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    Old 08-04-2007, 07:51 AM   #16
    ticker
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    Re: Saw Doctor-Blood Test

    Hi Julie. Doxycycline and Zithromax are not in the same class of drugs.

    It is important that you get the right dose of Doxycycline. I believe the recommended dose for Lyme is 300-600 mg daily, yet many doctors will only prescribe 200 mg daily. It is not strong enough.

    Also, please be aware that three weeks of treatment is not long enough for Lyme. From what I understand, an infection caught within two weeks of the bite (which is rare) should be treated with a minimum of six weeks of the proper dose antibiotic. The antibiotics kill the bacteria when they are reproducing, which is estimated at four weeks. Six weeks of treatment will cover one growth cycle in a new infection. If symptoms are still present, further treatment is warranted. A longer infection needs longer treatment.

    A few tips about Doxy. Do not have any dairy, magnesium or iron products two hours before or after taking it or it will not be absorbed properly. If it makes you nauseous, eat something substantial and non-dairy before taking it. Avoid the sun. You can get a severe burn in minutes even when wearing sunscreen. Do not lay down for at least an hour after taking it or you can ulcerate your esophagus. This is very painful! Drink a full glass of water when you take it for the same reason.

    Whenever you take any antibiotics, make sure you take high-quality acidophilus capsules. They replace the good bacteria in the body and help to prevent yeast overgrowth. The best ones to get are refrigerated. Most healthfood stores have them. Wait at least two hours before or after taking the antibiotics to take the acidophilus.

    Good luck!

     
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    Old 08-04-2007, 07:56 AM   #17
    ticker
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    Re: Saw Doctor-Blood Test

    Hi Julie. The good thing is that you are addressing this early. Knowledge is power.

    I wanted to remind you of the Jarisch-Herxheimer Reaction (herx). Often, when people who have Lyme take antibiotics, their symptoms become worse or they get new ones. When the antibiotics kill the bacteria, toxins are released making them feel sicker. It can be very scary when it happens, but it is a good sign the antibiotics are working. Although it can vary individually, many people experience this at the beginning of treatment and every three to four weeks.

    It is a good idea to document your symptoms daily. One way to do this is to list the three main symptoms you have each day and a numerical rating of their severity, from 1-10. Over time when you review this, you can see when your herxes occur and how you are responding to the meds.

    Hang in there okay?

     
    Old 08-04-2007, 08:04 AM   #18
    Avalou
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    Re: Saw Doctor-Blood Test

    Quote:
    Originally Posted by ticker View Post
    Hi Ava. Dr. Burrascano's guidelines is not a book, it is on-line.

    Thank You---I will look them up.

    Many people who have Lyme do not test positive by the CDC standards. The CDC requires several bands to show for the test to be considered positive; however, many people who have Lyme do not have this many bands. What is important is which bands are present. Some are specific for Lyme.

    I don't know much about "bands". Here is what my test says--
    IGENEX-IGG-RESULT POSITIVE
    CDC/NYS-RESULT POSITIVE
    18 kDa +
    22kDa -
    **23-25 kDa IND
    28 kDa -
    30 kDa +
    **31 kDa +
    **31 kDa +
    **34 kDa +
    **39 kDa +
    **41 kDa ++++
    45 kDa +
    58 kDa +
    66 kDa +
    73 kDa -
    **83-93 kDa IND

    Can you tell me if all of that means something??? I have a copy of my Western Blot IGM also--which was negative---would it help if I post those results too?

    Part of the reason I'm so confused is because first my Dr. ordered the two tests, and told me that I have Lyme Disease. They gave me a prescription for 2,000 mg. of Tinidazole daily (refillable for a year), and told me not to start it until they got back to me with the brands etc. of some natural remedies (Teasel, Coloidal Silver, and Cat's Claw) that they wanted me to take along with it.

    Then they turned around and told me not to start the meds and remedies, because they wanted to send me to this specialist in the Tri-Cities. Then I got a message from the Dr. office to stop by and pick up a kit to do another Lyme test. When I questioned it they said it was to "confirm" the diagnosis. They said if it comes back negative, then I don't have Lyme Disease.


    You have a positive test. You need to be treated. Why would a doctor want to re-test you? To see if it is negative? Then say you don't have it? It is crazy!

    You hit the nail on the head!! Since I'm a total novice on this, I thought maybe it was some other kind of test that follows the first ones?? Thank you (SO) much for your candidness.

    The Lyme doctors I know of in CA who come highly recommended are Dr. Raphael Stricker in San Francisco and Dr. Steven Harris who has offices in Nevada City, Palo Alto, Long Beach, and Malibu.

    Thank you. I will call and get some information from them. I'm not sure how we will work this out; but my husband said he is on board with whatever we have to do. The problem is that he reacts very badly to pollution, and there is likely a (LOT) of that in California.

    I hope you don't mind all the questions--I'm just sooooo confused. I know I said it before; but THANK YOU!!!

    Blessings;
    Ava

    Last edited by Avalou; 08-04-2007 at 08:05 AM.

     
    Old 08-04-2007, 08:39 AM   #19
    ticker
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    Re: Saw Doctor-Blood Test

    Hi Ava. I do not mind questions at all. It is very important to learn as much as possible. Knowledge is power.

    It is unreal how much resistance there seems to be about tick-borne illnesses with the majority of the medical community. So often when people test negative (with the lousy ELISA test) they are told they definitely do not have it. When they test positive, they are told it is a false positive or the doctor keeps testing trying to get a negative result! Why do they even test then? It is crazy!

    Below is the breakdown of the Western Blot bands:

    9 cross-reactive for Borrellia
    12 specific for Bb
    18 unknown
    20 cross-reactive for Borrellia
    21 unknown
    22 specific for Bb, probably really the 23/25 band
    23-25 outer surface protein C (OspC), specific for Bb
    28 unknown
    30 unknown; probably an outer surface protein; common in European and
    one California strain
    31 outer surface protein A (OspA), specific for Bb
    34 outer surface protein B (OspB); specific for Bb
    35 specific for Bb
    37 specific for Bb
    38 cross-reactive for Bb
    39 is a major protein of Bb flagellin; specific for Bb
    41 flagellin protein of all spirochetes; this is usually the first to appear after a Bb infection and is specific for all Borrellia
    45 cross-reactive for all Borellia (sometimes people with Lyme who have
    this band positive also have the co-infection Ehrlichiosis)
    50 cross-reactive for all Borrellia
    55 cross-reactive for all Borrellia
    57 cross-reactive for all Borrellia
    58 unknown but may be a heat-shock Bb protein
    60 cross reactive for all Borrellia
    66 cross-reactive for all Borrelia, common in all bacteria
    83 specific antigen for the Lyme bacterium, probably a cytoplasmic membrane
    93 unknown, probably the same protein in band 83, just migrates differently in some patients

    Like I stated before, the IgM tests for a more recent infection and the IgG a longer standing one.

    Band 41 is often the first to show and yours is positive. Bands 23-25 is a Lyme specific band and yours is IND. Technically I believe this means not positive and not negative. To me if it is not negative, it is positive. Bands
    31, 34, and 39 are Lyme specific bands and yours are positive. You are even CDC positive. Many people who have Lyme are not.

    You definitely need to be tested for the co-infections and treated. Many Lyme doctors believe the co-infections need to be treated first for Lyme treatment to be effective. This has been true in my case. Some people who have band 45 positive have Ehrlichiosis. I did.

    There really are not many Lyme doctors in the country. Many people, including myself, have to travel out of state to see one. Some doctors will spread out appointments and/or do phone consultations in-between for patients who have to travel.

    I hope you can see a knowledgeable doctor soon and get the help you need. Keep us posted on your progress okay?

     
    Old 08-04-2007, 09:04 AM   #20
    Avalou
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    Re: Saw Doctor-Blood Test

    Quote:
    Originally Posted by ticker View Post
    Hi Ava. I do not mind questions at all. It is very important to learn as much as possible. Knowledge is power.

    It is unreal how much resistance there seems to be about tick-borne illnesses with the majority of the medical community. So often when people test negative (with the lousy ELISA test) they are told they definitely do not have it. When they test positive, they are told it is a false positive or the doctor keeps testing trying to get a negative result! Why do they even test then? It is crazy!

    Below is the breakdown of the Western Blot bands:

    9 cross-reactive for Borrellia
    12 specific for Bb
    18 unknown
    20 cross-reactive for Borrellia
    21 unknown
    22 specific for Bb, probably really the 23/25 band
    23-25 outer surface protein C (OspC), specific for Bb
    28 unknown
    30 unknown; probably an outer surface protein; common in European and
    one California strain
    31 outer surface protein A (OspA), specific for Bb
    34 outer surface protein B (OspB); specific for Bb
    35 specific for Bb
    37 specific for Bb
    38 cross-reactive for Bb
    39 is a major protein of Bb flagellin; specific for Bb
    41 flagellin protein of all spirochetes; this is usually the first to appear after a Bb infection and is specific for all Borrellia
    45 cross-reactive for all Borellia (sometimes people with Lyme who have
    this band positive also have the co-infection Ehrlichiosis)
    50 cross-reactive for all Borrellia
    55 cross-reactive for all Borrellia
    57 cross-reactive for all Borrellia
    58 unknown but may be a heat-shock Bb protein
    60 cross reactive for all Borrellia
    66 cross-reactive for all Borrelia, common in all bacteria
    83 specific antigen for the Lyme bacterium, probably a cytoplasmic membrane
    93 unknown, probably the same protein in band 83, just migrates differently in some patients

    Like I stated before, the IgM tests for a more recent infection and the IgG a longer standing one.

    Band 41 is often the first to show and yours is positive. Bands 23-25 is a Lyme specific band and yours is IND. Technically I believe this means not positive and not negative. To me if it is not negative, it is positive. Bands
    31, 34, and 39 are Lyme specific bands and yours are positive. You are even CDC positive. Many people who have Lyme are not.

    You definitely need to be tested for the co-infections and treated. Many Lyme doctors believe the co-infections need to be treated first for Lyme treatment to be effective. This has been true in my case. Some people who have band 45 positive have Ehrlichiosis. I did.

    There really are not many Lyme doctors in the country. Many people, including myself, have to travel out of state to see one. Some doctors will spread out appointments and/or do phone consultations in-between for patients who have to travel.

    I hope you can see a knowledgeable doctor soon and get the help you need. Keep us posted on your progress okay?
    Hi Ticker;

    That helps a lot. I wasn't sure if that's how everyone's test looked or what. Now all I need to do is go study to see what all of those foreign words like Ehrlichiosis and Burrascano mean. (*;*)

    I found the site you mentioned with the information by Dr. Burrascano. I am also going to order the book you reccommended.

    I already had an appointment with the Dr. in the Tri Cities before I came into this forum. The earliest I could get in to see him is the 13th of this month. Is there a quick guideline one can use to determine if the Dr. we see is (truly) proficient in treating Lyme? His name is Dr. Geoffrey Ames, and his office is in Richland, Washington. Has anyone here heard of him?

    If I might just sneak in one more question before I go do some reading. Are there any of these (really good) Lyme specialists in Las Vegas, Nevada?

    Thanks again. I will go do some reading, and yes, I will come back to let you folks know how it is going--and probably to ask a million more questions.

    P.S. I don't know if it means anything; but numbers 41, 45 and 66 were +positive on the IGM test, and everything else was -negative.

    Blessings;
    Ava

    Last edited by Avalou; 08-04-2007 at 09:07 AM.

     
    Old 08-04-2007, 12:00 PM   #21
    maree4848
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    Re: Saw Doctor-Blood Test

    Thank you so much for the information. I see my doctor first thing Tuesday.

    The only thing I feel different is the Tingling, & burning. The tingling is from my neck to my legs. The burning is in my upper chest from the top of the boobs to the chin. I also have very bad acid reflux (had the nissen fundoplication five years ago) and I get very bad reflux. I have no flu like feeling, nothing, I have a lot of energy. It will be two weeks tomorrow that Jim pulled the tick out of me, I hope it did not ruin my life, wedding, etc.

    I know we can still get married might have to cancel the trip until a later time, we did buy insurance with the package (THANK GOD)....

    With the blood work I had, would it show the co-infections so fast??

    Thank you much
    Julie

     
    Old 08-04-2007, 12:06 PM   #22
    ticker
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    Re: Saw Doctor-Blood Test

    Hi Julie. Most people test negative early on.

    It is important to be tested at a Lyme lab such as IgeneX. They use more sensitive testing.

     
    Old 08-06-2007, 06:48 AM   #23
    driven88
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    Re: Saw Doctor-Blood Test

    Hi What about the fact that IgeneX. lab isn't FDA approved , There is also information that they are being investigated by the New York department of health because there have been a number of doctor and patient complaints.

    How do we know IgeneX. lab can be trusted ?

     
    Old 08-06-2007, 09:55 AM   #24
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    Re: Saw Doctor-Blood Test

    Hi driven88, welcome to the board!

    Is this current information? I know there was some kind of investigation a while back and IgeneX was completely cleared. I believe they are the best lab for tick-borne illness testing.

    Do you have Lyme or think you may have it?

     
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