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Board: Lyme Disease 11-29-2008, 03:16 PM
Replies: 7
Views: 2,435
Posted By monarog
Re: are your treatments working?

Hi,

Yes...but the + you do show and the IND you have....are Lyme specific I believe. It will be interesting to see if more bands show after some tx.

Yes, me too - like so many here, it's been...
Board: Lyme Disease 11-29-2008, 09:08 AM
Replies: 7
Views: 2,435
Posted By monarog
Re: are your treatments working?

Hi...

Yes, I understand your worries, though I do think your MRI would have picked up any type of mass, which it sounds like it didn't, so that's good. I too went through so many tests, EMG/NVC...
Board: Lyme Disease 11-28-2008, 04:16 PM
Replies: 7
Views: 2,435
Posted By monarog
Re: are your treatments working?

Hi K2626,

Yes, diagnosed (after 3 years of undiagnosed/misdiagnosed stuff) with Lyme, Bartonella, Babesia, Ehrlichia, Mycoplasma, not to mention some active viruses, messed up thyroid (basically...
Board: Lyme Disease 09-11-2008, 07:03 PM
Replies: 7
Views: 2,435
Posted By monarog
Re: It's me Neckpatient - Braveheart07 and Monarog - treatments working?

Hi Neckpatient,


I am just so happy to hear about your improvement, what great news! Are you continuing to see improvement every week? I sure hope so. Vitamin D of all things; I have read that...
Board: Lyme Disease 07-28-2008, 07:59 AM
Replies: 6
Views: 7,824
Posted By monarog
Re: Did Any1 get Hyperreflexia with there Lyme disease ??

Hi Roadworker,

Yes...I have had hyperreflexia. When I was in the ER a couple of years ago, I had pathologic hyper-reflexes, everywhere.

I went through the testing mill, of course, looking for...
Board: Lyme Disease 06-06-2008, 11:01 AM
Replies: 6
Views: 6,086
Posted By monarog
Re: Strange neck sensation

Hi,

I have this. My neck is not only very painful, but also feels like it's buzzing sometimes. Mine often radiates into my face as well...it feels like it's almost vibrating. I look in the...
Board: Lyme Disease 04-30-2008, 07:44 AM
Replies: 9
Views: 2,470
Posted By monarog
Re: Im Slowly Fading Away

Hi Topsy,

Checking in...how are you doing? Please keep us posted. Mona
Board: Lyme Disease 04-27-2008, 11:22 AM
Replies: 8
Views: 7,859
Posted By monarog
Re: pulled tick off dog...

I agree....getting rid of our dog is not a consideration. I use Frontline too. As already mentioned, I guess I just need to be diligent about the common sense procedures to keep us well. I live in...
Board: Lyme Disease 04-27-2008, 07:29 AM
Replies: 8
Views: 7,859
Posted By monarog
Re: pulled tick off dog...

Hi Everyone,

I was just hiking yesterday PM. Got home, saw what I thought might be a flea on my dog's head, you guessed it, a tick. It wasn't embedded or anything and am now just hoping the...
Board: Lyme Disease 04-22-2008, 12:53 PM
Replies: 32
Views: 11,448
Posted By monarog
Re: Is it Lyme Disease?

Hi,

As far as Lyme testing goes, I wouldn't even bother with any lab but IGeneX in Palo Alto, CA. I think you'll find that is the lab that many LLMD's prefer.

Also, your MRI sounds very...
Board: Lyme Disease 03-28-2008, 09:07 PM
Replies: 5
Views: 6,172
Posted By monarog
Re: Heart murmur - holy crap!

Well...I guess I would say that's up to you; but, if it's really freaking you out...yes, to be on the safe side I would probably see a cardiologist. I just figured I probably shouldn't mess with the...
Board: Lyme Disease 03-28-2008, 06:41 PM
Replies: 5
Views: 6,172
Posted By monarog
Re: Heart murmur - holy crap!

Oh yes...I actually saw a cardiologist yesterday. My heart palpitations and chest pain finally got to me too much, so I went for a consult. Not surprising to me my EKG was NOT normal, tons of...
Board: Lyme Disease 03-26-2008, 07:51 PM
Replies: 32
Views: 11,448
Posted By monarog
Re: Is it Lyme Disease?

I have to agree with Kt. I totally understand the broke, tired of doctors feeling too. I must agree though...that is the merry-go-round I stayed on for 2 years, all the while sick, sick sick. Just...
Board: Lyme Disease 03-26-2008, 06:56 AM
Replies: 32
Views: 11,448
Posted By monarog
Re: Is it Lyme Disease?

Kmesoo1,

Also, just wanted to mention. I too had 2 brain MRI's. Mine showed "hyperintensities in the deep white matter." The docs and neurologists that I saw said that wasn't terribly abnormal...
Board: Lyme Disease 03-25-2008, 08:06 PM
Replies: 32
Views: 11,448
Posted By monarog
Re: Is it Lyme Disease?

Hi Kmesoo1,

I haven't read through all of the posts to learn...do you have an appt with an LLMD? I agree with everyone else, you should definitely see a Lyme Literate doc. I was recently...
Board: Lyme Disease 03-24-2008, 12:56 PM
Replies: 24
Views: 11,120
Posted By monarog
Re: IGeneX Results - Input Please!

Hi Sarah,

My Dad (who is currently being tested for Lyme - we feel certain he was infected at the same time) and I were hiking in the Western Cascades, outside of North Bend - this is where we...
Board: Lyme Disease 03-23-2008, 07:57 AM
Replies: 24
Views: 11,120
Posted By monarog
Re: IGeneX Results - Input Please!

Hi Doug,

I'm so sorry your experiencing such troubling symptoms. I can imagine that it must be very difficult to stay positive, and quite frankly, I think it's okay not to be positive, at least...
Board: Lyme Disease 03-22-2008, 07:40 AM
Replies: 6
Views: 7,506
Posted By monarog
Re: Irregular Heart Beat

Hi Brimmy,

Thanks loads for your knowledgeable input, really appreciated. I am already on mega doses of iron as I'm extremely anemic, most like due to the babesia infection, so I'm told. I am...
Board: Lyme Disease 03-22-2008, 07:30 AM
Replies: 24
Views: 11,120
Posted By monarog
Re: IGeneX Results - Input Please!

Hi Doug,

Really great to hear from you. Thanks loads for the encouragement. I am far from an "expert" on C-spine stuff or Lyme. I just read what I can so I can feel somewhat knowledgeable about...
Board: Lyme Disease 03-21-2008, 10:18 PM
Replies: 17
Views: 12,751
Posted By monarog
Re: Advice, Please! Tremors, Trembling, Jumpy Nervous System

Hi Brimmy,

Yes, thanks...I've taken two. I would say it has helped somewhat. The last day or two I've been dealing with a lot of dizziness and neck pain...but, the trembling and tremors are...
Board: Lyme Disease 03-21-2008, 11:04 AM
Replies: 9
Views: 3,541
Posted By monarog
Re: Does your LLMD treat Lyme or coinfections first?

Hi Tickbattler,

My LLMD is treating Lyme for the first couple of months. I, like you, had also read co-infections first. She told me she wanted to attempt to get the Lyme bacteria down some -...
Board: Lyme Disease 03-20-2008, 06:45 AM
Replies: 6
Views: 7,506
Posted By monarog
Re: Irregular Heart Beat

Hi,

Yes Ticker, I do have Babesiosis, Bartonella and Ehrlichia as well, ugh! I definitely believe the heart symptoms are from the infections. I have never had any heart issues, am a runner, age...
Board: Lyme Disease 03-19-2008, 07:17 PM
Replies: 24
Views: 11,120
Posted By monarog
Re: IGeneX Results - Input Please!

Hi Doug,

I have looked for your posts...and wondered how you've been. I did see your earlier post about your appt. with Dr. R; I'm so glad you are pursuing that. Please post to let me (us) know...
Board: Lyme Disease 03-19-2008, 09:52 AM
Replies: 6
Views: 7,506
Posted By monarog
Irregular Heart Beat

Hi,

Just wondering how many of you have experienced irregular heartbeat? One of my symptoms with Lyme was a very sudden onset of elevated blood pressure; my LLMD attributes it to the Lyme (forget...
Board: Lyme Disease 03-19-2008, 09:44 AM
Replies: 17
Views: 12,751
Posted By monarog
Re: Advice, Please! Tremors, Trembling, Jumpy Nervous System

My LLMD said it will be a sloooow process. Also, sounds like the longer one's been sick the longer things could take. Of course, the number of co-infections is also a factor - I have 3 coinfections...
Board: Lyme Disease 03-17-2008, 09:03 AM
Replies: 17
Views: 12,751
Posted By monarog
Re: Advice, Please! Tremors, Trembling, Jumpy Nervous System

Hi...

I have terrible neck/arm pain (I also herniated a disc in my neck - probably attributed to the Lyme), balance issues, tremors - fairly body wide, muscle twitching, numbness that moves...
Board: Lyme Disease 03-16-2008, 08:34 PM
Replies: 24
Views: 11,120
Posted By monarog
Re: IGeneX Results - Input Please!

Hi Sarah,

I don't think the wait is too bad, maybe a week or two...would be good to just get an appt made ahead of time for when you know you'll be here. I know she usually has IGeneX kits,...
Board: Lyme Disease 03-16-2008, 08:15 PM
Replies: 17
Views: 12,751
Posted By monarog
Re: Advice, Please! Tremors, Trembling, Jumpy Nervous System

Hi,

Tammy, sounds like you've had a rough go with the stomach issues, so sorry. Hope it resolves itself shortly and is not an ongoing battle, one more thing I'm sure you don't want to have to...
Board: Lyme Disease 03-15-2008, 07:23 AM
Replies: 17
Views: 12,751
Posted By monarog
Re: Advice, Please! Tremors, Trembling, Jumpy Nervous System

Hi Tracy and Tammy,

Thanks for your input. Tracy, I totally get what you're saying. At some point, you have to look at how you're functioning and what your life is like. This has all been very...
Board: Lyme Disease 03-14-2008, 11:40 AM
Replies: 17
Views: 12,751
Posted By monarog
Re: Advice, Please! Tremors, Trembling, Jumpy Nervous System

Hi Tracy & Fernee,

Yes, I have used a benzo before as well, but currently am not. Are you being treated for Lyme Tracy? I guess my question is if you/anyone has experienced improvement with...
Board: Lyme Disease 03-14-2008, 07:12 AM
Replies: 24
Views: 11,120
Posted By monarog
Re: IGeneX Results - Input Please!

Hi Sarah,

Sorry to hear your mom is struggling. I know...the doctors totally dismissed Lyme with me too. I started to doubt myself. At one point I just gave up seeing any docs and trying to get...
Board: Lyme Disease 03-14-2008, 07:00 AM
Replies: 32
Views: 11,448
Posted By monarog
Re: Is it Lyme Disease?

Hi,

I agree with Ticker...don't let the doctor dismiss you and convince you it's not Lyme. It brings back memories for me. Sounds like you're going to call the LLMD; I'm so glad. You surely...
Board: Lyme Disease 03-13-2008, 09:22 AM
Replies: 17
Views: 12,751
Posted By monarog
Advice, Please! Tremors, Trembling, Jumpy Nervous System

Hi,

Okay, I know patience is a key word with Lyme treatment. I am only one week on oral Azithromycin and easing into it, 250mg now, increasing to 500 mg in one more week. I have Lyme,...
Board: Lyme Disease 03-13-2008, 09:05 AM
Replies: 32
Views: 11,448
Posted By monarog
Re: Is it Lyme Disease?

Hi,

From what I've read, the Jarisch-Herxheimer (I believe the doctor who discovered this ) or "herx reaction" is a worsening of symptoms when one is on antibiotics or other types of therapies...
Board: Lyme Disease 03-12-2008, 08:09 PM
Replies: 32
Views: 11,448
Posted By monarog
Re: Is it Lyme Disease?

Hi,

So sorry to hear about your troubles. I am recently diagnosed with Lyme Disease and 3 co-infections. My nervous system is constantly overcharged, horrible - and I suffer many of the symptoms...
Board: Lyme Disease 03-06-2008, 07:06 AM
Replies: 24
Views: 11,120
Posted By monarog
Re: IGeneX Results - Input Please!

Hi Ticker,

Thanks for taking the time to respond, you're so very helpful on this board and I (among many others I'm sure) really appreciate it. This is all a big learning curve for me, but am...
Board: Lyme Disease 03-05-2008, 07:22 PM
Replies: 24
Views: 11,120
Posted By monarog
IGeneX Results - Input Please!

Hi Everyone,

My doc just emailed my IGeneX lab results and we have a phone in appt. tomorrow AM to go over them and discuss treatment protocol. It is somewhat confusing to me, but does appear I...
Board: Lyme Disease 02-22-2008, 07:13 AM
Replies: 12
Views: 5,580
Posted By monarog
Re: Help. Any suggestions/ideas?

Hi BorkBork,

If I were in your shoes...I would order a test kit from IGeneX Lab (they have a website), there is no charge to order the test kit. If you take it to the neurologist appt and just...
Board: Lyme Disease 02-17-2008, 06:52 PM
Replies: 3
Views: 1,273
Posted By monarog
Update on Monarog :)

Hi Doug,

I hope you check this board again, good to hear from you....I've wondered how things are going for you as I've not seen any postings of late. Please let me know how you're feeling. Do...
Board: Lyme Disease 02-16-2008, 09:58 AM
Replies: 3
Views: 1,273
Posted By monarog
Update on Monarog :)

Hi Jen & Everybody,

Please don't bump this post to the Lyme board, I had ACDF surgery C6-7 in March 2007 due to cord compression, but have continued to struggle with ongoing health stuff, mostly...
Board: Spinal Cord Disorders 01-27-2008, 08:27 AM
Replies: 3
Views: 19,216
Posted By monarog
Re: One hand gets freezing cold - I had ACDF and have 2 hern. disks

Hi Lisa,

I really can't give info to the cause of your cold hand...but, can tell you you're not alone! I had ACDF C6-7 March 2007 due to cord compression. I have experienced little to no relief...
Board: Spinal Cord Disorders 01-24-2008, 07:13 AM
Replies: 6
Views: 4,539
Posted By monarog
Re: Please help new guy

Hi BlueMach...

Welcome to the board. You will find so much support and so many with knowledge (Neckpatient) - it's a fabulous resource.
I just wanted to give input and support on your last...
Board: Spinal Cord Disorders 01-20-2008, 05:11 PM
Replies: 17
Views: 3,817
Posted By monarog
Re: Afraid of surgery.

Hi Braveneck,

Yes...I totally understand....I can't emphasize enough, however, that those of us on this board are often the ones with residual problems. I have 2 cousins who had ACDF years ago,...
Board: Spinal Cord Disorders 01-18-2008, 05:04 PM
Replies: 43
Views: 8,289
Posted By monarog
Re: Home from surgery, still in a huge amount as pain and very weak

Chrissy,

So sorry to hear recovery is a rough ride for you. Maybe try to look at several days to assess improvement vs day to day, maybe that will help you to mentally feel better - like you're...
Board: Lyme Disease 01-17-2008, 12:38 PM
Replies: 3
Views: 2,107
Posted By monarog
Re: lYME DISEASE

I too herniated a disc in my neck 2.5 years ago. About 5 months after the herniation all of my neurological issues started including much of what you talk about, a lot of facial/tongue symptoms,...
Board: Hernia 01-09-2008, 08:54 PM
Replies: 9
Views: 1,867
Posted By monarog
Re: Was your herniation "spontaneous" or accident related?

Dear Jen,

Wow...8 years, to hear that really frightens me! The major neuro stuff hit me April 2006, my rupture was 6 months prior to that. I don't know if I could continue on for 8...
Board: Hernia 01-09-2008, 02:00 PM
Replies: 9
Views: 1,867
Posted By monarog
Re: Was your herniation "spontaneous" or accident related?

Hi Jen,
Sounds like many similar symptoms. Yes, 2 brain MRI's back in 2006 and 2007, one w/ contrast, "normal." Also spinal tap, "normal." My cervical MRI, of course, showed my protruded disc and...
Board: Hernia 01-09-2008, 08:11 AM
Replies: 9
Views: 1,867
Posted By monarog
Re: Was your herniation "spontaneous" or accident related?

Hi Jen,
Thanks for checking. I have really no change since surgery 9 months ago. I have TONS of sensory things, from numbness/tingling/creepy-crawly feelings, twitching, you name it. I have pain...
Board: Hernia 01-06-2008, 08:25 PM
Replies: 9
Views: 1,867
Posted By monarog
Was your herniation "spontaneous" or accident related?

Hi All,

Just wondering...I remember my NS saying at one point that apprx 90% of disc herniations were "spontaneous" - not accident related, not from over-exerting, just "spontaneous." I fall into...
Board: Spinal Cord Disorders 01-06-2008, 08:13 PM
Replies: 7
Views: 1,742
Posted By monarog
Re: breathing problems

Hi,

Yes...it was me as far as chest tightness goes. I have had it off and on since my herniation and since my surgery. I think it's often called "banding." I will have real pressure/pain in my...
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