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Lyme for 20 yrs.

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Old 03-28-2008, 09:21 AM   #1
Join Date: Mar 2008
Location: NY
Posts: 9
David1966 HB User
Lyme for 20 yrs.

Hi everyone,
So here's my story. At 20 yrs old, I had a raised, red bullseye rash
on my waist. It went away in about a week, so I thought nothing of it.
About 6 months later, i woke up one morning in a complete state of
fog. My neck was stiff, it seemed like the underlying skin of my head,
neck were numb with a dull headache. I was very fatigued, neck creaked
and crunched when I move it. As well as my neck being extremely stiff
and achey, especially in the back right underneath the skull. Sinus
pressure behind eyes and in face. Swollen, painful eyes at night.
Plugged right ear and hear a thud sound when I tap my neck. Painful,
week and numb legs and arms. I had nausea for about a week, but the
rest of the symptoms remained. Saw a few doctors, no one knew what it
was. Fast forward 10 years and finally I'm tested positive for lyme.
Get 2 weeks doxy, no help. 3 months intraveneous rocefin, still no
change. So now I'm 41, it's been over 20 years of me feeling horrible.
Last Lyme doctor I saw said the 3 months recefin was enough and that
my symptoms couldnt be chronic lyme. Also, the rash appeared back on
my waist in the same place about 4 years later. and again went away in
about a week.

Peace and be well. I know how horrible this all can be, believe me!

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