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    Old 02-18-2005, 08:45 AM   #46
    dndrux
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    Re: severe chronic urticaria

    Just to give you all a quick summary of my hives....They started in 96 after i miscarried my first and only child so far. i get them twice a month around ovuation and menstration. i have tried most every allergy med on the market and none work. i get frustrated because when i have asked DR's about this theory they almost laugh at me. they tell me it is not possible. i am now seeing a specialist 6 hours away and when i get hives they ask if i can come into the office. If anyone can tell me if they have had any luck with this problem PLEASE let me know cause i am about at my wits end! i can be e-mailed also. thanks!

     
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    Old 02-19-2005, 11:15 AM   #47
    genster
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    Re: severe chronic urticaria

    Hi dndrux and welcome to the party, although it isn't much fun. We are all pretty much in the same boat, no idea on the cause, strange looks from docs and co-workers, doped to the eyeballs and still itchy, or knocked out. I wish I could offer you something more concrete on how to cope, but I can't . My best suggestion is to keep doing reasearch on your own, and to try keeping a journal of outbreaks and anything that may relate to them.
    Hope you get a breakthrough soon.

     
    Old 02-19-2005, 12:11 PM   #48
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    Re: severe chronic urticaria

    I was wondering are there doctors that specialize in chronic hives or something? And maybe they are working on some time of cures or something to put this in remission? There's got to be some hope out there...

     
    Old 02-19-2005, 01:04 PM   #49
    genster
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    Re: severe chronic urticaria

    let's hope so... best I can recommend is to get sent to an allergist. I am awaiting an appointment even as we post; it may take months to get it, though.

     
    Old 02-20-2005, 02:06 PM   #50
    Ambush347
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    Re: severe chronic urticaria

    No I know I'm not allergic to anything. I have an appointment in about 2 weeks but there's no way they'll find anything...

    My theory is this. I was sick a few days before getting this crap. Somehow I believe that sickness destabalized something in my body, that something just went out of whack...seems to me like that means I gotta find a way to get it right again, but therein lies the problem...

     
    Old 02-21-2005, 04:40 AM   #51
    genster
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    Re: severe chronic urticaria

    You may be right, in that stress can trigger hives, and if your immune system was already out of whack... Most chronic hives are not the result of allergies, and the cause most often can't be determined, according to what I have read. Depressing, isn't it? Have you tried a cortisone cream on the hives themselves?

     
    Old 02-21-2005, 08:44 AM   #52
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    Re: severe chronic urticaria

    Oh God please someone help me. It started in September of las year. I don't have them in the morning like everyone else, i get them in durning the day, no matter where i am, and as the day goes on, they get worst.

    I get them everywhere besides my face. The worst is my fingers and my toes, and the hot burning on my palms. Where my bra strap is, my breast, my belly, my neck, even my butt! that looks good while i'm working

    Nobody gets it! Heat makes it worst, my husband is sick of me telling him not to touch me.

    We moved in October, and at first we thought it was the hard water, so we got a water softener, nope that didn't help.

    About 5 years ago, i got them real bad for about a month. It was like my whole body was one gaint hive. my wrist where so bad that i had to go to the ER and get a stroid shot because they where so swollen i couldn't move. then they went away till now.

    I've never been allergic to anything! my life has always been stressful, so i doubt it is that. I've been to the doctor, but my doctor just sucks, so i'm looking for a new one. No one seems to understand how horrible this is. My husband won't kill me or even chop my hands off. he is so selfish

     
    Old 02-21-2005, 02:58 PM   #53
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    Re: severe chronic urticaria

    Quote:
    Originally Posted by ldyminerva
    Oh God please someone help me. It started in September of las year. I don't have them in the morning like everyone else, i get them in durning the day, no matter where i am, and as the day goes on, they get worst.

    I get them everywhere besides my face. The worst is my fingers and my toes, and the hot burning on my palms. Where my bra strap is, my breast, my belly, my neck, even my butt! that looks good while i'm working

    Nobody gets it! Heat makes it worst, my husband is sick of me telling him not to touch me.

    We moved in October, and at first we thought it was the hard water, so we got a water softener, nope that didn't help.

    About 5 years ago, i got them real bad for about a month. It was like my whole body was one gaint hive. my wrist where so bad that i had to go to the ER and get a stroid shot because they where so swollen i couldn't move. then they went away till now.

    I've never been allergic to anything! my life has always been stressful, so i doubt it is that. I've been to the doctor, but my doctor just sucks, so i'm looking for a new one. No one seems to understand how horrible this is. My husband won't kill me or even chop my hands off. he is so selfish

    I can relate to that but i dont have any tips for ya. I am new to this site too hoping to find someone with the same type i have to or at least know someone understands is a great relief. Noone in my life understood what it is like to live with them until i met Shell(my best friend). I had one friend that understands until now.

    She had somethin similiar to yours, they put her on anti-anxiety meds and now she's better. But i suggest checking with an allergist. I remember they did the react to hot & cold on me but nothing happened.

     
    Old 02-21-2005, 03:06 PM   #54
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    Re: severe chronic urticaria

    Quote:
    Originally Posted by genster
    let's hope so... best I can recommend is to get sent to an allergist. I am awaiting an appointment even as we post; it may take months to get it, though.
    I have seen 3 allergists and none of them know anything more than the plain old Dr's. This last one i went to is a profesor at U of M. if that tells you anything about the quacks i have been to see. But i live in a very small community so i had to travel anywhere from 2-4 hours and the last one was 6 hours away. I hope you have better luck with your allergist than i have had!!!

     
    Old 02-21-2005, 07:21 PM   #55
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    Re: severe chronic urticaria

    It's weird but saturday I night I had the worst migraine ever. It lasted for like 6 hours and I thought I was gonna die...but strangely I haven't had any hive outbreaks since, I'm hoping wtvr was messed up in my body went back to normal...hmmm well proly just wishful thinking but we'll see what happens.

     
    Old 02-22-2005, 05:20 AM   #56
    genster
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    Re: severe chronic urticaria

    Quote:
    Originally Posted by ldyminerva
    No one seems to understand how horrible this is. My husband won't kill me or even chop my hands off. he is so selfish
    my doctor is the same way - i keep telling him, kill me or cure me, I don't care which.
    Get your doctor to put you on a course of prednisone (if you are not diabetic or otherwise shouldn't take it) if nothing else helps. It won't cure the hives forever, but it may give you a break.
    Also, get him to start you on ranitadine, which is an H2 blocker. It is a drug used for stomach ailments, but it may help.
    Use Reactine or Claritin EVERYDAY. They can be taken even when you are using Benedryl or that type of antihistamine.
    Make friends with your pharmacist. She may be able to suggest some OTC stuff to help, and she knows a great deal more about the drugs available thant he doctors do. Ask questions - pharmacists who know their stuff just love showing it off.
    Get tested for allergies - most chronic hives are not allergy induced, but it won't hurt, and you may be surprised. Even if the tests were done before, get them done again. Allergies can show up at any time.
    Get rid of as much dust-collecting stuff in your home as posssible. Put mattress covers on the bed, and pillow covers on the pillows. Vaccume like you have never vaccumed before.
    Use scent-free detergents, soaps, etc.
    Keep a journal. Track the outbreaks, severity, location, time of day, food you've eaten, what you drank, what soap/perfume/deoderant you use, everything. When you go to the allergist/doctor, this information may be helpful in letting them know what exposures you have had.
    Use Aveeno Oatmeal Bath or similar product, but use it in lukewarm water. Hives are aggravated by heat and touch. Both cause the release of more histamine, which will make you itchier. Avoid scratching if possible.
    Use antihistamines regularly. Do not skip, at least for awhile. Be prepared to be sleepy and stupid until your body gets used to the drug.

    Good luck.

    Last edited by genster; 02-22-2005 at 05:20 AM.

     
    Old 02-22-2005, 12:43 PM   #57
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    Re: severe chronic urticaria

    Quote:
    Originally Posted by hockeymama
    Kristi 1 -

    Four days later, I've identified benzoates and parabens (related to benzoates) as the culprit. My laundry is done. My hives are gone. So is the dermographism.
    How do you find all of the things with benzoate in them, and then how do you find benzoate-free replacements?

     
    Old 02-22-2005, 12:46 PM   #58
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    Re: severe chronic urticaria

    Quote:
    Originally Posted by genster
    Thanks Hairdoer & Kristi- I was beginning to wonder if I was the only one who had noticed this; I guess I should have asked on here earlier. I had a DR.'s appointment yesterday (with my new doc, not the one in my hometown - I moved last year & this guy is new to me). He seemed surprised that my other doc hadn't sent me to an allergist - he thought I had been to one. I am going to be sent to see one, but I shall be very surprised if it does any good. No harm in trying, though. Wish me luck
    I do not notice a particular difference around that time. I wish you luck at the allergist. I have been to a few, with new scripts to try each time, but nothing worked. At this point I have tried about every drug on the market.

     
    Old 02-22-2005, 02:13 PM   #59
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    Re: severe chronic urticaria

    Hi everyone I am soooo.... excited that I found these boards last night. I have been dealing with hives for about 9 months now and my allergist keeps informing me that there are lots of people that have what I have and he treats them everyday but I have never run into anyone online or in person. Finding these boards has given me new hope and I am so glad that I can now tell my husband that i am not the only defected person in this world!!!

    So here's my story...
    On the night of June 9, 2004 I was watching TV with my husband in the basement and I noticed what I thought were a couple bug bites on my arms. So off to bed I go and I woke up with a welt line on my stomach where my shorts were a little tight the day before. After that it started getting worse by the night. I was only breaking out at night. After 3 weeks I called my family doctor and was told that they have never heard of such a thing and to call back if I have trouble breathing. (HELLO~ It's happening at night and most Dr offices aren't open at night~DUH) So I give it 3 more weeks and finally I couldn't take it anymore so one night I drove myself to the ER. (Mental Note~NEVER go by yourself to the ER) I was one big hive from head to toe. They looked me over and I got the ol' "Did you change your laundry det, shampoo, deoderant, food, toilet paper (just kidding)." No, no, no, no, and no I didn't. So they decided that I needed a shot of epinephrine. So while the nurse is injecting me I am asking her what kind of side effects I would experience with this medicine. While she is explaining that my heart may start to race a little fast, I start to feel my heart jumping out of my chest and I flopped over on the bed and my arms went numb from my elbows all the way to my finger tips. So I was admitted to the hospital for having an adverse reaction to epinephrine. The Dr told me my fingers and lips turned blue and he would compare what happened to a heart attack!! At the age of 25??? So after I spend all day testing for my heart mind you not for hives which is the reason I came in I am told that the nurse in the ER administered the Epi into my IV accidentally instead of sub-q and it sent the epi straight to my heart itstead of slowly releasing into the blood stream. Her excuse for this was that we were talking. But I was asking her what the side effects were going to be?hmmm... anyway all is well with my ticker and they were nice enough to go through the trouble of having an allergist come to see my in my hospital bed where I stayed for 2 days. So over the next few months the allergist does his tests and tells me that I had some sort of bacteria in my body that had no cell walls. The bacteria is no longer in my body but this is the reaction my body is having from it. I was also told in the hospital that it is auto immune and something about just having a baby and hormones. They talk so far over my head that all I understood at my last appointment was that I may be the worst case my allergist has ever seen and I mightr fall in the 2% category where I have this for the rest of my life. I don't even know what it is that I have. I have been on most of the different medicines mentioned here but not much is working so for about 3 months I have been on Prednisone along with Zantac and Zyrtec. I can't stand being on Prednisone I have gained so much weight on it and I am so moody and depressed. I get hives from heat, pressure, and just no good reason at all. For a while I would break out not in hives but a red itchy rash from just spending too much time in my basement, sitting on my couch, watching TV. I have a neighbor who is a phamacist and he suggested that since the hives started about a week after I stopped nursing my baby that it may be a hormone imbalance so I started taking birth control again and the rash from the basement is now non-existant but the hives still are. I also have angioedema but only get it if i take asprin like advil. Sorry for being all over the place jumping from subject to subject but like I said I am so excited to have found you guys and am no longer the only actress in the Itchy and Scratchy show as my friends tend to refer to me as. I am sure I will have plenty of questions but I will save them for later. Sorry this post turned out to be so winded I really tried to keep it short. Talk to you soon.

     
    Old 02-22-2005, 02:15 PM   #60
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    Re: severe chronic urticaria

    If these hives are supposedly auto-immune do you think seeing a Rhuematologist would help? Sorry if I spelled that wrong.

     
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