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  • Pancreatitis/Severe Asthma/Mucus SXS trouble with HMO testing for CF, Help

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    Old 04-07-2005, 01:22 AM   #1
    twyla
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    Pancreatitis/Severe Asthma/Mucus SXS trouble with HMO testing for CF, Help

    My heart goes out to everyone with CF and family/relatives/cargivers of People with CF

    I don't have his father's/father's side of family history to go on, trying to track him down, left when he was an infant might make things easier too

    I am sorry to sound like I am complaining or whining I am just lost and frustated at our medical insurance, oh yeah they pay they bills too!

    My husband has excessive mucus, sometimes to the point that he spends 5-10 minutes in the morning trying to clear it out contanstly spitting out mucus all day long, every minute of the day, somtimes to the point he almost vomits, low spirometery 45-40,%declining raplidy, dignosed with asthma at an earlier age, that is his current diagnosis. frequent lung inefections, pneumnoia, colds, bronchitis, sinusitis, he was lucky and his mother to even make it to the next grade in school and her to keep her job because he was sick so much. now he coughs up blood occasionally, not a smoker, he in on Advair and uses a full albuterol canister 2 weeks sometimes once a week.... He is currently in the hospital for Pancreatitis again, he suffers from it off and on, the doctors have ruled out gallstones, he does not drink. He may have had Pancreatitis has a child but it may have been not has severe? My husband is in so much pain not to mention his asthma and mucus

    I have brought the connection of Pancreatitis, excessive mucus and possible misdiagnosed asthma this up to his primary care doctor he said "cystic fibrosis is only in infants" not in adults ok so I finally got my husband to an allergiest for his asthma, he was at least willing to listen and look at my husbands medical chart but I may not have the "full medical chart". Possible HMO not doing test for costs?? I work for this same HMO They are giving me the run around and every time I try to change his primary care doctor they keep changing it back to his old one, not to mention my supervisors are contstanly on me about my attendance and tardniness because they know I need the medical benefits, haven't told anyone at work only my bosses know, it's bad but a good company, yes I have FMLA in place,

    I have pulled up so many good sources and information that says their are mild forms or later diagnoses of CF in life, I need to know, we have a 2 1/2 daughter, to make the best for her life, if he does have CF, it is possible she may have it, although she has no symptoms yet just coughs, I need to make some great memories for her because I don't know how long he may have HE WILL BE 28 this year I am trying to stay positive and upbeat

    How much is a sweat test?
    Gene test?

    Do we go thru customer service and complain?
    keep switching doctors?
    ask for referral to pulmonlogist or genetic testing?
    HMO, Kaiser will cover this test I know they will,

    As anyone else ran into problems with medical staff/providers/doctors saying "CF is only for children and infants"

    PLEASE HELP...............someone, advice

     
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    Old 04-07-2005, 01:27 AM   #2
    twyla
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    Re: Pancreatitis/Severe Asthma/Mucus SXS trouble with HMO testing for CF, Help

    by the way he only has a half sister, different dads
    and also and a half brother(differerent moms) he has never me we cannot locate, we are trying
    so we do not have much family history to go on

    Twyla

     
    Old 04-07-2005, 10:05 AM   #3
    twyla
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    Re: Pancreatitis/Severe Asthma/Mucus SXS trouble with HMO testing for CF, Help

    SUCCESS,

    spoke to his allergist(asthma doctor) this morning he said he will order the genetic blood test, finally a doctor that will listen, and I got him to order one with polymorphism too this board was really helpful, the doctor was really suprised that hospital and primary doctor wouldn't do one

    Twyla

     
    Old 04-07-2005, 12:08 PM   #4
    Ratatosk
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    Re: Pancreatitis/Severe Asthma/Mucus SXS trouble with HMO testing for CF, Help

    As far as a family history and trying to find into about your husband's father's side -- most of the people I've talked to with CF or with a child with CF, don't have a family history. Another thing to consider is a good majority of male CFers are sterile.

    There are people who've been diagnosed as adults. Usually mild cases with chronic sinus problems, some who orginally were diagnosed with asthma... So it is possible.

    Congrats on getting the blood testing. Now maybe you can figure out what's going on.

    Last edited by Ratatosk; 04-07-2005 at 12:09 PM.

     
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