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Board: Myositis 02-09-2010, 08:20 AM
Replies: 48
Views: 47,750
Posted By ricky roinila
Re: I was diagnosed with Polymyositis

thanks guy's for the info on differant drugs. tomorrow morning i go see my doc. I am taking my wife with me cause people listen to her and she is the best witness to my everyday life and stugle,I...
Board: Myositis 02-08-2010, 03:19 AM
Replies: 48
Views: 47,750
Posted By ricky roinila
Re: I was diagnosed with Polymyositis

have a great coming week to this merry band of people. question for you, which one of these drugs that have beenmentioned is the leaso likely to harm the liver, mune is fine but when 3 months ago i...
Board: Myositis 02-06-2010, 02:31 AM
Replies: 48
Views: 47,750
Posted By ricky roinila
Re: I was diagnosed with Polymyositis

rhank you for your encourafement, i think it came at just the right time. i agree with not taking more then told ,nut sometimes it just seemsthat the pills are not working and i am the only one who...
Board: Myositis 02-04-2010, 07:07 PM
Replies: 48
Views: 47,750
Posted By ricky roinila
Re: I was diagnosed with Polymyositis

thank you for sharing your 20 years of expeariance with us all. i hope they have some new dorm of drug out there for us, but if it does come back to the old relyable drugs that we have to take, don't...
Board: Myositis 02-04-2010, 03:42 AM
Replies: 48
Views: 47,750
Posted By ricky roinila
Re: I was diagnosed with Polymyositis

hello and good day to all, just thought i would mention that on todays episode of house, the t.v. program, they mentioed our desease, yes they accually said polymyosis, they didn't talk about it much...
Board: Myositis 02-03-2010, 12:36 AM
Replies: 48
Views: 47,750
Posted By ricky roinila
Re: I was diagnosed with Polymyositis

hello to finnmaid. i to am from finland and would like to talk to you anout your aikment abd mine. hakkaa paalle suomen poika etta ruotsi meita voita. go finland in the olympics, ricky roinila
Board: Myositis 02-02-2010, 08:26 PM
Replies: 48
Views: 47,750
Posted By ricky roinila
Re: I was diagnosed with Polymyositis

well hello people. i had my doctor's appointment this evenig. i was 5 days ahead of schesual ,mmeaning I should have had 5 days worth of meds and painkillers left. well after 2 years of getting these...
Board: Myositis 02-02-2010, 10:15 AM
Replies: 48
Views: 47,750
Posted By ricky roinila
Thumbs up Re: I was diagnosed with Polymyositis

Well, another day another pill. I just got back from the doctor's. renewed my pills and started the downward spirel again. I am taking 7 pills of dteriods, with three patches and calcium,vitd...
Board: Myositis 01-31-2010, 03:48 AM
Replies: 48
Views: 47,750
Posted By ricky roinila
Re: I was diagnosed with Polymyositis

you will know a flare up when you can not wipe your own butt, get dressed, roll over in bed. bassically you have no energy or strength to move. god bless you if you never have a flare up.. ricky
Board: Myositis 01-29-2010, 04:43 AM
Replies: 48
Views: 47,750
Posted By ricky roinila
Re: I was diagnosed with Polymyositis

I want to thank everyone who responfed to my little rant. I think it is very important to hear how others feel and how they are dealing with this desease. I really find myself alienated when I go to...
Board: Myositis 01-24-2010, 03:13 AM
Replies: 48
Views: 47,750
Posted By ricky roinila
Cool Re: to eilean

hello eilean, thank you for your reply, it is nice to be able to hear that other people are out there who know what i am talking about. it makes me so mad when i have dlare up,go to the hospita; and...
Board: Myositis 01-20-2010, 05:03 PM
Replies: 48
Views: 47,750
Posted By ricky roinila
Re: I was diagnosed with Polymyositis

hei there, i was diognosed with polimytosis 2 years ago, they say after 5 years you will know if it goes into remition or you have it for the rest of your life. i also take steriods, they tryed to...
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