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    Old 02-06-2005, 10:25 AM   #151
    katinka
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    Re: Stapedectormy

    Hi All,

    I am from Hungary and have been diagnosed with Otosclerosis been advised with stapedectomy.
    I know that this surgery has great success rates, however, I am scared with the 1 % when things can go wrong, or one can even lose his/her hearing completely.

    In Hungary, doctors still perform the surgery in the conventional way, i. e. they do not use the laser technique.

    As I want the best specialist for my surgery I am even contemplating to go abroad and have it done there.
    My fiancee lives in New Jersey and so I think that it might be a good idea to have the surgery in the States. But I do not have insurance and have no idea how much it would cost.

    So if anyboday have information, please, let me know.

    Thanks

    KAtinka

     
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    Old 04-06-2005, 09:39 PM   #152
    chassebr
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    Re: Stapedectormy

    I just had my CO2 Laser Stapedotomy today. My doctor has done hundreds of these operations and said he has never seen what I had. Apparently the sclerotic bone was growing between the legs of the stapes and footplate/oval window was much smaller than normal. He had to drill away allot of the "mutated" bone to make room for the prosthesis. He said he wished he could have taken pictures to show his colleagues! LOL. Post op symptoms so far include popping, cracking noises and heartbeat noises in the ear along with blood seepage not to mention I can hardly hear anything thru the "packing". Right after surgery I had metallic taste for about 30 minutes and sore throat. I took one Tylenol w/codeine for pain and amoxicillin as an antibiotic and celebrex for inflammation. I don't know how I'm going to sleep tonight with my head elevated.

     
    Old 04-11-2005, 06:29 AM   #153
    Richard.n
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    Re: Stapedectormy

    Chasserbr

    Thanks for sharing your experience with us. Please keep us informed of your progress.

     
    Old 04-11-2005, 03:07 PM   #154
    Tharma
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    Re: Stapedectormy

    Thanks Chassebr for sharing your information. Please keep us informed about the developments throhg this forum. And can I know the Doctor who has performed this surgery?



    Thank you.
    Tharma

     
    Old 04-14-2005, 11:49 AM   #155
    chassebr
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    Re: Stapedectormy

    Well itís been over a week now since my surgery. I only had trouble sleeping the first night because of the day of surgery symptoms. Otherwise, this past week all I have is fullness in the ear and a slight numbness on the left side of my tongue. I don't have an appointment with my doctor until next week to get the blood clots and packing cleaned out. I wish it were sooner. Its very disconcerting not being able to hear at all out of my ear. I hope thatís normal.
    Oh yeah, a different doctor prescribed me to take 1mg fluor-a-day, 1200mg calcium supplement, and 800 IU vitamin D supplement every day for a year. Has anyone heard of this?

     
    Old 04-14-2005, 11:51 AM   #156
    chassebr
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    Re: Stapedectormy

    Quote:
    Originally Posted by Tharma
    Thanks Chassebr for sharing your information. Please keep us informed about the developments throhg this forum. And can I know the Doctor who has performed this surgery?



    Thank you.
    Tharma
    Dr. Korver is his name. He's a good doctor and very popular in northwest Iowa.

     
    Old 04-15-2005, 11:45 AM   #157
    Lenin
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    Re: Stapedectormy

    chas,
    I had numbness and a weird salty taste to everthing on the left side of my tongue for 6 months...it's irritation of the nerve that passes through the hammer bone. It will pass...SLLLOOOOWWWWLLLY.

    My left ear was so deaf that I didn't even notice the 10 days it was packed...not hearing was normal for that poor ear. After the 10 days: VOILA!

    After your stapedectomy, if your hearing is restored , PLEASE stop taking the fluoride...it will do more harm than good.

    Reading Back....FISHMAN at NYU Medical...he's good (and sweet)

    Last edited by Lenin; 04-15-2005 at 11:49 AM.

     
    Old 04-20-2005, 08:37 PM   #158
    chassebr
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    Re: Stapedectormy

    Well, I had the packing removed yesterday! It's amazing! I can totally tell the difference already and the doctor said it might get even better in the next few months. There are so many new sounds it's unbelievable! For instance, I didn't realize my computer was so loud! LOL! However, my doctor is concerned about the long term outcome of this procedure because he doesn't know if the bone will grow back and affect the prosthesis. We are going to wait atleast a year before we do the other ear. I'll post a drawing of what my mutated middle ear looks like tommorow. Also, I have an appointment in a couple months to get an audiogram done.

     
    Old 08-19-2005, 03:31 PM   #159
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    Re: Stapedectormy

    Hi, All you stapedectomy vets,
    I'm one, too, and new to this forum. I've been happy to read that most folks had successful operations, but I'm in that approximately 1 percent of people whose hearing has decreased as a result of the operation. From a 30 to 50 decibel loss in the right ear pre-op, to a 40 to 60 decibel loss, along with complete loss at the highest frequencies. Fortunately, I have good hearing in the left ear, so I'm not in too bad shape.
    My operation was on April 25, 2005, in Sacramento, California, with Kevin McKennan, who has done more stapedectomies than any other surgeon in Northern California. According to everything I've read, only about 1% of people experience complete deafness as a result of the operation, while 1% or so have worse hearing, about 90% have improved hearing and the rest have no change.
    I just had a CT scan on Tuesday and it looks as if the prosthesis is probably positioned correctly and everything else looks pretty good in there. The doc's best guess is that I probably have fixation of the maleus bone that he did not detect during the operation. He's encouraging me to have revision surgery. But since he's said that this has a 5 to 10% chance of complete deafness, while only a 50 to 80% chance of success, I am pretty convinced that this is an option I will not even consider.
    So now my questions: has anyone out there experienced revision surgery? Also -- is anyone out there who has otosclerosis using hearing aids? If so, what are they like?
    Also -- some comments re sodium fluoride. I've been reading all the posts on this subject with great interest, because when I was first diagnosed with otosclerosis in 1979 (I was 27 and had just had a baby), I took it for a year, or maybe two. I did not notice any side effects, and I have often thought that it possibly slowed the progression of the disease, and maybe even kept my left ear free of it. (knock on wood!!) So although this treatment is out of favor in the US, I have yet to find any definitive study on it. So, as some of you have said, "it can't hurt and it might even help."
    --lieseg

     
    Old 08-22-2005, 12:43 AM   #160
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    Re: Stapedectormy

    Hi lieseg,

    Sorry to hear your op was unsuccessful - believe me I know exactly how that feels!
    I wear a digital aid in both ears now and my hearing is definitely getting worse - but very gradually. I'm 39 (today actually!) and in good health otherwise. I took sodium fluoride for about 16 months and it did seem to slow down the deafness and I found an improvement in the tinnitus.
    I stopped taking it about a year ago and in the past 6 months it has become noticeably worse. I've had my aids "turned up" a couple of times recently. Also the tinnitus has got much worse. For me, tinnitus is bad when I'm stressed, but I'm not really stressed about anything at the moment - well not very happy about being 39 today but not much I can do about that!

    I am due to see my consultant fairly soon to review things. He has said there is no further surgery available that could help me because the oto is "peppered" so badly around the cochlea and the whole inner ear cavity and there is nothing they can do about that. I think he will suggest another load of sodium fluroide to see what happens - which I am well up for. Apart from some tummy burning at the beginning I was relatively ok with it as long as I avoided alcohol - that REALLY burns!

    So are you considering the next op? Can they do one ear first to see how it goes? Will be interested to know how you get on with it.
    Caz

     
    Old 10-30-2005, 10:27 AM   #161
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    Re: Stapedectormy


    Dear friends,

    I am new to this board. I had a left ear stapedectomy done on Tuesday, October 25, 2005 and I am worried sick. I started having ringing in my operated ear on Friday, 3 days after the surgery. In addition, I have constant dry mouth and loss of taste. I also have dizziness and a foggy head, like I can't concentrate clearly. I've read all 33 pages of information on this board, and it has been very helpful.

    I had my right ear done 14 years ago with very great success in hearing, although I have had bouts of dizziness on and off the entire 14 years since. Since I had such good success in hearing with the first surgery, I decided to do the left ear. But the symptoms I have now are not like I had 14 years ago.

    Can anyone offer me some words of encouragemeng? Right now, I'm sort of regretting doing the surgery, although I had over 50% hearing loss in the left ear. I'm thinking a hearing aid might have been a better choice.

    Thanks to all, and my prayers are with all of you.

     
    Old 10-30-2005, 04:56 PM   #162
    dehesa
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    Re: Stapedectormy

    Dear Concor,

    Your symptoms seem quite common. Some get lucky and suffer no side-effects, others get some that resolve in the course of several weeks or months. It is too soon to start worrying. I assume that you do not experience vertigo? Please also scroll down to the Otosclerosis Poll thread where aditional experiences are recorded.

    My very best wishes

    Phaedrus

     
    Old 10-31-2005, 03:04 AM   #163
    caz 406
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    Re: Stapedectormy

    Hi Concor - I can't believe there are that many pages on this thread now!

    As you will have read, my surgery was not successful and I now wear aids in both ears. I still think it's the right option to go through with the surgery in case it does work and your hearing can be improved.

    Many people suffer little or no symptoms after surgery but there can be some side effcts as you have described - usually they go away within a short period of time. If in doubt contact your doc as soon as poss and get him/her to check you over.

    It seems like once they take the packing out you can usually tell if it has been a success.

    Good luck with it, fingers crossed....
    Caz

     
    Old 10-31-2005, 08:08 AM   #164
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    Re: Stapedectormy

    Dear Caz and Phaedrus

    Thank you for responding to my post. Tomorrow will be one week since I had the surgery. I don't see my doctor until Friday, to take out the packing.

    Your words were very encouraging and I appreciate having this forum to discuss with others what is going on.

    I guess I thought that since my last procedure (14 years ago) went so smoothly, I expected the same this time. But 14 years ago I was 29 years old; now I'm 43 years old.

    I'm praying for great results and total relief from the ringing in the ears. Because of this chat board, I know so many others are going through the same ordeal.

    I'm keeping you all in my thoughts and prayers.

     
    Old 11-01-2005, 09:59 AM   #165
    crannie
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    Re: Stapedectormy

    Hi.. I had the surgery in 1997 and it failed, he wanted to revisit it but i really wasnt interested in another week of feeling sick. I have a hearing aid and it works pretty well except they are real expensive and I need to have mine adjusted and have been puting off dealing with it. But when it works, it works well, just takes a bit to get used to at first.

     
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