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Board: Lyme Disease 07-08-2006, 07:59 PM
Replies: 2
Views: 842
Posted By ciconner
Lone Star Tick

I just read an article in Newsday 7/7 that a lone star tick can transmit lyme disease. It is a more agressive tick and actually can seek out a host from 30 feet away. Interesting article.

Cathy
Board: Lyme Disease 06-30-2006, 09:36 AM
Replies: 4
Views: 1,251
Posted By ciconner
Re: Red, swollen achy face..contemplating switching from Bowen to IngeneX..

Hi Cindy,

Try to cheer up. Maybe your friends think you are resting after surgery and giving you a little time before they check in on you. Hope you feel better.

Cathy
Board: Lyme Disease 06-30-2006, 09:33 AM
Replies: 0
Views: 502
Posted By ciconner
- - -

( removed )

( not a health topic )
Board: Lyme Disease 06-28-2006, 04:24 PM
Replies: 4
Views: 2,095
Posted By ciconner
Re: Do you think as a Lyme patient we over react about Lyme?

I see kids struggling in school with educational and behavioral problems, allergies and so many other symptoms. Lyme is an epidemic here.

My son had sore knees at night (I thought it was...
Board: Lyme Disease 06-14-2006, 05:45 PM
Replies: 7
Views: 3,462
Posted By ciconner
Re: Bartonella

I think you are right. That is what the LLMD thought I had because of swollen glands in my throat, but the bartonella test was negative. He also mentioned sweating and trouble sleeping were...
Board: Lyme Disease 06-14-2006, 05:40 PM
Replies: 2
Views: 2,377
Posted By ciconner
Re: Worried about my 5 year old

My son's symptoms went on for a couple years and since he was treated, most are resolved. He had a constant rash in the crack of his behind and I thought he had allergies which affected his sinuses....
Board: Lyme Disease 06-14-2006, 05:33 PM
Replies: 7
Views: 32,860
Posted By ciconner
Re: Tick byte and swollen lymph node?

Hi Jeff1,

I've had too many docs tell me not to worry about the lymph nodes in our necks and it does mean there is an infection. The docs would tell me it is an infection from the neck up.
...
Board: Lyme Disease 06-05-2006, 05:58 AM
Replies: 10
Views: 1,816
Posted By ciconner
Re: At What Point...

Thanks ncgirl,

I'm on the right track. I still look at my rash and the rings are distinct in certain light, and that makes me realize it's not in my head. The rings I get are like ghosts. They...
Board: Lyme Disease 06-04-2006, 05:26 PM
Replies: 10
Views: 1,816
Posted By ciconner
Re: At What Point...

Hi Jeanne,

Did you know about the lyme before you passed it on to your kids? How are they doing?

Sometimes I wonder if I didn't pass it on to my kids, although one son hasn't been diagnosed at...
Board: Lyme Disease 06-02-2006, 02:28 PM
Replies: 10
Views: 1,107
Posted By ciconner
Re: really GOOD news!!! social security finally came through!

Hi Shanna,

Glad everything worked out for you. Now you can enjoy your stay in Florida and really enjoy without the worry. Good for you!!

Cat
Board: Lyme Disease 06-01-2006, 07:35 PM
Replies: 10
Views: 1,816
Posted By ciconner
Re: At What Point...

Hi Juels,

That's interesting. For something the docs say is rare, my eye doctor said he had another patient with the same condition. It is a muscle in my left eye that is defective. My left eye...
Board: Lyme Disease 06-01-2006, 03:12 PM
Replies: 10
Views: 1,816
Posted By ciconner
Re: At What Point...

Hey Buddies,

It's good to get back in touch. I spoke to my husband about calling Dr. Jones for my son. Finally my husband is acknowledging that the lyme disease is not a phantom illness and can...
Board: Lyme Disease 05-31-2006, 08:04 PM
Replies: 10
Views: 1,816
Posted By ciconner
At What Point...

do you decide to live with lyme?

There used to be a time in my life when deer ticks weren't actually seen. Just this past weekend my husband and my son had deer ticks latched onto them. My other...
Board: Lyme Disease 05-31-2006, 07:42 PM
Replies: 4
Views: 914
Posted By ciconner
Re: Lymph Biopsy

Hi Juels,

I had a lymph node removed from my neck years ago. No effect and don't know what the surgeon was looking for. I do know lyme specialists get excited when I tell them I had a lymph node...
Board: Lyme Disease 04-16-2006, 04:16 PM
Replies: 39
Views: 3,594
Posted By ciconner
Re: Hugs, Butterflies & Angels

I think we all get visited by angels or spirits. Why else would we notice it as a sign when we otherwise wouldn't? We just know. It's not something any of us looks for because we don't know what...
Board: Lyme Disease 04-13-2006, 06:34 AM
Replies: 39
Views: 3,594
Posted By ciconner
Re: Hugs, Butterflies & Angels

Hi Everyone,

Amazing what signs people or angels from another place give use. Every fall the kids' toys would go wacko in my house. Thought I had a ghost. One day a toy in the closet started...
Board: Lyme Disease 02-28-2006, 02:19 PM
Replies: 25
Views: 5,796
Posted By ciconner
Re: ticker?someone in n.j.?

Hi Lumpy,

I can understand your reluctance to see a dr. I am not a good patient and want instant results. Lyme disease is not something you fix quickly in many cases. I am all doctored out. ...
Board: Lyme Disease 02-26-2006, 04:54 AM
Replies: 9
Views: 857
Posted By ciconner
Re: Desperate Housewives Anyone?

I was too busy being a desperate housewife myself, and didn't realize we missed it until two days later.
Board: Lyme Disease 02-25-2006, 05:03 PM
Replies: 25
Views: 5,796
Posted By ciconner
Re: ticker?someone in n.j.?

I started with Dr. Lionetti. I was treated promptly just by telling him I tested positive at my regular physician and then again when I said I had a deer-tick bite. However, I switched to a Dr. in...
Board: Lyme Disease 02-13-2006, 05:09 PM
Replies: 8
Views: 1,126
Posted By ciconner
Re: testing the hangover

The longer I sleep, the crappier my body feels when I wake up-body, headachy, etc. Hmmm.
Board: Lyme Disease 02-13-2006, 05:03 PM
Replies: 13
Views: 1,175
Posted By ciconner
Re: Super crappy stuff

Hang in there. I know that "born loser" feeling. Just know we've all been there. One day I waited for 3 hours to see the LLMD who saw me for five minutes. I was spacey when I left the office. ...
Board: Lyme Disease 02-06-2006, 09:55 AM
Replies: 14
Views: 2,082
Posted By ciconner
Re: yikes!

LOL-I used to think it was hard to get lyme disease, too. I never worried about ticks I pulled off my kids. I guess it was sort of a blessing that only by chance a doctor ran a lyme test when I had...
Board: Lyme Disease 02-05-2006, 06:36 AM
Replies: 11
Views: 3,821
Posted By ciconner
Re: Cognitive Effects in 14 Yr Old Son

Hello and welcome MO,

You need to have the Igenex test done.

I really feel for you and your son. It's very frustrating. Even when you do test positive for lyme, as I found out, you still...
Board: Lyme Disease 02-02-2006, 12:58 PM
Replies: 23
Views: 2,705
Posted By ciconner
Re: am i diferent or what??

Me too. Years of sinus, sore throat and coughs.
Board: Lyme Disease 02-01-2006, 02:04 PM
Replies: 23
Views: 2,705
Posted By ciconner
Re: am i diferent or what??

Thanks for putting my mind to rest. I think the LLMD I go to was hopeful zithromax would reverse whatever is happening in his toes, but I'm sure after testing he will have something else in mind.
Board: Lyme Disease 01-31-2006, 09:20 PM
Replies: 23
Views: 2,705
Posted By ciconner
Re: am i diferent or what??

You guys are scaring me. I recently asked myself if I did the right thing by having my son do the IV treatments so impulsively at the first LLMD I went to. My new one seems to be more cautious with...
Board: Lyme Disease 01-30-2006, 03:22 PM
Replies: 20
Views: 6,130
Posted By ciconner
Re: lyme and smoking...yes, i know it's bad regardless :-/

My mother lived like a saint throughout my childhood. Never drank a drop of alcohol, even at social gatherings, drank tea, not coffee, fruit for breakfast, etc. My father smoked Pall Malls for...
Board: Lyme Disease 01-27-2006, 05:52 AM
Replies: 20
Views: 6,130
Posted By ciconner
Re: lyme and smoking...yes, i know it's bad regardless :-/

All that on top of timing of when to take different meds, acidopholus, detox, dairy. Sometimes I'm afraid I'll spontaneously combust with the wrong combination or have an internal explosion, which...
Board: Lyme Disease 01-25-2006, 09:47 PM
Replies: 20
Views: 6,130
Posted By ciconner
Re: lyme and smoking...yes, i know it's bad regardless :-/

Well, I like to have a beer now and then. Like one or two a night, while we're on the topic of vices. That's my detox method. LOL. Only foreign beer, the domestic stuff had too much chemical in...
Board: Lyme Disease 01-12-2006, 06:07 AM
Replies: 8
Views: 1,090
Posted By ciconner
Re: how much do you spend out of pocket???

My son and I have an appt. today, so that will be over $300. I won't get reimbursed thanks to the new year. I have to meet the family deductible. Shouldn't take too long, especially if I take my...
Board: Lyme Disease 01-11-2006, 08:12 PM
Replies: 8
Views: 1,090
Posted By ciconner
Re: how much do you spend out of pocket???

Too much $$. That's why I consider living with it. Honestly the meds make me feel horrible (I had a really bad week, but now I feel pretty good). But I haven't been battling it long enough to know...
Board: Lyme Disease 01-11-2006, 04:24 AM
Replies: 27
Views: 2,010
Posted By ciconner
Re: So EXCITED

And whatever you do, do not take doxy right before bed. Of course I've done the ultimate worst and have taken it before bed without sufficient water (a sip maybe). I paid the price dearly for that...
Board: Lyme Disease 01-08-2006, 03:36 PM
Replies: 20
Views: 1,969
Posted By ciconner
Re: Very nervous.....

Yes, especially since most dr's. are like there is no evidence of lyme and want you to drop the issue. My son's pediatrician treats me like I'm some kind of psycho and emphasized that there is NO...
Board: Lyme Disease 01-07-2006, 09:08 AM
Replies: 20
Views: 1,969
Posted By ciconner
Re: Very nervous.....

Earle,

Very funny! My doc said to me when told him I probably have chronic lyme and he said, "Well, you do understand you have been treated twice with abx." I said, "Yeah, I know."

I had my...
Board: Lyme Disease 01-06-2006, 04:41 AM
Replies: 8
Views: 1,394
Posted By ciconner
Re: + Igenex Result-Don't understand

Hi 6Blues,

I don't know what a strickler panel blood test is. So probably not.

That's been my biggest problem for years-talking. I never knew I had something wrong and have labeled myself a...
Board: Lyme Disease 01-05-2006, 06:10 PM
Replies: 8
Views: 1,394
Posted By ciconner
Re: + Igenex Result-Don't understand

I think you just described how I feel right now. I am in a state (and I could cry because I'm ignoring my kids) where I can't focus on anything. When this happens I start playing this stupid...
Board: Lyme Disease 01-05-2006, 05:43 PM
Replies: 8
Views: 1,394
Posted By ciconner
Re: + Igenex Result-Don't understand

I wish I could remember where I read that. I felt really great over the summer. I even checked in at this site from time to time just to update and then I go to LI and wake up with a little deer...
Board: Lyme Disease 01-05-2006, 05:25 PM
Replies: 8
Views: 1,394
Posted By ciconner
Re: + Igenex Result-Don't understand

Hi Jules,

Yes, that's what I thought. I've also recently read somewhere that sometimes chronic recurring lyme (I guess when the spirochetes sprout), will show a recent positive. I had some IgG...
Board: Lyme Disease 01-05-2006, 05:17 PM
Replies: 20
Views: 1,969
Posted By ciconner
Re: Very nervous.....

I was nervous about my test, too. Of course you want a positive. When you don't feel good for a long time, you want to know that it's not in your head. It was pure luck that my dr. decided to test...
Board: Lyme Disease 01-05-2006, 05:07 PM
Replies: 17
Views: 1,368
Posted By ciconner
Re: Very Sad Day for Me

Denise,

I'm sorry for your loss of someone who you wanted to help and cared for.

I also was praying for the miners. I'm partial to West Virginians. I went to college there and I came across...
Board: Lyme Disease 01-05-2006, 05:02 PM
Replies: 12
Views: 7,954
Posted By ciconner
Re: Lyme Disease Symptoms?

All I would like to know is what do life insurance companies know that we don't. I can't increase my life insurance. Lyme is on their list of medical conditions you have to disclose to them. They...
Board: Lyme Disease 01-05-2006, 09:08 AM
Replies: 12
Views: 7,954
Posted By ciconner
Re: Lyme Disease Symptoms?

Hi Kid Dynomite,

All my tests came back negative (so I thought it was in my head), until my new LLMD sent my blood work to Igenex. That was positive. Be persistent.

Mesamall,
You have...
Board: Lyme Disease 01-05-2006, 06:57 AM
Replies: 8
Views: 1,394
Posted By ciconner
+ Igenex Result-Don't understand

I had my LLMD send my results from IGeneX and I thought that only IgM or IgG come up positive. I never had this test, so maybe it's more sensitive?? Anyway both are positive. Any input?
...
Board: Lyme Disease 01-04-2006, 08:18 PM
Replies: 6
Views: 799
Posted By ciconner
Re: should llmd become primary??

Thanks, I guess we all get a bit frustrated here. The lumps just feel like swollen lymph nodes. The usual. Not a mass or anything. Just I've had the micro-calcifications before and had to have...
Board: Lyme Disease 01-03-2006, 04:55 PM
Replies: 5
Views: 2,706
Posted By ciconner
Re: Flax Seed Oil?

I'm pretty sure it's good for the joints and many other things.
Board: Lyme Disease 01-03-2006, 04:53 PM
Replies: 6
Views: 799
Posted By ciconner
Re: should llmd become primary??

I have an dr. appt tomorrow for my neck pain, the 9th to have a lump checked in my breast and then the LLMD on the 12th. I have to get these things taken care of. I'm too young to suffer, and my...
Board: Lyme Disease 01-01-2006, 03:07 PM
Replies: 6
Views: 1,743
Posted By ciconner
Re: Arrhythmia/Early Stage Lyme treated in Oct.

Wackowoman,

Any you know what else I wonder about. All the kids who are dx. with ADHD, dyslexia and autism (especially those dx after 1st grade or so). I've heard stories of kids with behavioral...
Board: Lyme Disease 01-01-2006, 03:00 PM
Replies: 18
Views: 2,538
Posted By ciconner
Re: Ticker, are you Around?

Hi Maureen,

We were out of town for Christmas. I get freaked out with the lymph nodes because my other son has a swollen one now for a couple months. I'm convinced it's lyme related and will...
Board: Lyme Disease 01-01-2006, 02:43 PM
Replies: 6
Views: 1,743
Posted By ciconner
Re: Arrhythmia/Early Stage Lyme treated in Oct.

Hi Gimp,

I went through a similar experience Oct. 2004. Thought I was lucky and was dx early with lyme. I can't tell you how many tests after abx. came back negative. Knowing that I was still...
Board: Lyme Disease 01-01-2006, 02:30 PM
Replies: 5
Views: 1,248
Posted By ciconner
Re: really sick -- help please

Hi Earle,

Sorry you are feeling so badly. When I was taking biaxin, I actually did pretty well on it (if memory serves me well). Doxy is the one I can't tolerate. I do pretty well on zithromax,...
Showing results 1 to 50 of 317

 







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