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Board: Arthritis 10-10-2013, 09:04 AM
Replies: 4
Ra
Views: 1,408
Posted By sammyo1
Re: Ra

I fully agree. If your pain & symptoms are that severe it's time to discuss a new treatment.
In the meantime prednisone to gain some relief. Unless there's a reason you can't take it.
I'm on the...
Board: Arthritis 10-10-2013, 08:47 AM
Replies: 2
Views: 1,236
Posted By sammyo1
Re: livin with Rheumatoid Arthritis

I just want to second everything Moldova has said.
Take care of this disease. It's an unpredictable disease & needs to be managed.
I'm not sure about milk products.
I've read nothing has come...
Board: Pain Management 04-03-2013, 09:22 AM
Replies: 12
Views: 1,634
Posted By sammyo1
Re: Cervical Epidural side effects question

I'm sorry to hear you had such a bad experience. Your PM should have addressed this issue shame on them for not doing so. Mine calls 24 hrs after & if I were to have a problem they would get me in...
Board: Arthritis 02-20-2012, 06:59 AM
Replies: 31
Views: 8,842
Posted By sammyo1
Re: Negative tests, so what is it?

Stick to your guns. As I said Rheumys look for all types of Arthritis & conditions that I am assuming PCP's would never even consider.

If your gut instincts tell you something is wrong then you...
Board: Arthritis 02-19-2012, 05:49 AM
Replies: 31
Views: 8,842
Posted By sammyo1
Re: Negative tests, so what is it?

That should be enough to be recommended. Family history & symptoms.
Can you bypass the NP & see the doctor?
You have the exact same family history I have. Not that that means you have RA, just...
Board: Arthritis 02-18-2012, 06:48 AM
Replies: 31
Views: 8,842
Posted By sammyo1
Re: Negative tests, so what is it?

You know your body best. NO matter what any test or doctor says period.
Swelling even in the fingers is not normal. I have the same & its grown more & more painful.

This is in no way normal &...
Board: Arthritis 02-15-2012, 10:34 AM
Replies: 31
Views: 8,842
Posted By sammyo1
Re: Negative tests, so what is it?

Hello, sorry you sound like your hanging in limbo there & not a fun place to be.

I too have OA & RA a long with Sjogrens.

What I wanted to say is I had a very good friend tell me long ago...
Board: Pain Management 01-17-2012, 05:39 PM
Replies: 7
Views: 4,126
Posted By sammyo1
Re: Help! PM is letting me go!

Dave has a good point just in case there are a lot of options you can try.
Although I realize its not easy & can be expensive.
Cranial Sacral (sp?) therapy seems offer relief for a lot of people...
Board: Arthritis 01-17-2012, 08:00 AM
Replies: 7
Views: 3,578
Posted By sammyo1
Re: Diagnosing Ankylosing Spondylitis

I was recently DXed with RA & SJs. When I first went into the Rheumatologist's she thought I had Ankylosing Spondylitis. As she explained most often this usually attacks the large joints first vs the...
Board: Pain Management 01-17-2012, 05:58 AM
Replies: 7
Views: 4,126
Posted By sammyo1
Re: Help! PM is letting me go!

The world of PM is changing.
My PM told my husband & I well over a yr ago that the government wants to mandate pain management with all the abuse. The doctors will have guidelines to practice by...
Board: Spinal Cord Disorders 09-07-2011, 06:31 AM
Replies: 11
Views: 7,949
Posted By sammyo1
Re: Migraines since ACDF surgery

I'm so sorry to hear that. You need to call your doctor & have them try a prescription medication for the relief of headaches. There are several your doctor can recommend. Have you tried any? Are you...
Board: Pain Management 05-15-2011, 06:42 AM
Replies: 4
Views: 1,668
Posted By sammyo1
Re: Good Friend was just diagnosed with Chronic Pain~Walking in my Shoes

What a great response you gave your friend.
My BF has problems on & off & when it flairs she says she does not know how I do it but she admires how I keep going. That was recently & I never knew...
Board: Spinal Cord Disorders 05-13-2011, 06:13 AM
Replies: 11
Views: 7,949
Posted By sammyo1
Re: Migraines since ACDF surgery

Wow, that primary may have got his degree out of a cereal box. No offense but sounds like you were an easy diagnosis. Your neck hurt & it went down hill from there. There are doctors that should not...
Board: Spinal Cord Disorders 05-12-2011, 07:55 AM
Replies: 11
Views: 7,949
Posted By sammyo1
Re: Migraines since ACDF surgery

Your welcome. I feel for you as I know migraines & headaches are the most distracting type of pain. You just can't seem to think or function & its exhausting.

I'm trying to remember but I believe...
Board: Spinal Cord Disorders 05-11-2011, 07:03 AM
Replies: 11
Views: 7,949
Posted By sammyo1
Re: Migraines since ACDF surgery

I had migraine type headaches before my fusion & now have more mild vs after.
Have you mentioned this to your surgeon & if so what did he say?

As far as mixing up your words or speaking our...
Board: Parenting Issues 04-29-2011, 06:51 AM
Replies: 19
Views: 19,430
Posted By sammyo1
Re: Adult kids sucking the life out of me

I have been through the same thing lately & its ironic as we were thinking the exact same thing about our daughter, Bi polar. In fact my youngest pulled up research on it & highlighted all the...
Board: Spinal Cord Disorders 04-28-2011, 12:09 PM
Replies: 9
Views: 14,351
Posted By sammyo1
Re: Got C7 Nerve Compression?

I agree, each test plays a part in helping to make a diagnosis. IMO doctors rely way too much on MRIs.


As far as injections go I was told in the beginning of my pain management that these are &...
Board: Spinal Cord Disorders 04-28-2011, 07:04 AM
Replies: 9
Views: 14,351
Posted By sammyo1
Re: Got C7 Nerve Compression?

Sounds like your in a frustrating situation & I can completely understand.
I wanted you to know it took approx. 2 years for my spinal injury to be considered worthy of any doctors attention....
Board: Parenting Issues 04-28-2011, 06:03 AM
Replies: 19
Views: 19,430
Posted By sammyo1
Re: Adult kids sucking the life out of me

I agree there are no perfect families out there. Sooner or later there will be some type of struggle, problem what ever you want to call it.

Perfect words, Self-entitled & Self-centered. I...
Board: Spinal Cord Disorders 04-26-2011, 06:56 AM
Replies: 36
Views: 24,366
Posted By sammyo1
Re: 3 years post ACDF and still have throat issues...

I'm so sorry you have to go through this. I truly hope the end results bring you the relief you deserve. More so I hope you have a quick recovery & can gain some of that weight back you lost. We are...
Board: Parenting Issues 04-22-2011, 06:07 AM
Replies: 19
Views: 19,430
Posted By sammyo1
Re: Adult kids sucking the life out of me

If you think about it your doing them a favor. So many that live beyond their earnings have lost everything when the economy started to decline.
Its not what you have but who you are. Just as a...
Board: Parenting Issues 04-21-2011, 10:15 AM
Replies: 19
Views: 19,430
Posted By sammyo1
Re: Adult kids sucking the life out of me

I have a feeling this is more common then any of us realize. The same thoughts have been passing through my mind lately. We worked so hard for what we wanted in life. Went without more often then...
Board: Spinal Cord Disorders 04-19-2011, 06:32 AM
Replies: 36
Views: 24,366
Posted By sammyo1
Re: 3 years post ACDF and still have throat issues...

Well Missy that can't be to hard to prove. Once this surgery is done I'm sure they can note exactly what caused this & I would think the insurance then would have to pay. I would sure be pushing that...
Board: Spinal Cord Disorders 04-18-2011, 07:09 AM
Replies: 36
Views: 24,366
Posted By sammyo1
Re: 3 years post ACDF and still have throat issues...

I don't know what is up with surgeon's but as I noted in a very poorly written reply,lol, in my consent form the risks are right there. Yet they don't acknowledge the problem or attempt to help the...
Board: Chronic Pain 04-17-2011, 05:00 AM
Replies: 2
Views: 3,796
Posted By sammyo1
Re: anyone else have ribs that are inflamed/stuck/crooked

I had some problems with my left rib area. My Pt's at the time would say it was hypermobile, up higher then the right side. It would hurt like heck & tender to touch as was my chest area. I was...
Board: Arachnoiditis 03-18-2011, 07:13 AM
Replies: 17
Views: 14,598
Posted By sammyo1
Re: Help understanding NCS

Marcia is right. I was Dxed with Carpal 3 months after my fusion. I had a 3 day hospital stay & after was sent for the EMG. I knew there was no way I all of a sudden developed Carpal. Even my PM was...
Board: Spinal Cord Disorders 01-10-2011, 05:36 AM
Replies: 36
Views: 24,366
Posted By sammyo1
Re: 3 years post ACDF and still have throat issues...

I think I posted this on another post, may have even been this one but on the consent form I signed right before going into sugery there is a long list of things that can occur from the...
Board: Spinal Cord Disorders 01-08-2011, 06:06 AM
Replies: 36
Views: 24,366
Posted By sammyo1
Re: 3 years post ACDF and still have throat issues...

I never snored until my fusion either. I'm convinced that the snoring & the problems with my throat area are from the fusion. I did have minor problems in the throat area before the fusion but that...
Board: Pain Management 12-06-2010, 05:54 AM
Replies: 21
Views: 20,024
Posted By sammyo1
Re: Oxycodone Vs. Percocet

Tried it in the past John. It did help in many ways but would not touch the one area we think may have myofascial damage. This area has been a problem for the start 7 for some reason the Meth did not...
Board: Pain Management 12-05-2010, 06:58 AM
Replies: 21
Views: 20,024
Posted By sammyo1
Re: Oxycodone Vs. Percocet

Well I had my appointment. Had my MRI done at a place Ive never tried & will never go back. It was so vague & did not match much of what the old MRI stated. Ive never had luck with MRIs. My PM was...
Board: Pain Management 12-05-2010, 05:35 AM
Replies: 18
Views: 8,488
Posted By sammyo1
Re: does burning the nerves help soft tissue pain

Congrats BMM, its great when someone has success with a procedure.
I'm curious are you off all your meds? All of your problems must have been coming from nerve pain.
John I'm not sure everyone who...
Board: Pain Management 11-29-2010, 06:46 AM
Replies: 21
Views: 20,024
Posted By sammyo1
Re: Oxycodone Vs. Percocet

Thats to bad, but then again I can't raise my MSC either. I wonder if there is a dosage of OxyIR that would give us near the relief we had from the Oxycontin?

Ive been in bed since the MRI with...
Board: Chronic Pain 11-27-2010, 08:06 AM
Replies: 64
Views: 33,587
Posted By sammyo1
Re: What meds help for your chronic neck pain??

Actually rotating pain meds may be a good plan for you, good thinking John.
Some doctors will do this to decrease the tolerance. So if you find a couple meds that work well enough you may want to...
Board: Pain Management 11-27-2010, 06:46 AM
Replies: 21
Views: 20,024
Posted By sammyo1
Re: Oxycodone Vs. Percocet

John, cost to much pay out of pocket as we pay out of pocket for one of my meds as it is. Everything is so expensive its a shame.

Janie,
I'm so sorry to hear you still have not found something...
Board: Pain Management 11-24-2010, 07:58 AM
Replies: 21
Views: 20,024
Posted By sammyo1
Re: Oxycodone Vs. Percocet

Thanks No Change, I was on Oxycontin & we had just found the right dosage when my insurance changed. This insurance does not cover much. Lots of short acting but one Long acting & thats it. It does...
Board: Spinal Cord Disorders 11-24-2010, 06:52 AM
Replies: 22
Views: 13,111
Posted By sammyo1
Re: Swallowing issues after ACDF/another fusion?

Queenie, Anything new? Amazing how many people experiance the same problems & here we thing we are the odd ones.
Hope your feeling better & hope you have a nice Thanksgiving. Sammy
Board: Pain Management 11-24-2010, 06:18 AM
Replies: 21
Views: 20,024
Posted By sammyo1
Re: Oxycodone Vs. Percocet

Sorry I should have added I take x2 5-325mgs per dose.
So I'm on the 10-650mg, I was on the 10-325 until my insurance would not cover the 10mgs anymore. It was several years ago when I was on the...
Board: Pain Management 11-23-2010, 07:37 AM
Replies: 21
Views: 20,024
Posted By sammyo1
Oxycodone Vs. Percocet

Ok I know this topic pops up every now & then.
I desperatly need some relief here & my insurance does not cover any LA meds besides MS Contin. Which I can only take a low dosage or I have massive...
Board: Spinal Cord Disorders 11-22-2010, 06:48 AM
Replies: 12
Views: 11,930
Posted By sammyo1
Re: HELP! need your advice about my cervical spine and lumbar mri results!

Well that PM is crazy. After looking at your MRI results he should be trying something. Did he offer or try any nerve blocks, injections etc...? Why would he even prescribe 5-325s of Percocet instead...
Board: Pain Management 11-22-2010, 06:11 AM
Replies: 17
Views: 4,824
Posted By sammyo1
Re: Is it wrong to suggest a med regime to my Dr?

Peg is right. My PM explained this with in my first 2 visits. We look for something to provide enough relief to have more quality of life but we cannot expect to be totally pain free. We also have to...
Board: Spinal Cord Disorders 11-21-2010, 06:08 PM
Replies: 22
Views: 13,111
Posted By sammyo1
Re: Swallowing issues after ACDF/another fusion?

Draftergirl. How ironic my husband was just talking about the SCS in the cervical today. I don't hear as much about them implanted in the cervical as the lumbar. My PMs partner mentioned it to me & I...
Board: Pain Management 11-21-2010, 05:23 PM
Replies: 17
Views: 4,824
Posted By sammyo1
Re: Is it wrong to suggest a med regime to my Dr?

No Change, No I'm not on the Fen. Patch. I am using a patch called Flector, which is an anti inflammatory. I like that I can use it when I want & am not taking another pill. It targets the area such...
Board: Spinal Cord Disorders 11-20-2010, 06:53 AM
Replies: 22
Views: 13,111
Posted By sammyo1
Re: Swallowing issues after ACDF/another fusion?

I guess everyone is different as I did not have a big problem swallowing right after surgery, mine developed over time. I'm curious to see if anything else is contributing to my problems as I'm due...
Board: Chronic Pain 11-19-2010, 06:01 AM
Replies: 64
Views: 33,587
Posted By sammyo1
Re: What meds help for your chronic neck pain??

Diane, There are a lot of people asking about different pillows so its great you found one that works for you. Ive wrote the name down just in case.
I have the air bed & really like it as does my...
Board: Pain Management 11-19-2010, 05:45 AM
Replies: 17
Views: 4,824
Posted By sammyo1
Re: Is it wrong to suggest a med regime to my Dr?

While that can be very true NC.
I was on the same for almost 3yrs. Sometimes the conditions progress & there is a need for changes also. Norco is not as powerful as some meds so the good thing is...
Board: Pain Management 11-18-2010, 06:51 AM
Replies: 17
Views: 4,824
Posted By sammyo1
Re: Is it wrong to suggest a med regime to my Dr?

Sometimes its not what you say but how you say it.

Starting a pain diary or journal is a good way of pointing out times of the day you start having problems Now my doctor would just say avoid...
Board: Chronic Pain 11-18-2010, 06:16 AM
Replies: 64
Views: 33,587
Posted By sammyo1
Re: What meds help for your chronic neck pain??

My PM's office recently gave me samples of the Flector patch.
I did not have my hopes up as not much works for me. To my surprise I did get some relief. Ive been having more pressure type pain in...
Board: Chronic Pain 11-18-2010, 05:50 AM
Replies: 8
Views: 3,613
Posted By sammyo1
Re: Topical Homeopathic Pain Relief Creams

Wow Cherish, must be pretty good stuff to help calm nerve pain. Nerve pain can be tough to control.
Do you know if you can obtain it out side of the doctors offiice or it something you have to have...
Board: Spinal Cord Disorders 11-18-2010, 05:40 AM
Replies: 12
Views: 11,930
Posted By sammyo1
Re: HELP! need your advice about my cervical spine and lumbar mri results!

Jason,
Well that is just so sad. I don't believe in cell phones & driving. I hope you wife is ok.

I feel the same & I think many others do also. No matter how we got to this point in our lives...
Board: Spinal Cord Disorders 11-17-2010, 07:11 AM
Replies: 12
Views: 11,930
Posted By sammyo1
Re: HELP! need your advice about my cervical spine and lumbar mri results!

Hi Jason,
I'm sorry to hear your in so much pain.

Although none of us can give you proffesional advice such as a doctor we can share our experiances & what we may have learned a long the way.
...
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