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Board: Alzheimer's Disease & Dementia 02-19-2009, 06:35 PM
Replies: 35
Views: 4,042
Posted By Janie5301
Re: Final Update from CaringSister

Diane,
It's been a few days since I've been on the site and I saw your message and wanted to send you a few words. First, please know how sorry I am for the loss of your Mom. There are no words to...
Board: Alzheimer's Disease & Dementia 01-04-2009, 07:42 AM
Replies: 9
Views: 1,481
Posted By Janie5301
Re: my sympathies petal*pusher

Petal,
Losing someone you love is always a sad thing, but during the holidays makes it more difficult. Know that all of us here are grieving with you and hope that with time and God's love you and...
Board: Alzheimer's Disease & Dementia 12-27-2008, 08:39 AM
Replies: 21
Views: 2,613
Posted By Janie5301
Re: First year almost over

Dear Martha,
I too am going through my first year, but without my DH and the holidays are tough. I've made it through Thanksgiving and Christmas and now there's just our anniversary, (Dec 28th),...
Board: Alzheimer's Disease & Dementia 11-30-2008, 06:42 AM
Replies: 27
Views: 4,363
Posted By Janie5301
Re: I may never have my own life

I too am a survivor but am still trying to adjust to my "new" life without my DH who passed away last May. I'm 54 and work full time. Of course you will have a life after, but it's getting through...
Board: Alzheimer's Disease & Dementia 11-27-2008, 08:01 PM
Replies: 5
Views: 1,187
Posted By Janie5301
Re: A Day of Thanks

I too have many wonderful memories of family and friends...thanks to all of you. I am blessed to have both of my sons home this holiday, two beautiful granddaughters, inlaws etc. I guess we all...
Board: Alzheimer's Disease & Dementia 11-27-2008, 06:39 PM
Replies: 6
Views: 1,243
Posted By Janie5301
Re: Been reading and thinking of you all

Sorry Sunnydaze! Thanks to you as well! I appreciate your kinds words too!
Love Janie
Board: Alzheimer's Disease & Dementia 11-27-2008, 06:35 PM
Replies: 6
Views: 1,243
Posted By Janie5301
Re: Been reading and thinking of you all

I thank you all for your kind and loving words. I can't even tell you how much I enjoy hearing from you. Caroline, Deb & Jill thank you for your support and know that I pray for you all daily. ...
Board: Alzheimer's Disease & Dementia 11-26-2008, 07:13 PM
Replies: 6
Views: 1,243
Posted By Janie5301
Been reading and thinking of you all

Hi All,
I just wanted you all to know that I continue to read, think and pray about you all but haven't posted for awhile. Some days it's just too hard to and others I'm just too tired to. Mostly,...
Board: Alzheimer's Disease & Dementia 10-24-2008, 08:05 AM
Replies: 11
Views: 1,720
Posted By Janie5301
Re: Mom in Hospital

Pauline,
I will keep you and your Mom in my prayers today...

Love Janie
Board: Alzheimer's Disease & Dementia 10-04-2008, 06:31 AM
Replies: 11
Views: 4,050
Posted By Janie5301
Re: My dear Mother is gone now

Rhoda,
So very sorry to hear of your Mom's passing. That journey ends and another starts with your life without your Mom. I'm a few months into my journey without my sweet DH and know that taking...
Board: Alzheimer's Disease & Dementia 10-04-2008, 06:22 AM
Replies: 12
Views: 2,150
Posted By Janie5301
Re: Mixed Results

Hi all,
I remember the first time I took my DH to his Dr for a "consultation" he, the Dr, thought I was nuts. Now this was the first time I had met my DH's doc and he had always loved going to see...
Board: Alzheimer's Disease & Dementia 10-04-2008, 06:10 AM
Replies: 6
Views: 2,146
Posted By Janie5301
Re: Father dying of late stage alzheimers

Welcome Tolls....so sorry to hear about your Dad. It must be so hard going it alone and trying to make the hard decisions. It sounds like state care in South Africa is not an option your...
Board: Alzheimer's Disease & Dementia 10-01-2008, 03:27 AM
Replies: 7
Views: 1,780
Posted By Janie5301
Re: Wondering what you would do....

Welcome to our board. I would have to agree with Deb in that is it a quality of life issue or a pain management issue. I have a tendency to lean to the pain management as it sounds like your Mom...
Board: Alzheimer's Disease & Dementia 09-30-2008, 04:15 AM
Replies: 2
Views: 3,535
Posted By Janie5301
Re: how long can a patient survive on liquid food

In his final stage, my DH lasted about 10 days and in that process didn't suffer and was in no pain. At that point too he was on Thorazine to help calm him and I'm sure that helped to keep him...
Board: Alzheimer's Disease & Dementia 09-23-2008, 02:55 PM
Replies: 7
Views: 1,356
Posted By Janie5301
Re: Keepin' me hoppin'!

Little Deb,
Yes, he sounds like my DH was for quite awhile. I work so I eventually had caregivers here at the house to take care of him and did until he passed last May. I can't remember, does he...
Board: Alzheimer's Disease & Dementia 09-22-2008, 04:30 PM
Replies: 2
Views: 2,201
Posted By Janie5301
Re: Anybody live with a Control Freak?

My husband did not experience this in his early stages but in reading your post you had mentioned he was in the early stages. My thought is this: maybe he is acting this way because he knows...
Board: Alzheimer's Disease & Dementia 09-18-2008, 04:36 AM
Replies: 4
Views: 1,213
Posted By Janie5301
Re: downs syndrome and dementia

Ukiahlinda,
Just checking in to see what the doctor said about your brother. I don't have any experience with Downs and dementia but it sounded like something was going on and I just wanted you to...
Board: Alzheimer's Disease & Dementia 09-17-2008, 03:57 PM
Replies: 18
Views: 3,230
Posted By Janie5301
Re: Dentist visit

I LOVE Toasted Head Chardonnay!

Janie
Board: Alzheimer's Disease & Dementia 09-15-2008, 03:48 PM
Replies: 15
Views: 4,247
Posted By Janie5301
Re: Wife Diagnosed at 48

TeBozo....wonderful news! Now you both can get your lives back.

Blessings and love
Janie
Board: Alzheimer's Disease & Dementia 09-13-2008, 05:12 PM
Replies: 13
Views: 1,488
Posted By Janie5301
Re: Off to JFK

Oh Martha....I'm glad that's behind you as I know it was hard. I think we all have too much stuff too. I'm in the process of downsizing my stuff and it feels so good. I find that living without my...
Board: Alzheimer's Disease & Dementia 09-13-2008, 08:59 AM
Replies: 7
Views: 1,594
Posted By Janie5301
Re: Is this common?

Little Deb,
I experienced this same thing with my DH although he was too young, he would say he didn't want to die. This happened a few times and I would always say something like "we're all going...
Board: Alzheimer's Disease & Dementia 09-11-2008, 06:47 PM
Replies: 10
Views: 1,882
Posted By Janie5301
Re: Advice needed regarding visiting...

Is this something that has just started? How is she when you're not there? I would have to agree with the social worker in that you are the best judge, or, this might just be a phase she's going...
Board: Alzheimer's Disease & Dementia 09-09-2008, 04:25 AM
Replies: 1
Views: 790
Posted By Janie5301
Support Group

Hi all,
I went to my first Supportive Spouses group yesterday and amazingly enough, my DH was the only dementia patient. There also was only one other female and she was younger that me but we all...
Board: Alzheimer's Disease & Dementia 09-07-2008, 05:45 PM
Replies: 13
Views: 1,488
Posted By Janie5301
Re: Off to JFK

Martha,
I know this will be a hard trip and I wish you well. Do wave as you'll be going by Toledo (sort of) and I live in a suburb. Take the time that you need and remember all the things you must...
Board: Alzheimer's Disease & Dementia 09-05-2008, 04:54 AM
Replies: 9
Views: 6,745
Posted By Janie5301
Re: How does frontotemperal dementia make you feel

My husband did not experience physical ill health with his Pick's and was quite healthy all his life and right up til the end but this could just be a temporary thing or a characteristic of his...
Board: Alzheimer's Disease & Dementia 09-05-2008, 04:46 AM
Replies: 10
Views: 2,966
Posted By Janie5301
Re: new here, EOAD diagnosis made today

Jebridan,
In reading your post I had so many memories flooding back to me and my heart just breaks for you knowing what lies ahead for your family. We believe that in my husbands case that his was...
Board: Alzheimer's Disease & Dementia 09-04-2008, 05:38 PM
Replies: 9
Views: 6,745
Posted By Janie5301
Re: How does frontotemperal dementia make you feel

Why do you think it's FT dementia? Did the doctor say that's what he thought he had? I would suggest a complete workup for your husband and if dementia is a possibility, I'd find a good neurologist...
Board: Alzheimer's Disease & Dementia 09-04-2008, 02:43 PM
Replies: 9
Views: 6,745
Posted By Janie5301
Re: How does frontotemperal dementia make you feel

Welcome Sharolbrust to the board. My husband had frontaltemporal dementia and like most dementias he started out forgetting things like how to balance a checkbook, drive etc and as the illness...
Board: Alzheimer's Disease & Dementia 09-02-2008, 06:43 PM
Replies: 10
Views: 2,966
Posted By Janie5301
Re: new here, EOAD diagnosis made today

Welcome Cindy and I'm so glad you found us. Unfortunately, you & I have too much in common. My DH was diagnosed at 52 with Pick's, which is just one of the dementias out there as Alz is another. ...
Board: Alzheimer's Disease & Dementia 09-02-2008, 04:23 PM
Replies: 14
Views: 2,547
Posted By Janie5301
Re: New to this board and need help w/ my dad...

Welcome Vicki...so glad you found us. I was thinking maybe swimming might be a good exercise for your Dad. Nothing too strenuous, just maybe a few laps to start, using a kick board for a lap or two...
Board: Alzheimer's Disease & Dementia 09-01-2008, 06:54 PM
Replies: 4
Views: 959
Posted By Janie5301
Re: Thankyou one and all

I agree with Meg, Deb.....Good luck metalmum...
Love Janie
Board: Alzheimer's Disease & Dementia 09-01-2008, 06:50 PM
Replies: 7
Views: 1,355
Posted By Janie5301
Re: Good Luck

Hi all,
My son got home last night from New Orleans as he was ordered out by the mandatory evacuation. Some of you know that he was down there rebuilding from Katrina and left on Friday and by way...
Board: Alzheimer's Disease & Dementia 08-29-2008, 07:25 PM
Replies: 14
Views: 2,200
Posted By Janie5301
Re: I am new here..

Welcome AlishasMom...you are in the right place. You need to get some help, whether it's respite from the local Alzheimers association or from some friends. You are not going to be any good to...
Board: Alzheimer's Disease & Dementia 08-29-2008, 07:16 PM
Replies: 11
Views: 1,624
Posted By Janie5301
Re: need of loving arms

Thanks Martha and hang in there Pam...

Love and blessings,
Janie
Board: Alzheimer's Disease & Dementia 08-29-2008, 07:15 PM
Replies: 11
Views: 1,624
Posted By Janie5301
Re: need of loving arms

Thanks Martha and hang in there Meg.....

Love and blessings,
Janie
Board: Alzheimer's Disease & Dementia 08-29-2008, 02:05 PM
Replies: 11
Views: 1,624
Posted By Janie5301
Re: need of loving arms

Lots of hugs and love coming your way. We all feel the loss of our loved ones even when they're still with us but knowing that your Mom will never hug you again is devastating. I also feel that loss...
Board: Alzheimer's Disease & Dementia 08-28-2008, 08:08 PM
Replies: 14
Views: 2,200
Posted By Janie5301
Re: I am new here..

I'm with Pam. I didn't find this board until two months before my DH passed away. Welcome and come often as there are many here to help you get through and live with this crazy illness.

Love...
Board: Alzheimer's Disease & Dementia 08-28-2008, 06:33 PM
Replies: 86
Views: 14,168
Posted By Janie5301
Re: Dear ladies, I need a sympathetic ear.......

Count me in....love and prayers Deb.
Love Janie
Board: Alzheimer's Disease & Dementia 08-28-2008, 06:30 PM
Replies: 12
Views: 1,742
Posted By Janie5301
Re: auf wiedersehen

Ibake,
I know everyone is asking (begging) you to stay and I want you to know that I understand if you feel it's time to take a break. After losing your loved ones to this disease, as you & I have,...
Board: Alzheimer's Disease & Dementia 08-26-2008, 07:54 PM
Replies: 12
Views: 1,740
Posted By Janie5301
Re: You are the best

Martha...I can't believe what I'm reading, but I guess we've all come to depend on your wisdom and experience. My DH passed last May and I still come daily, I think as part of my mourning...
Board: Alzheimer's Disease & Dementia 08-22-2008, 05:20 AM
Replies: 86
Views: 14,168
Posted By Janie5301
Re: Dear ladies, I need a sympathetic ear.......

You guys are the best. I woke up this morning feeling a little low and this thread made me smile. Thanks for being here...

Love Janie
Board: Alzheimer's Disease & Dementia 08-21-2008, 01:29 PM
Replies: 86
Views: 14,168
Posted By Janie5301
Re: Dear ladies, I need a sympathetic ear.......

Caroline, if that sweet bundle is half as strong as you are, he/she will be just fine. But I'm sending you love and LOTS of prayers your way and try to keep your feet up if you can.

Love,
Janie
Board: Alzheimer's Disease & Dementia 08-20-2008, 05:34 PM
Replies: 6
Views: 1,414
Posted By Janie5301
Re: Tell us a story...

What a GREAT idea Meg...now let's see, ok. My DH loved to cook and once I went back to work after the youngest was about 3 1/2, he just took up the slack in our home. He grocery shopped, did...
Board: Alzheimer's Disease & Dementia 08-20-2008, 01:55 PM
Replies: 86
Views: 14,168
Posted By Janie5301
Re: Dear ladies, I need a sympathetic ear.......

Caroline....a baby! How wonderful and truly a gift. We don't get to pick our families and I'm one of six siblings so I know how crazy things can get. I guess sometimes you just have to let it all...
Board: Alzheimer's Disease & Dementia 08-20-2008, 01:42 PM
Replies: 4
Views: 871
Posted By Janie5301
Took a little trip

I just got back from 4 days in New Orleans to visit my oldest son who is building Katrina houses. He's down there without his family, wife & two daughters, so I took them with me and we had a great...
Board: Alzheimer's Disease & Dementia 08-20-2008, 05:24 AM
Replies: 15
Views: 2,660
Posted By Janie5301
Re: Dad's new oddities...

Oh Deb I'm so sorry, I bet that really scared you! I remember when my DH told me he "took a walk today" just around the neighborhood. I freaked out a bit but that was before I had daily caregivers...
Board: Alzheimer's Disease & Dementia 08-19-2008, 04:56 AM
Replies: 8
Views: 1,437
Posted By Janie5301
Re: Husband with Alzheimer's Part 2

Morning Carol,
I would definitely check with the Dr about a med change or possibly an increase. My DH never exhibited any anger towards me so I'm at a loss there but how far into the disease is he?...
Board: Alzheimer's Disease & Dementia 08-12-2008, 05:51 PM
Replies: 5
Views: 1,594
Posted By Janie5301
Re: Help

Val,
I too was my husbands caregiver and experienced all sorts of issues I had to find solutions to. How far into the disease is he? Is it time to consider an alternative plan so you can find some...
Board: Alzheimer's Disease & Dementia 08-12-2008, 05:44 PM
Replies: 8
Views: 2,992
Posted By Janie5301
Re: Too young for Alzheimer's

Welcome to this site but I'm so sorry for your reason to be here. You had indicated that this young woman had been tested but didn't say if it was in fact dementia or what type. There are...
Board: Alzheimer's Disease & Dementia 08-07-2008, 03:45 PM
Replies: 5
Views: 7,043
Posted By Janie5301
Re: how long can someone go with out eating or drinking before they die

I took my DH about a week and a half. The only thing we were giving him in the end was thorazine....lots of it. Hospice was also here with me and they, like you all, saved my life.

Love Janie
Showing results 1 to 50 of 126

 







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