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Board: Inner Ear Disorders 03-06-2013, 08:01 AM
Replies: 29
Views: 5,268
Posted By manybikes
Re: Bilateral Loss

Hey Surfafrica

You are definitely on the right track for recovery/adaptation. I also did a considerable amount of VRT but nothing beats just getting back to everyday living to give your VRT that...
Board: Inner Ear Disorders 03-05-2013, 08:18 AM
Replies: 29
Views: 5,268
Posted By manybikes
Re: Bilateral Loss

As far as I know there is no known cure for BVL . There is considerable research into the possibility of regenerating the nerves (or hairs) in the inner ear. Apparently they have been able to...
Board: Inner Ear Disorders 03-04-2013, 10:38 PM
Replies: 29
Views: 5,268
Posted By manybikes
Re: Bilateral Loss

Hi Surfafrica

I no longer have symptoms that have any real effect my everyday life. Keep in mind that my everyday life does not involve being a roofer, acrobat or tight rope walker..just kidding....
Board: Inner Ear Disorders 03-03-2013, 09:53 PM
Replies: 29
Views: 5,268
Posted By manybikes
Re: Bilateral Loss

Hi MBK

It was more of a slow process for the oscillopsia to get to the point where it was no longer an issue.
The first 2 years the oscillopsia would vary in intensity week to week/day to day. I...
Board: Inner Ear Disorders 09-29-2012, 09:15 AM
Replies: 29
Views: 5,268
Posted By manybikes
Re: Bilateral Loss

BVL stands for Bilateral Vestibular Failure.
This means the balance function of your inner ears on both sides has ceased to function.

If you have been through a lot of testing they should have...
Board: Inner Ear Disorders 09-20-2012, 06:22 PM
Replies: 29
Views: 5,268
Posted By manybikes
Re: Bilateral Loss

I was 50 when things started to fall apart. It took less than a year before I was totally without function...maybe less.
My abilities seem to improve every year. I must admit that I pushed myself...
Board: Inner Ear Disorders 09-20-2012, 08:49 AM
Replies: 29
Views: 5,268
Posted By manybikes
Re: Bilateral Loss

I found oscillopsia the worst symptom to deal with.
On rare occasions I will notice it but it has more or less disappeared...the brain learns to adapt.
You don't have to answer this, but, how old...
Board: Inner Ear Disorders 09-19-2012, 07:01 PM
Replies: 29
Views: 5,268
Posted By manybikes
Re: Bilateral Loss

Well, photophobia is not on my list of ailments...how about photogenic! :) (I only wish)
Just kidding

I never did have to use a cane (or any kind of aid) for walking, although I did stagger...
Board: Inner Ear Disorders 09-19-2012, 04:07 PM
Replies: 29
Views: 5,268
Posted By manybikes
Re: Bilateral Loss Bilateral Vestibulopathy

Hi JD

Yes, I am BVL, have been for about 7 years now.
When you say 14 years, does this mean you took PT 14 years ago and the spinning chair test?
Have you been BVL for 14 years or has it taken...
Board: Inner Ear Disorders 09-10-2012, 01:22 PM
Replies: 29
Views: 5,268
Posted By manybikes
Re: Bilateral Loss

Yes, the movement can happen even when you are still. It is called Nystagmus, the involuntary movement of your eyes. It is much more pronounced when you are in motion though.
The inner ears play an...
Board: Inner Ear Disorders 09-09-2012, 08:26 PM
Replies: 29
Views: 5,268
Posted By manybikes
Re: Bilateral Loss

I first noticed the oscillopsia at night while driving. Street lights and the tail lights of cars started to look strange to me, they would move in a fashion I had never seen, kind of like when you...
Board: Inner Ear Disorders 09-09-2012, 09:38 AM
Replies: 29
Views: 5,268
Posted By manybikes
Re: Bilateral Loss

I feel for you. It also took me well over a year to try and get answers. In the meantime it sure does put a kink in your life.
As you can tell from reading this forum, inner ear disorders can be...
Board: Inner Ear Disorders 08-13-2012, 11:54 AM
Replies: 29
Views: 5,268
Posted By manybikes
Re: Bilateral Loss

Yes, my balance seemed normal when the vertigo attacks started.
I had been an avid slalom water skiier for many years. I had done hundreds of single ski deep water starts with no problems...
Board: Inner Ear Disorders 08-12-2012, 04:02 PM
Replies: 29
Views: 5,268
Posted By manybikes
Re: Bilateral Loss

Yep, getting a shot of vertigo while standing in front of a Class is a real show stopper! I am not a teacher but there were a few times I simply fell to the ground in front of co-workers etc....
Board: Inner Ear Disorders 08-12-2012, 12:17 PM
Replies: 29
Views: 5,268
Posted By manybikes
Re: Bilateral Loss

I believe the oscillopsia started about a year after the appearance of the vertigo.
The spells of vertigo were very short but very violent.
The oscillopsia was at first only noticed at night but...
Board: Inner Ear Disorders 08-07-2012, 10:33 PM
Replies: 29
Views: 5,268
Posted By manybikes
Re: Bilateral Loss

I have BVL, happened close to 7 years ago now.
Initially I also would get occasional severe bouts of vertigo that would only last for seconds.
Initially my DR thought I had BPPV and treated me for...
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