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Board: Cancer: Prostate 05-11-2021, 12:14 PM
Replies: 18
Views: 2,630
Posted By IADT3since2000
Re: Just received my biopsy results - meet Urologist on Friday. What do I need to kno

Hi John,

Talk to your doctor again about this after the scan. The PET/CT scan is pretty expensive, and many insurers won't pay for it unless there is a prior negative standard CT and technetium...
Board: Cancer: Prostate 05-11-2021, 12:04 PM
Replies: 9
Views: 1,064
Posted By IADT3since2000
Re: PSA post RPP whipping around

Hi Jaysee,



Yes. It is absolutely possible!

That said, monitoring is important as the other possibility is that there may still be dormant cancer that could "wake up", even many years...
Board: Cancer: Prostate 05-10-2021, 07:39 PM
Replies: 9
Views: 1,064
Posted By IADT3since2000
Re: PSA post RPP whipping around

Hi Jaysee and welcome to the Board!

First of all, congratulations on 18 months with that undetectable PSA! That's a good sign, not conclusive, but an encouraging piece of evidence that you are...
Board: Cancer: Prostate 05-06-2021, 11:11 AM
Replies: 18
Views: 2,630
Posted By IADT3since2000
Re: Just received my biopsy results - meet Urologist on Friday. What do I need to kno

Hi again John.

Here are more questions for the urologist:

Is the pathologist who interpreted the biopsy specimens an expert specializing in prostate cancer pathology or a general pathologist,...
Board: Cancer: Prostate 05-06-2021, 05:39 AM
Replies: 18
Views: 2,630
Posted By IADT3since2000
Re: Just received my biopsy results - meet Urologist on Friday. What do I need to kno

Hi Mr. Johhnny and welcome!

The question you may ask below has some subtleties:



Years ago I thought this was a very good question. Then I gradually learned that doctors treating prostate...
Board: Cancer: Prostate 05-03-2021, 12:22 PM
Replies: 21
Views: 2,094
Posted By IADT3since2000
Re: positive lymph node removal during prostate removal

Some of this is academic now JD, past history rear-view-mirror stuff, but here are some answers to earlier questions.




A lot depends on what was known ahead of the surgery. Surgery was...
Board: Cancer: Prostate 05-02-2021, 08:44 AM
Replies: 21
Views: 2,094
Posted By IADT3since2000
Re: positive lymph node removal during prostate removal

Hi JD2823,

Yes, a faster timeline would be wise, if possible.

It's fine to keep the urologist as part of the team, but it would be wise to add now, as you are already thinking, either a medical...
Board: Cancer: Prostate 04-27-2021, 08:12 AM
Replies: 24
Views: 4,730
Posted By IADT3since2000
Re: Now off AS, studying to choose a treatment

Hi Prostatefree. I'm replying to your question/comment below:



I can't answer for all boards, indeed I can't answer for more than a few boards on which I have participated, sometimes briefly...
Board: Cancer: Prostate 04-11-2021, 11:17 AM
Replies: 4
Views: 1,053
Posted By IADT3since2000
Re: Who to consult with for long term monitoring?

Hi Hiker,

I replied a couple of days ago but fear it may have been on the wrong thread.

Basically, in your circumstances, it is probably a coin flip scenario. I generally prefer medical...
Board: Cancer: Prostate 04-05-2021, 12:13 PM
Replies: 23
Views: 2,935
Posted By IADT3since2000
Re: PIRADS 3 questions

Hi Lili,

It's good to make progress in learning what you are up against. Here are some thoughts:



That figure, .199, suggests but does not prove that there is something going on beyond...
Board: Cancer: Prostate 03-17-2021, 12:55 PM
Replies: 10
Views: 2,156
Posted By IADT3since2000
Re: RO Appointment

Hi Paula,

It's so good to hear that your team will work well together!

I can understand the doctor's pessimism about your husband's outliving his Gleason 9 disease, but my hunch is that he will...
Board: Cancer: Prostate 03-07-2021, 08:42 AM
Replies: 5
Views: 1,393
Posted By IADT3since2000
Re: PSA Anxiety

Hi Sw1218,

Following through with monitoring is the key thing you can do, and you and your medical team is doing that. Another important thing is to observe the facts, face them, and make sound...
Board: Cancer: Prostate 02-14-2021, 05:34 AM
Replies: 10
Views: 2,625
Posted By IADT3since2000
Re: Very Low Risk of Secondary Cancer After Radiation for Prostate Cancer - Low Enoug

Yes there is. I'm working on a fresh thread about that, but here's a preview. It's based on an excellent article by a fellow patient, technically well qualified, at...
Board: Cancer: Prostate 02-12-2021, 12:31 PM
Replies: 10
Views: 2,625
Posted By IADT3since2000
Lightbulb Very Low Risk of Secondary Cancer After Radiation for Prostate Cancer - Low Enough?

Many of us who are considering radiation as our main treatment are concerned about the long term possibility that the radiation might cause a cancer to grow in another place, especially in the rectum...
Board: Cancer: Prostate 02-07-2021, 12:55 PM
Replies: 1
Views: 814
Posted By IADT3since2000
Lightbulb Prognosis for Prostate Cancer Patients Diagnosed with Numerous Distant Metastases

For most prostate cancer patients, prognosis for the vast majority of those patients needing treatment – basically those with “intermediate-risk” or most “high-risk” cases - has improved greatly over...
Board: Cancer: Prostate 02-01-2021, 12:53 PM
Replies: 9
Views: 1,814
Posted By IADT3since2000
Re: FNG with PC

Hi Brian and welcome to the Board!

I suspect the vast majority of us think, shortly after diagnosis and scans, that surgery would be the best choice. I certainly did. (Thankfully, the surgeons...
Board: Cancer: Prostate 01-09-2021, 10:41 AM
Replies: 33
Views: 32,974
Posted By IADT3since2000
Re: Surgical removal vs. EBRT

Your choice strikes me as an excellent approach for your situation, considering your PSA, biopsy description and other data. You have a mild version of an intermediate risk case, as I understand it....
Board: Cancer: Prostate 01-07-2021, 12:23 PM
Replies: 6
Views: 2,965
Posted By IADT3since2000
Lightbulb Good News: Daily Oral Orgovyx Instead of Lupron, Etc.!

Here is some really good news: very recently (December 18) the FDA approved a fairly similar daily oral form of Lupron, Orgovyx® (relugolix), from Myovant Sciences. Here is a link to the FDA's...
Board: Cancer: Prostate 12-23-2020, 05:32 AM
Replies: 10
Views: 4,371
Posted By IADT3since2000
Re: Prostate cancer - newbie - trying to decide

Hi Dan and welcome to the Board! :)

When I was making my own decision in the 2011-2012 timeframe for a once life-threatening case, I looked closely at published medical research studies and...
Board: Cancer: Prostate 12-16-2020, 01:09 PM
Replies: 17
Views: 18,356
Posted By IADT3since2000
Re: Newly Diagnosed

Hi Mushin,

Replies have already covered key points except for one: the biopsy cores need to be interpreted by an expert pathologist, not a general pathologist who is busy with all kinds of...
Board: Cancer: Prostate 11-28-2020, 11:29 AM
Replies: 33
Views: 32,974
Posted By IADT3since2000
Re: Surgical removal vs. EBRT

Hi KPJU1 and welcome to the Board!

I have done very well with radiation plus ADT in 2013, now apparently cured of a once life-threatening case, and with a very low burden of side effects (minor...
Board: Cancer: Prostate 10-25-2020, 12:56 PM
Replies: 13
Views: 9,787
Posted By IADT3since2000
Re: 75 years old started treatment for prostate cancer

That makes sense to me, as I too tolerated Lupron well. I had side effects, but by the fourth month I was cruising along, used to the routine (and knowing that I had many more months ahead of me...
Board: Cancer: Prostate 10-25-2020, 12:50 PM
Replies: 3
Views: 4,932
Posted By IADT3since2000
Thumbs up Prostate Cancer Advocacy Groups - They Do Exist, But ..

Yesterday, on the thread “Screening for Prostate Cancer,” guitarhillbilly brought up the fact that we in the prostate cancer community have no advocacy group that gives us the gives us the prominence...
Board: Cancer: Prostate 10-24-2020, 01:04 PM
Replies: 22
Views: 10,025
Posted By IADT3since2000
Re: RO Call

Screening for Prostate Cancer

I just posted a new thread entitled "Screening for Prostate Cancer" on the Board. It captures some, but not all, of the helpful experiences and thoughts expressed...
Board: Cancer: Prostate 10-12-2020, 11:37 AM
Replies: 13
Views: 9,787
Posted By IADT3since2000
Re: 75 years old started treatment for prostate cancer

Hi BC1967 and welcome to the Board!

The Boston area has some of the top expertise in treating prostate cancer in the world, especially in radiation, with Dana Farber being a well-known center for...
Board: Cancer: Prostate 09-25-2020, 12:44 PM
Replies: 18
Views: 20,433
Posted By IADT3since2000
Re: MRI found a 6mm lesion pirads 3

Hi Robert and welcome to the Board!

I’m glad you have already had a number of thoughtful responses. I’m going to respond directly to your desire to wait and defer a biopsy.

Like others who...
Board: Cancer: Prostate 09-05-2020, 12:58 PM
Replies: 29
Views: 5,596
Posted By IADT3since2000
Re: Dr Walsh's Guide to Surviving PCa

Continuation of Sexual Activity While on ADT

Hi Guy,

I'm envious, but I've had a modest amount of success along these lines too. It's more "sex work" than "sex drive", isn't it?

Your...
Board: Cancer: Prostate 09-05-2020, 05:30 AM
Replies: 6
Views: 1,720
Posted By IADT3since2000
Re: Newly diagnosed with prostate cancer

Hi musicmanone and welcome to the Board!

If you haven't been paying much attention to prostate cancer before, which is par for the course, you may not be aware that it is highly survivable these...
Board: Cancer: Prostate 09-04-2020, 01:00 PM
Replies: 29
Views: 5,596
Posted By IADT3since2000
Re: Dr Walsh's Guide to Surviving PCa

The Range of Absence/Mildness/Severity of Side Effects of Androgen Deprivation Therapy (ADT)

Hi again JWPMP, Prostatefree and others. The following expresses a fairly common view regarding ADT:
...
Board: Cancer: Prostate 08-25-2020, 12:19 PM
Replies: 43
Views: 17,053
Posted By IADT3since2000
Re: New to This

guitarhillbilly,

Thanks for posting about your records screw up. I'm going to show this to my wife who has a great doctor with a lousy office staff. After seeing this, she won't feel like the...
Board: Cancer: Prostate 08-21-2020, 01:32 PM
Replies: 15
Views: 8,358
Posted By IADT3since2000
Re: Just got my 1st PSA 6 months post radiation and ADT.

Hi again noonereal,



OK, that puts it in a completely different light as MSK could arguably claim to be the leading institution doing prostate cancer radiation and related research in the...
Board: Cancer: Prostate 07-31-2020, 05:27 AM
Replies: 2
Views: 2,045
Posted By IADT3since2000
Re: Testosterone measurement

Very likely <12 ng/dl is the lower limit of the test.

That is a fine reduction of testosterone due to ADT treatment. Mine was generally in the high teens to 21 range as nadirs over four cycles...
Board: Cancer: Prostate 07-18-2020, 01:09 PM
Replies: 14
Views: 14,002
Posted By IADT3since2000
Talking The “2020 Prostate Cancer Patient Conference” – Soon to be Readily Accessible to All!

The “2020 Prostate Cancer Patient Conference”, the latest edition in the long-running annual series usually held in Los Angeles near LAX, is being held during September 11-12, 2020 with a couple of...
Board: Cancer: Prostate 06-30-2020, 05:06 AM
Replies: 15
Views: 8,358
Posted By IADT3since2000
Re: my PSA rise after doing radiation therapy one year ago.

Hi noonereal,

It is typical for PSA to rise, a bit, after cessation of ADT and consequent recovery of testosterone. The rise you are seeing could well be that.

There is also a common...
Board: Cancer: Prostate 05-08-2020, 07:02 AM
Replies: 15
Views: 5,243
Posted By IADT3since2000
Re: No side effects on lupron?

Hi Steve,

I am convinced that exercise, especially strength type but also aerobic (and let's not forget flexibility and balance) is of great importance when we are on ADT.

I was actually able...
Board: Cancer: Prostate 03-12-2020, 12:20 PM
Replies: 44
Views: 20,090
Posted By IADT3since2000
Re: Lack of Evidence That Surgery Is As Good As Radiation for Higher-Risk PC Patients

Becoming Empowered as a Prostate Cancer Survivor

Hi Michael,

I replied earlier along the same vein at 03-07-2020 04:42 PM to your earlier post, but it’s worth re-emphasizing some key points. ...
Board: Cancer: Prostate 03-11-2020, 05:23 AM
Replies: 4
Views: 1,861
Posted By IADT3since2000
Re: 2 year PSA

That's what you want to see. Keep it up!

Jim
Board: Cancer: Prostate 03-05-2020, 01:55 PM
Replies: 44
Views: 20,090
Posted By IADT3since2000
Re: Lack of Evidence That Surgery Is As Good As Radiation for Higher-Risk PC Patients

Thanks Gerard for sharing your experience, which so well illustrates the puzzling circumstances confronting those of us with higher-risk prostate cancer. And welcome to the Board! I have a few...
Board: Cancer: Prostate 02-18-2020, 08:59 AM
Replies: 41
Views: 18,272
Posted By IADT3since2000
Re: Are Club Membership Cards Mailed?

Is Immediate Treatment the Only Sound Way Forward for All Patients? No!!!!!

Hi Prostatefree (and Skipper3), I'm reply to your post of 7:49 am on February 18 (today). You wrote:



My title is...
Board: Cancer: Prostate 02-12-2020, 01:38 PM
Replies: 4
Views: 882
Posted By IADT3since2000
Re: Taking Xtandi (enzalutamide) following Zytiga's diminshing returns

Hi Steve, this is kind of a quibble, as both are used in some of the same treatment situations, which is essentially what I think you mean. But they are in different classes of drugs. ...
Board: Cancer: Prostate 02-05-2020, 09:40 AM
Replies: 67
Views: 6,772
Posted By IADT3since2000
Re: When Does the Day After A Night of Severe Rectal Incontinence Feel So Good?

Some Other Books on Nutrition and Lifestyle Tactics Against Prostate Cancer

Hi again John, you recently posted in part:



I have actually been intently interested in diet and lifestyle...
Board: Cancer: Prostate 02-05-2020, 09:15 AM
Replies: 3
Views: 666
Posted By IADT3since2000
Re: PSA down after SBRT bone lesion Dec.2019

Hi Steve. Congratulations on your great results! :cool:

I had a friend who successful worked through at least three recurrences where images detected one or two spots each time, finally achieving...
Board: Cancer: Prostate 02-03-2020, 05:58 PM
Replies: 41
Views: 18,272
Posted By IADT3since2000
Re: Are Club Membership Cards Mailed?

Replying to your recent post today:

"ADT," which stands for Androgen Deprivation Therapy, is also known as hormonal therapy. There are a number of drugs and drug combinations that are considered...
Board: Cancer: Prostate 01-27-2020, 02:06 PM
Replies: 24
Views: 4,198
Posted By IADT3since2000
Re: "You Have Cancer"

Hi Mike,

You made the same choice I did for my own challenging case: surgery. I wanted "it" out of there and gone from our lives, and so did my wife. Fortunately for me, with some discouraging...
Board: Cancer: Prostate 01-24-2020, 01:38 PM
Replies: 67
Views: 6,772
Posted By IADT3since2000
Re: When Does the Day After A Night of Severe Rectal Incontinence Feel So Good?

Here's a little more about the role colonoscopies are playing for me.

My first, in 2003 as I noted earlier, was partly motivated by being shocked by my first-ever PSA results and subsequent...
Board: Cancer: Prostate 01-20-2020, 08:16 AM
Replies: 33
Views: 12,642
Posted By IADT3since2000
Re: what to do now with Prostate Cancer?

Ultrasensitive PSA (uPSA) tests should also be used for those on ADT once their PSA has dropped to <0.01. Research has shown that a very low nadir (<0.05, possibly <0.01 even better) is a prognostic...
Board: Cancer: Prostate 01-04-2020, 09:26 AM
Replies: 11
Views: 883
Posted By IADT3since2000
Cool Re: Long-term outcomes of active surveillance at MSK

Adding the Toronto experience to this thread (and lower age eligibility)

Dr. Laurence Klotz, MD, arguably the world's leading AS guru (and a leader in so many other areas of prostate cancer...
Board: Cancer: Prostate 12-29-2019, 11:33 AM
Replies: 28
Views: 4,341
Posted By IADT3since2000
Re: Radical Prostatectomy OR Plant Based Diet?

Hi again,

I have looked at the study mentioned earlier about 87,875 high-risk PCa patients (https://scholarlycommons.henryford.com/urology_mtgabstracts/59/). It is in the form of an abstract...
Board: Cancer: Prostate 12-29-2019, 04:52 AM
Replies: 28
Views: 4,341
Posted By IADT3since2000
Re: Radical Prostatectomy OR Plant Based Diet?

Hi again stephenwilliam,

It may help to look at a study in depth, beyond the surface findings.

The critical problems with this study, “Individual and Population Comparisons of Surgery and...
Board: Cancer: Prostate 12-28-2019, 05:18 AM
Replies: 28
Views: 4,341
Posted By IADT3since2000
Re: Radical Prostatectomy OR Plant Based Diet?

Hi stephenwilliam,

I read this in another post and fully agree with it: "BTW, I have yet to read any study that shows that surgery can match the non-recurrence results being reported by the two...
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