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    Old 08-24-2010, 03:54 PM   #1
    maddie012
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    My pain story

    Hey. (: I'm maddie, I'm almost 15. I have meiges syndrome, which is the fancy term for having both blecpharospasm and oromandibular dystonia. Basically: my eyes are always blinking, hard, and my tongue, lips, and jaw are always doing something awkward, even when I sleep. I have a very strong face. (; This can hurt a lot though, especially my eyes. It makes it especially painful to talk and eat, I'm going to get a g-tube soon. We've tried botox and oral balfocen, and nothing has worked. So I'm just on heavy painkillers... oh, the life.

     
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    Tags
    blecpharospasm, dystonia, early childhood dystonia, meiges syndrome, oromandibular dystonia



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