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Board: Fibromyalgia 12-17-2008, 01:19 PM
Replies: 8
Views: 5,984
Posted By DecLady
Re: fingers numb on one hand

There are people that are 'experts' on FM that say that is one of the sypmtoms. Devin Starlanyl talks about it her books on FM.
I know that I have numbness at times in my hands and in my feet. I...
Board: Spinal Cord Disorders 03-28-2008, 08:41 AM
Replies: 9
Views: 1,962
Posted By DecLady
Re: Havin 4 level fusion, when can I travel?

I have heeded your advice and I will not be travelling right after the surgery! may later, but I am working on having care at home for the first few weeks, how long will depend on how well I do on...
Board: Fibromyalgia 03-25-2008, 02:10 PM
Replies: 7
Views: 2,357
Posted By DecLady
Re: Thoughts on Assisted Living

Cost would be a big concern for me..but I have thought that could be a good situation as well. I just started the disability process...I don't have a lot of hope of getting it, but I have to try!
I...
Board: Fibromyalgia 03-25-2008, 01:59 PM
Replies: 26
Views: 3,991
Posted By DecLady
Re: Becoming Reclusive

It seems like so many of go thru the reclusive part of this illness. Maybe it is time we need to take?
I pushed myself for several years to do all the things I had always done. I think it was not...
Board: Fibromyalgia 03-21-2008, 09:18 AM
Replies: 19
Views: 2,882
Posted By DecLady
Re: Disconnected--Coping When Pain Separates Us From Others/Goals/Dreams/Expectations

I am so glad that you reached out to a counselor! I hope that it gives you a more stable platform to tackle how you feel.

I saw a counselor many years ago...twice actually in two different years....
Board: Spinal Cord Disorders 03-21-2008, 09:14 AM
Replies: 9
Views: 1,962
Posted By DecLady
Re: Havin 4 level fusion, when can I travel?

Lorie,
Thanks so much for your helpful reply. It is sounding like the idea of going somewhere for recovery is not a wise one! I will do what you and others suggest, I will talk to those at the...
Board: Fibromyalgia 03-20-2008, 04:24 PM
Replies: 19
Views: 2,882
Posted By DecLady
Re: Disconnected--Coping When Pain Separates Us From Others/Goals/Dreams/Expectations

I think we all have times where we feel worthless because we are sick day in and day out. It is so hard to explain...so hard to let people know we are still here, just in a body that isn't working...
Board: Fibromyalgia 03-20-2008, 01:31 PM
Replies: 19
Views: 2,882
Posted By DecLady
Re: Disconnected--Coping When Pain Separates Us From Others/Goals/Dreams/Expectations

Baserockermom,
This is a challenge to live with isn't it?

I am LOL about your clothes issues..for me , it is uncomfortable to have bare skin..but only loose soft clothes feel comfortable!
I...
Board: Fibromyalgia 03-20-2008, 12:00 PM
Replies: 11
Views: 24,155
Posted By DecLady
I take baclofen..

Which is also a muscle relaxer. It is one that I have seen recommended on some online FM sites as a good one to use. The side effects are minimal, they are very splittable, shaped like an aspirin...
Board: Fibromyalgia 03-20-2008, 11:29 AM
Replies: 19
Views: 2,882
Posted By DecLady
Re: Disconnected--Coping When Pain Separates Us From Others/Goals/Dreams/Expectations

Diconnected is the perfect word for what I feel a lot of the time!

I have dealt with FM since 2002, well, longer, but that was when I was dx'd.
Over the years, I believe I have hit a leveling off...
Board: Spinal Cord Disorders 03-20-2008, 09:51 AM
Replies: 9
Views: 1,962
Posted By DecLady
Havin 4 level fusion, when can I travel?

I am not good at the medical terms, but it is a 4 level fusion in my neck, C-3 to C-7 which is set for April 28th.
I live near Louisville , KY, and my daughter lives in Milwaukee, WI. She can...
Board: Fibromyalgia 03-08-2007, 07:04 AM
Replies: 66
Views: 17,147
Posted By DecLady
Re: What words or statements have hurt you the most?

My GP dx'd me..and after about a year..wanted confirmation from a rheumy..I said ok. I spent $400 to find out that he could do nothing..that his patients with FMS that got better did it on their...
Board: Fibromyalgia 05-11-2006, 05:34 AM
Replies: 8
Views: 4,250
Posted By DecLady
Re: Exercise & comments on Elavil??

Good for you on the exercise. I find that staying reasonably active does help me too. But , the hard part is knowing when it is too much, I don't always know until the pain kicks up! As for...
Board: Fibromyalgia 05-11-2006, 05:19 AM
Replies: 8
Views: 4,250
Posted By DecLady
Re: Exercise & comments on Elavil??

Good for you on the exercise. I find that staying reasonably active does help me too. But , the hard part is knowing when it is too much, I don't always know until the pain kicks up! As for...
Board: Stroke 02-23-2006, 03:54 AM
Replies: 18
Views: 7,741
Posted By DecLady
Re: My 22yo Son had a stroke 1/1/06...looking for info

At this point he has opted to just be on coumadin, and he will close the PFO at a later date. The hospital he was at, Froedert in WI, is currently doing a study for a closer for this particular sort...
Board: Stroke 01-31-2006, 05:21 AM
Replies: 18
Views: 7,741
Posted By DecLady
Just an update

Hard to believe that only 30 days have past since my son had his stroke. But he just finished his first week back at work. Amazingly enough...he is turning out to be one of the lucky ones. He took...
Board: Stroke 01-22-2006, 04:05 AM
Replies: 18
Views: 7,741
Posted By DecLady
Re: My 22yo Son had a stroke 1/1/06...looking for info

I don't know if he will need an official release or not...maybe it is a good question for him to be asking though.

I am glad that the outcome is this good...with him being so young, a mother's...
Board: Stroke 01-21-2006, 05:36 AM
Replies: 18
Views: 7,741
Posted By DecLady
Some good news

My son told me yesterday that he is going to try to go back to work on Monday. He said he has been staying physically active at home, and the fatigue he was feeling is a lot less this week. He...
Board: Stroke 01-19-2006, 01:36 PM
Replies: 18
Views: 7,741
Posted By DecLady
Re: My 22yo Son had a stroke 1/1/06...looking for info

My son was getting out of the shower...when he felt almost a lightheadness..then his left arm was numb..he dropped his towel..couldn't grab it with the left side..but then that left his arm as soon...
Board: Stroke 01-18-2006, 04:43 AM
Replies: 18
Views: 7,741
Posted By DecLady
Re: My 22yo Son had a stroke 1/1/06...looking for info

Thank you Chris. Not a walk I wanted to take, but now that I am on it...helping someone else is just always a good thing!
My son finally has an appointment for a follow up with his neuro in early...
Board: Stroke 01-15-2006, 03:25 AM
Replies: 18
Views: 7,741
Posted By DecLady
Re: My 22yo Son had a stroke 1/1/06...looking for info

One of the things I told him was that he should talk to the doctor and find out what services , specific to stroke they have available. And to tell her honestly what is giving him problems. I didn't...
Board: Stroke 01-14-2006, 05:10 PM
Replies: 18
Views: 7,741
Posted By DecLady
Re: My 22yo Son had a stroke 1/1/06...looking for info

Thanks so much for answering. I think that when they did the PT and OT evaluations, he performed everything so normally that they didn't realize there was any issues at all. Both PT and OT and also,...
Board: Stroke 01-14-2006, 05:46 AM
Replies: 18
Views: 7,741
Posted By DecLady
My 22yo Son had a stroke 1/1/06...looking for info

Anyone that opened this post probably thought the same thing we are...22, so young! But, evidently not that unusual. One test revealed a PFO which is a congetital hole in between the upper chambers...
Board: Fibromyalgia 12-27-2005, 05:29 AM
Replies: 19
Views: 15,491
Posted By DecLady
Re: Amitryptiline and groggy in the morning??

That was just one of the side effects I had with that drug. I also gained 20 pounds...and had a dry mouth that started some peridonatal issues for me. Then , to top it off, I started waking up 8 or9...
Board: Fibromyalgia 09-21-2005, 05:32 AM
Replies: 12
Views: 3,533
Posted By DecLady
Re: Breathing Problem

I think that costochondritis is one of those things that a lot of doctors don't know to look for. You may want to print out info about it....IF the info sounds like what you are experiencing...and...
Board: Fibromyalgia 09-18-2005, 05:40 AM
Replies: 9
Views: 2,105
Posted By DecLady
Re: natural anti depressants, serotonin boost?

There are a couple studies out now that say St Johns Wort is as effective as things like Prozac and Paxil. But, this is also something that can effect other drugs you may be taking.So be cautionary...
Board: Fibromyalgia 09-18-2005, 05:39 AM
Replies: 12
Views: 3,533
Posted By DecLady
Re: Breathing Problem

I think that this is one of those things you dont' want an amateur diagnosis on. You do need to find a doc that can give you an answer...But I also know that I have read many times that breathing can...
Board: Fibromyalgia 09-09-2005, 05:38 AM
Replies: 5
Views: 1,771
Posted By DecLady
Re: Do you take a multivitamin?

I choose to take a multi, I also take fish oil capsules which does seem to help with some of the stiffness. I know that with the meds..and the illness, I don't always eat well, so this just insures...
Board: Fibromyalgia 09-09-2005, 05:32 AM
Replies: 11
Views: 4,012
Posted By DecLady
Re: New Here...Opinions on Elavil...

It is ok for you to choose not to take the drug. But I would suggest you let your doctor know..and tell him /her your reasons why. It is a first recommended drug for most docs..but that doesn't...
Board: Fibromyalgia 09-05-2005, 04:46 PM
Replies: 11
Views: 4,012
Posted By DecLady
Re: New Here...Opinions on Elavil...

I used elavil for about a year when I was first dx'd. It worked for me for a while...well, maybe I should say it seemed to help me sleep for about 6 months...then little by little..I was waking up...
Board: Fibromyalgia 09-03-2005, 05:13 AM
Replies: 13
Views: 3,299
Posted By DecLady
Re: Newly diagnosed Need help( warning may get long)

Because there is no drugs specifically for FMS at this point, I think doctors have (if they believe in it at all) their own preferred way of dealing with a newly diagnosed patient. IF you find what...
Board: Fibromyalgia 06-14-2005, 07:35 PM
Replies: 15
Views: 3,479
Posted By DecLady
Re: Ever feel like you are letting everyone down??

I often think it is not so much that I am letting people down..but I am continually disappointed in not being able to live the same life I was expecting to live. It is difficult to make plans and...
Board: Fibromyalgia 06-14-2005, 06:16 AM
Replies: 5
Views: 1,381
Posted By DecLady
I have done hatha yoga..

On and off for years. I will say that the fibro is better when I practice it than it is when I don't. But, you know how life goes...sometimes you just get a bit sidetracked, and then you have to find...
Board: Fibromyalgia 06-08-2005, 01:57 PM
Replies: 155
Views: 57,735
Posted By DecLady
Re: trying to find the connection between all of us.

Robin!!! That is so funny ( sad but funny!) You always sort of think that no one else is like you! I know what you mean about the possibility of always having this...I have read things as well that...
Board: Fibromyalgia 06-08-2005, 01:18 PM
Replies: 155
Views: 57,735
Posted By DecLady
Re: trying to find the connection between all of us.

I cannot tell you what brought on my symptoms. I have no prior back issues, as a matter of fact, other than some stiffness from time to time ( which at the time I and my doc attributed to arthritus)...
Board: Fibromyalgia 06-08-2005, 06:38 AM
Replies: 8
Views: 3,426
Posted By DecLady
Re: Best vacuum for fibro?

I don't have a fibro friendly vacuum..I doubt that doing anything like that which is so repetitative could be friendly to us! I am curiously watching to see if that new dyson with the Ball is easy to...
Board: Fibromyalgia 05-23-2005, 05:51 AM
Replies: 155
Views: 57,735
Posted By DecLady
Re: trying to find the connection between all of us.

I don't have a defining precursor. Several summers ago, I was sitting in the sun porch and I crossed my legs...and noticed my hip hurt..or maybe outer thigh..it was hard to tell. I noticed it again...
Board: Fibromyalgia 04-20-2005, 04:48 AM
Replies: 7
Views: 2,615
Posted By DecLady
Re: brittle nails a symtom of fibro?

I am not sure if it is directly related, although I have read that it is one of the "symptoms" several times. I know that just in the past year ( I have been dx'd with fibro 2 1/2 years now) that my...
Board: Fibromyalgia 04-08-2005, 11:48 AM
Replies: 22
Views: 8,841
Posted By DecLady
Re: How long have you had FMS/or CFS? & ?

Let's see, I was dx'd in Nov, 2002- but I had very noticeable symptoms in the prior year..and looking back I had symptoms for at least 5 years prior, but they hadn't been enough for me to think...
Board: Fibromyalgia 03-24-2005, 06:19 AM
Replies: 30
Views: 7,687
Posted By DecLady
Re: Dental problems & FM?

I didn't put two and two together till recently. But, I had great teeth most of my life and good dental care...the the last several years, there have been a ton of issues. My dentist has commented...
Board: Fibromyalgia 03-06-2005, 01:32 PM
Replies: 12
Views: 3,401
Posted By DecLady
Re: Flares vs Everyday Symptoms

How I describe the difference, is there is the daily pain, and sometimes acheyness that makes doing the most simple things more difficult. Then there is a flare when I have to really exert effort in...
Board: Fibromyalgia 03-05-2005, 03:39 PM
Replies: 11
Views: 7,923
Posted By DecLady
When I first was dx'd...

My GP was against tramadol ( ultram) which was later recommended by the FDA for fibromyalgia. If I am correct it is still the only drug that is "officially " recommended-LOL But, he didn't like the...
Board: Fibromyalgia 03-03-2005, 01:49 PM
Replies: 5
Views: 1,474
Posted By DecLady
Re: What is your weakness like?

The fatigue/weakness feeling is one of the more frustrating things for me! There are times my body acts "normally" then there are those times where it takes both hands to bring my cup to my...
Board: Fibromyalgia 03-03-2005, 01:43 PM
Replies: 4
Views: 5,073
Posted By DecLady
Re: Started Pilates: Immediate Fatigue?

I think that you may have done too much. Even though it seems like just a little, it can wear a fibro person out quickly. Don't be discouraged if you enjoyed the work out though! Just start out a bit...
Board: Fibromyalgia 02-04-2005, 06:03 AM
Replies: 37
Views: 6,575
Posted By DecLady
Re: Describe Fibromyalgia

There was a time when I thought feeling old would feel like this...but I am now 52, and realizing that old DOESN'T feel like this...SICK feels like this! I haven't had a totally feel good day in a...
Board: Fibromyalgia 02-04-2005, 05:22 AM
Replies: 14
Views: 3,334
Posted By DecLady
Re: Anyone else feel like HELL in the morning?

I think that pain in the morning is one of the most common complaints of fibromyalgia. The things that have seemed to help me the most are a memory foam bed topper, and a memory foam pillow. Then, I...
Board: Fibromyalgia 01-21-2005, 02:20 PM
Replies: 7
Views: 5,044
Posted By DecLady
Re: Green Tea

There is also a tea from South Africa called ROOIBUS ( roy -bus) tea and it has a ton more antioxidents than green tea and no caffiene. If you do a search on it you can find out a lot of info about...
Board: Arthritis 01-18-2005, 02:08 PM
Replies: 14
Views: 2,509
Posted By DecLady
Re: FMS and groin Pain?

Periods are no longer an issue for me. I had EVERYTHING out when I was 40. I sometimes wonder if that is what kicked up the fibro symptoms for me. I am not 100% sure, but I didn't have them...
Board: Arthritis 01-18-2005, 06:11 AM
Replies: 14
Views: 2,509
Posted By DecLady
Re: FMS and groin Pain?

I have been dx'd for over two years now..and that "groin" pain is my most recent one! Always something new and fun to deal with it seems...I am finding if I stand in one place for any length of time,...
Board: Fibromyalgia 12-20-2004, 04:15 PM
Replies: 6
Views: 2,255
Posted By DecLady
I am glad to hear...

That your doc has the good sense to stay stop though! Sorry that it didn't work out, but hopefully he is commited to finding things for you that will help.
Hang in there!
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