It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....




Lightbulb

Search   Advanced Search
Showing results 1 to 50 of 500
Search took 0.82 seconds.
Search: Posts Made By: Jewel2

Alternative to Searching: Try our message board index!
Board: Open to All Other Health Topics 02-03-2006, 09:18 AM
Replies: 4
Views: 2,650
Posted By Jewel2
Re: diagnosed-they take it back

Hi,
Have you researched Chiari Malformation? All of the pain around your neck and head makes me wonder about Chiari.

Just a thought.

I hope you figure it out!

Julie
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 02-01-2006, 05:50 PM
Replies: 12
Views: 5,993
Posted By Jewel2
Re: Sympathetic nerve blocks-what meds are in them & how are blocks used to diagnose RSD?

Hi,
I only have a minute, but my Stellate Ganglion Block contained Marcaine and no steroid. I took the steroids orally. I would think that the steroid would settle down any inflammation that might...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 01-30-2006, 03:56 PM
Replies: 6
Views: 1,938
Posted By Jewel2
Re: Who diagnosed your RSD?

I would get a second opinion. It sounds like your doctor doesn't want to commit to a diagnosis.

Have you had any tests run? The bone scan is just one tool used to determine whether or not a person...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 01-30-2006, 01:29 PM
Replies: 6
Views: 1,938
Posted By Jewel2
Re: Who diagnosed your RSD?

Hi,
My RSD diagnosis came from a Pain Management/Physiatrist doctor. I was referred to him by my orthopedic doctor who suspected I had it. My diagnosis was confirmed by a triple phase bone scan.
...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 01-30-2006, 01:20 PM
Replies: 2
Views: 1,339
Posted By Jewel2
Re: Bier Blocks for RSD

Hi Marie,
Welcome, though I'm sorry to meet under these circumstances.

I have a friend (the husband of my hand therapist) who has RSD in his foot and ankle. He uses Bier blocks periodically as...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 01-30-2006, 10:25 AM
Replies: 4
Views: 765
Posted By Jewel2
Re: A Little Hope

Hi Justine,
I remember you very well and I am so happy that you are doing better!

I agree about the light therapy only. The "No pain, no gain" mindset is a very bad treatment philosophy for RSD....
Board: Open to All Other Health Topics 01-30-2006, 09:38 AM
Replies: 2
Views: 2,056
Posted By Jewel2
Re: I want to be myself again

Hi Emma,
I would definitely research your vegan diet. You might be missing some nutrients that are causing your problems.

I would also research orthostatic hypotension, which is what you are...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 01-26-2006, 01:03 PM
Replies: 5
Views: 2,502
Posted By Jewel2
Re: Another test, Another report I cannot understand......

Hi,
From what I've read, the bone scan doesn't always confirm RSD, but that doesn't mean you don't have it. I think I read a statistic once that it is positive in about 80% of patients with RSD....
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 01-24-2006, 04:53 PM
Replies: 2
Views: 703
Posted By Jewel2
Hi everyone!

Hi guys, I don't have much time, but wanted to say thanks for welcoming me back in the other thread. I started a new one so as not to hijack lefty's thread.

I also want to say 'hi' to all of the...
Board: Multiple Sclerosis 01-24-2006, 03:20 PM
Replies: 3
Views: 1,033
Posted By Jewel2
Re: Cognitive problems...

As far as the meds, that can be a terrible feeling not knowing whether or not you've taken it. I go through this myself because of my RSD. It can also be dangerous with some meds if you take an extra...
Board: Multiple Sclerosis 01-24-2006, 03:07 PM
Replies: 6
Views: 1,178
Posted By Jewel2
Re: loss of taste

Thanks! :) We're both hanging in there. Hope all is okay with you, too.

:wave:
Julie
Board: Multiple Sclerosis 01-24-2006, 02:59 PM
Replies: 2
Views: 667
Posted By Jewel2
Re: wondering

Cognitive issues are a big problem in MS. Sometimes I honestly think that's my daughter's biggest problem even though other symptoms are so visibly dramatic. Not only is her memory badly affected,...
Board: Multiple Sclerosis 01-24-2006, 02:46 PM
Replies: 6
Views: 1,178
Posted By Jewel2
Re: loss of taste

Just this last week my daughter's (diagnosed 6 years ago) mouth went numb and she lost her sense of taste. She's also been having other MS symptoms flare, so she's assuming it's just another MS...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 01-19-2006, 01:41 PM
Replies: 8
Views: 1,392
Posted By Jewel2
Re: I got SS Disability benefits!

Congratulations! :bouncing: This will be encouraging news for others here as well.

I've been gone a while, too, for lots of reasons. Like you, I've been battling some depression, but that seems...
Board: Multiple Sclerosis 01-19-2006, 10:46 AM
Replies: 1
Views: 669
Posted By Jewel2
Re: Jewel2

Hi lilc! Nice to be back, too! I was supposed to train a woman today, but she was unable to drive down from Denver because of the snow, so I have a light day - yeah!

You're right - I do give...
Board: Multiple Sclerosis 01-19-2006, 10:00 AM
Replies: 24
Views: 2,785
Posted By Jewel2
Re: Chronic disease (MS) and FAITH

Hi Scott,
It sounds like you're in a healthy struggle about your faith. I think it's good to dig deep and ask tough questions. I think it's awesome that you realize that your struggles are forcing...
Board: Multiple Sclerosis 01-18-2006, 01:40 PM
Replies: 24
Views: 2,785
Posted By Jewel2
Re: Chronic disease (MS) and FAITH

Hi Sunshine! It feels nice to be missed.:0

I've just been super busy with life and had to prioritize. I've been lurking on and off, but not enough time to post. Things haven't really slowed down,...
Board: Multiple Sclerosis 01-18-2006, 12:12 PM
Replies: 24
Views: 2,785
Posted By Jewel2
Re: Chronic disease (MS) and FAITH

I am also 'Bapticostal' (I love that word lilc!) I believe that nothing is random. I believe that there is a purpose for everything that happens, even the really, really bad stuff.

My family's...
Board: Multiple Sclerosis 01-17-2006, 05:13 PM
Replies: 20
Views: 5,988
Posted By Jewel2
Re: Anti-depressents

lilc,
Lexapro made me feel flat, too. Then I switched to Effexor and it makes me feel upbeat and gives me a little energy, too.

It's different for everybody, and it can be a lot of trial and...
Board: Menopause 01-17-2006, 04:33 PM
Replies: 7
Views: 1,353
Posted By Jewel2
Re: Anybody use alcohol to cope

I think you are courageous to bring this up and it's a very valid question. From what you describe, it sounds like you are self-medicating with alcohol. This is probably not the best solution - as...
Board: Menopause 01-17-2006, 04:04 PM
Replies: 26
Views: 4,235
Posted By Jewel2
Re: Depressed...Feeling Lost

Hi,
After battling the depression for a few years I finally went to my doctor and talked about it with him. He suggested seeing a counsellor, but also taking a medication to help me through this...
Board: Menopause 01-17-2006, 02:31 PM
Replies: 1
Views: 8,622
Posted By Jewel2
Question Sweating behind knees at night?

Hi,
I have been perimenopausal for over five years. Hormone therapy has been great in controlling the hot flashes and the worst of my mood swings.

However, for the last 2 months I have been...
Board: Multiple Sclerosis 12-30-2005, 08:42 AM
Replies: 8
Views: 6,837
Posted By Jewel2
Re: who has MS after surgery???

My daughter never had a surgery before or after her MS started. But she did have a very traumatic event in her life right before it hit.

I've never heard or read of a connection between MS and...
Board: Multiple Sclerosis 12-27-2005, 12:49 PM
Replies: 3
Views: 3,095
Posted By Jewel2
Re: Here is what my MRI read.....

Hi,
I'm not a medical professional, but in my experience with my daughter's, my own and my husband's MRI's, "Artifact" means a false reading due to one of many reasons. It sounds like the...
Board: Multiple Sclerosis 12-14-2005, 01:42 PM
Replies: 9
Views: 4,714
Posted By Jewel2
Re: Does MS cause loss of vision in both eyes or just one?

Hi,
Actually, vision problems is the most common presenting symptom in MS. My daughter has had several bouts of optic neuritis. About half the time it was just one eye, but the other half it was...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 09-08-2005, 01:30 PM
Replies: 2
Views: 726
Posted By Jewel2
Re: Cervical Epidural Update

Hi Kim,
I understand the turmoil of being grateful for any relief while at the same time being realistic (which often includes grief, anger and resentment) about having to face a lifetime of pain...
Board: Multiple Sclerosis 09-02-2005, 09:20 AM
Replies: 2
Views: 1,420
Posted By Jewel2
Re: Minocycline and MS Symptoms

Hello and welcome. Actually, minocycline is one of the drugs used in the antibiotic therapy that some doctor prescribe for MS. It is called the Vanderbilt Protocol.

Also, when I checked the side...
Board: Multiple Sclerosis 08-28-2005, 10:36 PM
Replies: 15
Views: 2,030
Posted By Jewel2
Re: What's your MRI lession load?

My daughter had 9 upon diagnosis in 2000. Now they are too numerous to count and merging together. We tried once and quit because we started crying at about 40. Her disabiliy level matches the number...
Board: Multiple Sclerosis 08-23-2005, 10:10 PM
Replies: 7
Views: 884
Posted By Jewel2
Re: Beachlover - How ya Doing???

Hi Sue,
You didn't let us down, especially with how honest you were with us. That takes courage.

I can understand how being on steroids and quitting smoking at the same time would be a tough...
Board: Multiple Sclerosis 08-23-2005, 07:41 PM
Replies: 11
Views: 2,467
Posted By Jewel2
Re: Head trauma and MS?

Hi Kelli,
I agree with your neuro about the stress. Whenever my daughter gets stressed she flares.

She was 19 when she had the accident and the pedestrian was an elderly gentleman who was deaf...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 08-23-2005, 07:00 PM
Replies: 4
Views: 1,140
Posted By Jewel2
Re: Struggling with RSD

Hi,
I agree with Lisa that a good pain management doctor is important to getting a handle on RSD.

I'm curious if your docs have discussed whether or not you have CRPS Type 1 or Type 2. Type 2 is...
Board: Multiple Sclerosis 08-23-2005, 06:49 PM
Replies: 11
Views: 2,467
Posted By Jewel2
Re: Head trauma and MS?

Hi,
Interesting topic. No head injury for my daughter - just a devastating accident in which a pedestrian stepped in front of her and ended up dying. Shortly after the emotional trauma of that...
Board: Multiple Sclerosis 08-21-2005, 07:11 PM
Replies: 5
Views: 902
Posted By Jewel2
Re: treatment help

Hi,
I don't know what state you're in, but some states such as Colorado offer an insurance policy to those who cannot obtain private insurance. The premium is a little bit higher than group...
Board: Multiple Sclerosis 08-21-2005, 12:20 PM
Replies: 9
Views: 1,199
Posted By Jewel2
Re: Quitting smoking..need your encouragement

Hi Sue,
I, too, quit smoking about 27 years ago. I was highly motivated because I found out I was pregnant with my first child. I'm not suggesting you go and get pregnant -LOL- but focus on those...
Board: Multiple Sclerosis 08-21-2005, 12:15 PM
Replies: 2
Views: 828
Posted By Jewel2
Re: a few quick questions

Hi Sarah,
First of all, I wouldn't borrow trouble by worrying about this possibility. As KelliD said, a few things have to combine together for the MS to manifest itself. The most recent statistics...
Board: Incontinence 08-19-2005, 10:51 PM
Replies: 2
Views: 956
Posted By Jewel2
Re: Incontinence...

Hi,
My daughter has major bladder problems and as a result has chronic UTIs. She has had many accidents in private and in public. The biggest problem is that, like you, she has no notice whatsoever....
Board: Multiple Sclerosis 08-19-2005, 10:36 PM
Replies: 15
Views: 6,701
Posted By Jewel2
Re: Terrified and terrorized

Hi,
I'm glad to hear you're starting on a therapy so quickly.

Coincidentally, I just finished reading the results of a 4 year study in Germany where the 4 CRABs were pitted against each other....
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 08-19-2005, 12:36 PM
Replies: 2
Views: 710
Posted By Jewel2
Re: BACK from OUTER SPACE

Hi Brighteyes,
I'm glad your block went okay. It is a good sign that you had some relief even if it didn't last long. Hopefully the next time will last much longer. I'm really glad you got relief in...
Board: Open to All Other Health Topics 08-18-2005, 11:24 PM
Replies: 1
Views: 908
Posted By Jewel2
Re: I have no idea what is wrong with me

Could this be a side effect of a med you are on right now?

Sweating is controlled by the sympathetic nervous system, part of the autonomic nervous system. You might research whether or not OCD can...
Board: Multiple Sclerosis 08-18-2005, 08:04 AM
Replies: 9
Views: 1,572
Posted By Jewel2
Re: steroids or not?

Beachlover,
Some symptoms aren't helped as much by steroids as others. My daughter doesn't get too much relief from steroids for her sensory symptoms and the girdling, but they work great for her...
Board: Pain Management 08-15-2005, 09:51 PM
Replies: 3
Views: 998
Posted By Jewel2
Re: Could pain meds be causing weight gain? HELP

Hi,
I checked the side effects of that med and weight gain is not listed. You can check this and any other med by going to http://medlineplus.gov/ and clicking on drug information.

Have you had...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 08-13-2005, 12:03 AM
Replies: 4
Views: 710
Posted By Jewel2
Re: Help............. Doctor who treat

Hi Kyma,
Ditto to what the others said - a pain management doctor who is an anesthesiologist and has experience treating RSD.

I found mine through my insurance company's network, and fortunately...
Board: Multiple Sclerosis 08-12-2005, 11:55 PM
Replies: 2
Views: 843
Posted By Jewel2
Re: Medician for Muscle spasms

Hi Karen,
Zanaflex is prescribed for several different conditions that cause muscle spasms. People with spinal injuries use it, and I know several people with RSD who use it. I would not assume your...
Board: Open to All Other Health Topics 08-12-2005, 10:27 PM
Replies: 4
Views: 1,083
Posted By Jewel2
Re: Lead Posioning

Hi Poohbear,
Regarding his health, you need to find a doctor who is willing to truly help your son. There are some smart, compassionate doctors who really want to help their patients, but it doesn't...
Board: Multiple Sclerosis 08-11-2005, 10:40 PM
Replies: 6
Views: 1,397
Posted By Jewel2
Re: Is this normal? Really need to talk, so depressed

Hi Jewels,
Have you talked to your doctor about getting some medication for the pain? There are several options. One of them is a tricyclic antidepressant like nortriptylene. This medication helps...
Board: Multiple Sclerosis 08-11-2005, 01:28 PM
Replies: 7
Views: 1,707
Posted By Jewel2
Re: primary progressives

Hi Piers,
I'm sorry you have PPMS. I'm glad you found this support group. MS is tough enough to deal with, but feeling alone makes it even worse.

Like Trueoutlaw29 I have to wonder whether it is...
Board: Multiple Sclerosis 08-11-2005, 09:15 AM
Replies: 2
Views: 1,279
Posted By Jewel2
Re: could I have ms?

Hi flmom,
It is difficult when there are so many strange things going on and no cause can really pinned down. Sorry you're in that position.

Your symptoms are like those of MS, but they could...
Board: Open to All Other Health Topics 08-10-2005, 10:25 PM
Replies: 3
Views: 1,446
Posted By Jewel2
Re: arm pain

Hi,
Did you ever have an MRI of the shoulder? You may have a torn rotator cuff. I have one, and one of the problems I have is raising my arm - but not all of the time. Sometimes I can, and other...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 08-10-2005, 10:12 PM
Replies: 6
Views: 2,729
Posted By Jewel2
Re: Abnormal MRI results---Anyone??

Hi Skooze,
I am so sorry to hear of this 'new' problem of yours. You and I definitely have a strong connection in the "When it rains, it pours" syndrome. I'm ready for a new season as I'm sure you...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 08-10-2005, 09:59 PM
Replies: 15
Views: 8,490
Posted By Jewel2
Re: Lots Of Rsd Questions~

Welcome Leftleg! I wasn't sure if you noticed that this thread is well over a year old. Jenna hasn't been here since then.

But it is very thoughtful of you to offer a suggestion. An aquaintance of...
Showing results 1 to 50 of 500

 







All times are GMT -7. The time now is 01:55 AM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2018 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!