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    Old 05-06-2007, 09:59 AM   #1
    Bearygood
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    Tingling...

    Sorry in advance for the long post! I hope that this will be read and would GREATLY appreciate any insight anyone can offer.

    As some background, I was recently diagnosed as having Multiple Sclerosis based on 5 brain lesions, an eye condition closely associated with that disease and past history. To clarify the "history" part, the vast majority of things I relayed to the doctor have been experienced by almost every single person I know. There is clinical criteria for an MS diagnosis (which I meet) so I'm not disputing that. HOWEVER (and the reason that I'm posting here) is that in my gut, I think there is something else going on and am not convinced that the tingling problems I'm experiencing are in fact due to MS -- or at least not entirely.

    I had a bad injury about 4 years ago -- fell backwards and banged my lower left back HARD against a protruding piece of concrete. I could barely move and was very THANKFUL that I could! I knew I had done something really bad. I got myself to the doctor. They did an x-ray to confirm that nothing was broken but did NOT do an MRI. For the last 4 years my back has never felt the same. It's STILL tender to the touch in the area I hurt and my back is all out of wack. I feel so silly now to have dismissed this and at a prior point in time (with more financial freedom) I would have addressed it by going to the chiropractor. Any feelings about chiropractic treatments aside, the point is, I just thought it was my back being out of whack and rather than spend the money, I lived with the back pain, tenderness to the touch on the injured site and sometime tingling.

    So now, knowing that neuropathy is involved (the MS diagnosis and understanding more about the brain, nerves and signals to the body made me realize this), I wonder, under what circumstances (besides MS) could the following symptoms occur and how should I go about dealing with this? Believe it or not, I forgot to mention this to my neurologist -- he's an MS specialist so we only talked about that and I was pretty much in a state of shock when I saw him! He ordered additional MRIs but only for the upper part of the spine and another of the brain.

    Again, my injury was on the lower left part of my back -- and MOST of the symptoms are on my LEFT side of my body, aside for some tingling in my right hand and foot. Before I became aware that there was tingling on the right (granted, this MS diagnosis has made me ULTRA-aware!) the more prominent/passing "falling asleep" episodes were noticable on my left. My left arm went limp twice (thankfully only for a period of about a minute or two) and as cited in a thread below (which actually inspired me to finally post here), the front of my left thigh is reddish -- like the veins are more pronounced toward the surface. The hot/cold sensations I feel seem to pretty much be limited to that left leg -- when I get out of the shower the left thigh is noticably hot and the veins/reddness is more pronounced. Other times there is kind of like an "inner draft" -- a kind of cool shot.

    I WILL tell the neurologist but I wonder -- does this sound like there these things might in fact be due to some neurological damage I sustained when I injured myself (and ignored for several years)? If so, what type of nerve damage was possible -- is it correctable, and if so, how? Does it seem like I need more complete MRIs of my spine than just the upper (brain stem) one he ordered? I've also posted on the back problems board asking if this could be due to sciatica.

    Again, sorry for the long post -- thanks in advance for any insight!

    Last edited by Bearygood; 05-06-2007 at 11:11 AM.

     
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    Old 05-12-2007, 03:00 PM   #2
    SRSuper
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    Re: Tingling...

    hi Beary
    I'm being watched for MS because most of my symptoms are on the right side.
    it was just last week that my left side started to go. clean mris and such here.
    i have a friend who's chronic illness problems started after she bent her sacral spine- she developed fibromyalgia. i dont think there is enough research or anything to show exactly how permanently our bodies respond to injury or trauma.
    the tingling is a big MS thing, very popular among patients (check out the MS board here if u havent already....i live there too sometimes)
    make sure SURE SURE! you talk to your neuro about past injury. a c and t spine mri can be really helpful, but also maybe investigate with an xray to see if you have any other sorta thing going on?
    good luck! and let us know how ur doin!

     
    Old 05-12-2007, 03:48 PM   #3
    Bearygood
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    Re: Tingling...

    Hi, SR! Yes, I recognize you from the MS board. My quest to further investigate is because I'm just not so sure this is at least ALL MS related. I did have an xray when I first hurt my back but they didn't do an MRI. With the encouragement of some other folks around these parts, I did email my neurologist to ask him to consider this -- he's an MS specialist and I think he might be quick to dismiss this all too easily as being MS symptoms. Time will tell what the story is -- so far he hasn't gotten back to me but at the very least I'm sure we will discuss it when I go back to him in June.

    Thanks for your input.

     
    Old 05-13-2007, 10:04 AM   #4
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    Re: Tingling...

    Ms can be such a pain because it affects everyone differently, so yes, ur neuro might just toss it into the MS symptom category.
    if you can (thru insurance) see if you can get a second opinion- if its injury related or something else other than MS, maybe theres something you can do to treat it! imagine that.
    good luck!

     
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