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Board: Lupus 08-08-2016, 10:14 AM
Replies: 1
Views: 1,088
Posted By Karren26
Daughter with Down Syndrome/Lupus

Hi, my daughter is 21 has Hashimatos and now Lupus. In denial I had new bloodwork done and waiting on it. I took all gluten, sugar, meat except fish and dairy out of her diet. Her Sed rate was 105....
Board: Down Syndrome 07-21-2016, 04:34 PM
Replies: 0
Views: 907
Posted By Karren26
Daughter 21 DS Lupus

Hi, any one know of any other case of Lupus in a patient with DS?Any help appreciated.
Board: Down Syndrome 04-06-2010, 05:16 AM
Replies: 5
Views: 10,916
Posted By Karren26
Re: Menstrual Periods

Depo made me bleed an entire three months horrible, we at one point put our daughter on Seasonique. It worked but we stopped for unrelated reasons.
Board: Down Syndrome 02-22-2010, 04:21 AM
Replies: 0
Views: 5,767
Posted By Karren26
Hashimoto's Encephalopathy

t has been a long time coming but we finally truly are sure what has been wrong with Hailey. She went from high functioning and happy to withdraw, hallucinating and homebound the last two years from...
Board: Down Syndrome 02-22-2010, 04:18 AM
Replies: 5
Views: 8,127
Posted By Karren26
Re: 27 year old down snydrome with possibilty of having dementia

t has been a long time coming but we finally truly are sure what has been wrong with Hailey. She was diagnosed three years ago with hypothyroid and blood work was done including the thyroid antibody...
Board: Down Syndrome 02-22-2010, 04:12 AM
Replies: 16
Views: 17,884
Posted By Karren26
Re: Anybody have children with dual diagnosis

It has been a long time coming but we finally truly are sure what has been wrong with Hailey. She was diagnosed three years ago with hypothyroid and blood work was done including the thyroid...
Board: Down Syndrome 02-22-2010, 04:04 AM
Replies: 1
Views: 5,102
Posted By Karren26
Re: 43 year old woman with Dementia??

It has been a long time coming but we finally truly are sure what has been wrong with Hailey. She was diagnosed three years ago with hypothyroid and blood work was done including the thyroid...
Board: Down Syndrome 02-22-2010, 04:01 AM
Replies: 1
Views: 4,837
Posted By Karren26
Re: TSH increased

It has been a long time coming but we finally truly are sure what has been wrong with Hailey. She was diagnosed three years ago with hypothyroid and blood work was done including the thyroid...
Board: Down Syndrome 02-22-2010, 04:00 AM
Replies: 33
Views: 24,568
Posted By Karren26
Re: It started at 16

It has been a long time coming but we finally truly are sure what has been wrong with Hailey. She was diagnosed three years ago with hypothyroid and blood work was done including the thyroid...
Board: Down Syndrome 11-22-2009, 06:40 AM
Replies: 33
Views: 24,568
Posted By Karren26
Re: It started at 16

Have you noticed her behaviors getting worse when she has drank or ate any certain food? I am really picking up on foods that have preservatives, dyes, etc...making her worse.
Board: Down Syndrome 10-21-2009, 04:13 AM
Replies: 33
Views: 24,568
Posted By Karren26
Re: It started at 16

I know this is just very sad. She was high functioning and we just knew she would live on her own at some point. Which now that is impossible unless things change. She still is very smart and now on...
Board: Down Syndrome 10-20-2009, 06:59 AM
Replies: 33
Views: 24,568
Posted By Karren26
Re: It started at 16

It has been awhile, I checked in several times and there were no updated posts. Glad some of you are back. Well, Hailey has only been on Seasonique birth control for the last. 6 months. She is...
Board: Down Syndrome 12-11-2008, 08:27 AM
Replies: 6
Views: 15,168
Posted By Karren26
Re: chances of another downs syndrome pregnancy

Hi, I do not know what the percentage of it happening again are but I know a couple in our down syndrome support group that just had their second down syndrome child.

The other thing is that a...
Board: Down Syndrome 12-05-2008, 03:44 AM
Replies: 33
Views: 24,568
Posted By Karren26
Re: It started at 16

Yes, sleep apnea disturbs sleep to take a deep breath, cough, and gasp for air. They never fully wake though. Hailey in her sleep study has alot of limb movement, restless in an hours time. They...
Board: Down Syndrome 12-03-2008, 03:31 AM
Replies: 33
Views: 24,568
Posted By Karren26
Re: It started at 16

Hi Kay,
Thanks for your response. It is reassuring to have someone that has gotten to the other side of puberty. I would not mind a pretend friend, it gets to the point though that she prefers...
Board: Down Syndrome 12-02-2008, 04:01 AM
Replies: 33
Views: 24,568
Posted By Karren26
Re: It started at 16

Wow, she sounds alot like Hailey. I do see some improvement, not alot on day 6 of the Seasonique. Her sleep is not consistant, she feel asleep last night at 9 and I heard her on the baby monitor at...
Board: Down Syndrome 11-29-2008, 10:27 AM
Replies: 33
Views: 24,568
Posted By Karren26
Re: It started at 16

Hi, I posted a reply earlier but I have no idea where it went. So, if shows up that is why there may be two.

My daughter is 13yrs old and when she was 12, May 2007 she got her first period. That...
Board: Down Syndrome 11-29-2008, 06:30 AM
Replies: 5
Views: 8,127
Posted By Karren26
Re: 27 year old down snydrome with possibilty of having dementia

Hi, I have posted under the happened at 16 thread. My daughter is having all kids of mental health problems and doctors have told me alot about what happens later and her problems have some hormone...
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