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Board: Lupus 03-05-2010, 04:00 AM
Replies: 3
Views: 4,501
Posted By Angel MJ
Re: Down with kidney infection and bronchitis pls advise+

uh, no! doesn't sound like you are over reacting!
6 weeks kidney infection - is your rheumy not worried about renal failure? i mean HULLO!

if you are on steroids PLEASE check with as many docs...
Board: Lupus 02-17-2010, 12:28 AM
Replies: 1
Views: 2,004
Posted By Angel MJ
Re: Lupus Anticoagulant Disease

hey there! welcome to the board!:wave:

i am glad to hear that you are now home!
sorry for all you have been thru! scary stuff but you are here to tell the tale!

good luck in your search -...
Board: Lupus 02-16-2010, 11:56 PM
Replies: 2
Views: 1,940
Posted By Angel MJ
Re: would like to know - can lupus make you blind

hey shelley welcome to the board!

things like uveitis and vasculitis are things that can permanently cause eye damage. from peripheral problems, color blindness, and vision loss! best not to mess...
Board: Lupus 02-09-2010, 02:35 AM
Replies: 4
Views: 1,687
Posted By Angel MJ
Re: APS question

baby aspirin sounds about right, i am guessing you already on disease modifying drug like plaquenil
Board: Lupus 02-07-2010, 11:07 PM
Replies: 7
Views: 3,911
Posted By Angel MJ
Re: Headaches and low grade fevers

teeha :cool:
excessive caffiene also causes rebound headaches
as you, i have different kinds of headaches ........ not all form into migraines!
heard imatrix works a treat altho may have to take...
Board: Lupus 02-07-2010, 12:36 AM
Replies: 6
Views: 4,213
Posted By Angel MJ
Re: vitiligo vs lupus rash

yes he did and he also had vitiligo (probably why he got lighter thru the years)

:angel: (what ever he had he was still a fine artist!)
Board: Lupus 02-06-2010, 12:04 PM
Replies: 6
Views: 4,213
Posted By Angel MJ
Re: vitiligo vs lupus rash

i have and this is why i think vitiligo ........ will ask dermie!
thanks :angel:
Board: Lupus 02-06-2010, 03:21 AM
Replies: 7
Views: 3,911
Posted By Angel MJ
Re: Headaches and low grade fevers

teeha you sound so positive! 5 hours is a lot! i think i get 2 - 3 hours max at a time with an equally long break in between!

i am also getting frequent migraines (last one 5 days)
is it the...
Board: Lupus 02-06-2010, 01:15 AM
Replies: 6
Views: 4,213
Posted By Angel MJ
Re: vitiligo vs lupus rash

hi, thanks for the reply!
mine is definitely agitated by the sun, i am olive complexion and now tan white - LOL i don't get it?

it bothers me cause i don't know what it is
cosmetically it...
Board: Lupus 02-05-2010, 08:30 AM
Replies: 2
Views: 1,429
Posted By Angel MJ
Re: Feeling of a Cold Freazer Burn throughout your muscles?

sore to touch but no visible signs - rather ouch! can go in hours or days
Board: Lupus 02-05-2010, 08:20 AM
Replies: 6
Views: 4,213
Posted By Angel MJ
Question vitiligo vs lupus rash

hi all!
been a while but i thought need more diverse knowledge and experience or thoughts on this

i has white spots - depigmentation on arms and legs, chest, sun makes it worse (get more spots) ...
Board: Lupus 01-02-2010, 10:49 PM
Replies: 2
Views: 2,846
Posted By Angel MJ
Re: finger and toes go numb

along with the other things mentioned - neuropathy comes to mind

raynauds is *usually* accompanied by color changes


there is a simple test for carpal tunnel .............. okay i am going...
Board: Lupus 12-31-2009, 09:03 AM
Replies: 5
Views: 3,410
Posted By Angel MJ
Re: Doc upped the Low Dose Naltrexone

goldfym ......... how is the treatment going?
there is quite a stir with this new treatment ......... really hope it works for you!
Board: Lupus 11-08-2009, 11:33 AM
Replies: 2
Views: 1,161
Posted By Angel MJ
Re: lupus

also some anti-biotics can too!
Board: Lupus 10-18-2009, 03:27 AM
Replies: 10
Views: 2,474
Posted By Angel MJ
Re: Touching Base

PLEASE think about finding a new rheumie --- going forward even if to do the tests and say *all good* --- your GP may be able to give you a name (ask him) even if you aren't going right now!

so...
Board: Lupus 10-11-2009, 01:53 AM
Replies: 6
Views: 2,978
Posted By Angel MJ
Re: Is lupus the end of the world

some days, in some ways and then sometimes not!
sounds cryptic - sorry! (sly is the wolf that we live with) .............. but yes and no and at different times.


personally, i've had normal,...
Board: Depression 10-10-2009, 02:25 PM
Replies: 6
Views: 12,487
Posted By Angel MJ
Re: NEED HELP! My cure was my poison.any antidepressants that have an opiate-like eff

hi calvindoyl .............
i have been down a path similar to yours.
i have an auto immune disease and during my years of abuse my immune system was weak and in turn my disease was less active, i...
Board: Lupus 10-10-2009, 01:10 PM
Replies: 12
Views: 2,780
Posted By Angel MJ
Re: Been through to much lately

hi teeha .......... terrible to read you have been thru so much!

i am sending positive thoughts your way! hope things turn around now!!! also hope your daughter + hubby are both okay (also hope...
Board: Lupus 09-24-2009, 12:54 AM
Replies: 15
Views: 8,776
Posted By Angel MJ
Re: Plaquenil and stomach issues...

goldfym ... i am soooo grateful for you sharing your experience!
i find it amazing how different foods can affect a person ... and like you said hold you hostage

i have been living with a whole...
Board: Lupus 09-18-2009, 11:11 PM
Replies: 15
Views: 8,776
Posted By Angel MJ
Re: Plaquenil and stomach issues...

LOL - keep us posted! glad that you are okay!

Goldfym ... there is another disease that is more alike to intolerance - CELIAC! if you suffer intolerance have you heard of this or ever looked into...
Board: Lupus 09-18-2009, 02:27 AM
Replies: 15
Views: 8,776
Posted By Angel MJ
Re: Plaquenil and stomach issues...

PLEASE never just stop taking any meds ... we the patients are not trained with the medications so we should ALWAYS seek medical supersvision ...

i have always sinus issues but now in my 30's i am...
Board: Lupus 09-03-2009, 02:12 AM
Replies: 9
Views: 2,164
Posted By Angel MJ
Re: Anyon else have foot trouble like this?

i was dx'ed with ... wait for it .... GOUT a 22 y/o female ??? ... i couldn't walk ... then the swelling ... in my case it is the arthiritis ... yay lupus! years later only after being dx'ed did the...
Board: Lupus 08-25-2009, 04:09 PM
Replies: 2
Views: 1,499
Posted By Angel MJ
Re: Results to Second Blood Test

fantastic news! good luck!
:angel:
Board: Lupus 08-18-2009, 12:52 PM
Replies: 11
Views: 17,787
Posted By Angel MJ
Re: Frequent Bronchitis with Lupus

hi all ...
this thread is exactly describing me since nov08 ... recuring sino bronchitis, allergic rhinitis, faryngitis(strep throat), oesophagitis (suspect GERD) reflux, gastritis, fatigue, SOB,...
Board: Lupus 08-18-2009, 12:23 PM
Replies: 5
Views: 17,032
Posted By Angel MJ
Re: Any difference with Brand Plaquenil or Generic

hi again rosie13!
personally i have had reactions to generics ... i had reaction to the brand ones too ... but we are all individual. i would put that exact question to your doc
Board: Lupus 08-18-2009, 11:55 AM
Replies: 7
Views: 3,242
Posted By Angel MJ
Re: Vee J

Good luck! you sound like you are getting you documents in order.
:angel:
Board: Lupus 08-18-2009, 11:36 AM
Replies: 7
Views: 3,468
Posted By Angel MJ
Re: Newly Diagnosed and Confused

hi drewsmom - welcome back! short answer is ... UNLIKELY that you would be dx on a single blood test ... and depending on the involvement neither would you need a battery of tests.

you need to...
Board: Lupus 08-17-2009, 11:53 AM
Replies: 2
Views: 2,093
Posted By Angel MJ
Re: prednisone relief!

sk84life ... that is FANTASTIC! relief is always welcome!

chat to your pharmacist about the best time of day to take pred. after taking it for over 2 years a pharmacist happen to mention that it...
Board: Lupus 08-17-2009, 11:41 AM
Replies: 14
Views: 4,264
Posted By Angel MJ
Re: not quite diagnosed

hi flowermum:wave: welcome to the cyber family!
sorry you are having such a tough time but believe me when i say you are not alone! (not anymore)
dr wallace The Lupus Book has a section on negative...
Board: Lupus 08-17-2009, 10:03 AM
Replies: 1
Views: 985
Posted By Angel MJ
Re: AngelMJ

hi inap ... the FBC & CRP showed no infection so it is viral and the CRP was so low they couldn't even pick it up ... so at a glance it seems the lupus is dormant. would never say the way i feel.
...
Board: Lupus 08-17-2009, 02:56 AM
Replies: 7
Views: 3,242
Posted By Angel MJ
Re: Vee J

hi 1tiredmama ... The Lupus Book was on the 4th edition and i dont think it is that old ...

Vee ... i think your earlier suggestion re: sticky post on rashes - you have soooooo much insight here!...
Board: Lupus 08-14-2009, 11:40 PM
Replies: 1
Views: 1,562
Posted By Angel MJ
Re: Anyone on Methotrexate Injectable?

hi angie! have you tried on other boards ? i have seen others!
so good to hear that it is working for you!!
:angel:
Board: Brain Tumors 08-14-2009, 11:30 PM
Replies: 12
Views: 14,279
Posted By Angel MJ
Re: A very long and crazy medical mystery journey.

you realise that we are in the lupus forum and that lupus is very different to that of bacterial infections and HIV ? *different rules* so to speak but the infections (excl. hiv) can be treated and...
Board: Brain Tumors 08-14-2009, 03:02 PM
Replies: 12
Views: 14,279
Posted By Angel MJ
Re: A very long and crazy medical mystery journey.

Hi Stephanie:wave: welcome to the message board! glad you have found us! just a post away!
***big Hug*** what a roller coaster ride we get to take!

what a fantastic read ... (words often escape...
Board: Brain Tumors 08-14-2009, 02:39 PM
Replies: 12
Views: 14,279
Posted By Angel MJ
Re: A very long and crazy medical mystery journey.

hi seekfind just wanted to note something ... when it comes to lupus the wolf ... it is often the body attacking itself - yes it could be a virus, bacteria but they go and the wolf continues to play....
Board: Lupus 08-14-2009, 02:10 PM
Replies: 16
Views: 5,932
Posted By Angel MJ
Re: I don't know what this is, Please Help

lupus people tend to be allergic to sulfur ... tends to bring on flares in some

... in protein foods-meats, fish, poultry, eggs, milk, and legumes are all good sources. Egg yolks are one of the...
Board: Lupus 08-14-2009, 12:43 AM
Replies: 16
Views: 5,932
Posted By Angel MJ
Re: I don't know what this is, Please Help

YIKES! :eek: i just googled *cod liver oil side effects*
(wouldn't eating sardines be a healthier, natural way to get fish oils?) ... i would discuss all supplements with your doctor!!! below is a...
Board: Lupus 08-13-2009, 01:50 PM
Replies: 16
Views: 5,932
Posted By Angel MJ
Re: I don't know what this is, Please Help

nice one veej - was so glad to read your response ... sorry VodoSiosk i missed the blood in the stool but it is reccomended that you seek medical attention!

***big HUGS*** everyone!
:angel:
Board: Lupus 08-13-2009, 01:43 PM
Replies: 5
Views: 1,621
Posted By Angel MJ
Re: INAP are you still on the board?

i'll note my *dis-progress* for a while and hope to get hold of his email address thru my GP and let the doc know what is going on with his staff!

i am going to get blood tests tomorrow to check...
Board: Lupus 08-13-2009, 04:37 AM
Replies: 16
Views: 5,932
Posted By Angel MJ
Re: I don't know what this is, Please Help

if you can take a photo of the area and take it with to the doctor - definitely as for referal to a rheumatologist!
write a list of questions that you have and if possible write down what the docs...
Board: Lupus 08-12-2009, 02:36 PM
Replies: 16
Views: 5,932
Posted By Angel MJ
Re: I don't know what this is, Please Help

the short answer is YES!!! 3-5% of lupus patients (i like the term lupies) continually test negative according to author of 'The Lupus Book' Dr Daniel Wallace (you can find his hardcover at most...
Board: Lupus 08-12-2009, 01:38 PM
Replies: 11
Views: 3,893
Posted By Angel MJ
Re: never been diagnosed

hear you on not liking returning things - the new ones are scary too! ***big hug***
(not sure what is a correct post anymore)
would like to offer you my support - altho my symptoms are different...
Board: Lupus 08-12-2009, 06:42 AM
Replies: 11
Views: 3,893
Posted By Angel MJ
Re: never been diagnosed

strongmom ... thanks for the update ... dx limbo is the toughest place to be in ... i hope you get the results expediently and there is some answers in them!

is there anything on the market that...
Board: Lupus 08-12-2009, 06:37 AM
Replies: 16
Views: 5,932
Posted By Angel MJ
Re: I don't know what this is, Please Help

hi VodoSiosk :wave: welcome to the message board! terrible circumstance but glad to have you with us! sorry you are having such a horrid time!

please remember that i am just a patient and it is my...
Board: Lupus 08-11-2009, 08:16 AM
Replies: 5
Views: 1,621
Posted By Angel MJ
Re: INAP are you still on the board?

AWESOME chick! ***big squeezy hugs*** (you can handle them now)

iv'e had a bit of a nightmare trying to set up a first consult with your doc - cxld once already and will cancel again ... not sure...
Board: Lupus 08-09-2009, 10:48 AM
Replies: 4
Views: 7,008
Posted By Angel MJ
Re: Plaquenil Side Effects of Anxiety and Depression?

hi all!
i'm not currently on anti-malarials and do have anxiety & depression. it goes back to before my dx.
:angel:
Board: Lupus 08-09-2009, 10:16 AM
Replies: 10
Views: 2,474
Posted By Angel MJ
Re: Touching Base

Hi Teeha ... glad to see you *okay*
i found some interesting documents on how to prepare for a doctors appt. i think on the LFA website under : Diagnosing lupus ... i do suggest you write down a...
Board: Lupus 08-08-2009, 11:46 AM
Replies: 5
Views: 2,136
Posted By Angel MJ
Re: just been diagnosed

hi evam83 ... great news about the kidneys! hope you respond well to the meds and continue to improve! :angel:
Board: Lupus 08-08-2009, 11:28 AM
Replies: 5
Views: 1,621
Posted By Angel MJ
INAP are you still on the board?

just wanted to see how you are and how things are going with your new doctor?
:angel:
Board: Lupus 08-02-2009, 08:59 AM
Replies: 7
Views: 3,557
Posted By Angel MJ
INAP please read

INAP please could you forward your docs details.
:angel:
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