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Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 07-09-2008, 01:20 PM
Replies: 3
Views: 1,652
Posted By tkb
Re: Out Pt Ketamine infusions..

Michelle
thanks, its good to hear from you too. Have you been diagnosed with central sensitization? Its very much like crps, i'm confused by it all to be honest with you. I looked up about Ketamine,...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 07-08-2008, 03:43 AM
Replies: 3
Views: 1,652
Posted By tkb
Re: Out Pt Ketamine infusions..

michelle hi
What a coincidence, the pm spec i see mentioned Ketamine to me, i dont know much about it either so gonna look up on that one, like anything else we've gotta try these things. I hope...
Board: Pain Management 07-08-2008, 03:30 AM
Replies: 4
Views: 6,166
Posted By tkb
Re: DULOXETINE for neuropathic pain

blimey you know your stuff! After nearly 5 years of suffering i thought i knew my stuff. Like many others i react badly to certain meds and i know its trial and error, i'm on my 5th week of...
Board: Pain Management 06-29-2008, 01:07 PM
Replies: 4
Views: 6,166
Posted By tkb
Re: DULOXETINE for neuropathic pain

Hi marcia

thanks for your resonse. Yeah i had cervical discectomy c5/c6 in 2005. I've been seeing a pm consultant and specialist since jan 07, had cervical epi, lumbar epi and nerve block in feb...
Board: Pain Management 06-23-2008, 05:40 AM
Replies: 4
Views: 6,166
Posted By tkb
DULOXETINE for neuropathic pain

Hi all

Has anyone been prescribed duloxetine for neuropathic pain? I have recently been diagnosed with a condition called CENTRAL SENSITIZATION SYNDROME its very much like crps/rsd. Its used alot...
Board: Spinal Cord Disorders 06-23-2008, 05:33 AM
Replies: 0
Views: 4,579
Posted By tkb
CENTRAL SENSITIZATION SYNDROME! just been diagnosed

Hi there
I've just been diagnosed with a condition called Central Sensitization Syndrome. Has anyone else out there got this or ever heard of it. Its pretty much like crps or rsd. It seams its...
Board: Back Problems 01-23-2008, 03:52 AM
Replies: 16
Views: 2,565
Posted By tkb
Question Sherry1 -UK poster

Hi Sherry
I hope you dont mind me posting to you, but as a uk poster i was wondering how your treatments if any are doing, i am on going with my pain man doc up in the north of england.
...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 01-23-2008, 03:39 AM
Replies: 4
Views: 2,014
Posted By tkb
Re: Next step: sympathetic nerve block for me

Sherry
I was wondering, have you ever had pregabalin(Lyrica)? That really puts the weight on, but the ami and nor havent had a weight effect on me, not yet anyway and ive been on it just over a...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 01-21-2008, 03:49 AM
Replies: 4
Views: 2,014
Posted By tkb
Re: Next step: sympathetic nerve block for me

Sherry
hi, its cold, wet and misserable here, my symptoms are really playing up right now, reeeeal baaad. I take 25mg nortriptyline by day with 150mg pregabalin and codeine, 25-35mg amitriptyline...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 01-14-2008, 03:33 AM
Replies: 4
Views: 2,014
Posted By tkb
Next step: sympathetic nerve block for me

Hi all

havent been on here for some time, lots of things going on in general. Well, my pain man consultant, Mr Wilson, who is wonderful, wants to do a sympathetic nerve block, the lumber and...
Board: Pain Management 01-14-2008, 03:14 AM
Replies: 6
Views: 5,362
Posted By tkb
Re: Spinal injections - success stories?

latenites
Hi, i'm a bit different you might say, i've gone the reversal to others. following a c5/6 acd in 2005 i unfortunately have developed crps, as a result of surgery or initial injury sight we...
Board: Dental Health 11-28-2007, 01:27 AM
Replies: 5
Views: 4,425
Posted By tkb
Re: wisdom tooth extraction & CRPS

thanks guys for your advise, i suppose i will have to just grin and bare it, having had spinal surgery you would think is just a piece of cake! but to be honest i feel more bothered about this some...
Board: Dental Health 11-26-2007, 07:05 AM
Replies: 5
Views: 4,425
Posted By tkb
wisdom tooth extraction & CRPS

Hi, i've got to have my top right wisdom tooth out tues 4th Dec, but i'm worried as i suffer from crps(complex regional pain symdrome) i told my dentist this when i saw him last week and the meds i...
Board: Spinal Cord Disorders 11-19-2007, 03:59 AM
Replies: 27
Views: 7,292
Posted By tkb
Re: ANYONE ON HERE FROM THE UK - advise needed about treatment on nhs

Pauline
Good luck in France, like you say at least there are no waiting lists over there, nhs has a lot to be desired! I'm sorry i think i misled you about the lottery win, it was my husbands...
Board: Spinal Cord Disorders 10-31-2007, 06:29 AM
Replies: 27
Views: 7,292
Posted By tkb
Re: ANYONE ON HERE FROM THE UK - advise needed about treatment on nhs

Hi pauline
thanks for getting back to me, well where do i start, i had cervical epi on 21st Sept, helped swellings in legs for about 4 weeks and would you know it i'm back to where i started,...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 09-28-2007, 05:51 AM
Replies: 5
Views: 3,267
Posted By tkb
Re: Doctor wrote that I had CRPS in WC paperwork

Hi
My symptoms all started within about 8 months of my initial injury/prolapse, i guess it started to progress with time as the longer i had the prolapse the worse it got. The prolapse was in July...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 09-24-2007, 01:34 AM
Replies: 5
Views: 3,267
Posted By tkb
Re: Doctor wrote that I had CRPS in WC paperwork

Have to agree, it does sound very much like crps. I like you started 3 years ago with prolapse in cervical spine, surgery 18mths later and then developed strange feelings in other parts, ie burning...
Board: Multiple Sclerosis 09-18-2007, 06:22 AM
Replies: 4
Views: 4,500
Posted By tkb
Re: AMITRIPTYLINE for nerve pain?

Have to agree
I would be sceptical about taking any meds until i had a deffinate diagnosis. I take amitriptyline for nerve pain got rsd, disc probs etc, i find it helps sometimes and only sometimes...
Board: Spinal Cord Disorders 09-12-2007, 07:02 AM
Replies: 8
Views: 3,780
Posted By tkb
Re: Has anyone had to stop working due to Cervical Pain? And what does your day look

back in the saddle

Interesting thread, my advice your health comes first, money isnt everything although it does help. I had to give up work almost 3 years ago, yes it drives me insane not being...
Board: Spinal Cord Disorders 09-12-2007, 06:42 AM
Replies: 28
Views: 7,433
Posted By tkb
Re: Calling all ACDF patients, which side of throat was your incision?

Hi

Interesting thread, mine is on right..having lots of probs though

best of luck
tkbx
Board: Spinal Cord Disorders 09-12-2007, 06:36 AM
Replies: 27
Views: 7,292
Posted By tkb
pauline 100 - how are you doing?

Pauline

Hi, long time no speak, just wondered how you are doing, was wondering if you'd moved yet to France and that is why you havent been on here.tkb
Board: Epilepsy 09-10-2007, 06:29 AM
Replies: 39
Views: 21,269
Posted By tkb
Re: Anyone taking Keppra

Hi my mum takes Keppra, has taken it for about 5 years, she takes 3000mg per day, 1500am 1500pm. This has been a marvel drug for my mum, she has less seizures now, however, she gets very tired, has...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 09-05-2007, 03:52 AM
Replies: 3
Views: 2,604
Posted By tkb
Re: Lumbar Sympathetic Block Injection

Rae
You were lucky to be diagnosed with this disease so soon, although i am a little concerned at just how quick. You say you've had various tests, scans etc so soon since your initial accident, you...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 09-03-2007, 04:19 AM
Replies: 15
Views: 3,112
Posted By tkb
Re: I just want to VENT!

Hey michell,
I'm back, sent you a reply a few mins ago, so won't winge on, look through your threads and i'll be there!
tracex
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 09-03-2007, 04:14 AM
Replies: 15
Views: 3,112
Posted By tkb
Re: I just want to VENT!

Karen

Nice one , i know exactly what your saying, our kids are not as daft as would seem, it's the worst thing in the world when they have to see us like this and they too have to suffer missing...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 08-15-2007, 05:52 AM
Replies: 15
Views: 3,112
Posted By tkb
Re: I just want to VENT!

Nichole,
Hey i know exactly how you feel, Michelle offers good words of advise, she has helped me alot with dealing with rsd. You are not alone, you vent all you want to girl, it's good to let it...
Board: Spinal Cord Disorders 08-09-2007, 06:48 AM
Replies: 27
Views: 7,292
Posted By tkb
Re: ANYONE ON HERE FROM THE UK - advise needed about treatment on nhs

hi pauline
I had no problems with forms for DLA although it took them about 4 5 months to reply and i was accepted. I presume they got in contact with my GP and PM consultant, i guess i was...
Board: Spinal Cord Disorders 08-03-2007, 05:56 AM
Replies: 27
Views: 7,292
Posted By tkb
Re: ANYONE ON HERE FROM THE UK - advise needed about treatment on nhs

Hi there,
Just reading this, it's funny but i was told the same by ns, when i asked why i was still in so much pain, his reply was "well, time" in other words, i was left to dam long with the...
Board: Spinal Cord Disorders 07-30-2007, 05:57 AM
Replies: 27
Views: 7,292
Posted By tkb
Re: ANYONE ON HERE FROM THE UK - advise needed about treatment on nhs

Hi Pauline

Sorry havent been on for a while, school hols, not able to get on computer, anyway, i saw my PM consultant last week, and he wants to do another epi but this time in my neck, i presume...
Board: Spinal Cord Disorders 07-16-2007, 03:23 AM
Replies: 27
Views: 7,292
Posted By tkb
Re: ANYONE ON HERE FROM THE UK - advise needed about treatment on nhs

Pauline hi
It's interesting what you say about psychologists etc, that has never been an option to me as yet, i'm a little sceptical about those types and perhaps a bit scared, i always associate...
Board: Spinal Cord Disorders 07-12-2007, 02:28 AM
Replies: 27
Views: 7,292
Posted By tkb
Re: ANYONE ON HERE FROM THE UK - advise needed about treatment on nhs

Hey Pauline
How's the weather down there? Not too bad up here a little glimpse of summer at last, for how long though, that's another question! Well i havent been at my best this past week or so,...
Board: Spinal Cord Disorders 07-05-2007, 01:35 AM
Replies: 27
Views: 7,292
Posted By tkb
Re: ANYONE ON HERE FROM THE UK - advise needed about treatment on nhs

hi Pauline
What amazes me is how different our treatments have been, yet for the same problem...I have never heard of citalopram, i wonder just how many options there are out there for...
Board: Spinal Cord Disorders 07-04-2007, 01:45 AM
Replies: 27
Views: 7,292
Posted By tkb
Re: ANYONE ON HERE FROM THE UK - advise needed about treatment on nhs

Pauline
thanks for replying, it is good to speak to someone here on the same soil. Well the weather here is horrendous, cool, showery, summer really hasnt started has it, but we were spoilt last...
Board: Spinal Cord Disorders 07-03-2007, 02:18 AM
Replies: 27
Views: 7,292
Posted By tkb
Re: ANYONE ON HERE FROM THE UK - advise needed about treatment on nhs

Pauline
Hi, i hope you dont mind me replying, boy you just sound exactly the same as me, i now see a pm specialist, i saw him 3rd Jan this year, believe it or not i only waited 3 weeks on nhs, a...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 06-21-2007, 02:05 AM
Replies: 11
Views: 2,928
Posted By tkb
Re: New here - ? Sounds and Vibrations/RSD?

kat
yes, i have constant ringing in my left ear mostly, i didn't associate it with rsd but having read alot of peoples threads i realise it must be, it get's on my bloody nerves! I'm also sensitive...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 06-18-2007, 02:10 AM
Replies: 11
Views: 2,928
Posted By tkb
Re: New here - ? Sounds and Vibrations/RSD?

Iv'e found my left ear is dull and sensitive to sound, can't hear a darn thing, which is useful at times, when convenient, you get the message! I like to sing and use my deaf ear to my advantage, it...
Board: Pain Management 06-14-2007, 02:52 AM
Replies: 9
Views: 14,057
Posted By tkb
Re: pregabalin - WEIGHT GAIN!!!

swank and pooby, i take on board what you are saying, thanks, i will question this tomorrow when i go for my epidural. I am a bit naeve about all the meds for this condition, i believe it is all...
Board: Pain Management 06-11-2007, 06:04 AM
Replies: 9
Views: 14,057
Posted By tkb
Re: pregabalin - WEIGHT GAIN!!!

Rain and Pooby, thanks for your info. It's interesting to here how this drug affects different people, yes it does sound as if almost everyone puts on weight! Unfortunatley for me after 6 months...
Board: Hernia 06-08-2007, 01:45 AM
Replies: 5
Views: 2,898
Posted By tkb
Re: Is it all from herniated discs?

Hi all
I have to say alot of your symptoms do sound like RDS(CRPS) I too have alot of the symptoms after c5/6 acd in 2005...i now have disc herniation in L5/S1 and disc degenerative disease in other...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 06-08-2007, 12:49 AM
Replies: 19
Views: 7,437
Posted By tkb
Re: Does the heat affect your RSD??

michelle,
hi, it seams your having a pretty good day, good on you kid, i'm not sure if they'll put me to sleep for it, but it's to be done in theatre, so who know's. Hope all's well for you, speak...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 06-07-2007, 01:34 AM
Replies: 19
Views: 7,437
Posted By tkb
Re: Does the heat affect your RSD??

michelle, you brought tears to my eyes, it really hit home with me..thanks...i have my epi on 15th June, although i'm quite scared about it...i had a bad afternoon yesterday, i had to lay down for an...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 06-06-2007, 01:45 AM
Replies: 19
Views: 7,437
Posted By tkb
Re: Does the heat affect your RSD??

michell,
Hope your having one of your better days...i'm still suffering with you usual things, my ankles are worse than ever now and my knees are hot all the time, my hubbie is mentioning it more...
Board: Pain Management 06-06-2007, 01:02 AM
Replies: 9
Views: 14,057
Posted By tkb
Re: pregabalin - WEIGHT GAIN!!!

hi Plakat
Thanks for that, it's pfizer Lyrica Pregabalin, for neuropathic pain. I have found my ankles are extremely swollen my stomach is bloated, excessive hunger pangs and like you my symptoms...
Board: Pain Management 06-04-2007, 02:34 AM
Replies: 10
Views: 7,235
Posted By tkb
Re: NEED HELP!!! I see PM Dr. tomorrow...Major Decisions and I am DESPERATE!

Brooke,
hi i'm from UK, i don't know what the pharmacy is like over there but i've been taking PREGABALIN it's by pfizer and fairly new on the market, it's for neuropathic pain. I've been taking it...
Board: Spinal Cord Disorders 06-04-2007, 02:07 AM
Replies: 27
Views: 7,292
Posted By tkb
ANYONE ON HERE FROM THE UK - advise needed about treatment on nhs

I was wondering if anyone from uk could share with me their feelings about treatment for spinal injuries on nhs. To cut a long story short i feel we don't get a good deal on the nhs, i feel we are...
Board: Pain Management 06-04-2007, 01:42 AM
Replies: 9
Views: 14,057
Posted By tkb
pregabalin - WEIGHT GAIN!!!

I've been taking pregabalin (neurotin) since beginning of this year, started on 50mgbd, titrated upwards to 600mg bd which i've been on for 4 weeks. The weight is piling on me, i guess i've put on...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 05-27-2007, 07:59 AM
Replies: 19
Views: 7,437
Posted By tkb
Re: Does the heat affect your RSD??

michelle, hope your having a good day, hi, i'm having a pretty bad day today, but then again everyday is a bad day!. . i go for my epi on 15th June. I've started taking 600mg pregabalin (lyrica). It...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 05-24-2007, 04:25 AM
Replies: 19
Views: 7,437
Posted By tkb
Re: Does the heat affect your RSD??

ummm.... I know what you mean. I am nervous about the epi, it doesn't sound promising when i read and hear other people's experiences, i guess it's trial and error. I may be one of the lucky ones,...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 05-22-2007, 02:29 AM
Replies: 19
Views: 7,437
Posted By tkb
Re: Does the heat affect your RSD??

michelle, i too find cold really affects me. A little heat goes a long way to help me, when we went to Spain last year i hardly had any pain.... but i did have the swellings still.... My right hand...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 05-17-2007, 01:16 AM
Replies: 16
Views: 5,039
Posted By tkb
Re: pain in shoulder blade and neck

shellygod66 i don't know anything about lidocaine infushions, i'm gonna ask my pm next mon, i'm worried about the epidural, i've not heard many good reports on it, i'm a bit sceptical as to whether...
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