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  • Taking Prednisone for sudden hearing loss, ringing getting worse?

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    Old 03-16-2005, 02:36 PM   #16
    MMS1
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    Re: Taking Prednisone for sudden hearing loss, ringing getting worse?

    Hi giw9892,
    Thanks for the words of encouragement! This happened to me suddenly on a Thursday (six weeks ago). I went to an ENT guy on that Monday and after hearing tests were performed on Tuesday, I was immediately put on Prednisone that day. So, it was about five days after the onset that the prescription began. The MRI went pretty well. I took an extra Xanax before leaving the house and I was good enough to make it through with no problems. I'll have the results tomorrow (Thursday). Of course I'm hoping it comes back everything just fine, but then it brings the fear of when and if anyone will know what this is or if it will ever go away!!
    The thing that is most bothersome (although the muffled hearing and ringing drives me up a wall in Daily and nightly Anxiety and depression) is the doubled "scratchy, distorted" sound I get in my own voice and other people when they talk! It seems (even though I wear a foam ear plug when I do gigs in my band) that it's getting a little worse everytime I play out. And now we've finally become popular enough to where we're playing out every weekend between once and even three times, as we did last weekend and this coming weekend.
    I'm also no kid (I'm 53) but the music has always been a part of my life from when I was a kid and I always dreamed of someday being in a band that played out this frequently! Now that it's happened,, I get struck with this!!! Currently, my business has been down the tubes and the only income I derieve is from the band! Now I'm worried that the band is making the distortion or ear problem in general worse, and I'll have to leave! Now, the thing that I looked forward to, my only enjoyment and currently my only income,, brings stress,, anxiety and dread as the gigs approach in worry that this will only degenerate a problem which has in a relatively short time encompassed my life in depression, anxiety and panic!!
    Sorry to go on like this, but I feel such HOPELESSNESS, like you would'nt believe!
    I hope your condition improves as the day's go on and you acheive full recovery, you have my best wishes for a speedy recovery!

     
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    Old 03-17-2005, 09:30 AM   #17
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    Re: Taking Prednisone for sudden hearing loss, ringing getting worse?

    Hi MMS1

    Hang in there, I can really sympathise with you! Look I don't know if you've seen this board, because I think boards are like a rabbit warren but he's a link to where I posted a question and someone called 'unadventurous' gave his story

    http://www.healthboards.com/boards/showthread.php?p=1561967&posted=1#post15 61967

    Basically, acupuncture CURED his tinnitis, I'm going to give this a go...put in a question for him/her(?) asking how he found the right one!!

    Hope this helps

    Hang in there, I'm no spring chicken either I'm 42, but believe me it will get better and a positive mental attitude is v.important god knows this is easy to say but find those moments of hope and hold on to them... good luck

    GIW

     
    Old 03-17-2005, 12:40 PM   #18
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    Re: Taking Prednisone for sudden hearing loss, ringing getting worse?

    Thanks GIW, I'll see if I can check out that thread. It's really taken it's toll on me, and I'm currently waiting on the doctor to call with the MRI results. I can't give up trying only because I can't see this thing going on like this indefinately! However,, getting through a day and night is now a Living NIGHTMARE filled with depression, anxiety and fear! Thanks for getting back to me and GOOD LUCK!

    MMS1

     
    Old 03-18-2005, 09:06 AM   #19
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    Re: Taking Prednisone for sudden hearing loss, ringing getting worse?

    Well, the results of my MRI came back all clear, everything looks normal. That was great to hear, however now I'm just back to square one. Nobody knows what this is for sure, when and if it will get better! My ENT dr. still believes it was a viral infection that affected the auditory nerve and it may or "may not" get better in time. It's already been seven weeks and is still sensitive to noise, the ringing changes and varies day to day in severity and degree and I still have this ANNOYING, doubled, scratchy distortion in peoples voices (and my own) above anything over a low volume level! The hearing loss that had improved a little the first three weeks has'nt gotten any better since then and is still low and muted.
    The ENT set me up for another hearing test next week to see how much it's come up since the onset of this thing. I asked if there's any additional treatment to maybe bring it up more. He said the one other thing is Steroid injection which has it's risks! I know, since I've read enough about it on this board. Some get a little hearing back, some get no better results, there's pretty bad side effects from it and the chance it'll cause PERMANANT hearing loss! So, the anxiety, panic and depression continues. Any other suggestions?
    I REALLY DO appreciate everyones help here! My best goes out to all of you!!

     
    Old 03-18-2005, 10:32 AM   #20
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    Re: Taking Prednisone for sudden hearing loss, ringing getting worse?

    Hi MSS1

    Ask for a referal to a neuro-otologist who specialises in the workings of the inner ear! They may be able to find something that the ENT can't. That is also a feature of these boards.

    I also by chance came across a mobile deafness roadshow charity parked next to my house (fate?) anyway, two things on surface may not seem much, but a women was there who has suffered from tinnitus for 20 years the doctor prescribed the wrong malaria pills when she was going to Africa and then prescribed something with Quinne (?) in and bang she had lost most of her hearing (!!). Anyway she got some relief from the use of hearing aids which cut out the tinnitus! Also a masker which sounds white noise into her ear for 5 hours after which gives 5 hours of peace, she wasn't a great fan although it worked she didn't like the white noise and the tinnitus at once. Finally, on the sleep issue, she was told by an old women of 90 that the best way to get to sleep is to listen to the sound/s at night and tune in on them, it may take a week or so to get use to, but she thought it was a mad idea but tried it and found it did actually work (think of it as a lullaby she said). I guess if the brain is fighting this thing it makes you more stressed and I have found that stress is above all the killer in this affliction ...it sure makes the tinnitus worse.

    Anyway good luck I'm having my MRI next week and I'm pleased your MRI was clear...focus on the good news!

    Best

    GIW

    Last edited by giw9892; 03-18-2005 at 10:34 AM.

     
    Old 03-21-2005, 10:24 PM   #21
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    Re: Taking Prednisone for sudden hearing loss, ringing getting worse?

    Hi everyone,
    I hope everyone is feeling better as of this post! Just wanted to give a little update on my situation which had it's definate UPS and "DOWNS"! It's been over seven weeks since the onset of this problem and this last Sunday I had a revelation which turned out to be nothing but FRUSTRATION! Sunday afternoon when I came home from an early "gig" with my band, I was watching TV and felt that my hearing was a bit better for the first time since I noticed anything over three weeks ago! If I held my left (good) ear shut, I could hear the TV at a noticably higher level. The voices were still low and muffled, but I could make out words without looking at the TV set. I did'nt want to get all excited since as much as it was a noticable increase in hearing it still was a long way from NORMAL!
    Also, the distortion (tinny, doubling that I've been getting when people talk around me or from my own voice) seemed less severe. So, with a prayer and lots of hope for progessing recovery,, I went to sleep (at least tried,, have'nt slept for SEVEN WEEKS without help of Xanax)! When I woke up,, I noticed no difference in my progress from before Sunday!! What a Downer!! In fact, as Monday progressed, the distortion seemed back to it's regular annoying level and the increase in hearing I noticed on Sunday was no longer as it was! Move forward one step and back one and a half steps!!!
    Does anybody have any experience with their problem getting better then worse? Do you think this could still be a sign of possible recovery? I'm so fed up, frustrated and depressed (not to mention the constant Anxiety attacks) that I can't say. I only take a .5mg of Xanax to get me to sleep (have been for almost two months) along with a couple Valerian/Passionflower mix tablets. However, as most of you know, that only keeps you asleep for two or three hours at a time. During the day I'm a wreck, having anxiety attacks and fits of depression throughout the day and night! My doctor prescribed "Lexapro" but I've read tooooo many band threads here to want to get worse before I "POSSIBLY" get better from it!!!! Then, I'm stuck on more crappy meds that cause addiction, cause you to never get off them without a "touchy" weaning program and so many say they feel like ZOMBIES while on the stuff!!! It's bad enough that I'm on Xanax (although a relatively small dose). I fight the anxiety attacks but usually give in by taking a quarter tab twice a day to barely keep the edge off!
    He also prescribed Trazadone for sleep. I tried 10mg. tab for a couple nights in a row along with the .5mg Xanax (as he prescribed) and still was up in two to three hours, except groggy and with a headache. He said, I may have to take a higher dose!!!(?) All these doctors are so full of it,, it makes me SICK (LITERALLY)!!! They use us as guiniea pigs and we suffer for there "trial and error" programs,, mostly!! I just don't want to be in this drug regime as so many are, with the outlook that, "hey, it's better then it was without it"!!! I don't want to be living a SYNTHETICALLY induced LIFE!
    Meditation, hot baths, excercise,, those things work for people who are'nt in that BAD of a mental state,, I've tried a little and IT DOES'NT WORK,, at least not for me (I've got it bad)!!! Sorry to be such a DOWNER today,, but I REALLY,, REALLY,, REALLY am totally FED UP with it all!!

    Hope your ALL doing MUCH BETTER then me!! Best goes out to all of you!

     
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    Old 05-17-2005, 07:23 AM   #22
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    Re: Taking Prednisone for sudden hearing loss, ringing getting worse?

    Sorry to hear of your bad experience.....I was wondering how you are doing now. I know you wrote your story in February, and it is now May. I have experienced the same thing 2 weeks ago, woke up with sudden hearing loss right ear. I take my last Prednisone today, and go for my checkup tomorrow. I feel only a slight improvement so far. I do understand about the anxiousness you are having also. I have some Xanax on hand, and have had to take some, only because I feel a little out of sorts....with this all going on. Boy, like I got hit with a mad truck. Waking up losing your hearing is an awful feeling. I was just wondering how you are doing and if you have regained most of your hearing .

     
    Old 05-20-2005, 11:55 AM   #23
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    Re: Taking Prednisone for sudden hearing loss, ringing getting worse?

    Hi Juliep6,
    I've just left a new post entitled "IS THERE NO HOPE ANYWHERE!!!???" under this board "Hearing Disorders" which will give an update on my (unfortunately) not so good condition of this problem which plaqued me since this last February. It's REALLY taken it's toll on me both mentally and physically as you'll see when you read the post. I can only wish you MUCH BETTER LUCK then I've had with it!!! The hell I'm going through I would'nt wish on anyone!

    Best of wishes to you!!

    MMS1

    Last edited by MMS1; 05-20-2005 at 12:01 PM.

     
    Old 06-09-2005, 04:28 PM   #24
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    Re: Taking Prednisone for sudden hearing loss, ringing getting worse?

    About a month ago, I've experienced Sudden Hearing Loss. After seeing a 4th specialist who finally believed me that it wasn't allergies, put me on a 10 day regimine of Prednisone, and today is Day 4. Other than the severe hiccups, I haven't experienced any other side effect.

    My hearing also hasn't changed -- the doctor didn't think it would help since its been a whole month before anything was done, but we figured we would try anyway.

    I never had complete hearing loss, everything in my right ear sounded muffled from the first day I noticed it. I do have ringing, and the ringing constantly changes, high pitched to two pitches to wooshing etc. etc. Its never a stable.

    What makes it worse is that I've had high-frequency hearing loss in my other ear for a very long time -- so now that I have it in both -- all I hear is mumbling and often misunderstand what people are saying. And if I'm using the phone, everyone's voice comes through as if they were sucking on helium -- its of a higher pitch. Its very odd!

    I keep reading different things online about the Prednisone -- some experience returned hearing while taking it, while others experience some recovery months later, with sometimes taking a full year for even more recovery.

    I've also read that it might take up to three months to notice anything -- and that if no improvement is made by then, there the likelyhood of it improving is unlikely.

    Boy! There are just so many things floating around on the internet, who knows what to believe!

    My MRI is fine -- I'm getting an ECoG next Friday. They want me to finish the Prednisone first before taking the ECog -- I think its to test for Meneier's Disease (I know I spelled that wrong)!

    Has anyone tried hearing aids? Or is that not effective for SSNHL?

    Last edited by timmr; 06-09-2005 at 04:32 PM.

     
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