It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Spinal Cord Disorders Message Board

  • Surprise, Surprise...Cord Compression!

  • Post New Thread   Closed Thread
    Thread Tools Search this Thread
    Old 02-13-2007, 07:27 PM   #16
    monarog
    Senior Member
    (female)
     
    monarog's Avatar
     
    Join Date: Sep 2006
    Location: Bellingham, WA USA
    Posts: 257
    monarog HB User
    Re: Surprise, Surprise...Cord Compression!

    Karen...

    I so relate about a horrific diagnosis, but relief that I actually have a diagnosis. I have been so sick for the past 10 months; it's still amazing to me that I am so screwed up and everybody just refers me to someone else with no answers.

    Saw my first of 2 NS today since last cervical MRI, says my neck looks somewhat better than my original rupture of 1.5 years ago and does not think it could be causing my multiple, horrible neuro symptoms. It was a difficult drive home as it was hard to see through my tears. I see another NS in 3 wks, but expect to get the same input. At this point I don't even know where to turn, some days are so hard, my ability to function is just so impared. Between twitching, numbness, weird gait, dizzy, burning/numb tongue, facial numbness, the hyper-nervous feeling - which is the worst part, neck/arm pain etc. etc. My biggest fear is this is my new life, with no help or answers. I'm feeling so defeated right now, it's really scary. My symptoms are very real, my sudden onset of high blood pressure, hyper reflexes, episodes of Raynaud's phenomenon are all really real, but no help. I'm at a loss for what do to. Thanks for letting me vent. Suzy Q...I know you're spending more time on the back board...but, if you check back...I'm in a similar boat....large rupture in neck, weird neuro symptoms, with no answers. I really don't know what other testing can even be done. I'm very discouraged.

     
    Sponsors Lightbulb
       
    Old 02-14-2007, 09:44 AM   #17
    SKZ
    Senior Veteran
    (female)
     
    SKZ's Avatar
     
    Join Date: Jul 2003
    Location: Colorado
    Posts: 877
    SKZ HB User
    Re: Surprise, Surprise...Cord Compression!

    Mona,
    After seeing a ton of varied specialists, I finally saw a GOOD physiatrist (physical medicine/ rehab Dr.), who was able to put the whole picture together for me. NO ONE else seemed to be able to. God knows I went to alot of them in the last 5 yrs. (orthos, neuros, chiros, pain Drs.......) I even went to several physiatrists until I found a good one. Thank God I finally found a good one. He really helped me alot. Just an idea.

     
    Old 02-14-2007, 07:56 PM   #18
    avglenn
    Senior Member
    (male)
     
    avglenn's Avatar
     
    Join Date: Nov 2004
    Posts: 148
    avglenn HB User
    Re: Surprise, Surprise...Cord Compression!

    Mona, do you mind me asking what RX's the Dr.'s have you on ? Do any help you at all ?
    My symptoms are very similar to yours. I get a look from the NS and others like Im an alien and they've never encountered such a thing. After I sustained a blow to the head I instantly had severe nausea and my entire spine felt sore. Anyways since, I've had numerous symptoms. The worst is my nervous system feels like a wreck. I always have pain , to varying degrees, in the middle of my shoulder blades across my shoulders into my neck. Because Im having back issue too, I dont know where some symptoms are coming from. I have sore tired feet almost all the time, leg aches real bad, which Lyrica & Vic does help that some. With my neck & arms I try and do very little, because if I over due it, like sweeping out my garage, my neck, arms, hands & upper back go into a spasticity thing. I dont know how else to describe it, but my arms are jerking where I cant hold a glass of water, my grip is uncontrollable and this goes on from one day to three days. An initial Mri showed 2 to 3 mm herm disc c5/c6, and a recent one says 4 mm with ventral indentation ? The NS looks at it & says I dont see anything really wrong here ? But after explaining these spasticity spells that I just feel like I need a straight jacket, he submitted for epideral injections. Its been 6 months and still waiting for WC approval. He did rx me some methylprednisone tablets for when my neck flares up, and it does help some. I have had prior ortho. dr.s tell me, " I dont know, I dont know what to tell you". So at least this NS has been helping me the best so far. Its a crazy thing for sure. Its like I want to turn off my nervous system , because it feels like its short circuiting all over the place.

     
    Old 02-15-2007, 09:30 AM   #19
    monarog
    Senior Member
    (female)
     
    monarog's Avatar
     
    Join Date: Sep 2006
    Location: Bellingham, WA USA
    Posts: 257
    monarog HB User
    Re: Surprise, Surprise...Cord Compression!

    SKZ....thanks for the input. I have seen one physiatrist that I like, though I'm not sure she knows what to do with me. She recommended a beta-blocker - Tizanidine. This does put a bandaid on things as far as settling my overwired nervous system down. Maybe I am wanting/expecting too much, but I still feel bad all the time - it just doesn't work as much as I would like it to I guess.
    Avglenn....the only RX I'm on is the beta-blocker (Tizanidine) and constant ibuprofen for pain...like I said above, it's really just a bandaid on settling things down. I took Zoloft for 2-3 months, didn't notice any change so I just stopped it (of course, this was related to the anxiety/stress line that most docs give when they don't know what's wrong with you). Yes, my nervous system also feels like it's just short circuiting too - everywhere. My system is just so keyed up, feels like it's racing, 24/7. No lie, it even wakes me up at night. I do have lots of constant neck and arm pain. But the rest is not really pain per se, it's just this constant buzzing that is very hard to tolerate, not to mention the twitching, numbness etc. I also don't like dealing with the periodic dizziness, feels like I just got off a rocky boat sometimes when I'm walking. Well...maybe that's improvement, 8-10 months ago it was more like vertigo, ugh! OK...so I'm lined up to see one more neurologist and one more NS...I don't expect to get anywhere because I haven't in the last 10 months. I will probably return to the physiatrist one more time after I see the others. I don't know...maybe I need a naturopath- the osteopath and accupuncture didn't do much for me, nor did the myofascial stuff. Like I said, I'm running out of ideas and start getting very fearful that this is just how things are to be. I can't really accept that so I guess I just keep trying. Thanks for ideas. Mona

    Last edited by monarog; 02-15-2007 at 09:36 AM.

     
    Old 02-27-2007, 04:27 AM   #20
    rob_zzz
    Senior Member
    (male)
     
    rob_zzz's Avatar
     
    Join Date: Nov 2004
    Location: Sydney, Australia
    Posts: 123
    rob_zzz HB User
    Re: Surprise, Surprise...Cord Compression!

    monarog,

    If its any reassurance that your situation is not unique - your story in the first post of this thread sounds exactly like my own situation - herniated disc due to injury - initially had pain in the hands which settled down, then seemed ok but started noticing intermittent neurological symptoms which are slowly getting more persistent and worse and have been for over 2 years.

    I haven't had serious gait problems though do notice my legs feel funny when walking, but I do get the tingling and numbness in the legs, the tuning fork feeling, the twitching and also hot/cold patches on parts of skin, and vibration feeling in hands, occasional weak feeling in legs and also 'pin' type pains in hands and feet and also a cramping/numb/tingling feeling in the toes etc. etc. (a whole bunch of things). They are not debilitating but the continued worsening worries me greatly. I've also got poor range of neck motion and get neck/shoulder pain as well. I'm not taking any medications.

    I've also had the neurological workup to rule out peripheral neuropathy, brain scans to rule out MS, rule out blood problems, MRI's of other parts of spine to rule out thoracic or lumbar spine causes for leg symptoms etc.

    I believe that you will find a mixture of opinions from surgeons on this issue - Some will insist that if there is even the tiniest amount of CSF visible surrounding the cord on the axial scans then the disc can't be causing the problem (even if the cord appears slightly out of shape at that level).

    Also depending on the state of your c-spine (narrow neck, other discs degenerated as well etc.) some may acknowledge the disc as a possible cause, but still not be keen to operate because of the difficulty in being sure of a successful outcome - my understanding is that its a far less predictable surgical outcome than surgery for radicular pain.

    Keep persisting and you will eventually find a spinal NS or OS that will be willing to listen to your symptoms and take them into account along with the scans.

    Also when you see the surgeons make sure you speak out about your symptoms as they're doing their neurological exam - point out things that are going on in the different parts of the body that they examine - even if they aren't happening at the time you are in the NS's consulting room make sure they know the things that are going on at other times.

    For my situation after speaking to few different surgeons I've had a mixture of opinions (and am considering my options but haven't had surgery for the situation as yet).

     
    Old 02-27-2007, 07:50 AM   #21
    monarog
    Senior Member
    (female)
     
    monarog's Avatar
     
    Join Date: Sep 2006
    Location: Bellingham, WA USA
    Posts: 257
    monarog HB User
    Re: Surprise, Surprise...Cord Compression!

    Hi Rob,

    I really appreciate your post and information. I'm sorry you too are dealing with similar-type neuro stuff. It's really frustrating, no two days, or hours are the same for me. If it's not weird feet, then it's dizzy or nervousness...but, it's always something!
    I do see my main NS next week. I've not seen him since my last MRI was taken which seems to show my protrusion as not improving - or possibly worse. I do like him and am interested in what his input will be - he is VERY conservative when it comes to surgery - one of many reasons why I like him. I don't want to rush to surgery, as you said, with an outcome that is far from guraranteed; however, I will admit on my really bad days - I'd do about anything if there was even a slim chance for improvement. I used to be very active, running trails with my running buddies, training for triatholons etc. and I really miss my previous life. This morning I plan on going to the pool for a swim, but it is not my passion as some of the biking/running activities were/are. I just often feel way too out of sorts to run - along with fear that somehow that disc will slam into my cord or other stuff that will just send me in a downward spiral where I am as sick as I was last Spring. I am still really messed up; but, when the neuro stuff hit last Spring - I was REALLY sick - so I've had (very, very) slow improvement.
    Your post meant alot to me as it makes me feel not so alone. Sometimes I wonder if I have some other strange problem going on. However, like you, I've been through all the testing and everything appears okay.
    I'll post back after I see my NS next week just to check in. Are any of your NS suggesting surgery for you? Do your symptoms change around, wax and wane? Thanks again Rob. Mona

     
    Old 02-27-2007, 02:24 PM   #22
    rob_zzz
    Senior Member
    (male)
     
    rob_zzz's Avatar
     
    Join Date: Nov 2004
    Location: Sydney, Australia
    Posts: 123
    rob_zzz HB User
    Re: Surprise, Surprise...Cord Compression!

    Hi Mona,

    Yes my symptoms change up and down. Sitting at a desk for long periods of time seems to aggravate them quite noticeably. Also heavy physical activity with a lot of lifting and moving of my head etc seems to aggravate them the next day. Stress also seems to aggravate them. A neurologist I spoke to said that temperature, stress have both been shown to affect nerve function. Also of course if your mind is occupied you may not notice them as much - but I still find that even when I'm occupied and my mind is elsewhere the symptoms will regularly push through and distract me. I find that talking/conversation where I'm nodding my head a lot (e.g. in meetings) seems to aggravate them as well.

    I've had mixed opinions from surgeons, some say not to do it others say they will, confusing to know what the right thing to do is but its a personal decision thats for sure.

    Rob

     
    Closed Thread

    Related Topics
    Thread Thread Starter Board Replies Last Post
    Symptoms of spinal cord obstruction gav_73 Spinal Cord Disorders 29 09-06-2011 11:23 AM
    ? regarding spinal cord compression and bowel/bladder issues HarleyLdy61 Cancer: Bladder 7 05-21-2009 08:53 PM
    cervical cord compression spinal stenosis bethpta Back Problems 2 05-18-2009 09:00 AM
    Surgery or not? Herniation at C5/C6, bulging C6/C7, spinal cord compression babafirehorse Hernia 8 08-17-2008 03:43 PM
    C5-C6 Cord Compression and Urinary Problems erica1976 Spinal Cord Disorders 8 09-07-2007 05:44 PM
    New to board! C5 C6 Cord Compression erica1976 Spinal Cord Disorders 20 03-22-2007 03:14 PM
    cord compression fusion77 Spinal Cord Disorders 7 02-10-2007 09:48 AM
    Is L'Hermitte's Sign as Indicator of Cord Compression? Suzy-Q Back Problems 5 12-17-2006 04:39 PM
    Spinal Cord Healing notpain Spinal Cord Disorders 9 03-15-2006 02:34 PM




    Thread Tools Search this Thread
    Search this Thread:

    Advanced Search

    Posting Rules
    You may not post new threads
    You may not post replies
    You may not post attachments
    You may not edit your posts

    BB code is On
    Smilies are On
    [IMG] code is Off
    HTML code is Off
    Trackbacks are Off
    Pingbacks are Off
    Refbacks are Off




    Sign Up Today!

    Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

    I want my free account

    All times are GMT -7. The time now is 11:27 PM.





    © 2021 MH Sub I, LLC dba Internet Brands. All rights reserved.
    Do not copy or redistribute in any form!