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Board: Multiple Sclerosis 03-21-2018, 04:20 PM
Replies: 3
Views: 931
Posted By MSJayhawk
Re: Touch sensations gone whacky. Anyone else?

updown,

Welcome :wave:

I get touch sensations that can "weird me out". Sometimes it is the touch of plastic or paper. Cotton has been my best friend :) I also had good luck with silk. ...
Board: Multiple Sclerosis 10-08-2017, 08:03 AM
Replies: 2
Views: 1,505
Posted By MSJayhawk
Re: PML risk, Tysabri and Lemtrada

Daphnie,

Being positive for JC throws a wrench into the situation. Even if you were not JC positive, you would still need to be vigilantly monitored. The fact that you are JC positive requires a...
Board: Open to All Other Health Topics 06-01-2017, 02:11 AM
Replies: 5
Views: 981
Posted By MSJayhawk
Re: Is this MS, Lupus,tumor, adrenal disease?

Confusednut ,

:wave: Welcome.

Your anxiety and familial stressors both which your and your pregnancy may be linked.

I would encourage you to address any cardio issues first. Please...
Board: Multiple Sclerosis 05-19-2017, 08:00 PM
Replies: 10
Views: 1,776
Posted By MSJayhawk
Re: Painful hips

greenteafiend,

I have hip and thigh pains as well as sciatic and back pain. These can all occur at the same time or vary. Many of my major pain issues come or present when my body is out of...
Board: Multiple Sclerosis 05-04-2017, 07:01 PM
Replies: 7
Views: 1,367
Posted By MSJayhawk
Re: Before I respond to this e-mail...

Okiegirl,

You possess a great attitude. "if it gives me a feeling of fighting against the MS, then I will continue my therapy." Stick with that attitude and you will do well :) :angel:
Board: Multiple Sclerosis 03-30-2017, 07:16 PM
Replies: 9
Views: 1,256
Posted By MSJayhawk
Re: moving between different climates

Shahila,

I recently shifted residence to Arizona. For me, the lack of humidity has really helped me. I have found that the heat tolerance is higher without the humidity.

Some times it is a...
Board: Open to All Other Health Topics 02-26-2017, 05:23 PM
Replies: 9
Views: 1,410
Posted By MSJayhawk
Re: Can MS come on so suddenly??

Nevi2017,

My symptoms persist for 24+ hours. But I also have daily symptoms due to my PPMS. If your symptoms are less than 24 hours (intensity can vary), it is highly unlikely that the symptoms...
Board: Open to All Other Health Topics 01-14-2017, 06:45 AM
Replies: 10
Views: 2,213
Posted By MSJayhawk
Re: Possible MS Symptoms?

Nera

:wave: Welcome.

I am sorry to hear of your neurologist visit. Since 2002 when my MS worsened, my Optic Neuritis left me with right eye light sensitivity.

Based on those things you...
Board: Open to All Other Health Topics 12-26-2016, 09:31 PM
Replies: 7
Views: 1,575
Posted By MSJayhawk
Re: Is this MS? 1st Neuro tomorrow

PixiePainter,

:wave: Welcome

Best of luck. I really hope it goes well for you. Patience is necessary. Allow time for the testing to be done. It is not easy. We will be here with you. ...
Board: Open to All Other Health Topics 12-17-2016, 07:49 PM
Replies: 9
Views: 1,051
Posted By MSJayhawk
Re: How do you all cope with the possibility of having MS

scaredofms,

Not knowing is frustrating.

If you were diagnosed with MS, how would you feel? If you plan for the worst, anything less is good. I hope that you get a diagnosis. Stay...
Board: Open to All Other Health Topics 12-12-2016, 05:48 PM
Replies: 4
Views: 1,083
Posted By MSJayhawk
Re: McDonald Criteria for MS Diagnosis

scaredofms,

You would be best to have the doctor discuss the details with you. Lesions caused by MS can appear on the brain, c-spine, t-spine, and l-spine. Personally, I have MS lesions on my...
Board: Open to All Other Health Topics 12-11-2016, 07:03 PM
Replies: 11
Views: 2,387
Posted By MSJayhawk
Re: Fainting/black out is it a symptom of MS?

scaredofms,

About 5% of MSers can experience MS Seizures. There is no medication to treat the MS seizures. Stress can cause the MS seizures to present. I would certainly ask about MS seizures...
Board: Open to All Other Health Topics 11-29-2016, 11:14 AM
Replies: 9
Views: 761
Posted By MSJayhawk
Re: Opinions please help, thanks

scaredofms,

I think the cold temperatures is your trigger. This is an avoidable trigger which can be alleviated by the clothing (I hope! ) :angel:
Board: Open to All Other Health Topics 11-29-2016, 09:22 AM
Replies: 9
Views: 761
Posted By MSJayhawk
Re: Opinions please help, thanks

scaredofms,

Temperature intolerance whether cold or hot could well cause the headaches. Personally, my low range is 52 F (11.11 C). If the temperature falls to this point, I will don a...
Board: Multiple Sclerosis 10-29-2016, 07:37 AM
Replies: 1
Views: 3,541
Posted By MSJayhawk
What are your chances for having MS?

The average person in the United States has about one in 750 to 1000 (.1%) chance of developing MS. Dr. Internet may jump to a different conclusion, but the risk is quite low. If you develop...
Board: Multiple Sclerosis 10-26-2016, 06:59 PM
Replies: 6
Views: 947
Posted By MSJayhawk
Re: Couple of questions ...

firemom31,

The meds are no guarantee and none of them will state that there will be no new lesions. MS is a progressive disease and the progression rate really does vary. The number of lesions...
Board: Multiple Sclerosis 10-17-2016, 09:04 PM
Replies: 6
Views: 947
Posted By MSJayhawk
Re: Couple of questions....

Firemom31,

The progress is a decision based upon the time and space. Most major MS sites will show you A line graph. If you apply your own records, you can create your own graph. This is what...
Board: Multiple Sclerosis 09-14-2016, 11:15 AM
Replies: 3
Views: 767
Posted By MSJayhawk
Re: Checking out alternative medications.

drummer84,


I supplement with Vitamin D3 per my doctor, but it is not to manage MS. Because a vitamin D deficiency can mimic MS, she wanted to make sure that my low normal level was boosted to...
Board: Multiple Sclerosis 08-17-2016, 04:34 PM
Replies: 2
Views: 995
Posted By MSJayhawk
Re: Possibility of MS?

Attila,

:wave: Welcome.

Spinal issues can present in a variety of problems. My personal problems related to my bladder are MS caused, but it is seated in my stress. As stress deepens, my...
Board: Multiple Sclerosis 08-09-2016, 07:29 PM
Replies: 10
Views: 1,105
Posted By MSJayhawk
Re: Multiple Sclerosis

Sky Machine,

"The more I think about it the worse it gets."
This would indicate to me that anxiety might be an issue. Anxiety is a statistically significant MS mimicry. It can mimic MS...
Board: Multiple Sclerosis 07-30-2016, 06:29 PM
Replies: 1
Views: 598
Posted By MSJayhawk
Re: Neuro appointment in 14 months

heather4867,

I am sorry you have to wait so long. 3 - 6 months waiting is common here. I know there are some Canadians who travel here for medical appointments. When I was still working I had...
Board: Multiple Sclerosis 07-18-2016, 05:54 PM
Replies: 19
Views: 1,556
Posted By MSJayhawk
Re: It's been a long time........

WifenMommy,

Service Dogs usually have a long waiting list. I trained my own. He started obedience at 3 months and by 6 months he would happily pull the shopping cart. As he was a "giant"...
Board: Multiple Sclerosis 07-18-2016, 07:55 AM
Replies: 13
Views: 1,711
Posted By MSJayhawk
Re: Could this be MS?

mkdandy,

:wave: Welcome.

Based upon what you have shared, it sounds highly unlikely that MS is a concern. Anxiety is, however, a concern. Uncontrolled, anxiety can mimic MS and cause...
Board: Multiple Sclerosis 07-12-2016, 02:55 PM
Replies: 6
Views: 868
Posted By MSJayhawk
Re: Next steps after husband was told he likely has MS

twohands,

:wave: Welcome to the MS board. :)

The next steps with which you are proceeding is the correct avenue. The MS Specialist will be able to best ascertain the situation. ...
Board: Multiple Sclerosis 07-03-2016, 11:19 AM
Replies: 5
Views: 1,086
Posted By MSJayhawk
Re: Head/neck pain

tortielicious,

:wave: Welcome.

I do not know what support structure you have there in the UK as you have to deal within the NHS, but you might check with your local Royal MS Chapter. I...
Board: Multiple Sclerosis 06-16-2016, 01:46 PM
Replies: 0
Views: 615
Posted By MSJayhawk
Microbleeds increase risk of Physical and Cognitive Disability

Leaky blood vessels in the brain called cerebral microbleeds are associated with an increased risk of physical and cognitive disability in patients with multiple sclerosis (MS), according to a new...
Board: Multiple Sclerosis 06-12-2016, 01:48 PM
Replies: 4
Views: 761
Posted By MSJayhawk
Re: Hello! I'm new here

Agate8,


:wave: Welcome. Thank you for the introduction. Glad to have you here. :) :angel:
Board: Multiple Sclerosis 05-29-2016, 06:42 AM
Replies: 2
Views: 697
Posted By MSJayhawk
Re: MS- field test study???

Jench,

:wave: Welcome.

In order to eliminate MS as a possibility, I would encourage you to firstly have a full blood test from "A to Z". Lyme disease, Vitamin Deficiencies, etc. There are...
Board: Multiple Sclerosis 05-22-2016, 02:39 PM
Replies: 9
Views: 1,509
Posted By MSJayhawk
Re: Question about electric shock sensations

heather4867,

Good to hear. Do not be afraid to leave out the details. An MS Specialist can sort things out for you. Lhermitte’s sign is not one of those symptoms which will persist continually,...
Board: Multiple Sclerosis 05-17-2016, 07:45 PM
Replies: 3
Views: 821
Posted By MSJayhawk
Re: Back to MS suspicion

JulesM,

:wave: Some people experience a symptom similar to the MS hug but in their hands or feet, where it feels as though you are constantly wearing gloves or boots. For others, the tight...
Board: Multiple Sclerosis 05-13-2016, 09:07 PM
Replies: 13
Views: 1,908
Posted By MSJayhawk
Re: Help please !!mri report need translation

armando835,

Meet with an MS Specialist and start going through the testing processes to eliminate or identify the mimicry. You could very well have something quite easily treatable.

MS, if...
Board: Multiple Sclerosis 05-03-2016, 08:05 AM
Replies: 20
Views: 2,624
Posted By MSJayhawk
Re: Possible MS

flemingsk,

At the top of this forum page in the middle section you will see threads which are locked. There is a thread there with information on locating an MS Specialist. You can find them by...
Board: Multiple Sclerosis 04-27-2016, 01:46 PM
Replies: 5
Views: 998
Posted By MSJayhawk
Re: Do I have MS?

Whiskers2000,

No worries. We are here to support you as best we can. It is important to know that you are not alone. :) :angel:
Board: Multiple Sclerosis 04-05-2016, 08:24 PM
Replies: 6
Views: 1,353
Posted By MSJayhawk
Re: Medication Side Effects

CI1967,

Reading some research, as far back as 2007-2008, acne was a side effect reported by users of Tysabri. Of those who had it, most had it present after the 2nd dosage. It would appear...
Board: Multiple Sclerosis 03-28-2016, 10:55 AM
Replies: 17
Views: 3,590
Posted By MSJayhawk
Re: Vitamin D or MS or what?

Wayout,

An Ophthalmologist would be good for you to resolve any possible concerns. They are medical doctor's whose specialty is the eye. If a neurological cause might be in play, there are also...
Board: Multiple Sclerosis 03-25-2016, 07:14 PM
Replies: 17
Views: 3,590
Posted By MSJayhawk
Re: Vitamin D or MS or what?

WayOut,

If you have a specific diagnosis, then the decision is easier. My roofing contractor's wife had MS, but she saw several different doctors for over 10 years who loaded up medications. The...
Board: Multiple Sclerosis 03-15-2016, 08:09 PM
Replies: 12
Views: 1,068
Posted By MSJayhawk
Re: Frustrated with health!

Meri Anne,

:wave: Welcome.

I have a sister with fibro and for her she loses energy when a low pressure system moves through.

As to the possibility of MS, an MS Specialist rather than a...
Board: Multiple Sclerosis 03-14-2016, 01:11 PM
Replies: 17
Views: 3,590
Posted By MSJayhawk
Re: eye weirdness, is this concerning?

WayOut,

Eyes can be affected by MS. Optic Neuritis is one part of the eye problem and residual damage can continue. The control of eye movement is a separate part or can be a separate part of...
Board: Multiple Sclerosis 03-08-2016, 08:25 AM
Replies: 1
Views: 805
Posted By MSJayhawk
Video Games help MSer Brains!

A new study was published regarding the effectiveness of "Brain Training". Playing "brain-training" video games may help improve cognition and neural connections in individuals with multiple...
Board: Multiple Sclerosis 02-26-2016, 05:45 PM
Replies: 4
Views: 1,002
Posted By MSJayhawk
Re: Weird pain then numbness and away in the distance

Prairie Fairie,

:wave: Welcome. Off the top, I see Dr. Lynch at the KUMC MS Clinic. I have been there since my original diagnosis in 1982.

An MRI cannot rule out MS, nor can it confirm...
Board: Multiple Sclerosis 01-26-2016, 04:48 PM
Replies: 15
Views: 2,147
Posted By MSJayhawk
Re: Am back, with new symptoms

Chooky,

Given that you are in the summer there, I will share that during the summer (late spring to early fall) I will soak my hands in cold water. This has worked effectively for me. I do not...
Board: Multiple Sclerosis 01-25-2016, 08:57 PM
Replies: 9
Views: 1,323
Posted By MSJayhawk
Re: Deciding on meds tomorrow - scared

firemom31,

A difficult decision, but one that you need to reach personally. As long as you are properly monitored and you work closely with the prescribing doctor and the Copaxone nurse, you can...
Board: Multiple Sclerosis 01-18-2016, 08:24 PM
Replies: 11
Views: 1,734
Posted By MSJayhawk
Re: MS? Yikes!

Bellazae333,

Six years ago my younger sister started dealing with fatigue and other problems. She went to see a neurologist because I have MS. The neuro sent her to the cardiologist. The...
Board: Multiple Sclerosis 01-18-2016, 10:43 AM
Replies: 7
Views: 1,294
Posted By MSJayhawk
Re: Leg spasms

Ann,

The lesions on the spine should be able to be seen on an MRI.

Many medications lose effectiveness over time whenever MS is involved. :angel:
Board: Multiple Sclerosis 01-12-2016, 02:26 PM
Replies: 7
Views: 1,155
Posted By MSJayhawk
Re: progression

curly101,

Doctors have been trying to regenerate myelin sheath material, but the mechanism to unlock the the genes responsible is still unknown.

The doctor who told you that progression...
Board: Multiple Sclerosis 01-12-2016, 12:30 PM
Replies: 7
Views: 1,155
Posted By MSJayhawk
Re: progression

curly101,

When you are experiencing a relapse or have what appears to be a permanent disability caused by MS, it can certainly feel like MS is non-stop. When you are progressive, it is certainly...
Board: Multiple Sclerosis 12-27-2015, 06:37 PM
Replies: 5
Views: 1,025
Posted By MSJayhawk
Re: Advice Please

starsing123,

:wave: Welcome.

MS Symptoms do not "come and go". MS Symptoms usually persist for 24+ hours. You shared that your bloodwork was all clear except for a severe vitamin d...
Board: Multiple Sclerosis 12-26-2015, 11:21 AM
Replies: 1
Views: 1,362
Posted By MSJayhawk
Re: MS or something else?

fallenphoenix,

:wave: Welcome.

Your "MS Hug" was not an MS Hug insomuch as you indicted that it lasted a short time and disappeared. MS symptoms are persistent and linger. I would not ignore...
Board: Multiple Sclerosis 12-21-2015, 12:07 PM
Replies: 11
Views: 1,299
Posted By MSJayhawk
Re: confusion/seizures

Debbie,

Your feelings are not uncommon and are inline with steroid use.

As to the emotional side, since 2002 when my MS worsened considerably, my emotional threshold was lowered and I can...
Board: Multiple Sclerosis 12-16-2015, 05:05 PM
Replies: 5
Views: 1,247
Posted By MSJayhawk
Re: Another new "trigger" for MS under study

firemom31,

No worries, I will always share what I can find. These become subjects with which I can discuss with my MS Specialist as she usually has more information and insights than what gets...
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