:46 PM
Replies: 4
Views: 924
Posted By JJ1
Re: One day at a time..........

How does the mobic work for you? I try to get by with OTC pain relievers since my pains are only occasional, but I was prescribed Mobic and tried it during periods of excessive pain and did not...
Board: Anemia 02-28-2008, 07:51 AM
Replies: 7
Views: 4,180
Posted By JJ1
Re: Mildly Anemic & Colonoscopy

Hey, I am 49 and severely anemic. I had a colonoscopy last year to rule out internal bleeding. The doc told me that everyone should get one when they are 50 anyway, so having it a year or two early...
Board: Anemia 02-27-2008, 12:15 PM
Replies: 6
Views: 3,566
Posted By JJ1
Re: Anemic and Looking for Answers

I was quoted $700 for getting the Mirena IUD. It may not sound like much but I have a kid in college and another in braces, so the cash flow right now isn't the best.

I will probably call the...
Board: Anemia 02-27-2008, 07:00 AM
Replies: 6
Views: 3,566
Posted By JJ1
Re: Anemic and Looking for Answers

Well, my insurance is refusing to pay for the Mirena even though it is not being used for birth control! I guess they would rather spend the money on my twice per year iron injections and health...
Board: Anemia 02-20-2008, 08:50 AM
Replies: 8
Views: 2,162
Posted By JJ1
Re: New here...so many questions

The hematology office does the CBC in their own lab and send the ferritin out. So I usually get bloodwork done then go to the examining room and when the doctor comes in she has the CBC results and I...
Board: Anemia 02-20-2008, 08:36 AM
Replies: 6
Views: 5,109
Posted By JJ1
Re: How can CBC be normal and Ferritin be low?

Last year my iron dropped dangerously low (the ferritin test result came back as zero). Since then, the hematologist has been proactive in helping me avoid another similar incident. I see the...
Board: Anemia 02-20-2008, 05:54 AM
Replies: 8
Views: 2,162
Posted By JJ1
Re: New here...so many questions

When I go to the hematologist, they give me the CBC results, but it takes several weeks for ferritin, so I never see those. They take longer to run and may be by a different lab. Ask your doc...
Board: Fibromyalgia 02-19-2008, 10:58 AM
Replies: 2
Views: 2,425
Posted By JJ1
Re: Anemia and Fibromyalgia

Anemia is actually listed as a possible side effect of Nexium. I can't help but think it is playing some part, particulary since my problems with anemia began around the same general time of...
Board: Digestive Disorders 02-18-2008, 08:47 PM
Replies: 43
Views: 77,024
Posted By JJ1
Re: Super Noisy Stomach - Help!!!

I have had this problem as long as I can remember and I am now 49. It waxes and wanes in intensity and right now is about the worst it has ever been. My digestive system is on gas production...
Board: Fibromyalgia 02-18-2008, 08:30 PM
Replies: 2
Views: 2,425
Posted By JJ1
Anemia and Fibromyalgia

I am new to these boards. I actually came to the boards because of issues with anemia but glad to see that there is a fibromyalgia discussion, too. I have had fibromylagia for about 8 years. I...
Board: Acid Reflux / GERD 02-18-2008, 08:18 PM
Replies: 7
Views: 9,121
Posted By JJ1
Re: Nexium and Anemia

I wanted to add that my acid reflux is due to a hiatal hernia. The acid reflux is so bad, I am in misery if I miss one pill. I take 40 mg and am instructed to take it when I wake up in the morning....
Board: Acid Reflux / GERD 02-18-2008, 08:10 PM
Replies: 7
Views: 9,121
Posted By JJ1
Nexium and Anemia

I have posted on the anemia board, but thought I would post here also. I am suspicious that my long-term use of proton pump inhibitors could be the cause of my anemia. I honestly can't remember how...
Board: Anemia 02-18-2008, 06:36 PM
Replies: 3
Views: 5,118
Posted By JJ1
Re: What to expect?-HB was a 6.2, go back to doctor tomorrow

Last year when my iron was that low my doctor (a hematologist) wanted to admit me to the hospital immediately for a blood transfusion. I was afraid of a transfusion and they told me if I went home...
Board: Anemia 02-18-2008, 06:29 PM
Replies: 6
Views: 3,566
Posted By JJ1
Anemic and Looking for Answers

I am having recurring problems with anemia and am looking for answers. My problem surfaced about 3 or 4 years ago. I was diagnosed with Fibromyalgia about 7 years ago and see a rheumatologist...
Showing results 1 to 44 of 44

 







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