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    Old 02-02-2005, 07:40 PM   #16
    xmillitary
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    Re: Frustrated by thoracic back pain

    This is my first time ever communicating via computer. I've sat here in great pain reading all these testimonials and started to cry. Bless all of you for your courage and tennacity. I've never been involved in any forum of this calibre, but I hope to gain insight as well as give. I've been living with the pain, numbness, spasms, sleep deprivation and frusteration of beeing told its in my head even though the mri's show the herniations. The md's always go for fibromyalgia, myofacial pain disorder, somatoform disorder or even ankleozinespondylitis. The mri's SHOW THE HERNIATIONS !!! yet the md's treat me as if I'm exaggurating. Look forward to communicati ng.

     
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    Old 02-02-2005, 07:55 PM   #17
    mel1977
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    Re: Frustrated by thoracic back pain

    well X, we welcome you and hope we are able to help, if nothing more than to lend you a virtual shoulder to lean on.

     
    Old 02-02-2005, 09:52 PM   #18
    lori j
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    Re: Frustrated by thoracic back pain

    [QUOTE=mel1977]My pain goes from my head to mid-chest line. I have cervical issues too-cervical spondylosis, loss of normal lordosis, c5-6 disc bulge and a pinched nerve. I sometimes wonder if I could have any thorasic problems, but from what I have read regarding any treatment from the Tspine up, I don't even want to know. I am going to try some neurontin and arthritis meds to help with all that. THey also say surgery for my condition is of little help, and I don't want it anyway. I just need the pain to go away so I can function upright![/QUOTE]

    Mel, I am living on pain meds & anti-inflams for mine, getting ultra sound & massages for the muscles right now. The muscles were so inflamed that they have to calm all that down, then I will be getting cervical decompression. Without the ultracet for pain, I can't tolerate it. My thoracic area gets sore if I sit up too long, the neck doesn't actually hurt, but gets stiff & it's hard to hold my head up, the referred pain from that is in my thoracic area, mostly between my shoulder blades, but does spread if I overdo it. I also have arthritis & degen discs.

     
    Old 02-02-2005, 10:30 PM   #19
    mel1977
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    Re: Frustrated by thoracic back pain

    yuk, well, aren't we a group? Anyone else agree that these two areas of the spine are the worst? I don't mean to infer that lumbar issues are easy to deal with, but it seems you can do more treatments there. I am limited it seems on my cervical spine treatments. My neck does hurt, it is so strange the skin its self is sore, right in the tendon area of the front (the part that kinda sticks out). I get that pain at the first rib on the left, the burning between the blades, KNOTS out the wazoo, shoulder aches, arm pain, headaches and this-if I make my scapula bone protrude out, the BONE feels like it hurts, how odd is that??? Sorry if some was redundant. What is this decompression thing? I wonder if I can do that? Doubt it. I don't have DDD there, just the bulge and I don't even know how significant it is anymore. UGH! My upper back gets so stiff too along with my neck-so uncomfortable and painful! I feel like I can't get a deep enough breath sometimes too. Infact, I had one dr tell me that doing deep breathing would help get rid of some of theknots in the backside of my ribs. But, I didn't have the neck issues then.....

     
    Old 02-02-2005, 10:37 PM   #20
    lori j
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    Re: Frustrated by thoracic back pain

    [QUOTE=mel1977]yuk, well, aren't we a group? Anyone else agree that these two areas of the spine are the worst? I don't mean to infer that lumbar issues are easy to deal with, but it seems you can do more treatments there. I am limited it seems on my cervical spine treatments. My neck does hurt, it is so strange the skin its self is sore, right in the tendon area of the front (the part that kinda sticks out). I get that pain at the first rib on the left, the burning between the blades, KNOTS out the wazoo, shoulder aches, arm pain, headaches and this-if I make my scapula bone protrude out, the BONE feels like it hurts, how odd is that??? Sorry if some was redundant. What is this decompression thing? I wonder if I can do that? Doubt it. I don't have DDD there, just the bulge and I don't even know how significant it is anymore. UGH! My upper back gets so stiff too along with my neck-so uncomfortable and painful! I feel like I can't get a deep enough breath sometimes too. Infact, I had one dr tell me that doing deep breathing would help get rid of some of theknots in the backside of my ribs. But, I didn't have the neck issues then.....[/QUOTE]


    I also have the knots, but the ultra sound & the massages & the anti-inflams helped it a lot. My shoulder blade bone hurts too at times, at times everything hurts!!! Mine goes down my arm too, but that is much better now that I've gotten the muscles in the back out of spasm & not so inflamed.

    The decompression is where they will test my neck for the areas that are impinged, then they put you more or less in a traction thing 3 times a week to force the ligaments to conform to where my neck is supposed to be. I have no curve in my spine in my neck, it's too straight & that is the problem too.

    They also do the decompression for other parts of the back, I will also be getting it for my lumbar eventually. Five years ago when I had lumbar problems the only place that did this around here was over 2 hours from me & I would have had to stay in a motel for 6 to 8 weeks to get treatment. This is a new pain clinic & it is only 20 mins from my house, which is great. Talked to a guy at the clinic who was having the cervical decompression & he said it has done miracles for him & his pain.

     
    Old 02-02-2005, 10:43 PM   #21
    lori j
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    Re: Frustrated by thoracic back pain

    [QUOTE=xmillitary]This is my first time ever communicating via computer. I've sat here in great pain reading all these testimonials and started to cry. Bless all of you for your courage and tennacity. I've never been involved in any forum of this calibre, but I hope to gain insight as well as give. I've been living with the pain, numbness, spasms, sleep deprivation and frusteration of beeing told its in my head even though the mri's show the herniations. The md's always go for fibromyalgia, myofacial pain disorder, somatoform disorder or even ankleozinespondylitis. The mri's SHOW THE HERNIATIONS !!! yet the md's treat me as if I'm exaggurating. Look forward to communicati ng.[/QUOTE]


    Welcom X, this is such a supportive group, it's hard to imagine not having people with similar problems to talk to.

    See if you can find a pain management clinic or doctor in your area. They can treat you, not only with meds, but they try to find a treatment to relieve your pain so you can get off meds. Since you have had an MRI & have proof, I surely wouldn't sit back in pain, you need to find someone who will treat you.

    I cannot imagine not getting treatment, the pain is horrible. I've had this since Oct. & there are days I thought I'd lose my mind. The pain not only works on you physically, but also mentally & emotionally. I am very limited as to what I can do & I'm a very active person. Being housebound is horrible & very hard for me. I drive myself to the clinic when I can, but also have had days I cannot & have to have my d-in-law drive me. I hate that, I'm so independant, I hate not being able to do for myself.

    Hope this forum helps you.

     
    Old 02-03-2005, 02:30 AM   #22
    humptydumpty
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    Re: Frustrated by thoracic back pain

    My pain started in my left arm and chest area then going aroung to my back. I had triple bypass heart surgery in 2000. The first thing the doctors think is that it's my heart. Well, three days in the hospital and a battery of cardiac tests later, it's not my heart. My GP sets me up for a thoracic MRI and bone scan the next day. Found the hernaited disc, DDD, and buldges. Refered to a neurosurgeon. He says I have problems in thoracic but belives pain may be coming from cervical area. MRI of the cervical shows a mess. A lot of DDD at different levels, several buldges and C6-7 hernaited with nerve root compression. I had a single level fusion with an EBI plate and 4 screws. I opted to use a bone from the bone bank instead of the seperate hip surgery.
    Well, the surgery was a success as it did relieve a lot of my pain. I went back to the neurosurgeon with the pain in between my shoulder blades. Doc said he has done thoracic surgery before but my cervical was one of his last because he is retireing. He told me that I should'nt have the thoracic surgery because the relief verus the recoop time is not very good. Also because of my previous heart surgery I am not a good canidate at all. Sometimes they may have to move the heart as well as lungs and other organs to get to the spine. Also the area the surgeon has to work in is very close quarters. A small slip or nick and you are paralyzed from the neck down.
    He sent me to the pain management doc I see now. I tried two ESIs with no relief. So now I'm stuck with the meds and try to not do the things I like to do.I found that I pay for it dearly for about the next 2 or 3 days after.
    Now my pain is mostly an area about the size of a scoccer ball between my shoulder blades that burns like hell. Just about anything I try to do that involves moving my arms around aggravates it. I still have pain in my neck but it's sort of dull and comes and goes as well as the stiffness. We haven't even really addressed the lumbar other that I have a small buldge at L5 S1 and that good ole DDD.
    Some of you talk about the spasms. Me too. The zanaflex seems to keep them under control. At first I was getting trigger point injections. Now I have lost my insurance and at 136 bucks a pop I hope that it continues to cover it.
    But, on the other hand it could be worse.
    Wishing you all a better day,
    Bruce

    Last edited by humptydumpty; 02-03-2005 at 02:48 AM.

     
    Old 02-03-2005, 06:50 AM   #23
    Monty44
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    Exclamation Re: Frustrated by thoracic back pain

    Hi all! I sympathies with all of you. The thoracic back is a tough area to treat.
    I had a fusion at T6-T7 in April of 04. Recent MRI's show a new herniation above the fusion and one below. I also have a new herniation at the C3-C4 level above my C4- C7 fusion ( Oct. 03). It appears that the whole fusion is moving and causing major pain and other problems. I'm scheduled for next Wednesday, the 9th, for posterior cervical fusion and a forenectomy.
    All the doctors agree, (two neuro and one ortho spine specialist) that the cervical area has to be addressed, and that some of the pain I'm experiencing is coming from the cervical. They don't want to go back into the thoracic area again unless absolutely necesary. To many things to move around in there, and since I have scar tissue from the first, the second would be that much harder. I hope they are right and next weeks surgery relieves some of the pain in my upper and middle back. As you can see, I understand your frustration and wish you all the best of luck. Monty

     
    Old 02-03-2005, 10:29 AM   #24
    lori j
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    Re: Frustrated by thoracic back pain

    Bruce, I can sympathize with you about not being able to do things. I did some lite things yesterday. Sat on the bed & cleaned out a few drawers, put some things away, a little lite dusting & I was so sore last nite that I was shaking.

    Anyone else get shaky from the pain? Does yours get that bad? I hate this, I hate not being able to do anything but walk around the house & watch the dust settle or sit in front of the darn TV!

    Reading is hard as I can't bend my head forward, it irritates my neck!!! So not much left for us to do, is there??????

     
    Old 02-03-2005, 10:47 AM   #25
    marbelmo
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    Re: Frustrated by thoracic back pain

    Yes!
    The reading thing is very frustrating. It's hard to get in position to make it possible. I thought I was the only one. I start reading and about 10 minutes later my shoulder blade area is burning and my shoulders are as tight as granite.

     
    Old 02-03-2005, 11:02 AM   #26
    Burns
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    Re: Frustrated by thoracic back pain

    Wow! I can't believe i've found other people that are as limited as to what they can do as I am! I hate that for ya'll but i'm glad to know there are people out there that can really understand what I feel like. Yes, I too have pain that gets bad enough that I end up shaking. I'm so tired of this...I'm so ready for someone to help me find out WHAT is making me hurt so bad. I'm the one that is still looking for a diagnosis. At first "chillin out" wasn't so bad - but now it's just BORING.

    Well, I hope you all find a way to have a HaPpY day today...no matter what, I do still TRY to keep a positive attitude

     
    Old 02-03-2005, 11:40 AM   #27
    lori j
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    Re: Frustrated by thoracic back pain

    Marlbelmo, it sure is hard to find things to occupy us, isn't it. I'm so frustrated. I get on the internet for a few minutes at a time, then get up & walk around. I can't do much til I get out of pain. Sitting here too long really stresses the muscles between my shoulder blades.

    Let me know if you find anything besides watching TV, I'm so sick of that!!!!!

     
    Old 02-03-2005, 11:46 AM   #28
    marbelmo
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    Re: Frustrated by thoracic back pain

    Well, Even when I watch TV I switch positions a lot. I am hoping this steroid nerve root block between c-6/c-7 does the trick. Anyone know what that procedure entails?

    Thanks,
    Marc

     
    Old 02-03-2005, 12:18 PM   #29
    lori j
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    Re: Frustrated by thoracic back pain

    Marc, not only have I got the thoracic pain, but also have low back problems that were better til this all started up. Now sitting is difficult too, so I also change positions a lot, laying, sitting, walking around. UGH!!!

    Have not had a nerve root block. I suppose they deaden the nerves to that area. If I'm correct, it doesn't last forever though. I know people here have had it, someone will know for sure.

     
    Old 02-03-2005, 12:44 PM   #30
    lori j
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    Re: Frustrated by thoracic back pain

    [QUOTE=Burns]Wow! I can't believe i've found other people that are as limited as to what they can do as I am! I hate that for ya'll but i'm glad to know there are people out there that can really understand what I feel like. Yes, I too have pain that gets bad enough that I end up shaking. I'm so tired of this...I'm so ready for someone to help me find out WHAT is making me hurt so bad. I'm the one that is still looking for a diagnosis. At first "chillin out" wasn't so bad - but now it's just BORING.

    Well, I hope you all find a way to have a HaPpY day today...no matter what, I do still TRY to keep a positive attitude [/QUOTE]

    Boring & frustrating are the words!!!! I walk around the house, look out the windows, go nuts trying to keep busy, but not much I can do. So, I go from the internet to the tv, to walking around. If it was summer, at least I could lounge outside in the sun!!!!! This sucks bigtime. I was laid up 5 years ago with a herniated disc, but once I got into PT it got quickly better. This time it's seems that I don't see much improvement from day to day, even after treatment!!!!!

    There are so many winter projects we had planned, painting 3 rooms, putting in new floors, but not much is getting done as hubby comes home & has to do all MY work!!

    Here in the computer room it is 3/4 done with new pergo flooring, half painted. Now it's at a standstill.

    Glad you found this place, it sure is good to know you're not alone. That would be horrible to not have the internet & think you were the only person going thru this...

    Thank God for the [email protected]!!!!

     
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