It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....




Lightbulb

Search   Advanced Search
Showing results 1 to 50 of 374
Search took 0.34 seconds.
Search: Posts Made By: rayefaye

Alternative to Searching: Try our message board index!
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 02-02-2012, 07:02 PM
Replies: 8
Views: 4,022
Posted By rayefaye
Re: BURNING PAIN in feet making me insane! Help please..

Well I've been having a better time since we haven't gotten any snow this winter. We also have had much rain either so my feet haven't bother me as much as last winter. I really had a bad winter last...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 01-31-2012, 07:00 PM
Replies: 8
Views: 4,022
Posted By rayefaye
Re: BURNING PAIN in feet making me insane! Help please..

I feel your pain when it come to the burning of the feet. I've been suffering for yrs now with the burning of my feet and have not find a solution to stop the burning. Also when we fixing to get a...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 08-30-2011, 06:03 PM
Replies: 7
Views: 3,785
Posted By rayefaye
Re: RSD and Menopause

It just another one of those nasty side effects of having RSD and I hate to see you have to deal with at such a young age.
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 08-06-2011, 09:44 PM
Replies: 3
Views: 1,382
Posted By rayefaye
Re: Im am so tired of hurting

All of you are so right it takes alot of will power everyday just to get out the bed and try to fell good about the day ahead of us. People really don't understand how much will power it takes and it...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 07-19-2011, 05:21 PM
Replies: 7
Views: 3,785
Posted By rayefaye
Re: RSD and Menopause

LOL I can comprend what you're saying and we're the most tormented one.
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 07-19-2011, 03:10 PM
Replies: 7
Views: 3,785
Posted By rayefaye
Re: RSD and Menopause

I'm used to where my legs and feet burn most of the time. I also get hot flashes like your's where I get them from the chest up and end up with water gushing off my forehead. What's so bad about that...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 07-19-2011, 08:09 AM
Replies: 7
Views: 3,785
Posted By rayefaye
RSD and Menopause

Hi ladies, I'm curious as to how many of you are suffering with both of the conditions at the same time. I'm currently suffering from both of these and Cervical Dystonia as well and it's been a real...
Board: Neuromuscular Diseases 10-09-2010, 08:57 AM
Replies: 19
Views: 22,265
Posted By rayefaye
Re: Facial pain, muscle spasms

Hi Payne, I'm glad to hear ur pain is better. In the begining the pain from RSD was extremely pain. In the past few yrs it's gotten much better so now I just have a bad here and there.
Board: Neuromuscular Diseases 10-07-2010, 05:15 PM
Replies: 19
Views: 22,265
Posted By rayefaye
Re: Facial pain, muscle spasms

Hi Payne, sorry it has taken so long to answer u back. Reflex Sympithetic Dystrophy (RSD) is a condition caused by severe damaged to the nerves. Mine was caused by my nerves being severed in both...
Board: Neuromuscular Diseases 09-27-2010, 08:34 PM
Replies: 19
Views: 22,265
Posted By rayefaye
Re: Facial pain, muscle spasms

That's for sure because we sure needed that rain. Now I'm waiting for the cooler weather because it has been a hot, hot summer.
Board: Neuromuscular Diseases 09-26-2010, 05:46 PM
Replies: 19
Views: 22,265
Posted By rayefaye
Re: Facial pain, muscle spasms

Yes that's right, I'm from Princeton, Nc which is not too far away from you. I hope you can find out what's wrong with you.
Board: Neuromuscular Diseases 09-25-2010, 09:37 PM
Replies: 19
Views: 22,265
Posted By rayefaye
Re: Facial pain, muscle spasms

It could be what they call Dystonia. I suffer from what's called Cervical Dystonia which is severe and uncontrollable muscle spasms of the neck. There is also a form of Dystonia which effects the...
Board: Disabilities 09-21-2010, 10:30 PM
Replies: 10
Views: 2,861
Posted By rayefaye
Re: Best attorneys for SS disability?

Hi Starrygrrl,

I'm from NC and I used the law firm of Burch, Joneth and Rodgers.

I had Laura Burch and she is a very good SS attorney.
Board: Disabilities 08-21-2010, 07:06 PM
Replies: 6
Views: 9,570
Posted By rayefaye
Re: Approved! Questions about Medicare and backpay......

I agree with you Princess, I also wanted the money they took out for Medicare. Nobody ever asked or gave me a option to accept or not accept the Medicare.
Board: Disabilities 08-20-2010, 10:08 PM
Replies: 6
Views: 9,570
Posted By rayefaye
Re: Approved! Questions about Medicare and backpay......

I may be wrong since it's been a few yrs since I started receiving my disability but yes, they take out the retro pay out of your first check. I remember them taking out for 4 or 5 months for...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 05-16-2010, 02:31 PM
Replies: 3
Views: 2,411
Posted By rayefaye
Re: Weight Loss in RSD patients

Hi DebDog, I have lost extreme weight loss since I've been diagnoised with RSD. Of course there has been a reason besides RSD that caused my weight loss. I had alot of weight loss due to an ulcer....
Board: Disabilities 03-31-2010, 06:42 PM
Replies: 19
Views: 6,896
Posted By rayefaye
Re: questions about reviews?

I was awarded my disability in 2006 after waiting 2 yrs to get approved. Last yr I decided to use my Ticket to Work through SS and went through the local Vocational Rehab and got a part-time job....
Board: Disabilities 02-05-2010, 10:37 AM
Replies: 6
Views: 2,572
Posted By rayefaye
Re: Finally approved in nc

I just wanted to say Congradulations on finally getting your disability. I know that's a big relief for you to finally get that approval.
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 11-01-2009, 12:43 PM
Replies: 2
Views: 8,338
Posted By rayefaye
Re: Upper Body RSD + Muscle Spasms

Hi Natalie, I suffer from both RSD and Cervical Dystonia. Cervical Dystonia is severe and uncontrollable muscles spasms of the neck. I have full upper body RSD in both arms, neck and shoulders. My...
Board: Chronic Pain 10-26-2009, 07:30 PM
Replies: 3
Views: 3,728
Posted By rayefaye
Re: Broken Leg, Ankle and now crps.

Hi Irish, welcome to the boards, I sorry to hear what you've been through. I suffer from what is called Reflex Sympathetic Dystrophy which is also the same as CRPS. It a very painful condition that...
Board: Disabilities 10-23-2009, 06:11 PM
Replies: 27
Views: 10,879
Posted By rayefaye
Re: In NC waiting for my decision from the SSD

Hi TJ, sorry it took so long to get back to you. I file for my disability in Mar '04and I had my hearing in Mar '06 and I receive my decision on Apr 29, '06. After I denied twice and got a lawyer I...
Board: Disabilities 10-21-2009, 10:16 AM
Replies: 27
Views: 10,879
Posted By rayefaye
Re: In NC waiting for my decision from the SSD

Hi TJ, I had my hearing as well in Raleigh. My hearing didn't take long since I am physicially handicap. I had my hearing on March 17 and I received my decision on April 29.
Board: Disabilities 10-21-2009, 09:46 AM
Replies: 20
Views: 6,382
Posted By rayefaye
Re: Anyone from NC had hearing or approved lately?

Hi TJ and Bradley, I had my hearing in Raleigh. TJ, I know it's tough waiting for that decision epecially since you could really use the money to pay your bills. Bradley, the workman's comp may have...
Board: Disabilities 10-20-2009, 04:33 PM
Replies: 20
Views: 6,382
Posted By rayefaye
Re: Anyone from NC had hearing or approved lately?

.Hi Bradley, I'm sorry if I might have mislead you as far as the waiting period is concern. Yes there is a 5 month waiting period before they declared your are disabled and then there's the waiting...
Board: Disabilities 10-17-2009, 04:49 PM
Replies: 20
Views: 6,382
Posted By rayefaye
Re: Anyone from NC had hearing or approved lately?

Hi Bradley, yes they count the waiting period as part of your 24 month. Which means you don't have to be drawing a check, I guess that's the only good part of waiting. By the time you get approved...
Board: Disabilities 10-11-2009, 06:20 PM
Replies: 20
Views: 6,382
Posted By rayefaye
Re: Anyone from NC had hearing or approved lately?

I can relate with you there, it feels like it takes forever for the process. I do know that the NC branch is back logged. I can still remember when my lawyer told me it would take anywhere from 16-18...
Board: Disabilities 10-10-2009, 05:35 PM
Replies: 20
Views: 6,382
Posted By rayefaye
Re: Anyone from NC had hearing or approved lately?

Hi Bradley, no when I first applied, I filed for a different conditon. At the time I filed for my disability, the doctors really didn't know for sure what was wrong with me. By the time I went to see...
Board: Disabilities 10-05-2009, 07:29 PM
Replies: 20
Views: 6,382
Posted By rayefaye
Re: Anyone from NC had hearing or approved lately?

Hi Bradley, I'm from NC and it took me about a month and a half to get my decision. I had to wait 18 months to get a hearing. I suffer from RSD as well and hope you get a decision soon.
Board: Neuromuscular Diseases 09-24-2009, 08:40 PM
Replies: 26
Views: 34,633
Posted By rayefaye
Re: how to stop a dystonic storm

Sorry it took so long to get back to you. I was reading about the pain you describe which reminds me alot of another condition I suffer from called RSD. RSD stands for Reflex Sympathetic Dystropy...
Board: Neuromuscular Diseases 09-19-2009, 08:47 PM
Replies: 26
Views: 34,633
Posted By rayefaye
Re: how to stop a dystonic storm

Hi Dystonic in Va, can u tell me what part of your body is effected by dystonia? I suffer from Cervical Dystonia which is where I have severe and uncontrollable muscles spasms in my neck. These...
Board: Neuromuscular Diseases 09-13-2009, 04:37 PM
Replies: 3
Views: 4,261
Posted By rayefaye
Re: What is a dystonic storm?

Wow, sorry to hear this happens to for weeks in your back. It sounds like you may have a good chance trying Botox for the spasmsl. I have read of another person who receive them for their back and...
Board: Neuromuscular Diseases 09-12-2009, 06:17 PM
Replies: 3
Views: 4,261
Posted By rayefaye
Re: What is a dystonic storm?

It's when you have a muscle spasms and it causes the muscles to contract in a distorted way. Like when I have one of my spasms it causes my shoulder to raise up and my head turns to the left. In...
Board: Neuromuscular Diseases 09-12-2009, 06:03 PM
Replies: 3
Views: 2,893
Posted By rayefaye
Re: Just diagnosed - c. dystonia

Mind started off mild as well and just keep getting worse but I also suffer from RSD. It's short for Reflex Sympathetic Dystrophy which is extensive nerve damage in both of my arms and my neck. So...
Board: Neuromuscular Diseases 09-08-2009, 07:34 PM
Replies: 3
Views: 2,893
Posted By rayefaye
Re: Just diagnosed - c. dystonia

Hi bassclari, I'm just happen to see you post on Cervical Dystonia. I've been suffering from for over 6 yrs now and have lost the use of my left arm due to the pulling of the muscles. At first, I...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 08-17-2009, 06:44 PM
Replies: 8
Views: 4,782
Posted By rayefaye
Re: Numness in upper back...Please help!!!

Hi Martha, I no longer suffer from all that burning pain in my feet and my hands as well. My hands also use to burn real bad, in fact, when you would look at them they were pure red. Thanks to...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 08-12-2009, 05:15 AM
Replies: 8
Views: 4,782
Posted By rayefaye
Re: Numness in upper back...Please help!!!

What you're describing sounds like RSD spread but the numbing could be from a trapped nerve. I suggest you get up with your doctor and see if he can't help you with this uncontrollable burn. For me...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 08-12-2009, 05:08 AM
Replies: 19
Views: 11,580
Posted By rayefaye
Re: Just diagnosed two months ago, need help, please!!!

Sorry to hear about you're current problems. I've never really had alot of numbing but the feelings in both of my arms are gone. I lost the feelings in my right arm when I first had my wreck and the...
Board: Disabilities 08-07-2009, 07:31 PM
Replies: 6
Views: 3,124
Posted By rayefaye
Re: how much $ allowed to make per month?

Hi Claudia, you have to make at least $700 a month for them to consider that you're working. You are allowed to make up to $980 and remember this is before any taxes are taken out. So if you have a...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 08-05-2009, 07:12 PM
Replies: 19
Views: 11,580
Posted By rayefaye
Re: Just diagnosed two months ago, need help, please!!!

Hi Martha, sorry it took so long to answer back, I've been busy here lately. I am on pain meds to control the pain in fact, I'm still taking the same kind of meds first prescribed for me. The dosage...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 07-27-2009, 04:09 PM
Replies: 19
Views: 11,580
Posted By rayefaye
Re: Just diagnosed two months ago, need help, please!!!

Hi Martha, yes the lack of mobility is the reason you're losing muscle strength. Especially if like in my case were everytime I would try and extend my arm, pain would shoot up my arm. I still...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 07-26-2009, 06:44 PM
Replies: 19
Views: 11,580
Posted By rayefaye
Re: Just diagnosed two months ago, need help, please!!!

Hello Martha and welcome to the boards, sorry to hear about what you're going through. It is very tough in the begining especially how RSD can turn your whole world upside down in a matter of no...
Board: Hair Loss / Alopecia 03-01-2009, 07:25 PM
Replies: 19
Views: 3,521
Posted By rayefaye
Re: hair loss?

Hi Deanne, have you ever tried that oil made by Skin So Soft made by Avon? They also have a shower gel made with the SSS oil in it. I remember when I first got RSD in my scalp and my hair was coming...
Board: Hair Loss / Alopecia 03-01-2009, 10:18 AM
Replies: 19
Views: 3,521
Posted By rayefaye
Re: hair loss?

Hi Deanne, I have very dry skin especially on my hands. I've found the best cream to relieve the dryness has been the genertic form of Eucerin cream made by Wal-Mart. It comes in a round jar and it...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 02-07-2009, 12:46 PM
Replies: 5
Views: 3,083
Posted By rayefaye
Re: RSD and my spouse

Hi Sherry, I'm sorry to hear you husband feels this way especially because he thinks his dreams not coming true is more important than your health. I really don't know what to say because I'm...
Board: Neuromuscular Diseases 02-07-2009, 06:43 AM
Replies: 32
Views: 33,652
Posted By rayefaye
Re: Dystonia

Hi Rosie, no the Botox injucetions didn't help me at all. I know what you mean when the spasms come on and turn your head sideways and that's how you see everything as well. It is also very painful...
Board: Pain Management 01-17-2009, 05:26 AM
Replies: 5
Views: 9,849
Posted By rayefaye
Re: botox trigger point injections

Hi Kathy, I suffer from Cervical Dystonia which is severe and uncontrollable muscles spasms of the neck. The muscles is both sides of my neck are as hard as bricks and there's no hope of them ever...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 01-11-2009, 08:36 AM
Replies: 6
Views: 2,529
Posted By rayefaye
Re: Tendinitis anyone

It's ok Karen, Celebrex is the first name to come to mind these days since Vioxx has been off the market for awhile. Also you're always seeing commericals promoting Celebrex so that might be why it...
Board: Pain Management 01-10-2009, 06:22 AM
Replies: 49
Views: 18,928
Posted By rayefaye
Re: First PM Appt - Has Anyone Felt This Way & What Did U Do?

I think I would be looking for another PM doctor because this one isn't taking you seriously. Especially if he don't think that Fibro is a real disease.
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 01-10-2009, 06:17 AM
Replies: 6
Views: 2,529
Posted By rayefaye
Re: Tendinitis anyone

Hi Karen are you referring to Vioxx instead of Celebrex? Because Celebrex is still on the market because I've been taking it for yrs without no kind of bad side affects from it. I have the price of...
Board: Neuromuscular Diseases 01-07-2009, 10:05 AM
Replies: 32
Views: 33,652
Posted By rayefaye
Re: Dystonia

Hi Rosie, I can sympathitize with you, I suffer from both RSD and Cervical Dystionia. My dystonia is mainly in my both sides of my neck and shoudlers. At times the spasms run down my back and can get...
Showing results 1 to 50 of 374

 







All times are GMT -7. The time now is 09:08 PM.





2019 MH Sub I, LLC dba Internet Brands. All rights reserved.
Do not copy or redistribute in any form!