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  • Meningioma: Spinal cord tumor

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    Old 06-20-2005, 06:30 AM   #1
    SassyJ
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    Meningioma: Spinal cord tumor

    Good Morning,
    I am a new member today. I have been diagnosed with meningioma, a turmor on the outside of the spinal cord at the base of the head. It is pushing my spinal cord to the left. I've had a MRI (that showed the turmor), a PET scan that shows medium growth, and MRA to detail the arteries.Surgery is in two weeks.

    My question is has anyone else had something similar? If so, how long was your hospital stay? How long was your recovery? What problems did you encounter in recovery?

    I am very blessed to have a wonderful family and friends who will be with me through all this. I just want to "git-r-done!" to quote a favorite comedian, Larry the Cable Guy.

    Thank you!

     
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    Old 06-20-2005, 09:00 PM   #2
    shnswms
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    Re: Meningioma: Spinal cord tumor

    Meningiomas are generally noncancerous in nature. There are risks with every type of surgery. You may have some neurological problems following the surgery. It is really impossible to tell you how long your hospital stay or recovery will take because every one is different. I feel confident that you will make out just fine. Good luck to you. I will pray for your quick recovery.

     
    Old 06-21-2005, 09:45 PM   #3
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    Re: Meningioma: Spinal cord tumor

    Hi SassyJ,

    My mom had a Meningioma in the right parietal area of her brain. She had it removed and is doing fine. The hospital stay for her was 4 days and the surgery took 7 hours. The good thing about these tumors is that over 90% are benign. Hers was pretty big and she was scared to death. Her Neuro-surgeon was a specialist in removing the spinal cord Meningiomas. You will do fine and the hosp stay should be relatively short. Good luck with the surgery and think positive if at all possible. You will be in my prayers.

    DF

     
    Old 06-27-2005, 11:45 AM   #4
    nsmatch
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    Re: Meningioma: Spinal cord tumor

    Every meningioma is different, but they are a neurosurgeon's "best" friend, as almost every time surgery is curative. The surgery however, is always different, as meningiomas can arise from any where the meninges are located (which is the entire covering of the brain), and yours on the spinal cord will require some delicate surgery.

    Your hospital stay will depend on you, of course, but typically 7 days is average. Sometimes the wound can get infected, sometimes the cerebrospinal fluid can leak, sometimes they have to reopen the wound to get more of the tumor out. But it appears your doctors have done alll the necessary pre-operative workup...I hope you have a speedy recovery.

     
    Old 06-28-2005, 06:25 AM   #5
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    Re: Meningioma: Spinal cord tumor

    You are lucky in the fact that this is actually located on the outside of the cord,mine was on the inside.I also still have the ten percent inside that they could not get to.Are you talking about a cavernous hemangioma?they have many names such as the one you gave,and also angiomas,hemangiomas.Just a few.I had to have mine removed a couple of years ago as mine was bleeding off and on.Has your bled at all.It woul;d not actually say bleed on your MRI report, it would say something like hemosiderin staining or halo?Since mine was actually inside the cord i knew that I would have definite damage but my NS just couldn't tell me how bad or what exactly would be affected.But I did not have much choice in the surgery as if it bled again(most will bleed more than once if it bleeds at all)i would be most definitely paralyzed from the chest down.Soo, what do ya do?but like I said before, the fact that yours is not inside the cord or the brain or the pons(these are the three most likely places they form)makes for a good outcome for you, really.the best advice I could give you would be to do your research and really try and understand everything about what you are dealing with and the possible treatments availiable.this helps ALOT when discussing things with your NS.Also, start a list of questions that you want to know the answers to for your next appt with your NS.I kept a notebook and a pen out on the counter at all times as I would think of good questions at really strange times and if i did not write them down right away, I would forget them.But really, the best advice is really just to educate yourself about your condition completely from all angles.i would think that you would most likely have a really geat outcome with surgery.It all depends on just exactly what structures are being affected now and during the surgery.That varies with each case so there is no way to say just exactly what might possibly happen.just ask your doc straight out"is this in a favorable spot for surgery"? i was told no, but had to have it anyway.i ended up in the hospital ICU for the first four days(flat on my back) and then two full weeks there in the regular area,and then had to go to a rehab hospital to try and regain the use of my L leg and hand.My leg is doing great but my l hand suffered permanent injury.I keep telling myself though that I really was pretty lucky considering what could have happened.at least I can still walk.Unfortunetly I ended up with two very severe pain syndromes caused by all of my nerve damage and a damaged sympathetic nervous system.But this was actually inside damage not outside.Your chances of that would be very slim considering the actual location of your angioma.I also went to our local university hospital for my last and third opinion before i consented for surgery.i liked the fact that my NS was the head of the neurosurgery program there and had LOTS of experience with many types of spinal cord surgeries.A teaching hosp is also more up on all of the latest treatments and surgery techniques.i felt I was in the best hands possible and thats what you need to feel before consenting to have anyone open you up.Believe me, having that little bit of peace of mind when dealing with a surgery like I was looking at made all the difference in the world.i wish you lots of luck and if you have any other questions just holler.Marcia
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    3-22-01,herniated C-6-7
    11-20-01,placement of hardware for failed fusion
    9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

     
    Old 06-28-2005, 08:15 AM   #6
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    Re: Meningioma: Spinal cord tumor

    my aunt was just dx with this...went into the dr with symptoms such as numbness from face down to leg (not sure which side)...pain in back, etc...did some tests, came back with severe arthritis, problems with some discs and stenosis of the spine...also found a "lesion" on brain. when dr looked at it again..decided it was "meningioma"...seeing specialist this coming month and knows it will need to be removed as it will only grown and cause pressure on brain and potential seizures. at least...it is not cancerous but i guess they don't really know that until it's biopsied right? also..good to know it's not MS.

     
    Old 06-28-2005, 11:25 AM   #7
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    Re: Meningioma: Spinal cord tumor

    Unfortunately, no one really knows what this will be until the surgeon actually sees it, but if it looks like a meningioma on the scan, that's about as good as you can hope for. Like you say, they are not cancerous, and once removed, they're gone.

     
    Old 07-07-2005, 05:29 AM   #8
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    Re: Meningioma: Spinal cord tumor

    Thank you to everyone who replied and you're well wishes. I appreciate all your comments. My surgery is Monday. I have been getting ready mentally and finishing up some projects before my surgically imposed "vacation" time. I'll let you know how it goes.

     
    Old 07-09-2005, 05:51 AM   #9
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    Re: Meningioma: Spinal cord tumor

    Boxgirl, just wanted to mention to you that angiomas don't usually ,technically 'grow" like a sort of tumor would.They only will normally get just slightly bigger when they bleed,and even that usually is not a major problem in the brain(sounds strange I know)i had mine in my spinal cord,and that was a major problem as there just is not any room for expansion,but in the brain,it isn't quite as much of an issue,depending on exactly where it is actually located in there.they also don't usually recommend surgical removal unless there is a major complication.I did not have much choice in having my surgery as my angioma was already taking up about one third of the actual cord space and i had already had at least two previous bleeds.My NS told me that the next bleed,which he said was very highly likely and would probably occur within the next year wopuld most likely be the 'biggie" that would cause permanent paralysis from just under my breast area on down as there was just no more room.luckily,the brain HAS room so the minor bleeds(which almost all of them are as this is a low pressure lesion being supplied by veins, and not arteries)Don't normally pose a huge risk to the patient.Most NSs recommend to just monitor and treat if needed.So your aunt would not HAVE to have it removed unless there is some sort of definite risk or major neuro problems.Just wanted to let you know this.Marcia
    __________________
    3-22-01,herniated C-6-7
    11-20-01,placement of hardware for failed fusion
    9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

     
    Old 07-11-2005, 11:40 AM   #10
    boxgirl73
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    Re: Meningioma: Spinal cord tumor

    thanks feelbad for your info.......i wish taht was the case that she won't have to have it removed, but i'm assuming that since her speech is slurred and she still has some numbness, that it's probably going to have to come out since it's a sign that it's pushing on the brain. she's got her neuro appt this afternoon, so hopefully, we'll know more.

    thanks again...really is comforting being in here with all of you that know what you're talking about thru experience!

     
    Old 07-12-2005, 06:16 AM   #11
    feelbad
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    Re: Meningioma: Spinal cord tumor

    Just wondering how the appt went?Marcia

     
    Old 07-12-2005, 06:50 AM   #12
    boxgirl73
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    Re: Meningioma: Spinal cord tumor

    my aunt will be going thru some addt'l tests pertaining to her degenerative discs in the back of her neck. Dr's want to see if the slurred speech and complete numbness from head to toe on her one side is related to the neck and the nerves being damaged or if it is the meninginoma that's causing it. they will get the results back within the next two weeks (having the tests done this week) so i'll keep you posted. dr told her that she will have to have a titanium rod put in her neck without a doubt due to the discs almost being gone! hopefully it's the neck taht's causing her problems (as wierd as that sounds) and not her tumor. dr also told her that the menginginoma is a fast growing type of tumor so and can grow up to a grapefruit size very quickly.....they will look at her brain again in 6 months....i have to say that if it's going to grow anyway and more than likely IS causing her slurred speech and possibly her numbness on her one side of her body...why wouldn't they suggest removal NOW rather than wait for the inevitable?

     
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