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Board: Pain Management 08-10-2010, 07:28 AM
Replies: 4
Views: 4,321
Posted By palarin
Re: Need Help:having Horrible Pain From Morphine Pump Implant

Thanks for the input everyone! Things eventually got better over time. However, this past May I began hearing this alarm. I went back to my pain doctor so that a Medtronic technician could run...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 10-26-2007, 10:08 AM
Replies: 6
Views: 1,544
Posted By palarin
Re: Your job - and RSD

Hi GatorGirl27,

I was diagnosed with RSD in both feet, legs, and lower back in Dec. 2000. My doctor told me that RSD would change my life and that I need to know that there will come a time when...
Board: Gallbladder 10-04-2007, 10:05 AM
Replies: 2
Views: 13,155
Posted By palarin
Re: Complications from recent Gallbladder surgery.

Molly93,
Thanks for your feedback. It appears that you had a rough time as well. I'm glad to hear that everything is back to normal. However, I hope that it does not take me 8 months to feel...
Board: Gallbladder 10-02-2007, 09:57 AM
Replies: 2
Views: 13,155
Posted By palarin
Complications from recent Gallbladder surgery.

I recently had my gallbladder removed on September 14. I thought that I was going in for a simple gallbladder surgery but things changed once my doctor got in there. She removed my gallbladder but...
Board: Liver & Pancreas Disorders 09-21-2007, 11:14 AM
Replies: 4
Views: 1,990
Posted By palarin
Re: list of tests to determine liver problem

Hi Joanie,

I don't have a list of tests but I do have elevated enzymes as well. It was found during my pre-op tests. I just had my gallbladder removed last Friday and while she was in there, she...
Board: Liver & Pancreas Disorders 09-21-2007, 10:48 AM
Replies: 6
Views: 3,263
Posted By palarin
Re: elevated Liver ezymes

Last month I had a really bad gallbladder attack. After being seen at the ER, I was told that it needed to be removed ASAP. So, I had surgery last Friday, Sept. 14.

Prior to surgery, my...
Board: Hair Loss / Alopecia 04-25-2007, 09:36 AM
Replies: 7
Views: 2,406
Posted By palarin
Re: Hair loss?

Diamondli,

I'm not assuming anything. My doctor told me that my hair loss was from my RSD. This problem was not as bad until my RSD had become systemic. If I would run my fingers through it...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 04-19-2007, 03:41 PM
Replies: 25
Views: 6,059
Posted By palarin
Re: Has SCS caused anyones RSD to spread?

Well, I have had 3 SCS implants since 2002. My RSD started in 2000 in my left foot/leg & traveled to my right foot/leg and lower back. This all resulted from having Endoscopic surgery on both feet...
Board: Hair Loss / Alopecia 04-19-2007, 02:51 PM
Replies: 7
Views: 2,406
Posted By palarin
Re: Hair loss?

Hi Dee,

I too have lost a lot of hair but it is falling out from my head. I noticed it started getting worse as my disease became worse. I have had RSD now for almost 7 years. Whenever my hair...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 04-09-2007, 09:07 PM
Replies: 6
Views: 1,939
Posted By palarin
Re: Recently learned i had RSD............HELP!!!

Hi Cat,

I'm so sorry to hear all of the problems you are going through. My brother deals with W/C for a different type of injury.

As for your current state, I can totally sympathize with you...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 12-16-2006, 03:09 PM
Replies: 7
Views: 1,866
Posted By palarin
Re: I'm stuck between Crying & Outbursts!!

Thanks to everyone for your kind words and support. The other day I could not stand it anymore and called my doctor's office, which set up an appointment for me that afternoon.

We talked about...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 12-10-2006, 09:25 PM
Replies: 7
Views: 1,866
Posted By palarin
Unhappy I'm stuck between Crying & Outbursts!!

Hi Everyone,

I have tried so very hard these last few weeks to keep things together but I feel like I am spinning out of control. My depression has gotten worse. I did some research on Effexor...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 11-29-2006, 09:23 PM
Replies: 3
Views: 965
Posted By palarin
Re: Anyone in Ohio? Found a great doc!

GAWZ,

What is the doctor's name in OHIO and what city is he/she located in?

Thanks,
Marie
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 11-28-2006, 11:16 PM
Replies: 12
Views: 2,513
Posted By palarin
Unhappy Re: i'm letting it take over my life.....

Hello Dini,

Welcome to the RSD board. You will find that there are many people here that are going through the same thing you are. I was so happy when I found this board because you can benefit...
Board: Weight Loss / Surgical 11-11-2006, 09:20 PM
Replies: 0
Views: 1,842
Posted By palarin
Considering Lap Band, but unable to Exercise

Hello Everyone,

I am normally on the RSD (Reflex Sympathetic Dystrophy) board. I suffer from this horrible disease that started in both feet, and then spread through out my entire body. I have a...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 10-18-2006, 05:05 PM
Replies: 12
Views: 2,539
Posted By palarin
Re: Has anyone been to Psychiatrist for R S D?

Robbin,

When RSD starts attacking organs, trust me you will know it because it is the worse pain you will ever experience. In my case it feels like someone is twisting your kidney, stomach, and...
Board: Depression 10-16-2006, 08:23 PM
Replies: 1
Views: 970
Posted By palarin
Already taking Effexor XR, Dr. added Welbutrin XL

Hi Everyone,

I suffer from depression due to a severe case of RSD (Reflex Sympathetic Dystropy). I went to my doctor last week who prescribes my depression medication. I was already on Effexor...
Board: Depression 10-16-2006, 08:17 PM
Replies: 0
Views: 621
Posted By palarin
Already taking Effexor XR, Dr. added Welbutrin XL

Hi Everyone,

I suffer from depression due to a severe case of RSD (Reflex Sympathetic Dystropy). I went to my doctor last week who prescribes my depression medication. I was already on Effexor...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 10-10-2006, 09:27 PM
Replies: 12
Views: 2,539
Posted By palarin
Re: Has anyone been to Psychiatrist for R S D?

Allygirl,

My case is not WC; however when I filed for Social Security/Disability, they sent me to a psychiatrist of their choice. It was just part of the process that I had to go through. I...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 10-04-2006, 05:51 PM
Replies: 9
Views: 3,562
Posted By palarin
Re: CNN video link re: RSD and "coma therapy"

Hi Everyone,

I received an email about the show and procedure. I watched the video and was curious about it because it focused on teenage girls. However, I thought if it worked for them, maybe...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 09-10-2006, 08:09 PM
Replies: 8
Views: 3,203
Posted By palarin
Re: Just need to VENT - HELP

Skooze,

I noticed that you mentioned your RSD was going full body now. May I ask what the doctor(s) are doing for you or do they have any plans?

I'm curious because I was diagnosed RSD...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 09-10-2006, 08:02 PM
Replies: 8
Views: 3,203
Posted By palarin
Re: Just need to VENT - HELP

Hi Angi,

I agree with Skooze and everyone else who has commented about the effects of Neurontin. My pain management doctor had me on it at the beginning of this horrible nightmare that I live (6+...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 09-09-2006, 06:03 PM
Replies: 2
Views: 2,075
Posted By palarin
Dr. switched Effexor to Cymbalta, need feedback on Cymbalta

Hi Everyone,

I went to my doctor yesterday and he decided to take me off of Effexor XR 225mg and move me directly onto Cymbalta 60mg. These were given to me for my depression.

What I would...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 09-07-2006, 09:57 PM
Replies: 6
Views: 1,795
Posted By palarin
Re: What is life like with RSD??

Cindy,

Ben is correct, once you are infected with RSD via foot, arm, etc...your life will definitely never be the same. I'm with Ben, RSD Sucks!!!! My RSD started in 2000 via my feet and spread...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 09-04-2006, 08:45 PM
Replies: 5
Views: 1,543
Posted By palarin
Lightbulb Re: I've had it with RSD!

Ben,

I have never had to deal with WC but have read a lot of horror stories and your story takes the cake. I am so sorry for all the things that you are going through with the doctors and WC. I...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 07-08-2006, 08:12 PM
Replies: 3
Views: 950
Posted By palarin
Any RSDers currently on a diet that is working for them?

Hi Everyone!

My depression is bad enough with the amount of pain from RSD day in and day out. However, when the doctors start switching around your pain meds and your weight starts climbing and...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 06-13-2006, 07:12 PM
Replies: 10
Views: 2,198
Posted By palarin
So you have RSD....Now what do you do with your life???

I'm wondering among the large numbers of us who have RSD, on Social Security Disability, and can no longer work.

WHAT DO YOU DO WITH YOURSELF NOW????

My depression continues to intensify...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 06-13-2006, 06:45 PM
Replies: 6
Views: 2,499
Posted By palarin
Re: returning to work with r.s.d.

Betty,

I understand somewhat where you are coming from. I too was coming up on a year of being off of work last Sept 2005 and there was just no way that I could return. I had been kidding myself...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 05-05-2006, 07:43 PM
Replies: 41
Views: 8,868
Posted By palarin
Re: GINGER L.C. My Story {R.S.D.}

Hi Ginger,

I have had RSD since 2000. It started in my left foot/leg and has now spread to all of my limbs. I am at the point now where I have episodes where it even attacks my organs (this is...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 05-02-2006, 06:16 PM
Replies: 18
Views: 8,250
Posted By palarin
Re: Spinal Cord Stimulator vs. Intrathecal Infusion Pump

To follow-up on questions regarding driving and getting into a pool. txmomof3 is correct about turning off your SCS box prior to driving. I too have the SCS implant and after the normal 12 week...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 04-14-2006, 09:37 AM
Replies: 18
Views: 8,250
Posted By palarin
Re: Spinal Cord Stimulator vs. Intrathecal Infusion Pump

Dear TX:

I have the SCS box implanted for pain in my lower back down through both legs and into my feet. I had the Intrathecal Infusion Pump put in last October to help distribute morphine...
Board: Weight Loss 03-16-2006, 12:21 PM
Replies: 3
Views: 796
Posted By palarin
Help! What if your unable to exercise???

I have Systemic RSD (Reflex Sympathetic Dystrophy) which is in all four limbs of my body. I have a spinal cord stimulator in my back, a morphine pump in my stomach, and I use a wheelchair to get...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 03-16-2006, 11:39 AM
Replies: 5
Views: 3,568
Posted By palarin
Re: Scared to take Topamax!

I am taking Topamax too, but not for my RSD. My Neurologist is using it to help prevent migraines. I have suffered from them for many years however since the RSD came on, they have gotten worse. I...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 03-05-2006, 01:22 PM
Replies: 7
Views: 3,156
Posted By palarin
Re: IS RSD Spreading in most CASES?

Hi Everyone,

Talk about spreading, where do I start?? My RSD started in my left foot from simple orthoscopic foot surgery. It spread up my leg into my lower back and then started in my right...
Board: Pain Management 10-10-2005, 09:14 AM
Replies: 4
Views: 4,321
Posted By palarin
Need Help: having Horrible Pain From Morphine Pump Implant

Hi Everyone,

I was diagnosed with RSD in both feet after simple Plantar Fascitis surgery in 2000. The pain spread from my lower back down into both legs and feet. I have been on various...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 09-21-2005, 12:20 PM
Replies: 8
Views: 2,046
Posted By palarin
Re: RSD spreading

Hi Claire,

I first came in contact with RSD through having simple surgery on my foot in 2000. I had an endoscopic procedure done on both feet for plantar fasciits. I was unable to walk for over...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 09-21-2005, 11:51 AM
Replies: 6
Views: 2,940
Posted By palarin
Re: can't sleep in a bed is any one else using a recliner chair

Chick,

It's nice to hear that there are other RSD patients out there like me. I sleep in a bed for 2 hrs. and then the pain is just too unbearable so I move to a recliner in the livingroom for...
Board: Pain Management 08-31-2005, 12:06 PM
Replies: 2
Views: 4,640
Posted By palarin
Do you have a Morphine Pump and a Spinal Cord Stimulator Box?

Hi Everyone,

I'm looking for feedback from anyone that currently has or did have the Morphine Pump and the Spinal Cord Stimulator implanted at the same time for pain control.

I'm interested...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 08-30-2005, 10:28 AM
Replies: 14
Views: 1,735
Posted By palarin
Re: Questions about Spinal Cord Stimulators

Hello Everyone,

I've had my SCS box since March of 2002 and it has help me to be able to walk around my office more than I was able to before. You will be sore for the first few weeks and you...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 08-22-2005, 01:26 PM
Replies: 17
Views: 7,973
Posted By palarin
Re: RSD Systemic - attacking other organs

Chest pain, Burning pain in my abdomen, Burning just about all over, swelling in feet, legs, arms, & hands, redness, joint pain, difficulty getting up and starting to move, muscle spasms, sometimes I...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 08-21-2005, 04:41 PM
Replies: 17
Views: 7,973
Posted By palarin
RSD Systemic - attacking other organs

Hi Everyone,

Its been a little while since I posted anything. I was diagnosed with Systemic RSD earlier this year after living with RSD for the past 4 years in my lower back and extremities.
...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 08-21-2005, 04:27 PM
Replies: 5
Views: 1,147
Posted By palarin
Re: Are you using a Mobility device due to RSD?

Hi Sherry,

I finally got my insurance company to pay for my scooter. I got it from the scooter store. It has two wheels in the back and one in the front. Its adjustable for speed and colapses...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 04-15-2005, 12:22 PM
Replies: 5
Views: 1,147
Posted By palarin
Are you using a Mobility device due to RSD?

I have had RSD in my lower extremities since 2000. My RSD recently has become systemic in all extremities. I've been having a hard time getting around in which there are times that my legs will...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 03-19-2005, 01:58 PM
Replies: 20
Views: 3,066
Posted By palarin
Re: Coping With RSD

Bob,

I'm so thankful that we have a board such as this one to come to when we're not feeling so well so that we can reach out to others who will understand just how we feel.

I know what you...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 03-15-2005, 06:52 AM
Replies: 6
Views: 1,528
Posted By palarin
Re: Anyone have any luck with a morphine pump?

Are you talking about the doctor from Columbus, Ohio???
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 03-14-2005, 04:34 PM
Replies: 6
Views: 1,528
Posted By palarin
Anyone have any luck with a morphine pump?

I wanted to see if anyone has had any luck with having a morphine pump implant to help control their RSD pain?

I currently have a spinal cord stimulator impant for my feet/legs but now my RSD has...
Board: Carpal Tunnel Syndrome 03-05-2005, 09:00 PM
Replies: 2
Views: 2,265
Posted By palarin
Anyone ever have Ulnar Nerve Entrapment?

I had Carpal Tunnel in both hands and also had surgery on both in 1996. I must note that my hands worked great after the surgery.

Last June 2004, I noticed that my ring finger and pinky went numb...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 03-01-2005, 11:03 AM
Replies: 14
Views: 3,239
Posted By palarin
Re: New with RSD (new to boards)

Hi Cindy,

I was diagnosed with RSD after having simple foot surgery on both feet in Aug/Sept 2000. It took 4 months before the doctors could figure out what was going on. I went through numerous...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 02-26-2005, 04:49 PM
Replies: 15
Views: 9,529
Posted By palarin
Re: Can you work with RSD???

Jessica,

I'm sorry to hear about all of the trouble you have had at such a young age. I thought that I was young (age 34) when my RSD nightmare had started.

Since your feet are not your best...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 02-25-2005, 03:13 PM
Replies: 15
Views: 9,529
Posted By palarin
Re: Can you work with RSD???

Bob A

No need to appologize. I guess that I just took it the wrong way. I'm sorry to hear about your Post Traumatic Stress Disorder on top of RSD.

I try to think of positive things to get...
Showing results 1 to 50 of 54

 







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