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    Old 06-14-2007, 02:23 PM   #31
    squirrel2349
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    Re: Recurrent Corneal Erosion

    Evie, I've often thought the same thing, but couldn't PTK also be considered a type of "injury"?

     
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    Old 06-14-2007, 03:40 PM   #32
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    Re: Recurrent Corneal Erosion

    Quote:
    Originally Posted by squirrel2349 View Post
    Evie, I've often thought the same thing, but couldn't PTK also be considered a type of "injury"?
    I think I understand what you mean. The way the Dr. explained it to me is that they remove layers of the cornea and that when it heals it is more stable. I understood this deliberate removal is deep enough that the cells will more securely anchor to the (basement) layer. I'm assuming an injury in itself is going to produce an uneven healing if you will, and part of the damaged area will heal properly while other areas are subject to erosion. This would explain why some people have the debridement in one area but develop an erosion at another point.

    That's how I understand it. Please correct me where I'm wrong.

     
    Old 06-22-2007, 03:05 PM   #33
    lisa glm
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    Wink Re: Recurrent Corneal Erosion

    I've had my corneal erosions for over a year and a half. Very painful - blurry vision occurred almost every night. I had strommel puncture done twice - did not help. Finally June of 2006 I decided to get PRK. I needed glasses and I figured this would help my problem and fix my vision. Well I have to say - 1 year later I have not had 1 erosion. My vision is 20/30 and I feel great. My recovery time from the procedure was not that long and not painful at all. I've seen that some people were in a lot of pain, but I have to say I was not at all. I had on a bandage contact lens that was taken off after 5 days. I think that it was the best thing that I've ever done. I wasted a year trying all those other remedies that never worked for me and I was miserable. Hope this helps!

    Lisa

     
    Old 07-15-2007, 01:41 PM   #34
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    Re: Recurrent Corneal Erosion

    Quote:
    Originally Posted by lisa glm View Post
    I've had my corneal erosions for over a year and a half. Very painful - blurry vision occurred almost every night. I had strommel puncture done twice - did not help. Finally June of 2006 I decided to get PRK. I needed glasses and I figured this would help my problem and fix my vision. Well I have to say - 1 year later I have not had 1 erosion. My vision is 20/30 and I feel great. My recovery time from the procedure was not that long and not painful at all. I've seen that some people were in a lot of pain, but I have to say I was not at all. I had on a bandage contact lens that was taken off after 5 days. I think that it was the best thing that I've ever done. I wasted a year trying all those other remedies that never worked for me and I was miserable. Hope this helps!

    Lisa
    Lisa, thanks for the post. I'm seriously considering talking to my doctor about this as he mentioned it during the first visit of my injury. It's been a year and I have given up going without a contact at night because I just can't stop having erosions.

    Evie

     
    Old 07-16-2007, 03:43 PM   #35
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    Re: Recurrent Corneal Erosion

    Well, in two weeks im going to the Gold Coast in Australia for a week. It will be my first flight since erosion in Dec 05. And im hoping I dont get my eye drops taken off me as we board. Im still wearing BCL but im due for another optho app in the next month so maybe they will take it out (%$#!!) I believe strongly that it will cause a massive erosion episode and that I will then be reccomended for PTK. I hope thats not the case, but honestly when BCL is changed even that 5 minutes between contacts is a horrible feeling. It just feels like grit in my eye straight away. I know they can stil see the "scab"in my eye and im wondering wether I should just bite the bullet and get the PTK. Its anoying as we are TTC at the moment and I hate my eye taking priority.

     
    Old 07-27-2007, 11:18 PM   #36
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    Smile Re: Recurrent Corneal Erosion

    Hello All,

    I am new to this thread so this is very long to give background and ideas. Next time I post it will be way shorter, so I apologize for the this being soo long. I originally found the old RCE thread with approx over 112 pages, I almost cried when reading several pages, except my eye hurts so much from what I am going thru crying would only make it worse. I am so sad so many are suffering so much , but also so relieved I am not alone. I couldn't agree more with so many posts (off the old thread of fustration with the eye doctors (specialists,etc.) who give you so little advice and time and rush you thru. They definitely don't understand the sheer misery of this condition. I am trying many things. My backgroung is I have been suffering with recurrent corneal erosions ( RCE) for almost 2 years now. They use to be a severe one every few months, this past year it is every 1 to 2 weeks, sometimes a mild one followed by a more intense one the next night. Moderate to severe pain, blurry vision that can last for days, and not get back to what is normal for me some time longer, only to have another erosion before that. I had an old eye injury from an accident over 20 years ago , both corneas were scratched badly, for around 5 years after that I had recurrences, then all they did was patch up my eyes (with alot of ointment) for a few days. Finally they seemed to heal and I only had a couple of recurrences many years later. Now I am over 50 years + and this problem started with the dry eye syndrome, then a few erosions ( abrasions) once every few months to the constant ones I have now. I have tried every gel , ointment, drop, etc., but even with the best self care my left eye still seems to do it even while my eyes are closed. I have read the REM state when your eyes move while sleeping ( chasing rabbits effect) it can happen. You awake in pain with a eye running with tears. I find keeping my eye open seems to help alleviate the pain better, and then only closing again after pain has diminished. Of course putting in some sodium chloride drops can help somewhat. I have had such fustration trying to get to see a doctor when you need to because as you probably all know too well, they have to see you when the erosion is fresh or they can't see it. Trying to time this has become almost as much of a problem as the pain itself. Half the time it is a weekend, or the rest of the time the Doctor is all booked up, you have to beg, plead etc. to try to get in for urgent care. I have Kaiser (HMO) and I can tell you it is a real problem there. I love all their ads on TV "Thrive with Kaiser" , NOT. Instead of all the spending on the TV ads they need to get more eye doctors, it is like being in a factory or assembly line there. Anyway, I want to share with you all what I am doing what has worked for me and Not worked well. I liked genteal gel for sever dry eyes at night and the moderate one for day, but am recently re-thinking this as I have a hunch it might be contributing somewhat to this condition. I have switched during the day to riteaid over the counter eye drops because they have sodium chloride in the "inactive ingredients" and I have read that is a key ingredient one should use. They help, I found Muro 128 5% sodium chloride drops to be much too strong for my eyes, it really stings (only for a few seconds) but did not help me at all, and my lubricant eye drops from the drug store were so much better. At night I have switched back to using an ointment instead of the Genteal Gel. I find that the mineral oil in the ointments can be irritating and the one I found with the least percentage of mineral oil in it so far is Tears Natural P.M. by Alcon. It is harder to get in the eye though because it is softer, one trick is to have the ointment touch the eye which seems to help it adhere, before you complete the squeeze out from the tube. Using a small amount rather than too much has been better, too much seems to make the eye too sticky and can cause an erosion-for me anyway. I also have genteal PM ointment which is my 2nd best choice.
    LASER SUGERY; I had a CORNEA SPECIALIST DO a laser proceedure in office where he lasered the spots where he saw erosions. He did several places, sent me home with antibiotic drops and ointments, No Pain Killer!!!
    When the anesthesia wore off the pain was excrutiating, after several hours, my lid was swollen, my eye was constantly running, couldn't put any ointment in because it just would run out, my nose on the left side totally was running as well till it was red and sore from constant blowing in tissues, and the top of my head was so painful, I was a mess. I couldn't eat , sleep, or do anything but lie on my back in such pain I actually though about killing myself ( I would never do it, but the pain was 24/7 and worse than the worse erosion I ever had, even the time when my husband took me to the emergency room at the hospital for a severe erosion (that was a big mistake and another story for another time). Anyway the doctor who did my laser surgery was gone, he did not give me pain pills, no soft contact bandage, I left desperate messages on his phone. He called ,me three days later, was sincerely and totally sorry for what I went thru, he had left for a trip out of town, and had just got back. He apologized for not giving me any pain management, and said "he though I would be all right." He only spent a few minutes with me before he suggested the laser surgery (this was my first visit with him), so I do not know how he came to that conclusion. He said this would Never happen again, he would take care of pain in the future. I actually felt sorry for him, he was obviously very dismayed and ashamed of what happened. I finally healed from the laser proceedure, pain lasted for several days but not as Severe as first 2. I was erosion free for 3 weeks, then I had another one , and another , etc. I went back to him and he did a Stromal puncture for a mild erosion in a totally different area, he said he didn't do that area with the laser. Well I never had an erosion in that area before either, I wondered if the Laser brought that on. Anyway in that "other area" the puncture seemed to work as it never reoccured there, he also gave me alot of pain management including soft contact lens bandage which got me thru the first day. But where he originally did the laser, my eye never felt completely healed where he did do the laser. Before that in between episodes my eye felt healed like the other eye, after laser surgery if always felt like it was going to tear or a pulling pain, even when the erosion of the week was healed. When i mentioned this the doctor had no response.
    I have seen another eye doctor , he did stromal puncture on the recurring area, he could see the laser scars. The pain was bad but not anything like the laser surgery. Vision is still blurry but improving, I will let you know if this works. The other doctor who did the Laser on me wants to do a PRK on me, but after the nurse told me I will get a 14 page waiver to sign from the hospital I got nervous and did not do it . Why 14 pages, what the heck are the complications? also dry eyes are a complication with both PTK and PRK, and most of us RCE sufferers have this condition. Also, am terrified of going thru that worst pain of my life Again! And I know about pain having been in a couple of bad auto accidents, but this eye thing was by far the worse, worse than broken ribs, worse than a broken nose, and I could go on but do not want to get too gory. I have read so much on this as I am sure all of you must have on the Medical Sites here in the US as well as England and India and even Croatia,( this is a worldwide problem, why so little understanding of it here and no real Cure without alot of complications?) But , I feel this site with real life experiences is by far the best research any one can get. No doctor guessing what will work, no drug company "pushing their product," etc. Just Real People telling the truth about real life experience. What ever happened to all the other folks who were on the old RCE thread, there was so much more people there. Just wondering. Thank You for this community, and I hope I can possibly help someone else with my experiences. I am so happy to have a part in this community. Any comments or suggestions greatly appreciated in advance.

    Last edited by judy7; 07-27-2007 at 11:40 PM. Reason: miss spelled words

     
    Old 07-28-2007, 12:05 AM   #37
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    Re: Recurrent Corneal Erosion

    Quote:
    Originally Posted by lisa glm View Post
    I've had my corneal erosions for over a year and a half. Very painful - blurry vision occurred almost every night. I had strommel puncture done twice - did not help. Finally June of 2006 I decided to get PRK. I needed glasses and I figured this would help my problem and fix my vision. Well I have to say - 1 year later I have not had 1 erosion. My vision is 20/30 and I feel great. My recovery time from the procedure was not that long and not painful at all. I've seen that some people were in a lot of pain, but I have to say I was not at all. I had on a bandage contact lens that was taken off after 5 days. I think that it was the best thing that I've ever done. I wasted a year trying all those other remedies that never worked for me and I was miserable. Hope this helps!

    Lisa
    Hello Lisa,

    I am happy for you that the PRK has worked. To help me better can you tell me were your erosions from recent injuries, or age related underlying problems ( where the epithelial doesn't adhere well) ? Do you mind giving your approx. age as I know that sometimes that matters as to whether this works well or not. Also, did you have Dry Eyes syndrome, and did the PRK make it worse? Post OP Pain?? Just trying to figure out if I should go this route, because of bad reaction to other laser surgery which did not work . thanks, Judy

     
    Old 07-30-2007, 05:43 PM   #38
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    Re: Recurrent Corneal Erosion

    Judy,

    PTK is very different from the laser surgery you had. It sounds like you just had a laser version of anterior stromal puncture, which is not a terribly successful technique. With PTK, there is some preparation of the corneal surface, and the whole cornea is usually lasered, not just a few spots. I would not be afraid of PTK just because your other surgery also used a laser - they are two very different procedures.

    I had anterior stromal puncture twice for RCE, and once had the type of painful reaction you did - far worse than any erosion. Then I had PTK, and it worked great. I won't go into detail because I've written about it many times, but briefly: I was 30 when I had it, post-op pain wasn't too bad, my eyes are a little drier now, I have epithelial basement membrane dystrophy (common to RCE sufferers).

    If my other eye ever gets bad erosions like before, I'll go straight to PTK with no delay. It was only after I had PTK that I realized just how badly I suffered with RCE - the cliche of "getting my life back" really applies.

    By the way, don't worry about "14 page waivers" and stuff. If they were cutting off a hangnail you'd have to sign the same type of thing. It doesn't mean anything. If you get PTK, get an experienced surgeon.

    good luck,
    ebmd

     
    Old 07-31-2007, 03:16 PM   #39
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    Re: Recurrent Corneal Erosion

    Hello ebmd,

    Thank you for your reply. My eye surgeon wants to do a PRK , Not PTK. Maybe because I have dry eye syndrome. Do you also think that is as good. I believe the other lady who posted here had a PRK also and said it worked for her, (Lisa ). I hope it works for me also, I am still recovering from the stromal puncture. How long should I wait to have the PRK? Or what are your thoughts about it.
    Best Regards, Judy


    Quote:
    Originally Posted by ebmd View Post
    Judy,

    PTK is very different from the laser surgery you had. It sounds like you just had a laser version of anterior stromal puncture, which is not a terribly successful technique. With PTK, there is some preparation of the corneal surface, and the whole cornea is usually lasered, not just a few spots. I would not be afraid of PTK just because your other surgery also used a laser - they are two very different procedures.

    I had anterior stromal puncture twice for RCE, and once had the type of painful reaction you did - far worse than any erosion. Then I had PTK, and it worked great. I won't go into detail because I've written about it many times, but briefly: I was 30 when I had it, post-op pain wasn't too bad, my eyes are a little drier now, I have epithelial basement membrane dystrophy (common to RCE sufferers).

    If my other eye ever gets bad erosions like before, I'll go straight to PTK with no delay. It was only after I had PTK that I realized just how badly I suffered with RCE - the cliche of "getting my life back" really applies.

    By the way, don't worry about "14 page waivers" and stuff. If they were cutting off a hangnail you'd have to sign the same type of thing. It doesn't mean anything. If you get PTK, get an experienced surgeon.

    good luck,
    ebmd

     
    Old 07-31-2007, 04:02 PM   #40
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    Re: Recurrent Corneal Erosion

    Hi,

    Question for all: Anyone using ointments at night notice extra eyelashes falling out. Much more loss than usual? It seems to be happening to me and I am pretty certain it is from the ointments I use at night. Just wondering if anyone else has had this? Is this from the petroleum or mineral oil, it also irritates my eyes a little. But I am a slave to this to try to slow down the erosions which have wreaked havoc on my life for quite some time. i have also used Genteal Gel but thought it didn't stop the erosions as well because it drys in the eye and doesn't last all night. Please tell me what your experiences are and what works for you all out there who are suffering thru this.
    Thanks, Judy

    Last edited by judy7; 07-31-2007 at 04:03 PM. Reason: typos

     
    Old 07-31-2007, 09:37 PM   #41
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    Re: Recurrent Corneal Erosion

    Hi, I am 49 years old and do not know how I got this. One night I woke up with a sharp pain in my eye and from there it got extremely worse. Many Drs. could not diagnose this and gave me several different things to try. Nothing helped. Then I got the PRK - 1 year and 2 months ago and I am very happy to say that I no longer have any pain. I went thru strommel puncture 2 x's and so many other treatments that did not help. This is the only thing that does help. Mr. Dr. says that my eye is dry - it was before the PRK too. But, I put in drops before bed and it doesn't seem to bother me at all. (to be honest, I hardly put the drops in my eyes) If I can answer any more questions, I'd be glad to help.

    Lisa

     
    Old 08-01-2007, 07:18 AM   #42
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    Re: Recurrent Corneal Erosion

    Quote:
    Originally Posted by judy7 View Post
    Hello ebmd,

    Thank you for your reply. My eye surgeon wants to do a PRK , Not PTK. Maybe because I have dry eye syndrome. Do you also think that is as good. I believe the other lady who posted here had a PRK also and said it worked for her, (Lisa ). I hope it works for me also, I am still recovering from the stromal puncture. How long should I wait to have the PRK? Or what are your thoughts about it.
    Best Regards, Judy
    Hi Judy,

    PRK and PTK are very similar. The only difference is that PRK corrects your vision at the same time. Make sure your insurance covers PRK - since most people get PRK solely to correct vision, it is considered cosmetic and insurances often won't cover it. Your doc may have to write a justification for it.

    Choosing to have PRK is something you have to decide - no one here can tell you that. For me, I was sick of random episodes several times a week - in a restaurant, at work, etc. After two years of trying all kinds of techniques, I'd had enough. They might work for some cases. They helped, nothing fully worked for me.

    If you are having episodes once every two weeks or so, you might try the things you read on here - some of the techniques work quite well. If you are consistently having them 2-3 times a week, forget about it - just get PTK (or PRK) and move on with your life. Like I said before, I had no clue just how much RCE controlled my life until after I had PTK and could look back.

    Regarding your question for people on here to post tips, etc: This thread has a very very very long history going back almost 5 years. You will find an enormous amount of experiences if you look through the archives. Everyone reacts differently to various drops. A great example is Muro - some people swear by it, others hate it.

    ebmd

     
    Old 08-08-2007, 03:37 PM   #43
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    Re: Recurrent Corneal Erosion

    Quote:
    Originally Posted by lisa glm View Post
    Hi, I am 49 years old and do not know how I got this. One night I woke up with a sharp pain in my eye and from there it got extremely worse. Many Drs. could not diagnose this and gave me several different things to try. Nothing helped. Then I got the PRK - 1 year and 2 months ago and I am very happy to say that I no longer have any pain. I went thru strommel puncture 2 x's and so many other treatments that did not help. This is the only thing that does help. Mr. Dr. says that my eye is dry - it was before the PRK too. But, I put in drops before bed and it doesn't seem to bother me at all. (to be honest, I hardly put the drops in my eyes) If I can answer any more questions, I'd be glad to help.

    Lisa
    Lisa!

    I made an appointment with my Dr. for September 21st for the consultation. I can't wait to get this over with!!! I had two erosions within the last 6 weeks, the last being the worst one so far. I'm nervous about the procedure and scared about possible pain (but I have a couple left over pain pills from a year ago!!!) I hope my vision gets better....closer to what it was before the injury..it would be a real treat! I'll keep everybody posted!

    Evie

     
    Old 08-11-2007, 02:16 PM   #44
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    Re: Recurrent Corneal Erosion

    Hello all - I posted on this board a while back and I've been erosion free since July 2004. The routine has been the same for me - every morning when I awaken, I squeeze artificial tears in the top corner of my eye next to the top of my nose and let gravity work the artificial down inside my eyes and I avoid all erosions. Nothing has really changed. Once in a while when the weather changes, I can feel as if I could get an erosion when I awaken if I don't add drops. I never sleep on my back because that is just asking for an erosion to happen (or at the least, never have your head looking towards the ceiling when you awaken unless you are a master at keeping your eyes closed still and relaxed).

    I've thought about PTK at some point when I'm not so busy with work. I've heard that it can improve your vision due to the polishing effects of the epithelium. I've also heard never to have PRK if one has RCES. I'm not sure if that is due to the cutting of the nerve which takes about 6 months to heal (thus causing one's eyes to dry out more which will increase the chances of erosion).

    My wonder with PRK is if it could "flip" one's site such that they become far sighted and then will need reading glasses?

    Also, (for those who don't want surgery) has anyone heard anything more about Dehydrex drops? Are they FDA approved yet and do they have the high 90%+ success rate they claim in their trial studies? It sounds interesting but I've kind of been out of the "RCES loop" for a while and I've still just been disciplined enough to wake up "eyes still, closed and relaxed" and add artificial tears and all is under control. But, at some point, I may want to check out other options when I have more time especially if I don't have to deal with glasses for nearsightedness.

    Best to all,
    Mike

     
    Old 08-11-2007, 10:58 PM   #45
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    Re: Recurrent Corneal Erosion

    Mike,
    your thoughts/questions on potential problems with PRK are good to note. I'm not sure which my Dr. was referring to, though I think it was PTK--but I'm going to ask lots of questions when I see him.

    I am farsighted and this injury has left me with blurriness that is not corrected with my prescription and I can no longer read (newspaper print) with my glasses. It has been a frustrating year, waiting to see if it will improve and obviously it won't. I also have erosions during the day which is disheartening. I go through good periods and bad periods where my eye is uncomfortable and I feel it is on the verge of an erosion for days and finally it happens. I think my injury was significant enough that even my best efforts aren't going to prevent erosions. I'm very anxious to see where I'll be at the end of this.

    My understanding with the study is they haven't to date received enough participants as required.

    Evie

     
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