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    Old 07-30-2005, 08:06 AM   #31
    hmahappy
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    Re: heart beating in ears

    I don't hear my breathing, i hear my heartbeat just- only like a swishing sound- depending on if i'm nervous or not it can get pounding, but the swooshing/ heartbeat sound is like there all the time. What is a patulous ET? and how did they manage to diagnose it? and how do you hear it in your entire head, or do you mean near your ears like me? Its reassuring that other people have the same, thanks!

     
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    Old 08-26-2005, 09:46 AM   #32
    MissMichele
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    Talking Re: heart beating in ears

    They use a scope that snakes up your nose (it isn't comfortable, but you'll live) and then they see if your Eustachian tubes are unusually patent (open/large). This is a physical anomaly/deformity of the ETs and it isn't fun if the tubes open constantly. Really drives me crazy. Sometimes patulous Eustachian tubes are referred to as abnormally patent Eustachain tubes. It's really, really hard to find info on it because it's rare. I live in NYC and I went to a big time/well respected/ ENT practice. The ENT told me that he sees about three pET a year...and this is in NYC!

    You need to find an ENT w/subspecialty of otology. I think there is a reference to it on ****pedia or something. pET is often misdiagonsed if diagnosed at all. Takes some people years to find out why they hear their own respiration (called autophony, I think) and such.

    Get to a good ENT who DOES not have a side business doing cosmetic surgery--they won't take an interest in you because you don't represent extra cash. Not to put down ENTs, but I've seen quite a few and they just do not know very much about pET. Tympanic disorders are difficult to diagnose and yours might be quite uncommon.

    You really need to look hard to find a good ENT w/expertise in this area. Write to a local hospital (the most well respected hospital in your area or medical school) and see if they have a dr referrel service. Specify what you need and describe your symptoms AND tell them what health insurance you have--certain services will then see if they have an in-network specialist for you--sometimes they recommend out of network doctors, so be sure you check to see that any ENT suggested takes your insurance.

    It is really drag to have this problem, but you have to be tenacious in order to find some help. Best of luck to you.

    ps When my tubes open they stay open until I lay down on a bed w/my head hanging slighly off the edge of the bed. The blood rushes to the membranes and helps 'inflame' the area which then helps close the tubes.

     
    Old 09-25-2005, 06:35 PM   #33
    SuelynH
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    Re: heart beating in ears

    I've been hearing my heartbeat in my ears (mostly in my left ear) on and off since April. It's gradually gets louder as the day goes on. My ENT, too, wanted me to have an MRI or CT. But I keep thinking it has something to do with my neck or muscle spasms. Thanks for the idea of muscle spasm in the middle ear. I'll check it out. - sh

     
    Old 09-26-2005, 09:25 PM   #34
    sweeterthan
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    Post Re: heart beating in ears

    I still have this problem... since July.
    I'm pregnant and I thought that maybe thats why it started in the first place. I only hear it in my left ear and it comes and goes through out the day. Its worse in the morning. I almost think that I don't notice it that much anymore because I have had it everyday since July. It started when I was around 16 weeks pregnant and hasn't gone away since. I'm starting to wonder if it will ever go away... I am thinking the pregnancy might have something to do with it because of the increase in blood flow through out your body. Does anyone know if this will stop once the baby is born and my body goes back to normal?? I don't want to have to go through getting an MRI and all that, the thought of it really scares me. And from all the research I have done on pulsitile tinnitus, I have read that most people who have it, have had an MRI, MRA, CT scan, etc and they couldn't find what was causing it and doctors tell them just to 'live with it' because there is nothing they can do. The only remedy I have read that has cured someone with p.t. is an operation.
    I would like to see some more posts on this subject. I'm 29 weeks pregnant now and like I said some days I hardly notice it while other days I definately know its still there. Which has me left wondering will this ever go away??

     
    Old 10-15-2005, 02:12 PM   #35
    Laura B
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    Re: heart beating in ears

    I have this problem for about 5 years now. I don't think it ever will go away. I clearly can hear my pulse in my ear 24/7. I don't know if it gets louder somtetimes or if I'm just more aware of it sometimes. It is the sound of my pulse, for sure. When I get up from a chair my pulse speeds up a little and I can hear that in my ear. After all these years I'm very use to it, it's just like a "beating clock" in the room. I thought maybe age has something to do with it, I'm in my seventies, but I see on this board that very young people seem to have the problem.

    My doctor told me once to take a certain pill...forgot the name....I took it for a few months but nothing changed, so I stopped the pill.
    About two years ago I went to see an ear doctor, he sent me for a test, I thought it was a test to find out what's wrong, it turned out he sent me for a hearing test!!!! Nothing wrong with my hearing. He more or less told me I just have to live with it, didn't seem to know what's causing it.
    Laura

     
    Old 08-08-2007, 04:33 PM   #36
    Creamydelight81
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    Re: heart beating in ears

    I am so surprised to see how many people out there are going through this as well.

    What happened to me was, I went swimming last year and while swimming water went up my nose. As soon as that happened it felt as if something was loadged in my head. The swishing sound is best described in my own words like that of an ultrasound. SWISH SWISH SWISH I can hear it now in my right ear.

    I went to see the Dr. and explained to her my situation and she told me "I really don't think it has anything to do with you going swimming that day". This really disturbed me, how could it not be caused by this? I was given no explination. I was told my ear cannal was clear. Yet and stil, I was prescribed Nasarel to help open up my sinuses along with pain medication for the painful pressure I have in my head.

    It has been about a year now and in my eyes nothing has changed. I have just learned to live with it. I have trouble falling asleep, I wake up with headaches sometimes too. I smoke and drink socially and have noticed that these acts irritate my head even more. If I turn my head certain ways the SWISHING gets louder/softer/nonexsistant it's really not up to me anymore. Along with that my vision seems unfocused and blurry at times. I wear hard gas perm contacts maybe their just dirty.

    I have done some research and all fingers seemed to be pointing at Sinusitis. I have not had confirmation of this as of yet.

    So, what can I do? I'm tired of taking Pain Medication it makes me feel sluggish after so many days in a row. Are there any alternative approaches to this disorder? I just want to feel normal again....[/I]

     
    Old 05-20-2008, 01:15 PM   #37
    jbae
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    Re: heart beating in ears

    Quote:
    Originally Posted by sweeterthan View Post
    I still have this problem... since July.
    I'm pregnant and I thought that maybe thats why it started in the first place. I only hear it in my left ear and it comes and goes through out the day. Its worse in the morning. I almost think that I don't notice it that much anymore because I have had it everyday since July. It started when I was around 16 weeks pregnant and hasn't gone away since. I'm starting to wonder if it will ever go away... I am thinking the pregnancy might have something to do with it because of the increase in blood flow through out your body. Does anyone know if this will stop once the baby is born and my body goes back to normal?? I don't want to have to go through getting an MRI and all that, the thought of it really scares me. And from all the research I have done on pulsitile tinnitus, I have read that most people who have it, have had an MRI, MRA, CT scan, etc and they couldn't find what was causing it and doctors tell them just to 'live with it' because there is nothing they can do. The only remedy I have read that has cured someone with p.t. is an operation.
    I would like to see some more posts on this subject. I'm 29 weeks pregnant now and like I said some days I hardly notice it while other days I definately know its still there. Which has me left wondering will this ever go away??
    Dear Sweeterthan:
    I read your post regarding the heart beat in the ear, when you were pregnant in 2005. I am currently 36 weeks (and counting!) and started experiencing this disturbing problem a few weeks ago. The pulsing/swishing sound is in my left ear and very loud at times. It never stops. I was wondering what happened with yours - and if it did stop after delivery? Did you ever find out what was causing it? I have been to see an ENT and he wasn't able to find anything wrong. I do have TMJ and was thinking it might be related. Any advice or feedback would be appreciated...I am going crazy with this and it's making me so depressed from lack of sleep. Thank you so much in advance and I hope all is well with the baby (now a toddler!). Julie

     
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