It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Leukemia Message Board

  • Anyone familiar with CLL?

  • Post New Thread   Closed Thread
    Thread Tools Search this Thread
    Old 12-03-2002, 08:24 AM   #1
    chitrick
    Senior Member
     
    chitrick's Avatar
     
    Join Date: Dec 2002
    Location: Milwaukee, WI
    Posts: 292
    chitrick HB User
    Question Anyone familiar with CLL?

    This is my first ever post. My wife (46) was diagnosed with CLL (Chronic Lymphocytic Leukemia) about 6 years ago. During a routine doctor's visit, her white count was slightly over the normal limit. Enough for the doctor's concern, she was re-checked three months later. The white count had elevated more. A bone marrow biopsy confirmed CLL, which is more common in males over age 50; but is none the less a slower moving form of leukemia. The downside is that there really is no cure for this type. My wife's white count is now up to 57,000 (6 times the limit). Red count is on the low limit. Lymph count is 14 times the limit. She gets checked every 60 days.

    Recently she has been experiencing severe joint pain and swelling. She is not overweight. In fact, she tries to exercise and walk routinely. With all of the research I've done on CLL, I have not found anything that relates these latest symptoms to the cancer. When she brings it up to her Hemotologist, he doesn't really respond. Is there anybody out there who has experience/knowledge of CLL? I'd be very interested and appreciative of any/all input.

    We've been told that chemo can sometimes slow the progression of the cancer. However, what the doctors look for before prescribing treatment, is a sudden and drastic increase of white cells. The current count is the result of a steady climb over the past six years, which does not justify treatment yet.


     
    Sponsors Lightbulb
       
    Old 12-06-2002, 08:20 AM   #2
    Dbledutchs
    Newbie
     
    Dbledutchs's Avatar
     
    Join Date: Dec 2002
    Location: Canandaigua, NY, USA
    Posts: 7
    Dbledutchs HB User
    Post

    I replied under my name thingy. I'm hoping we can help each other. Please read my reply!!!

    Thank you

    Marie

     
    Old 12-13-2002, 10:39 PM   #3
    Jaytor
    Senior Veteran
     
    Jaytor's Avatar
     
    Join Date: Dec 2001
    Posts: 802
    Jaytor HB User
    Post

    Have you tried the National Cancer Institute site?

    It's a central site with access to many resources, whether information on the disease, diagnosis, treatment/protocol [PDQ], prognosis, clinical trials and patient/family support resources, etc.
    [url="http://www.nci.nih.gov/"]http://www.nci.nih.gov/[/url]


     
    Old 02-25-2003, 05:35 AM   #4
    THANSEN
    Newbie
     
    THANSEN's Avatar
     
    Join Date: Jan 2003
    Location: WASHINGTON DC USA
    Posts: 2
    THANSEN HB User
    Post


    WHO SAID CLL IS INCURABLE?
    OF COURSE, IT IS. THE SOONER THE BETTER.

    JUST DO NOT GIVE CORTICOSTEROIDS AND CYTOTOXICS TO PATIENTS.

    CLL IS CAUSED BY VIRAL INFECTION. THE VIRUS BELONGS TO THE FAMILY OF DNA HERPESVIRUSES. CLL MUST BE TREATED AS A HERPESVIRUS INFECTION. YOU MUST NOT KNOCK OUT THE IMMUNITY OF SUCH PATIENTS.

    IN 15% OF CASES UNTREATRED WITH STEROID AND/OR CYTOTOXICS THERE IS SPONTANEOUS REGRESSION OF THIS SPECIFIC CANCER OF THE BONE MARROW. CLL IS NOT A CARCINIMA. IT IS A SARCOMA CAUSED BY A HERPESVIRUS.
    MOSTLY IT IS EPSTEIN-BARR VIRUS.

    GIVE YOUR WIFE LOTS OF SELENIUM+ZINC+COPPER+VERY LARGE DOSIS OF VITAMIN E+VITAMIN C.

    AVOID EXPOSURE TO DIRECT SUNSHINE.
    ABSOLUTELY NO ALCOHOL.
    ABSOLUTELY NO SMOKING.

    FOR THE ERADICATION OF THE VIRUS THERE IS A VIRUS-ERADICATING DRUG CALLED UN-WECA-B000FERDOVIR.
    IT IS NOT ON THE MARKET.
    IT MUST BE PRESCRIBED BY THE COMMISSIONER OF THE MEDICAL VOCATION (USA)TO SUFFERERS OF OUTSTANDING HUMANITY AT THE DISCRETION OF THE COMMISSIONER. YOUR WIFE DOES NOT HAVE A STATUTORY RIGHT TO IT.

    BUT BY APPLYING THE AFORE-MENTIONED WISDOMS SHE WILL GO A LONG WAY.

    P.S.
    INFECTION WITH HELIOBAKTER PYLORI MUST BE IMMEDIATELY ERADICATED IN YOUR WIFE-RIGHT NOW AND WITHOUT HESITATION.
    GOOD LUCK AND GOOD HEALTH.
    T. HANSEN


    Quote:
    Originally posted by chitrick:
    This is my first ever post. My wife (46) was diagnosed with CLL (Chronic Lymphocytic Leukemia) about 6 years ago. During a routine doctor's visit, her white count was slightly over the normal limit. Enough for the doctor's concern, she was re-checked three months later. The white count had elevated more. A bone marrow biopsy confirmed CLL, which is more common in males over age 50; but is none the less a slower moving form of leukemia. The downside is that there really is no cure for this type. My wife's white count is now up to 57,000 (6 times the limit). Red count is on the low limit. Lymph count is 14 times the limit. She gets checked every 60 days.

    Recently she has been experiencing severe joint pain and swelling. She is not overweight. In fact, she tries to exercise and walk routinely. With all of the research I've done on CLL, I have not found anything that relates these latest symptoms to the cancer. When she brings it up to her Hemotologist, he doesn't really respond. Is there anybody out there who has experience/knowledge of CLL? I'd be very interested and appreciative of any/all input.

    We've been told that chemo can sometimes slow the progression of the cancer. However, what the doctors look for before prescribing treatment, is a sudden and drastic increase of white cells. The current count is the result of a steady climb over the past six years, which does not justify treatment yet.

    __________________
    NONE

     
    Old 02-26-2003, 12:55 AM   #5
    amlgirl2
    Member
    (female)
     
    amlgirl2's Avatar
     
    Join Date: Feb 2003
    Location: Canada
    Posts: 55
    amlgirl2 HB User
    Post

    I had the acute myelogenous leukemia form and experienced joint pain two months after onset of symptoms. The oncologist explained to me it was the result of my bone marrow filling up with leukemia cells, which in turn caused bone/joint pain. Steroids help slow down the growth of the cells, reliving the pain. Chemo of course got rid of the pain.

     
    Closed Thread

    Related Topics
    Thread Thread Starter Board Replies Last Post
    Southern CA podiatric surgeon--anyone familiar? sonshine96 Foot & Ankle Problems 3 07-05-2006 12:57 PM
    Can anyone help: mid-back pain - sound familiar? sas1234 Back Problems 1 12-20-2005 10:03 PM
    Does any of this sound familiar to anyone? Strange situation... hklover29 Brain & Nervous System Disorders 5 08-11-2005 09:00 AM
    anyone familiar with PREDNISONE/I think it KILLED my mom Tiffrose Pain Management 2 03-09-2005 10:23 AM
    Does anyone have any info on long term use of predisone with RSDS?? goddessdana Pain Management 9 09-12-2004 07:54 AM
    Having problems...anyone have suggestions? Arleen TMJ Disorder -TemporoMandibular Joint 4 01-06-2004 10:36 AM




    Thread Tools Search this Thread
    Search this Thread:

    Advanced Search

    Posting Rules
    You may not post new threads
    You may not post replies
    You may not post attachments
    You may not edit your posts

    BB code is On
    Smilies are On
    [IMG] code is Off
    HTML code is Off
    Trackbacks are Off
    Pingbacks are Off
    Refbacks are Off




    Sign Up Today!

    Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

    I want my free account

    All times are GMT -7. The time now is 12:03 PM.





    © 2022 MH Sub I, LLC dba Internet Brands. All rights reserved.
    Do not copy or redistribute in any form!