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Board: Myositis 02-28-2013, 11:12 AM
Replies: 20
Views: 8,609
Posted By blessedtobeme
Re: Elevated CPK Level

I have had all the PFTs and thats what they told us were normal, nothing to worry about. They did decide I have sleep apnea and in fact, I thought all along it was my husband's snoring that kept me...
Board: Myositis 02-28-2013, 10:47 AM
Replies: 20
Views: 8,609
Posted By blessedtobeme
Re: Elevated CPK Level

Thanks, Ladybud. It seems I live in a constant state of doubt. My test results sometimes, reflect definitive answers, then the next time, nothing as if it were imagined. I think even my son, who is a...
Board: Myositis 02-27-2013, 05:16 PM
Replies: 20
Views: 8,609
Posted By blessedtobeme
Re: Elevated CPK Level

Ladybud, I agree wholeheartedly with Hopefloats36. Thank you for your responses.

I wonder if I'm not losing my mind sometimes. The pulmonologist told my husband and I all was well, they found no...
Board: Myositis 02-26-2013, 03:12 PM
Replies: 20
Views: 8,609
Posted By blessedtobeme
Re: Elevated CPK Level

That must be why my doc was more concerned with how high the AST was compared to the ALT. I have been having the hepatic function tests every 2 weeks but now that the Imuran is stopped - it is going...
Board: Myositis 02-22-2013, 02:10 PM
Replies: 20
Views: 8,609
Posted By blessedtobeme
Re: Elevated CPK Level

Well, I took 60mg of Prednisone for a couple months, then tapered down. Doc started me on Imuran but after 3 weeks my ALT had climbed to 101 so they put me back on Prednisone and off the Imuran....
Board: Myositis 02-22-2013, 02:04 PM
Replies: 20
Views: 8,609
Posted By blessedtobeme
Re: Elevated CPK Level

Well, I took 60mg of Prednisone for a couple months, then tapered down. Doc started me on Imuran but after 3 weeks my ALT had climbed to 101 so they put me back on Prednisone and off the Imuran....
Board: Myositis 10-22-2012, 12:50 PM
Replies: 20
Views: 8,609
Posted By blessedtobeme
Re: Elevated CPK Level

Hi Ladybud,

Doctor determined it is polymyositis. Started me on 60mg Prednisone. Referred me to a cardiologist and pulmonologist. My resting heart rate has been in the 130s/140s and she is...
Board: Myositis 09-20-2012, 06:14 PM
Replies: 20
Views: 8,609
Posted By blessedtobeme
Re: Elevated CPK Level

Thanks, Ladybud. Actually, the only thing I have even a remote diagnosis for is RA. I had an ultrasound yesterday that showed synovial thickness. My hands and toes are swollen and painful. I have a...
Board: Myositis 09-20-2012, 05:01 PM
Replies: 20
Views: 8,609
Posted By blessedtobeme
Elevated CPK Level

Do your muscles get weaker as your CPK level increases? Mine is only mildly elevated at 271 but has been steadily climbing for the past 18 months. My AST and ALT are also elevated.

Thanks for your...
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