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Board: Lupus 03-05-2010, 04:00 AM
Replies: 3
Views: 4,658
Posted By Angel MJ
Re: Down with kidney infection and bronchitis pls advise+

uh, no! doesn't sound like you are over reacting!
6 weeks kidney infection - is your rheumy not worried about renal failure? i mean HULLO!

if you are on steroids PLEASE check with as many docs...
Board: Lupus 02-16-2010, 11:56 PM
Replies: 2
Views: 2,057
Posted By Angel MJ
Re: would like to know - can lupus make you blind

hey shelley welcome to the board!

things like uveitis and vasculitis are things that can permanently cause eye damage. from peripheral problems, color blindness, and vision loss! best not to mess...
Board: Lupus 02-07-2010, 12:36 AM
Replies: 6
Views: 4,295
Posted By Angel MJ
Re: vitiligo vs lupus rash

yes he did and he also had vitiligo (probably why he got lighter thru the years)

:angel: (what ever he had he was still a fine artist!)
Board: Lupus 02-06-2010, 12:04 PM
Replies: 6
Views: 4,295
Posted By Angel MJ
Re: vitiligo vs lupus rash

i have and this is why i think vitiligo ........ will ask dermie!
thanks :angel:
Board: Lupus 02-06-2010, 01:15 AM
Replies: 6
Views: 4,295
Posted By Angel MJ
Re: vitiligo vs lupus rash

hi, thanks for the reply!
mine is definitely agitated by the sun, i am olive complexion and now tan white - LOL i don't get it?

it bothers me cause i don't know what it is
cosmetically it...
Board: Lupus 02-05-2010, 08:20 AM
Replies: 6
Views: 4,295
Posted By Angel MJ
Question vitiligo vs lupus rash

hi all!
been a while but i thought need more diverse knowledge and experience or thoughts on this

i has white spots - depigmentation on arms and legs, chest, sun makes it worse (get more spots) ...
Board: Lupus 12-31-2009, 09:03 AM
Replies: 5
Views: 3,470
Posted By Angel MJ
Re: Doc upped the Low Dose Naltrexone

goldfym ......... how is the treatment going?
there is quite a stir with this new treatment ......... really hope it works for you!
Board: Lupus 10-11-2009, 01:53 AM
Replies: 6
Views: 3,050
Posted By Angel MJ
Re: Is lupus the end of the world

some days, in some ways and then sometimes not!
sounds cryptic - sorry! (sly is the wolf that we live with) .............. but yes and no and at different times.


personally, i've had normal,...
Board: Depression 10-10-2009, 02:25 PM
Replies: 6
Views: 12,848
Posted By Angel MJ
Re: NEED HELP! My cure was my poison.any antidepressants that have an opiate-like eff

hi calvindoyl .............
i have been down a path similar to yours.
i have an auto immune disease and during my years of abuse my immune system was weak and in turn my disease was less active, i...
Board: Lupus 09-24-2009, 12:54 AM
Replies: 15
Views: 9,290
Posted By Angel MJ
Re: Plaquenil and stomach issues...

goldfym ... i am soooo grateful for you sharing your experience!
i find it amazing how different foods can affect a person ... and like you said hold you hostage

i have been living with a whole...
Board: Lupus 09-18-2009, 11:11 PM
Replies: 15
Views: 9,290
Posted By Angel MJ
Re: Plaquenil and stomach issues...

LOL - keep us posted! glad that you are okay!

Goldfym ... there is another disease that is more alike to intolerance - CELIAC! if you suffer intolerance have you heard of this or ever looked into...
Board: Lupus 09-18-2009, 02:27 AM
Replies: 15
Views: 9,290
Posted By Angel MJ
Re: Plaquenil and stomach issues...

PLEASE never just stop taking any meds ... we the patients are not trained with the medications so we should ALWAYS seek medical supersvision ...

i have always sinus issues but now in my 30's i am...
Board: Lupus 08-18-2009, 12:52 PM
Replies: 11
Views: 18,551
Posted By Angel MJ
Re: Frequent Bronchitis with Lupus

hi all ...
this thread is exactly describing me since nov08 ... recuring sino bronchitis, allergic rhinitis, faryngitis(strep throat), oesophagitis (suspect GERD) reflux, gastritis, fatigue, SOB,...
Board: Lupus 08-18-2009, 12:23 PM
Replies: 5
Views: 18,149
Posted By Angel MJ
Re: Any difference with Brand Plaquenil or Generic

hi again rosie13!
personally i have had reactions to generics ... i had reaction to the brand ones too ... but we are all individual. i would put that exact question to your doc
Board: Lupus 08-18-2009, 11:36 AM
Replies: 7
Views: 3,670
Posted By Angel MJ
Re: Newly Diagnosed and Confused

hi drewsmom - welcome back! short answer is ... UNLIKELY that you would be dx on a single blood test ... and depending on the involvement neither would you need a battery of tests.

you need to...
Board: Lupus 08-17-2009, 11:41 AM
Replies: 14
Views: 4,389
Posted By Angel MJ
Re: not quite diagnosed

hi flowermum:wave: welcome to the cyber family!
sorry you are having such a tough time but believe me when i say you are not alone! (not anymore)
dr wallace The Lupus Book has a section on negative...
Board: Brain Tumors 08-14-2009, 11:30 PM
Replies: 12
Views: 14,608
Posted By Angel MJ
Re: A very long and crazy medical mystery journey.

you realise that we are in the lupus forum and that lupus is very different to that of bacterial infections and HIV ? *different rules* so to speak but the infections (excl. hiv) can be treated and...
Board: Brain Tumors 08-14-2009, 03:02 PM
Replies: 12
Views: 14,608
Posted By Angel MJ
Re: A very long and crazy medical mystery journey.

Hi Stephanie:wave: welcome to the message board! glad you have found us! just a post away!
***big Hug*** what a roller coaster ride we get to take!

what a fantastic read ... (words often escape...
Board: Brain Tumors 08-14-2009, 02:39 PM
Replies: 12
Views: 14,608
Posted By Angel MJ
Re: A very long and crazy medical mystery journey.

hi seekfind just wanted to note something ... when it comes to lupus the wolf ... it is often the body attacking itself - yes it could be a virus, bacteria but they go and the wolf continues to play....
Board: Lupus 08-14-2009, 02:10 PM
Replies: 16
Views: 6,160
Posted By Angel MJ
Re: I don't know what this is, Please Help

lupus people tend to be allergic to sulfur ... tends to bring on flares in some

... in protein foods-meats, fish, poultry, eggs, milk, and legumes are all good sources. Egg yolks are one of the...
Board: Lupus 08-14-2009, 12:43 AM
Replies: 16
Views: 6,160
Posted By Angel MJ
Re: I don't know what this is, Please Help

YIKES! :eek: i just googled *cod liver oil side effects*
(wouldn't eating sardines be a healthier, natural way to get fish oils?) ... i would discuss all supplements with your doctor!!! below is a...
Board: Lupus 08-13-2009, 01:50 PM
Replies: 16
Views: 6,160
Posted By Angel MJ
Re: I don't know what this is, Please Help

nice one veej - was so glad to read your response ... sorry VodoSiosk i missed the blood in the stool but it is reccomended that you seek medical attention!

***big HUGS*** everyone!
:angel:
Board: Lupus 08-13-2009, 04:37 AM
Replies: 16
Views: 6,160
Posted By Angel MJ
Re: I don't know what this is, Please Help

if you can take a photo of the area and take it with to the doctor - definitely as for referal to a rheumatologist!
write a list of questions that you have and if possible write down what the docs...
Board: Lupus 08-12-2009, 02:36 PM
Replies: 16
Views: 6,160
Posted By Angel MJ
Re: I don't know what this is, Please Help

the short answer is YES!!! 3-5% of lupus patients (i like the term lupies) continually test negative according to author of 'The Lupus Book' Dr Daniel Wallace (you can find his hardcover at most...
Board: Lupus 08-12-2009, 06:37 AM
Replies: 16
Views: 6,160
Posted By Angel MJ
Re: I don't know what this is, Please Help

hi VodoSiosk :wave: welcome to the message board! terrible circumstance but glad to have you with us! sorry you are having such a horrid time!

please remember that i am just a patient and it is my...
Board: Lupus 08-09-2009, 10:48 AM
Replies: 4
Views: 7,264
Posted By Angel MJ
Re: Plaquenil Side Effects of Anxiety and Depression?

hi all!
i'm not currently on anti-malarials and do have anxiety & depression. it goes back to before my dx.
:angel:
Board: Lupus 08-02-2009, 08:59 AM
Replies: 7
Views: 3,652
Posted By Angel MJ
INAP please read

INAP please could you forward your docs details.
:angel:
Board: Lupus 08-01-2009, 02:06 PM
Replies: 7
Views: 7,317
Posted By Angel MJ
Re: should I take Plaquenil now or wait?

weebee wobbles ***big hug***
you have got very sound advice in the prevoius replies so just a little support!
:angel:
let us know how it goes!
Board: Lupus 07-21-2009, 11:23 AM
Replies: 1
Views: 3,016
Posted By Angel MJ
Hi Thubbard :wave: welcome to the message board. ...

Hi Thubbard :wave: welcome to the message board.
sorry you are in this patch right now.
not sure how you are tentatively dx and then future labwork is *ignored*

i would make an appt. with your...
Board: Lupus 07-18-2009, 02:21 PM
Replies: 4
Views: 8,583
Posted By Angel MJ
Smile Re: Comments please: Foods That Trigger Lupus Flares

thanks for your response H! LOL
also had another insightful response i'd like to share ... here goes

quote
In "The Lupus Book" by Dr Daniel Wallace (referred to internationally as "the lupus...
Board: Lupus 07-16-2009, 10:12 AM
Replies: 4
Views: 8,583
Posted By Angel MJ
Comments please: Foods That Trigger Lupus Flares

Hi all ... i am always researching everything to do with lupus and here is something that was sent to me by someone claiming to be able to *cure lupus*. if you read this please give me your comments,...
Board: Lupus 07-14-2009, 02:50 PM
Replies: 5
Views: 5,099
Posted By Angel MJ
Re: New Here: ANA high, all other tests Negative. Questions. Please:-)

hi jess :wave:
my take on ANA is:
ana is used to dx a variety of auto immune disorders.
results do vary from test to test
i think that exposure to some viruses could result in high levels ......
Board: Hypochondria 07-13-2009, 09:13 AM
Replies: 10
Views: 5,478
Posted By Angel MJ
Re: Confused & Treated like a hypochondriac

hi pw1958 first off ***BIG HUG***
you are not a hypochondriac ... please don't feel like one! whatever it is, it sounds like something is going on. even with a dx i sometimes feel like a...
Board: Lupus 07-13-2009, 06:51 AM
Replies: 7
Views: 3,652
Posted By Angel MJ
Re: does lupus mutate?

hi inap - thanks!
i had made an appt. with him and got a dec date but had a REAL bad experience with his office staff on the day of making the appt. and could not face the thought of actually...
Board: Lupus 07-12-2009, 10:11 AM
Replies: 7
Views: 3,652
Posted By Angel MJ
Re: does lupus mutate?

okay - change of post!
so basically my body is telling me that mu lupus IS ACTIVE and the rheumy thinks it not.
i need to get to a new doc, have bloodwork done, get to a specialist that can co...
Board: Lupus 07-11-2009, 09:24 AM
Replies: 7
Views: 3,652
Posted By Angel MJ
Question does lupus mutate?

hi ... for lack of a better way to put it ... does lupus mutate?
dx in 2006 with SLE but have not have skin involvement ... till now.

my head itches, my hands itch, my feet itch, my legs itch...
Board: Lupus 07-09-2009, 12:31 PM
Replies: 1
Views: 2,399
Posted By Angel MJ
Re: ANA Neg Lupus? So stuck!

hi again! so sorry you are on this round-a-bout!
round and round we go with on-again-off-again dx! guess that is what drives us more nuts:dizzy:
have you looked at the stickies at the top of the...
Board: Lupus 07-08-2009, 06:50 AM
Replies: 1
Views: 1,328
Posted By Angel MJ
Smile welcome to the newbies

hi superflyer :wave: and all the other newbies to the board!
Board: Lupus 07-07-2009, 12:06 PM
Replies: 4
Views: 1,950
Posted By Angel MJ
Re: Symptons worsening a bit

Hey T ... sure sounds like 'my kind of normal'
sorry that you have so much going on right now!
another 'me too' on the 'hermit in your house'

i so fortunately have have continous nausea! yah...
Board: Lupus 07-02-2009, 02:53 AM
Replies: 3
Views: 6,901
Posted By Angel MJ
Re: my skin tingles after being in the sun, what could cause this?

hi stephani38 :wave: welcome to the message board! hope you can find the support & strength that i have found here! remember we are just patients and only offer our opinions - dx is best left for the...
Board: Lupus 06-30-2009, 08:07 AM
Replies: 15
Views: 6,800
Posted By Angel MJ
Re: Plaquenil (anti malarials) are they immuno suppresants?

also where the love for 'Gin & Tonic' comes from - tonic water has quinine in.
Board: Lupus 06-23-2009, 03:25 PM
Replies: 1
Views: 1,814
Posted By Angel MJ
Re: APS blood clot questions

1tiredmama ... YES absolutely tell your doctor.

my policy is to be 100% honest and open with the doctors and when/if i'm not comfortable discussing things this way then i've looked for a new...
Board: Lupus 06-23-2009, 02:53 AM
Replies: 15
Views: 6,800
Posted By Angel MJ
Question Plaquenil (anti malarials) are they immuno suppresants?

hi all ... just wanted to start a thread to debunk something i've seen on many lupus boards ... please understand that we are 'just' patients and get our information from doctors and not off random...
Board: Grief & Loss 06-23-2009, 01:34 AM
Replies: 32
Views: 15,757
Posted By Angel MJ
Re: Grieving Multiple Losses

everyone that is hurting right now ***GREATEST HUGS EVER***

grieving is such a personal thing that we often don't hear what people are saying and it doesn't matter what they say ... what does...
Board: Lupus 06-15-2009, 01:23 AM
Replies: 4
Views: 7,792
Posted By Angel MJ
Re: low neutrophils and white count

Cindy Lou ... sorry i cannot answer your question but do have a ***big hug*** for you!
Board: Lupus 06-11-2009, 03:37 AM
Replies: 8
Views: 3,884
Posted By Angel MJ
Re: will I ever feel beter ?

hi inap - you need a new rheumy fo sho! someone that you feel is there to help you learn & understand this auto immune disease and help you find ways to cope, PLEASE never let them make you feel you...
Board: Grief & Loss 06-11-2009, 03:12 AM
Replies: 32
Views: 15,757
Posted By Angel MJ
Re: Grieving Multiple Losses

angel - just try take it one day at a time! best thing to do!
i have lupus and take life minute by minute!
i find that sleep deprevation does make things much worse ... can your GP/Primary give you...
Board: Lupus 06-10-2009, 08:54 AM
Replies: 8
Views: 3,884
Posted By Angel MJ
Re: will I ever feel beter ?

hello inap ***BIG HUG***
welcome to the board - unfortunate circumstance has us meet but here we are!
yes the pain does subside - often not quick enuf but we all have our ups and downs and the...
Board: Grief & Loss 06-10-2009, 08:37 AM
Replies: 32
Views: 15,757
Posted By Angel MJ
Re: Grieving Multiple Losses

hi angel ***BIG HUGS***
grieving is not easy ... tears come so easily sometimes but you let them out!
my dad passed in 93 and i still get the lump in my throat around fathers day (we weren't that...
Board: Lupus 06-09-2009, 02:09 PM
Replies: 4
Views: 2,950
Posted By Angel MJ
Re: itchy skin

Hi butch445 :wave: welcome to the message board!
im *fortunate* not to have any rashes but i do get ITCHY

have you spoken to your dermie? itching is a side effect of plaq (ive read)

my hubby...
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