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Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 07-23-2012, 04:02 PM
Replies: 36
Views: 6,117
Posted By josana
Re: crps 1 or 2 or both

I really hate waiting as well....and waiting in pain is even worse. I hope that you will get the help you need and remember to keep referring to the actual CRPS page that holds the facts about...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 07-23-2012, 03:59 PM
Replies: 36
Views: 6,117
Posted By josana
Re: crps 1 or 2 or both

Thank you. I think I will use that approach if it's needed. Their IME doctor did agree that this is more than likely CRPS. I got injured in the middle of Feb and had the IME in June. Well, he called...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 07-23-2012, 12:42 PM
Replies: 36
Views: 6,117
Posted By josana
Re: crps 1 or 2 or both

The triple phase bone scan .....ah yes I remember this well. My 1st one the Dr used to say that there is nothing wrong with me. This was very early on 3 mths into injury. I was told we are going to...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 07-23-2012, 09:40 AM
Replies: 36
Views: 6,117
Posted By josana
Re: crps 1 or 2 or both

thanks...my attrny does know about CRPS....and I agree with you about the MMI. Attrny is monitoring my case, but we are still waiting for the new treating Dr. Me going back to the original Dr. just...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 07-23-2012, 08:18 AM
Replies: 36
Views: 6,117
Posted By josana
Re: crps 1 or 2 or both

Thanks to all for good info.
I have been receiving comp checks for over a yr now. This is not the problem.
Comp and Dr. are not saying that I should not be receiving treatment or checks. Problem...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 02-29-2012, 07:49 AM
Replies: 15
Views: 2,769
Posted By josana
Re: Neurostimulation

this may sound wierd...but I was told to use ICE b/c that is the only thing that relieved the pain...and that is all they gave me as Dr. did not dx CRPS...so when I went to physical therapy almost a...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 02-28-2012, 08:14 PM
Replies: 15
Views: 2,769
Posted By josana
Re: Neurostimulation

2nd and 3rd....I'm on the 8th dr.........they're only human...research and find one you trust!!
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 02-28-2012, 08:12 PM
Replies: 15
Views: 2,769
Posted By josana
Re: Neurostimulation

Dano......I definitely have never heard of anyone only having one block...the way I understand blocks is the more u have the better u should feel...and you need at least a series of 3....Phys....
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 02-28-2012, 05:52 AM
Replies: 28
Views: 3,714
Posted By josana
Re: lost

Oh deary.....after 11 mths of telling Ortho it burned and hurt, I finally got MRI.....and holy toledo...it had a torn TFCC wrist and torn UCL elbow,tennis elbow,ganglion cyst,torn bicep tendon,...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 02-25-2012, 09:44 AM
Replies: 11
Views: 2,715
Posted By josana
Re: New Member - Stellate Ganglion Block question

Sorry to hear about this .... not sure I can help as I a have not got a block yet...been a yr and a half...also w/c of course, but you might want to check into a Physiatrist...they treat the whole...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 02-22-2012, 07:53 AM
Replies: 1
Views: 1,730
Posted By josana
Re: Has anyone ever filed a personal injury lawsuit?

hi pamela.......not sure if u gave enough info. Were you hurt at work? If not where? Why would you have a personal injury that could be blamed on someone else? Was it after a surgery? Do you have an...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 02-22-2012, 07:34 AM
Replies: 28
Views: 3,714
Posted By josana
Re: lost

Hi Dan...sorry to hear of yet another CRPS person with w/c difficulties....u have to keep up with them, that's for sure. They are in the business of trying to dismiss everything and of course do not...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 02-16-2012, 12:18 PM
Replies: 3
Views: 1,685
Posted By josana
Re: Is it really rsd?

Hi...I am so sorry to hear this, especially such a young person. Sounds like you have had some attention for it though no success. Did you have MRI of CT or nerve tests- -NCV/EMG? Maybe they will...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 02-16-2012, 12:16 PM
Replies: 3
Views: 1,685
Posted By josana
Re: Is it really rsd?

Hi...I am so sorry to hear this, especially such a young person. Sounds like you have had some attention for it though no success. Did you have MRI of CT or nerve tests- -NCV/EMG? Maybe they will...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 02-15-2012, 06:13 AM
Replies: 7
Views: 2,078
Posted By josana
Re: rsd & social security

Oh Vicky...sorry that the blocks are not helping you. How did you get CRPS?
Do you have an attorney...cause they do have SS attorneys who can help with that.
I am awaiting my 1st block and w/c is...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 02-15-2012, 06:03 AM
Replies: 8
Views: 3,459
Posted By josana
Re: RSD and high blood pressure w/ heart palpatations?

What....i have noticed lately that I am scratching alot...thought it was the dry winter skin itch....R u saying it's part of this CRPS crap??
Do hope u get some relief with the meds...u and all of...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 02-14-2012, 06:45 AM
Replies: 8
Views: 3,459
Posted By josana
Re: RSD and high blood pressure w/ heart palpatations?

Yes...well I think so, just right when this was happening I had just been put on small dose 10mg cause bp was as they said not stable...well it worked like a charm....5mths later I am at cardiologist...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 02-14-2012, 06:37 AM
Replies: 36
Views: 6,117
Posted By josana
Re: Crps

Thanks for posting frenchfri...yes, i have had a tuff time of this...patience is running low.
I understand it is hard to dx things like this, sorry for all your pain. Am I understanding u right?...u...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 02-10-2012, 11:16 AM
Replies: 36
Views: 6,117
Posted By josana
Re: crps 1 or 2 or both

Yeah I think they already know that, it's just they have to be professional in front of us...bet the Dr. is muttering that exact line after he leaves the room tho....Thx
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 02-10-2012, 11:13 AM
Replies: 36
Views: 6,117
Posted By josana
Re: crps 1 or 2 or both

Yeah....I think they already know that....it's just they have to be professional in front of us...but I bet Dr. is muttering that exact line after leaving the room....thx
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 02-10-2012, 11:11 AM
Replies: 36
Views: 6,117
Posted By josana
Re: crps 1 or 2 or both

Well...it is done...and I don't really know anything..BIG SURPRISE....He tried to call w/c and they were out to lunch..another big surprise, they've been out to lunch over a yr. now.
Told him...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 02-10-2012, 06:27 AM
Replies: 36
Views: 6,117
Posted By josana
Re: crps 1 or 2 or both

Well...if u must know...I never planned on going back to this dude either, but here I go.
After today I hope to never go here again...thought about what I would say to this Dr. for so long, like 6...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 02-09-2012, 07:38 AM
Replies: 36
Views: 6,117
Posted By josana
Re: crps 1 or 2 or both

Thanks Karen......think I'll use that line tomorrow, as they must be the same Dr. you went to...
Have a great day!
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 02-09-2012, 06:50 AM
Replies: 36
Views: 6,117
Posted By josana
Re: crps 1 or 2 or both

cute!.....I can decide on a lot of things, it's just a matter of convincing others!
AND...The only thing I can count on is that I can count on nothing!
Attempting to return to original Ortho for...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 02-08-2012, 06:42 AM
Replies: 36
Views: 6,117
Posted By josana
Re: crps 1 or 2 or both

Ortho told me to ice it cause that is what i told him helps with the pain, i am allergic to ibuprophen (?) and he kept insisting that I don't have CRPS, even though IME said I did and then pain...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 02-07-2012, 02:24 PM
Replies: 12
Views: 2,523
Posted By josana
Re: Diagnosis Question and a bit of a rant

U sound like me...sorta, its my hand and arm and neck...but they just don't want to hear crps at the w/c office, as if we do, they just keep fighting it instead of fixing it and giving us our lives...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 02-07-2012, 02:10 PM
Replies: 4
Views: 1,238
Posted By josana
Re: Got the dreaded diagnosis.

I recently got this dx also and i see it's been a yr since your post........how are you doing?
How did you like the physiatrist? That is where they are sending me also.
Hope you have improved and...
Board: Pain Management 02-07-2012, 08:40 AM
Replies: 5
Views: 4,191
Posted By josana
Re: Severe neck and shoulder pain

Go to a Physiatrist....check it out on line....they treat the whole person and pinpoint the area and have many choices to relieve pain. Ortho isn't gonna help u need a Physiatrist.
btw...does your...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 02-07-2012, 08:32 AM
Replies: 36
Views: 6,117
Posted By josana
Re: crps 1 or 2 or both

Thank u......he told me to ICE it, my Dr. and I do have some Lortab if it gets horrible...just waiting and waiting and waiting and hoping and hoping for some answers very quickly.
So yes, I have had...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 02-06-2012, 06:24 AM
Replies: 36
Views: 6,117
Posted By josana
Re: crps 1 or 2 or both

Thank u Karen..I am not doing any treatment at all right now, I am waiting for w/c to decide what I can do....it's ridiculous how long they delay things. I am trying to get the best person I can. I'm...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 02-05-2012, 07:21 AM
Replies: 36
Views: 6,117
Posted By josana
Re: crps 1 or 2 or both

Thank u so much for responding Flaminghands (love the name)...and I completely agree with everything u said. This is w/c so they are extremely slow and I feel like I am the only one with any sense of...
Board: Pain Management 02-04-2012, 09:21 AM
Replies: 5
Views: 4,191
Posted By josana
Re: Severe neck and shoulder pain

sounds like the nerve might be effected in C-spine...does the pain stop if someone presses on a certain spot in shoulder blade? (try having someone else press in area around the blade, moving from...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 02-04-2012, 09:13 AM
Replies: 36
Views: 6,117
Posted By josana
Re: crps 1 or 2 or both

If you have CRPS in arm does it cause full body chills???
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 02-04-2012, 05:24 AM
Replies: 36
Views: 6,117
Posted By josana
crps 1 or 2 or both

First time posting...looking for answers, like everyone else.;)
Initial injury in 2010 and saw same Ortho entire time, had 2 opinions, and
MRI's,NCV/EMG, 3 PHASE BONE SCANS and was told CRPS 10...
Showing results 1 to 34 of 34

 







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