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  • My First Week Off Statins-Big Improvement

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    Old 02-02-2006, 05:02 PM   #16
    Imacarbuff
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    Re: My First Week Off Statins-Big Improvement

    Thanks Hubble, I may just give it a try when all of my current muscle pain problems cease!
    Imacarbuff

    Last edited by mod-anon; 09-22-2006 at 10:06 PM.

     
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    Old 02-25-2006, 11:56 AM   #17
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    Re: My First Week Off Statins-Big Improvement

    Jane:

    Hi. I now have two stents with a cholestorol of 170 - after I refused to take any more statins about a month ago.

    I was only on statins for about three months - then gradually got muscle pains that I could not believe. I also suffered a lot from bone strength loss. My doctor took me off the Lovastatin immediately, but then wanted me on other statins. I refused.

    I was getting pains in my shin that felt as if the bone was being eaten away. Once I stopped with the statin, this decreased in nastiness and duration - but I have been off statins for about a month now - and my right leg feels as if I have just suffered a charley horse all the time. It hurts and I limp a lot.

    Can anone tell me how long this might last?

     
    Old 02-25-2006, 12:21 PM   #18
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    Re: My First Week Off Statins-Big Improvement

    Quote:
    Originally Posted by Billwyllie
    Jane:

    Hi. I now have two stents with a cholestorol of 170 - after I refused to take any more statins about a month ago.

    I was only on statins for about three months - then gradually got muscle pains that I could not believe. I also suffered a lot from bone strength loss. My doctor took me off the Lovastatin immediately, but then wanted me on other statins. I refused.

    I was getting pains in my shin that felt as if the bone was being eaten away. Once I stopped with the statin, this decreased in nastiness and duration - but I have been off statins for about a month now - and my right leg feels as if I have just suffered a charley horse all the time. It hurts and I limp a lot.

    Can anone tell me how long this might last?
    Statin study research indicates that the most someone can hope for is an 80% recovery after going off of the offending statin. If you had problems with one statin there is a 90-100% chance that you will have problems with another statin.

     
    Old 02-25-2006, 02:53 PM   #19
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    Re: My First Week Off Statins-Big Improvement

    Quote:
    Originally Posted by Billwyllie
    Jane:

    Hi. I now have two stents with a cholestorol of 170 - after I refused to take any more statins about a month ago.

    I was only on statins for about three months - then gradually got muscle pains that I could not believe. I also suffered a lot from bone strength loss. My doctor took me off the Lovastatin immediately, but then wanted me on other statins. I refused.

    I was getting pains in my shin that felt as if the bone was being eaten away. Once I stopped with the statin, this decreased in nastiness and duration - but I have been off statins for about a month now - and my right leg feels as if I have just suffered a charley horse all the time. It hurts and I limp a lot.

    Can anone tell me how long this might last?
    I have no idea. I can only go by my husband's experience and he did not have a charley horse type pain. It was at least 8 months before he was free of most of his pain. He is now exercising without pain on the treadmill and building muscle. I had noticed while he was on Lipitor that he could not seem to build muscle mass and his legs seemed to be getting smaller.

    Some people seem to recover really quickly and others say they have permanent damage. My husband was on fairly large doses of Co10 enzyme--500mg initially and now 200mg. I read somewhere that the Co10 enzymes in the capsule form take as long as a year to build up in the body while the gel type only takes a few weeks so can be used in lower dosages.

    Good Luck to you. Jane

     
    Old 04-17-2006, 08:38 PM   #20
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    Re: My First Week Off Statins-Big Improvement

    Hi All,
    I have posted my experiences with Lipitor in other posts,the horrible burning pain,digestive problems Etc. I even had to have my gallbladder removed and a catherization and have a stent put in after the exams. My doctor finally said,you know,I think the problem could be Lipitor,so he told me to stop taking it for a month,which I am doing. It seems that the pain is letting up,it still gets pretty bad sometimes,but not as bad or as often after almost a month. Well, my new problem is my blood work was just redone and my TC went from 180 to 294,and my LDL went from 103 to 187. Does anyone have the problem of their cholestral shot up after going off Lipitor? I talked to the doctor and he said I will go on Zetia,but since I have to get my prescriptioms through he mail,I have to wait for it to get here. Anyone with experiences with Zetia? Please, any answers will help! Thank you.

     
    Old 04-17-2006, 10:43 PM   #21
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    Re: My First Week Off Statins-Big Improvement

    You will most likely have problems from the zetia also. [removed].....You body will need to re-adjust after you stopped the cholesterol thearpy. As with the zetia in my mother, it did lower her cholesterol....however it caused a lipid disorder in her cells where by they were accumulating the cholesterol (this does NOT show up on cholesterol tests)...Its funny how the doctors were pleased with her numbers but never bothered to check on the disaster they were creating.

    Last edited by mod-anon; 09-22-2006 at 10:12 PM. Reason: do not post commercial websites. Please read and follow the posting rules.

     
    Old 04-18-2006, 04:49 PM   #22
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    Re: My First Week Off Statins-Big Improvement

    Finres, I agree with you. All the doctors seem to care about is the cholesterol numbers, not what the statins or the cholesterol-lowering drugs do to people. i am caring for my momand she has been on a merry-go-round with the doctors. They get angry with her if she stops her meds due to side effects but they won't help her find something that has little or no side effects.

    They even try the scare tactic, and this time it worked. Her cholesterol problem started with a bp med (hctz) and we proved it. Now she is on zocor, but doesnt have any side effects yet. This time she takes coq10, when on lipitor she didn't know to take anything. I read your other posts and I am determined not to let that happen to my mom. Wish you well and Godspeed to your mom.

     
    Old 04-18-2006, 10:44 PM   #23
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    Re: My First Week Off Statins-Big Improvement

    Thank you!! That is so nice of you. I don't know if I can help my mother...it might be too late, but I hope someone else can help theirs. Doctors irritate me. Not one of mothers doctors will talk to the other, including the ones at Mayo. All her doctors said she had this problem before she took the statins (balance, walking, stumbling, weak legs) therefore the statins could not have caused it. About a month ago their was an article published on how they have determined that Zetia works. It binds to the NPC1L1 protein (niemann pick protein). I started looking this up because I know what niemann pick causes (symptoms). I researched more on niemann pick and found that it is a defect in the NPC1 protein. WHat niemann pick does is allow cholesterol into cells , but does not let it out. Therefore people with niemann pick can have low cholesterol , including ldl, and hdl. It is always fatal. Low and behold I found that there are 12 compounds (medications) which mimic Niemann pick. In fact they use them to create niemann pick (psuedo) in cells. One of the medications was one that my mother took for 5 years. THIS was the reason that she had the problems before the statins. It was causing cholesterol to build up in her cells, which in turn causes heart damage expecially at the branches in the arteries, also in the mitochondria, and also in the cerebellum, which is highly sensitive to cholesterol. The cerebellum wants very stable levels of cholesterol. The medication was imipramine. It was given to her for urinary incontinence. Her urinary incontinence was caused by her doctor telling her to take too much calcium for her bones. Funny how after 10 years on high calcium, (2000 supplemental mg) per day, 2 days after we cut it back to 600 her problems completely disappeared. Anyway, the medication problably caused her heart problems. WHen they added zocor (and no Coq10) this added to it. Then they switched to Lipitor. Both of these were being increased by app. 3.9 times (serum concentration) because she was taking diltiazem for blood pressure (along with the statins). Of course all along they were depleting her magnesium. Her mitochondria were becoming more and more damaged. In january she had bypass surgery. I believe (with verifiable information) that they caused her heart problem. Now her doctor wants her to stay on the zetia, despite her slurring of words becoming worse all the time. (probably from continuing mitochondria damage) They said she has to talk the cholesterol medication or her arteries would clog right back up. Her doctor (heart) also asked her if she had made her wishes know when she was not longer able to speak, help take care of herself, or be able to move from her wheelchair (caused by her statin medications). Man!... But back to the zetia, i'm afraid that it is hiding cholesterol also (really causing it to build up) This will not show up on a cholesterol test. I did consult a specialist in CA, who is a specialtist in problems caused by cholesterol medications. He said he has seen 3 other cases like hers the were "cerebellar ataxia syndrome" caused by lipid lowering medications. We had another appt. with her neurologists first week in May...He will help us I believe..( I had to make a few phone calls to the chairman of the board) ..... I also am supposed to talk to some of the niemann pick experts in the country, to see it the zetia could be causing psuedo neimann pick. First one said its a possibility. What angers me is Zetia was approved by the FDA after only a 6 week trial, and the makers of Zetia not able to explain exactly how it worked.

     
    Old 04-19-2006, 12:58 PM   #24
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    Re: My First Week Off Statins-Big Improvement

    Finres, your post was most interesting to me. I am sooooo afraid this will happen to my mom. She is 53 (almost 54) and she is having a lot of problems with the different meds. She has diabetes, (heredity); thyoid problem (induced by beta blockers); high bp, (own her own due to stress); and high cholesterol (drug induced).

    Doctors dont really listen to the patient. My mom was put back on a statin, zocor, when lipitor elevated her liver enzymes. You sure did a lot of research. Some of the things you find out, I had never heard of. My mom mentioned calcium problem to her old gp and he got angry at her. He told her to take the calcuium supplements her prescrebied, although her numbers came back normal.

    I feel that patients should not have to research their own meds just to get decent treatment. Alas, that seems to be the case. Please keep posting bcuz although its too late for your mom, you are helping me care for my mom. She does so much for our family and it would be a GREAT lost if she is not around. Thank u.

     
    Old 05-04-2006, 01:28 PM   #25
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    Re: My First Week Off Statins-Big Improvement

    I am not sure if I am posting correctly but I will find out soon enough.I am new to the board and have spent some time going over many of the posts.I figure now is as good a time as any to jump in.I am 30 years old. About 4 yrs ago I was put on pravachol for high cholesterol.My mom has heart disease and high cholesterol so i figured I was doing the right thing.My cholesterol was 292 i think.I dint seem to have too many problems other than occasional heartburn and leg aches.About 11 months ago everything got worse.I started having massive heartburn/acid reflux,chest pain body aches.I have been treated for the acid reflux and just learned that my gallbladder ef is 29%.So it is atleast sluggish from what I understand.which brings me to now.I have a funny feeling in my back (tingling?)weak legs and shoulder pain.And my mind seems foggy(if that makes sense)I quit the statin a week ago and havent noticed any change...yet.I started taking fish oil and coenzymeQ10.I am just wondering if all this could be caused by the statin or if it could have atleast contributed to some of my problems .To say the least my nerves are shot .If anyone has had similar experience please let me know.I need any encouragement I can get.Thank You in advance for your time.

     
    Old 05-04-2006, 02:10 PM   #26
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    Re: My First Week Off Statins-Big Improvement

    I am sure smarter people will give you a better answer, but it sounds as if you definitely have a gallbladder problem. Gallstones or sludge in the gallbladder can cause the acid reflux and shoulder as well as back pain from all I have read. Didn't your doctor say anything about your low-functioning gallbladder? I would definitely stay off the statins for another few weeks to see if that helps, but I would ask for some answers in regard to your gallbladder problems.

    Jane

     
    Old 05-04-2006, 03:44 PM   #27
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    Re: My First Week Off Statins-Big Improvement

    My doctor did so they that it was low but that he didnt think that a surgeon would warrant it??So it seems that I have a few different things going on and I am looking for any way to help.I have read somewhere that statins can cause gallbladder type pain.....Its been a week ago yesterday since I stopped and just praying for any improvements.

     
    Old 05-04-2006, 04:18 PM   #28
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    Re: My First Week Off Statins-Big Improvement

    Well, I have been on Zitia for 2 weeks now,(off Lipitor for 6 weeks now) since I'm still having the problems from Lipitor so far I really can't see any changes unless Zitia can cause me to feel like I have a UTI and ulcer with bloating and weight gain. I'm so tired of the pain and now stomach and intestinal problems I'm really tempted to discontinue all of my meds regardless of the CAD. Does anyone else have these symptoms with their meds, I'm also on Plavix,Lopressor,Nexium,Xanax and of course aspirin. Thanks for any input,I really am getting very frustrated.

     
    Old 05-04-2006, 06:29 PM   #29
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    Re: My First Week Off Statins-Big Improvement

    This may NOT be for everyone but ....I did a body cleanse when I stopped Lipitor.

    Again, I realize it's not for everyone but the cleanse helped move the toxins of the Lipitor out of my system quicker then letting it run it's coarse. Almost immediately I began to feel the fatigue, brain fog, bloating and uncomfortableness disappear.

    Sadly, I now have permanent muscle damage in one leg from Lipitor.

     
    Old 09-22-2006, 01:28 AM   #30
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    Re: My First Week Off Statins-Big Improvement

    I had the same problems with Pravachol including feeling detached, leg aches shoulder aches, loss of concentration when speaking meaning a loss of words. I've been off about a month now and am feeling better. Still have aches in my side I am having checked out. Didn't realize all my problems were side effects to this medication until I researched on line after having problems with the generic.

     
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