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    Old 08-05-2007, 07:41 PM   #16
    desperate1
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    Re: Adderall Advice

    Hi Jenn!
    Thanks for the tip--the way my doctors talk you'd think it was "take this adderall and you'll be normal like you used to be again." So I suppose "some" improvement is a sliver liining then, right?
    Do you mind if I ask how much adderall you take and how long you've been on it? Do you see much improvement in the fatigue? If I could just get to a point where I'm able to think straight most of the time and not weak with fatigue, I'd be pleased. Tired I can handle. Bone tired fatigue is tough to bear all day every day.
    Funny, my brother has ADD and his doc has never mentioned adderall. Yet here I am being handed the stuff like it's no big deal.

     
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    Old 08-05-2007, 11:31 PM   #17
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    Re: Adderall Advice

    EFA's , magnesium and ALA are supposed to be helpful with CFS. Maybe adding those to your regiment might help?

     
    Old 08-06-2007, 06:44 AM   #18
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    Re: Adderall Advice

    Yeah, I take them, although I have to say lately I've been lax. I was really good about it for two years, never skipped a day. And once I started forgetting a few times a week I did notice that they were helping when I took them every day, if only a bit. Omega 3s, I've discovered, are a HUGE necessity. They help with everything. I'm pretty sure they even cleared up my skin, lol.
    Today I'm trying to space my adderall out to 4x a day instead of 3 to see what happens.

     
    Old 08-06-2007, 03:53 PM   #19
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    Re: Adderall Advice

    Desperate1 - The Adderall is not a magic energy pill no matter how much we wish it were. I take 20 mg 2 x per day. Somedays it works better than others but that is the fibro and you have to remember that. The max that is suggested taking in one day is 60 mg and you really shouldn't take it after 4 pm due to the fact of sleep issues.

    The difference between you and I is that I get very fatigued but not sleepy and I only sleep about 2-3 hours every night if that much. Sometimes I go for up to 60 hours with no sleep. The doc has given me sleeping pills and they only work for about 2-3 hours also if that much.

    Sometimes I feel like Elvis, they want to give me pills to wake up and pills to go to sleep. I do like the Adderall and am happy if it only last 4 hours b/c that is 4 hours of energy I wouldn't normally have.

    Hang in there and I hope this helps somewhat. Keep Posting and hopefully we both can get some help here.

    Thanks to all that are posting trying to help and God Bless you all!

     
    Old 08-11-2007, 03:41 PM   #20
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    Re: Adderall Advice

    Rach82 Thanks for the info. I do agree with the generic versus the brand name on the Adderall. My son was diagnosed with ADD years ago and his doc would not allow a generic version so I was aware of that. I on the other hand did not think about it with me. I guess I worry about the kids more than myself. Plus, I take so many drugs, even with insurance the cost each month is way out there. With me no longer able to work, it really takes its toll.

    Jennita Can you explain the EPA, Magnesium and the ALA. How much someone would take and what the EPA and ALA is? I take a multi-vitamin but any info would be helpful?

    Thanks to all

     
    Old 08-11-2007, 05:21 PM   #21
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    Re: Adderall Advice

    I've been on Adderall for ADD for about 2 years. I took the regular for about a year and a half and switched to the XR after that. I have other issues too and take a cocktail of drugs in the morning, including 2 that make me sleepy. They are winning. I could easily take a nap anytime after the Adderall, and in fact frequently do come home on my lunch break to take a nap.
    But it is working to keep my mind from wandering too much, and that's the main thing.

    Last edited by seriousperson; 08-11-2007 at 05:21 PM.

     
    Old 08-12-2007, 12:14 AM   #22
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    Re: Adderall Advice

    Alpha Lipoic Acid is an antioxidant which is also enhances energy production in the body. EFA is part of the Omega family. You can get either supplements or food sources include spinach, red meat and potatos(ALA), fish and nuts(Omegas) and peanuts are packed with magnesium.

    Last edited by Jennita; 08-12-2007 at 12:15 AM.

     
    Old 08-12-2007, 01:04 AM   #23
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    Re: Adderall Advice

    Quote:
    Originally Posted by Jennita View Post
    Alpha Lipoic Acid is an antioxidant which is also enhances energy production in the body. EFA is part of the Omega family. You can get either supplements or food sources include spinach, red meat and potatos(ALA), fish and nuts(Omegas) and peanuts are packed with magnesium.
    Thank you very much!

     
    Old 08-12-2007, 01:05 AM   #24
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    Re: Adderall Advice

    Quote:
    Originally Posted by seriousperson View Post
    I've been on Adderall for ADD for about 2 years. I took the regular for about a year and a half and switched to the XR after that. I have other issues too and take a cocktail of drugs in the morning, including 2 that make me sleepy. They are winning. I could easily take a nap anytime after the Adderall, and in fact frequently do come home on my lunch break to take a nap.
    But it is working to keep my mind from wandering too much, and that's the main thing.
    I have been on it about that long also... I am on the XR form too. Do you mind me asking what other types of cocktails you are on.

     
    Old 08-13-2007, 06:30 PM   #25
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    Re: Adderall Advice

    Quote:
    Originally Posted by Jenn4508 View Post
    I have been on it about that long also... I am on the XR form too. Do you mind me asking what other types of cocktails you are on.
    In the morning I take 20mg Adderall XR, 100mg Wellbutrin (works well for depression), 20mg Lexipro (depression/OCD), 0.5mg Risperdal (works well for anxiety/OCD). In the evening I take another Risperdal.
    It makes me tired just thinking about it.

    Last edited by seriousperson; 08-13-2007 at 06:31 PM.

     
    Old 09-07-2007, 07:18 PM   #26
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    Re: Adderall Advice

    Even though I am "bone-tired" I felt I needed to post my unique experience with Adderall, prescribed for the same exact reasons, fatigue and brain fog. Diagnosed 15 years ago with Fibro, it overtook me 3 years ago, taking a healthy active creative person down to wishing I would just die. Never suicidal because there is always hope, but just plain miserable. I sought help from my pcp for 2 years trying every antidepressant the drug companies are pushing right now and none worked. He finally gave up on me and referred me to a psychiatrist. On my first visit I told him all I want is some energy to get me back on my feet and I will work myself back to where I want to be. He started me on Adderall regular the same as your doc. I went back for a followup and told him I might as well be eating candy. He upped me to 40 mg. a day too, and when I went to see him 15 days later I was totally amazed at what I had discovered. I had been "waiting" for all this energy to hit me so I could speed through my dirty house and finally see some results from taking a pill. It Never Happened. What did happen was a wonderful lifting of the depression, ceased the crying spells immediately and allowed my brain to say..."you've got to help yourself". I forced myself to start walking again on my treadmill and after a week you would have thought I had conquered the world. Now, with my doctor's okay, I space out the time between pills and the amount. I can't take a "holiday" as the depression comes bouncing back the next day, and if I have to live on Adderall for the rest of my life hey it's better than having no life at all. Geez I'm 56, I have to do what I have to do. I did discover that taking 20 mg. in the morning is better for me (I thought mornings were naturally my best time of the day) and then 5, 10, or 20 mg. by 2:00. This is the dose I change around. I did try provigil...I felt like a zombie stuck in mud too on that. I couldn't even lay down and rest, forget napping. My rheumy recently added Klonopin to help me sleep at night even though I told him I had been taking Xanax .5 mg. for 6years for that reason. OMG if Elvis felt like I did he is in a better place. Uppers (adderall) and downers (klonopin) only work for drug addicts or people taking it for reasons other than medical. I dropped the klonopin like a hot potatoe and 2 days later I was back to my normal self. After that experience I am satisfied with Xanax' 5 hours of sleep because when I get up in the morning it's out of my system. It's not fighting the Adderall. I have also, which no pill will do, started to accept my limitations as my new way of life and it's ok. Fibro brings on the worse kind of depression because it's not a chemical imbalance that a pill will improve, it's reality. Fibro will not leave you day or night, there is no pill that helps me with the pain and soreness and I struggle to sleep. I sure hope for the younger patients (like you) they find "something, anything"...to alleviate the fatigue first and I really think the other problems associated with fibro would improve naturally just from that. The medical field just doesn't get it because they can't prove on paper what is causing it. I had the trauma to the head theory, being involved in an accident when I was young, head cracking the windshield. Who knows? Who cares...just find us some relief. Didn't mean to go on and on, it's just my heart breaks when I read posts from young women starting on the same road that I've been down. I wish my mother were alive so I could tell her...mama you were right about experience being the best teacher. Now I tell my children that and I see that "same look" I had. Oh well. Take care and please don't hesitate to ask any questions I didn't answer in this loooong post. And please don't give up, just try to start accepting now the changes that Fibro demands (until they find a cure?), because when you add menopause on top of Fibro....you need to be ready for anything.

     
    Old 09-09-2007, 06:17 AM   #27
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    Re: Adderall Advice

    magnolialady - what a wonderful post. A lot of insight went into this. Before I get started let me apologize as I know I will ramble as it is rainy here and the fibro fog is on a "high alert" level along with the pain. I know you talked about menopause and what that may bring along however, I had to have a hysterectomy (sp) at the age of 29, I am now 44. I am trying so hard to understand that my old life is gone and I now have a new life. I was also diagnosed with BP 1 after being treated with depression and generalized axiety disorder for over 25 years. I also had several TIA strokes in June of 2006. So being a Personality type a and now having to change my life style totally has been hard. I work really hard with my shrink, therapist, GP and pain management doc every month. Take my mix of cocktails as prescribed but do not see alot of changes. The pain management doc even started me on TPI. I have only had those done the last three months and have not given up but do not see much relief from those. Last month he missed a trigger point, which I know is a risk we take, but boy was that horrible.

    I filed for SSD but have been denied in the first two stages. So am waiting for a date for a hearing with the judge. Hopefully and I pray to God that I will be able to win at that level. I really don't know how SS can even think someone would hire me with the cocktail of meds I take. Technically, I could probably be arrested if pulled while driving on the mix I have to take during the day. I try to stay upbeat. The financial burden though really is starting to make me feel worthless and a burden to my family. I have always worked and always been very independent. My husband and I have only been married for less than 2 years and he totally refuses to let me go back to work, I feel like sometimes I should just go and do it. I know I would never last, but I feel so trapped in this house day after day even though I hurt so bad.

    Sorry for the rambling and being so down. I am just having a bad couple of weeks and needed to vent.

    God Bless to all who had the patience to listen

     
    Old 12-31-2007, 12:08 PM   #28
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    Re: Adderall Advice

    Jenn4508, don't give up, I am 36 years old and I received my disability FINALLY, last March 2007. I really believe they have it set up, where they make you wait 2 yrs, to try and break you down and starve you out. I lived off of 350dollars a month while I waited for mine. I became disabled in 2002 for my back, but they also added major depression and Adult ADD and other things after all my medical records, were received. I was turned down after the first 5 or 6 months of filing, but I waited until 2005 to file hoping that my two back surguries would work, ended up going to pain clinic which at first I thought was a God send, only to discover you build up a tolorance after a few years on that, so nothing was helping. In the meantime my husband abandoned me and my son, and I no longer had insurance so no meds. I had a hysterectomy when I was 27, but because I had fybrocystic disease (or whatever they called it) in my breast I could not take hormones. I began to feel as if I could take no more, I struggled to get my son to school (he had been thru too much with his father abandoning us, this being his adopted father, his biological father gave his rights up years before, so I didn't want to change his school). They don't have "housing based on income" in the area he goes to school, because it is so small. I lived with depression and anxiety disorder, and adult ADD along with severe pain,facet arthrius, degenerative disk disease, myofasical disorder, and had no meds and no insurance. After I went to court, I received my medical records from the lawyers. I was shocked to discover that even the doctors that disability had made me go to had also claimed they believed I was unable to work in my condition, Yet I had still been denied. I used every available resource to get me by and my bills paid, and had to just wait. Finally after I go before the judge, (and them loosing my paper work, me calling the lawyer to find out what was taking so long with an answer, I discovered I could call social security and get the judges secretary, and then thats when they discovered they had "misplaced" my papers, in other words, forgot me, but within two weeks I have my answer that I was found disabled. I still don't understand why I had to have the lawyer, he did nothing in court I answered all the questions, he did nothing when I had not received my answer in a timely manner (over a month), but I do know that others have been trying for years and they never get theirs until they hirer a lawyer, who does nothing but get your records and fill out paperwork you could do yourself, and then get a huge chunk of your backpay. I was to the point that I wanted to just kill myself, but I had to be strong for my son. Keep at them, keep calling, keep fighting, don't give up, thats what they want, and in your condition you are disabled and if you ever worked in your life that is YOUR money YOU paid in, for this very reason! Fight for it!

     
    Old 12-31-2007, 01:26 PM   #29
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    Re: Adderall Advice

    photoangel71 - Thank you for your kind post.... I know that SS wants you to give up but I will not. I think it is sad that I have worked my whole life and many hours a day when I did work and then am no longer able to and I have to wait around until SS has time to schedule me in to see the Judge due to a hiring freeze.

    I feel like I am stuck in a marriage of two years and I feel there is no way out at this point. I stay due to the insurance and await my day in court. He comes home everynight from work and drinks until he passes out. I left my first husband for this same reason and he knows it. Does this man not think I have enough stress in my life. I am sorry to vent, just not real happy right now and I have no one to really talk to that understands other than these boards.

    I will keep fighting for the SS and hopefully then my husband will understand if and when I get it that its give up the drinking or I have a way out.

    Thanks to all who listened to the rambling, the fibro fog is playing games today and hard to stay on track. Happy New Years to all. Jenn

     
    Old 12-31-2007, 01:37 PM   #30
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    Re: Adderall Advice

    Quote:
    Originally Posted by magnolialady View Post
    Even though I am "bone-tired" I felt I needed to post my unique experience with Adderall, prescribed for the same exact reasons, fatigue and brain fog. Diagnosed 15 years ago with Fibro, it overtook me 3 years ago, taking a healthy active creative person down to wishing I would just die. Never suicidal because there is always hope, but just plain miserable. I sought help from my pcp for 2 years trying every antidepressant the drug companies are pushing right now and none worked. He finally gave up on me and referred me to a psychiatrist. On my first visit I told him all I want is some energy to get me back on my feet and I will work myself back to where I want to be. He started me on Adderall regular the same as your doc. I went back for a followup and told him I might as well be eating candy. He upped me to 40 mg. a day too, and when I went to see him 15 days later I was totally amazed at what I had discovered. I had been "waiting" for all this energy to hit me so I could speed through my dirty house and finally see some results from taking a pill. It Never Happened. What did happen was a wonderful lifting of the depression, ceased the crying spells immediately and allowed my brain to say..."you've got to help yourself". I forced myself to start walking again on my treadmill and after a week you would have thought I had conquered the world. Now, with my doctor's okay, I space out the time between pills and the amount. I can't take a "holiday" as the depression comes bouncing back the next day, and if I have to live on Adderall for the rest of my life hey it's better than having no life at all. Geez I'm 56, I have to do what I have to do. I did discover that taking 20 mg. in the morning is better for me (I thought mornings were naturally my best time of the day) and then 5, 10, or 20 mg. by 2:00. This is the dose I change around. I did try provigil...I felt like a zombie stuck in mud too on that. I couldn't even lay down and rest, forget napping. My rheumy recently added Klonopin to help me sleep at night even though I told him I had been taking Xanax .5 mg. for 6years for that reason. OMG if Elvis felt like I did he is in a better place. Uppers (adderall) and downers (klonopin) only work for drug addicts or people taking it for reasons other than medical. I dropped the klonopin like a hot potatoe and 2 days later I was back to my normal self. After that experience I am satisfied with Xanax' 5 hours of sleep because when I get up in the morning it's out of my system. It's not fighting the Adderall. I have also, which no pill will do, started to accept my limitations as my new way of life and it's ok. Fibro brings on the worse kind of depression because it's not a chemical imbalance that a pill will improve, it's reality. Fibro will not leave you day or night, there is no pill that helps me with the pain and soreness and I struggle to sleep. I sure hope for the younger patients (like you) they find "something, anything"...to alleviate the fatigue first and I really think the other problems associated with fibro would improve naturally just from that. The medical field just doesn't get it because they can't prove on paper what is causing it. I had the trauma to the head theory, being involved in an accident when I was young, head cracking the windshield. Who knows? Who cares...just find us some relief. Didn't mean to go on and on, it's just my heart breaks when I read posts from young women starting on the same road that I've been down. I wish my mother were alive so I could tell her...mama you were right about experience being the best teacher. Now I tell my children that and I see that "same look" I had. Oh well. Take care and please don't hesitate to ask any questions I didn't answer in this loooong post. And please don't give up, just try to start accepting now the changes that Fibro demands (until they find a cure?), because when you add menopause on top of Fibro....you need to be ready for anything.
    You are very wise. I have accepted the hand I have been dealt however it doesn't mean I have to like it. I guess what really bothers me the most are all the drugs I am on and it seems that none really help what they are supposed to help. I keep trying though and hopefully one day, just maybe, they will get it right. Thank you for your kind words. Jenn

     
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