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Board: Spinal Cord Disorders 11-07-2014, 10:17 PM
Replies: 7
Views: 2,308
Posted By powergrub
Re: MRI translation. 24/7 Pain and depressed... Is this myelomelacia? MRI

It looks like you would benefit from seeing a pain management specialist. They may offer other pain meds that take down swelling and nerve pain like Gabapentin and Lyrica, possibly Neurontin.

I...
Board: Brain & Nervous System Disorders 10-28-2014, 04:57 PM
Replies: 4
Views: 3,339
Posted By powergrub
Re: Desperately needing to see a neurologist for dystonia, no luck

I am not sure what dystonia is?

After reading your post I would say that it doesn't matter if the doctors care or don't care, you care and should care. You know something is wrong with your...
Board: Brain & Nervous System Disorders 10-28-2014, 04:39 PM
Replies: 1
Views: 3,194
Posted By powergrub
Re: Please somebody help me out (neuro, muscular, bone)

When I started to have the feeling like my legs were very heavy, like I had weights hanging on my quads when I walked, I couldn't even hold up a piece of paper for more than a few seconds and I would...
Board: Scoliosis 10-21-2014, 09:33 AM
Replies: 4
Views: 4,556
Posted By powergrub
Re: Harrington Rod Removal... Need Dr. Suggestions

I am assuming you have had the MRIs, CT Scans, EMGs and all the other tests that a surgeon would require prior to considering that the Rods are the source of pain.

I am also assuming all these...
Board: Scoliosis 10-18-2014, 08:46 PM
Replies: 4
Views: 4,556
Posted By powergrub
Re: Harrington Rod Removal... Need Dr. Suggestions

Why does your wife need to have the Harrington Rod removed?

Unless there is a problem you can keep the rod in your body for your lifetime. I am 50 and had my Harrington Rod surgery when I was...
Board: Spinal Cord Disorders 10-15-2014, 03:43 PM
Replies: 14
Views: 2,714
Posted By powergrub
Re: Weird symptoms

Chuck,

If your problem is in the neck, it might be helpful to purchase a hard neck brace and wear it for 2 weeks 24/7 and see if any of your symptoms go away or get substantially better.

My...
Board: Spinal Cord Disorders 09-07-2013, 08:34 AM
Replies: 3
Views: 910
Posted By powergrub
Re: Very upset

You had a CT scan in the emergency room and in 2007 you had a MRI. These two tests show different things so it is possible that the arthritis and degenerative changes you had in 2007 on the MRI did...
Board: Neurology 08-01-2013, 05:40 AM
Replies: 5
Views: 68,139
Posted By powergrub
Re: SHARP Throbbing Pain in Outside Edge of Foot

PottyMouthMom,

Recently a neurosurgeon found that my cervical spine -spinal cord was bruised at C1-2and possibly C4-6. He said that compression/bruising of the spinal cord can cause problems with...
Board: Brain & Nervous System Disorders 07-30-2013, 05:09 AM
Replies: 14
Views: 4,867
Posted By powergrub
Re: How do I convince myself that it's not brain tumor?

Jimmy,

People are just trying to help you - especially a mom (Lindyrosette). Mothers are true saints and I cannot even comprehend the prolonged pain that both Lindyrosette and her son endured -...
Board: Brain & Nervous System Disorders 07-22-2013, 05:45 AM
Replies: 14
Views: 4,867
Posted By powergrub
Re: How do I convince myself that it's not brain tumor?

Jimmy,

If you find a psychiatrist that you connect with and one that is helpful to you, someone who gives you good ideas about how to handle your particular obstacles and concerns - it is always a...
Board: Brain & Nervous System Disorders 07-12-2013, 08:20 AM
Replies: 14
Views: 4,867
Posted By powergrub
Re: How do I convince myself that it's not brain tumor?

Jimmy18,

How did the vacation with friends go?

Even if friends don't really get it - good friends do their best to help in any way they can. Have you tried being honest with your friends about...
Board: Open to All Other Health Topics 07-10-2013, 06:29 AM
Replies: 1
Views: 851
Posted By powergrub
Re: Still struggling, any suggestions?

There are so many health issues that can cause fatigue and loss of appetite etc.

Is the fatigue a new development and out of the ordinary for you or are you normally somewhat fatigued with low...
Board: Brain & Nervous System Disorders 07-07-2013, 05:55 AM
Replies: 14
Views: 4,867
Posted By powergrub
Re: How do I convince myself that it's not brain tumor?

Jimmy,

It is good that you have the CT scans that show your brain is clear. It is also good that you continue to seek an answer to why you are having pain.

During this time that you are...
Board: Brain & Nervous System Disorders 07-05-2013, 07:18 AM
Replies: 14
Views: 4,867
Posted By powergrub
Re: How do I convince myself that it's not brain tumor?

My question is why do you think brain tumor when there are 100s of other issues that could cause pain in the back of the head and scalp as you have described?

Are you desperate because of the...
Board: Weight Loss 06-29-2013, 12:29 PM
Replies: 1
Views: 690
Posted By powergrub
Re: Prone to overdoing it. Any critique?

If you are going to do any exercise it should involve some type of resistance/weight training. Muscle burns fat so even when you are not exercising the muscle in your body is burning fat all day...
Board: Spinal Cord Disorders 06-22-2013, 09:31 AM
Replies: 1
Views: 758
Posted By powergrub
Re: Help

Definitely get one or two more opinions.

My advice is not to go back to the surgeon who did your surgeries. Not ever.

Please get yourself to at least two new neurosurgeons or spinal surgeons...
Board: Neurology 06-09-2013, 12:15 PM
Replies: 9
Views: 1,051
Posted By powergrub
Re: Don't know what to do anymore

I recently had a neurologist tell me that my neck MRI was not good but in his opinion the symptoms I was experiencing would not be due to the neck issues flagged in the MRI.

Within a few months...
Board: Arachnoiditis 06-08-2013, 05:56 AM
Replies: 17
Views: 12,276
Posted By powergrub
Re: Nerve root clumprd mri help???

Just a thought. Have you had a MRI of your neck (cervical MRI)?

I have adhesive arachnoiditis and have had over 30 years of spinal procedures and surgeries. Started when I was 12 years old - I am...
Board: Neurology 06-07-2013, 12:54 PM
Replies: 9
Views: 1,051
Posted By powergrub
Re: Don't know what to do anymore

Losing your mind is not an option.

It sounds like you are used to some level of chronic pain with a long history of migraines. Anyone who has had just one of those KNOWS what pain is.

Then...
Board: Neurology 06-04-2013, 03:07 PM
Replies: 9
Views: 1,051
Posted By powergrub
Re: Don't know what to do anymore

Was wondering what your MRI results showed? Could you have a neck problem - like a herniated disc, spinal cord compression (stenosis) or osteophytes (bone spurs) in the neck that could be causing...
Board: Back Problems 08-04-2012, 05:22 AM
Replies: 8
Views: 1,151
Posted By powergrub
Re: anyone emotional after fusion?

I have had 5 fusions in my spine and I found out that the medications for pain and muscle spasm can make you extremely emotional.

I have had several friends that have had some type of surgery and...
Board: Open to All Other Health Topics 07-29-2012, 04:14 AM
Replies: 4
Views: 1,368
Posted By powergrub
Re: please help diagnose me!

I have had episodes where I wake up out of a deep sleep, my heart starts to race like wild, I get extremely shaky -like my body is ice and my entire body goes through this weird contracting - like...
Board: Multiple Sclerosis 07-27-2012, 03:49 AM
Replies: 10
Views: 2,227
Posted By powergrub
Re: Do I have spasticity?

I had the cervical surgery with the fusion and plates etc but I did not have spasticity at the time I had that surgery.

I know that any spinal issue that causes pressure on the spinal cord -...
Board: Multiple Sclerosis 07-26-2012, 07:01 AM
Replies: 10
Views: 2,227
Posted By powergrub
Re: Do I have spasticity?

Sounds like spasticity to me.

I too did not know what that word meant until I developed it after one of many, many surgeries and surgical procedures I have had on my spine - cervical, thoracic and...
Board: Neurology 07-26-2012, 06:38 AM
Replies: 2
Views: 1,077
Posted By powergrub
Re: worst pain and fatigue I have ever had

I don't know much about chemo but I have heard that it can cause nerve damage....and it certainly sounds like a lot of what is happening with you may be related to nerves having being negatively...
Board: Neurology 07-26-2012, 06:27 AM
Replies: 5
Views: 68,139
Posted By powergrub
Re: SHARP Throbbing Pain in Outside Edge of Foot

I know exactly and I mean exactly what you are feeling.

It sounds like a lower back issue - either a disk problem that is impingeing on a nerve, or it could be muscles entrapping nerves or...
Board: Neurology 07-26-2012, 06:06 AM
Replies: 2
Views: 686
Posted By powergrub
Re: peripheral neuropathy and lyrica

You may want to try the Addiction and Substance Abuse board(s) - you may find people there that are trying to detox off Lyrica.

I have been on many different prescription drugs and the best way I...
Board: Addiction & Recovery 07-23-2012, 05:44 AM
Replies: 7
Views: 2,739
Posted By powergrub
Re: I'm very scared of Lortab withdrawal

I am in the same boat as far as the fear of telling my pain management doctor that I want to taper off the meds....I am afraid they will drop me immediately as their patient -and I want to start a...
Board: Brain & Nervous System Disorders 07-21-2012, 12:00 PM
Replies: 1
Views: 1,940
Posted By powergrub
Re: Spreading skin numbness, dizziness, vision probs

It is always good to rule out MS or anything like that since MS symptoms are identical to literally hundreds of other health problems - so I would try not to get too anxious about seeing the...
Board: Addiction & Recovery 07-16-2012, 05:52 AM
Replies: 9
Views: 2,217
Posted By powergrub
Re: Back Again

Ariana2,

What you have accomplished already is huge! The fact that you have been clean for 15 days - is wow. I have been there.

I know everyone finds different things helpful - I found the...
Board: Addiction & Recovery 07-16-2012, 05:35 AM
Replies: 9
Views: 2,148
Posted By powergrub
Re: Morphine detox

I had a pain pump that malfunctioned and my pain mgmt doc called in clonidine patches and some klonipin (like valium) - told me I was going through withdrawals and to call them in 10 days if the...
Board: Pain Management 07-15-2012, 05:22 AM
Replies: 2
Views: 1,272
Posted By powergrub
Re: Pain management with cyp2D6

Hello Tortoisegirl - love the monicker!
Please take this advice seriously and don't immediately tune it out - I am 48 yrs old and started having spinal surgeries at age 12 and I am still having...
Board: Addiction & Recovery 07-10-2012, 01:35 PM
Replies: 9
Views: 2,505
Posted By powergrub
Re: Need advice on pain patch please!

Rumor,

How do you go about getting into a detox center? I have never abused drugs and have been on them for a lot longer than you and I take a whole lot more than you do on a daily basis.

Do...
Board: Addiction & Recovery 07-10-2012, 01:25 PM
Replies: 9
Views: 2,505
Posted By powergrub
Re: Need advice on pain patch please!

Rumor,

Try to let the post(s) that upset you go - it is not worth any time, not even a second of angst about it.

I am walking in your footsteps and/or vica verse and I understand completely...
Board: Addiction & Recovery 07-10-2012, 02:13 AM
Replies: 9
Views: 2,505
Posted By powergrub
Re: Need advice on pain patch please!

Rumor,

I know you can detox yourself off the patches. And since you have only been on them for 19 days or so now is the time to do it.

Start by cutting off one third of the patch - keep it...
Board: Addiction & Recovery 07-08-2012, 01:47 PM
Replies: 9
Views: 2,505
Posted By powergrub
Re: Need advice on pain patch please!

Rumor,

the longer acting narcotics typically do not give you that "rush" of relief - you should notice that the pain is at a lower level while on the long acting narcotics....

I think it is...
Board: Neurology 07-01-2012, 06:13 AM
Replies: 1
Views: 3,027
Posted By powergrub
Re: I'm Scared.

Did you have a MRI or CT Scan of your spine/abdomen/pelvis and was that normal?

What types of tests have you had - blood tests, EMGs, thyroid etc?

It is hard to know what to rule out until we...
Board: Neurology 07-01-2012, 05:39 AM
Replies: 1
Views: 915
Posted By powergrub
Re: Nerve leg pain and might sound totally crazy off the wall!

I saw a program on 60 minutes in the US where they found out that certain dogs can predict epilectic seizures before they happen, they can pinpoint where cancer is in the body and they react to other...
Board: Neuromuscular Diseases 06-27-2012, 03:53 PM
Replies: 15
Views: 3,517
Posted By powergrub
Re: Getting a diagnosis

God Speed.

Any information is better than not knowing. Keep looking until you find the answers.

K
Board: Neuromuscular Diseases 06-27-2012, 08:17 AM
Replies: 15
Views: 3,517
Posted By powergrub
Re: Getting a diagnosis

If I were you - I would get to my general practictioner or family doctor - make your own appointment - tell your parents you will pay them back but that you need to talk to one more doctor about your...
Board: Neuromuscular Diseases 06-27-2012, 06:19 AM
Replies: 5
Views: 5,543
Posted By powergrub
Re: My Battle with Cervical Dystonia and Klippel Feil Syndrome

I have found that a foam roller used correctly can alleviate a lot of pain.

I purchased my foam roller from my physical therapist - I asked to purchase it - it was not something that the PT was...
Board: Neuromuscular Diseases 06-27-2012, 06:08 AM
Replies: 15
Views: 3,517
Posted By powergrub
Re: Getting a diagnosis

When you say you get a high temperature in the afternoon - do you mean that your body temp is normal during the day and then you get a high temp later in the day - above 100 degrees?

The reason I...
Board: Addiction & Recovery 06-25-2012, 05:54 AM
Replies: 9
Views: 2,505
Posted By powergrub
Re: Need advice on pain patch please!

If narcotics are the only drug you are taking, then it is safe to go off them cold turkey - not fun but ironically narcotics are the safest drugs to detox off of.....

Your dosage is extremely low...
Board: Brain & Nervous System Disorders 06-23-2012, 05:34 AM
Replies: 2
Views: 1,259
Posted By powergrub
Re: Worried about my spine.PLEASE HELP!!!!

Victoria,

In response to your concern about your spine and the tingling and numbness in your fingers and neck......

I have had 40 years of spinal surgeries and spine issues and I understand...
Showing results 1 to 44 of 44

 







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