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Board: Down Syndrome 05-12-2015, 08:26 AM
Replies: 9
Views: 7,331
Posted By BriMom
Re: Child with Down Syndrome experiencing difficulties

Dear Clyde; Thank you for all that you have shared with me.
I am deeply saddened by the loss of your daughter Heather. Please accept my heartfelt condolences, she will not be forgotten. Only faith...
Board: Down Syndrome 05-03-2015, 04:27 PM
Replies: 9
Views: 7,331
Posted By BriMom
Re: Child with Down Syndrome experiencing difficulties

I would like to add something. We were taking our daughter to the Hospital at the University of Penn. we were told to take her over to the Children's Hospial of Philadelphia and talk to a...
Board: Down Syndrome 09-22-2014, 08:34 AM
Replies: 19
Views: 8,538
Posted By BriMom
Re: Down Syndrome and H.E. (Hashimoto's Encephalopathy)

Hello! Just reporting back that our daughter had several tests done at the Hospital at University of Pennsylvania and we are waiting on results. She also had treatment for auto-immune disease. Seems...
Board: Down Syndrome 08-27-2014, 10:15 AM
Replies: 9
Views: 7,331
Posted By BriMom
Re: Child with Down Syndrome experiencing difficulties

Hello Corinnes' Dad,
I also have a problem with my daughter who has Down syndrome. She has very similar symptoms like you are writing about. I too have an open thread "HASHIMOTO'S ENCEPHALITIS"...
Board: Down Syndrome 08-27-2014, 05:56 AM
Replies: 19
Views: 8,538
Posted By BriMom
Re: Down Syndrome and H.E. (Hashimoto's Encephalopathy)

Hi. There has been a lot of confusion going on. I'm really upset but trying to get these tests done so she can get therapy. So far nobody is doing nothing. The primary care doctor didn't understand...
Board: Down Syndrome 08-23-2014, 11:37 PM
Replies: 19
Views: 8,538
Posted By BriMom
Re: Down Syndrome and H.E. (Hashimoto's Encephalopathy)

Thank you. I will look for the book, it sounds interesting. I have nothing nee i can tell you. Unfortunately I am having extreme difficulty getting the CSF lumbar puncture appointment set up at the...
Board: Down Syndrome 08-05-2014, 08:30 AM
Replies: 19
Views: 8,538
Posted By BriMom
Re: Down Syndrome and H.E. (Hashimoto's Encephalopathy)

Thanks Clyde1 for your post last month. I wasn' able to get her to Kennedy Krieger becuase of age restrictions but I did get her an appointment at the University of Pennsyvania Neurology clinic and...
Board: Down Syndrome 07-16-2014, 06:26 AM
Replies: 19
Views: 8,538
Posted By BriMom
Re: Down Syndrome and H.E. (Hashimoto's Encephalopathy)

Hello
I have read a little about GABA and Trisomy 21, and about the testing of a new drug that is in trial and accepting applicants for the study. I also have noticed how a lot of tranquilizer meds...
Board: Down Syndrome 07-16-2014, 06:25 AM
Replies: 19
Views: 8,538
Posted By BriMom
Re: Down Syndrome and H.E. (Hashimoto's Encephalopathy)

Hello
I have read a little about GABA and Trisomy 21, and about the testing of a new drug that is in trial and accepting applicants for the study. I also have noticed how a lot of tranquilizer meds...
Board: Down Syndrome 07-14-2014, 05:24 PM
Replies: 19
Views: 8,538
Posted By BriMom
Re: Down Syndrome and H.E. (Hashimoto's Encephalopathy)

Hi
Yes I am going to have to try the Kennedy Krieger institute. I am not getting anywhere here in NJ. It's impossible to even get the tests done to even check these things out here. And in the...
Board: Down Syndrome 07-12-2014, 02:42 PM
Replies: 19
Views: 8,538
Posted By BriMom
Re: Down Syndrome and H.E. (Hashimoto's Encephalopathy)

Hi. Thank you for explaining this to me. It is very valuable information and so important to us. Can't thank you enough! My daughter never had any neurological testing done at all except for a cat...
Board: Down Syndrome 07-11-2014, 10:57 AM
Replies: 19
Views: 8,538
Posted By BriMom
Question Down Syndrome and H.E. (Hashimoto's Encephalopathy)

Hello,
I was amazed to read a post and I see it was from 2010 on down syndrome and H.E. (Hashimoto's Encephalopathy). My daughter began going through many different Neurological disorders about a...
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