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  • Possible Lyme's Disease

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    Old 06-02-2008, 06:58 PM   #1
    gaLYMEgirl
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    Possible Lyme's Disease

    After fighting with various doctors for about 8 years to run the Lyme's test, I asked my dermatologist if she would run it along with some other blood work she was running on me. She did and I tested positive on the Lyme AB/Western Blot Reflex Lyme IgG/IgM Ab as well as the Lyme Ab Interp., EIA. (My testing was done at LabCorp in Birmingham, AL.)

    Here's a little background...

    About 10 years ago I was diagnosed by process of elimination to have Psoriatic Arthritis. Without going into all of my symptoms, I will tell you that I have now had 2 blood test diagnoses of psoriasis skin breakouts. However, my main issue has been arthritic. The pain started quickly in my hands and fingers and progressed to my feet. Additionally, my knees swell with fluid, but are usually not painful. Initially, when I was diagnosed with P.A. I was accepting of the diagnosis and with time, and a bout with ulcers, we found a cheap and effective drug that successfully controlled my arthritic symptoms and made it possible for me to preform daily activities with moderate to low pain.

    My aunt was the one who brought the then new developments in Lymes disease deviations to my attention about 2 years later. Over the years, as I have switched Rheumatologists for a variety of reasons (insurance change, didn't like'em, bad office staff) I have always encouraged the doctors to perform the Lyme's test. None of them agreed. Some were quite arrogant about it. The problem is, I live in a suburb of Atlanta, GA, where Lyme is not common. However, I'm a New Yorker and have always traveled to NY. So, I have had opportunities to be exposed. I have never found a tic, nor have I had the distinctive rash, although I've had plenty of other rashes (psoraisis, seborheic dermatitis).

    With this positive test result, I am going to see an infectious disease specialist in a couple of days.

    Any advice for getting the appropriate treatment would be much appreciated!

    -GA Lyme Girl

     
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    Old 06-03-2008, 10:28 AM   #2
    Braveheart07
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    Re: Possible Lyme's Disease

    GaLymeGirl--Hi-
    You are in the right spot for help---this board has lots of helpful, knowledgeable people---ask a million questions--there are answers here. You need to get to a Lyme Literate Dr --a LLMD-- and get on some antibiotics ASAP---post a thread for Atlanta LLMD's---you're bound to get responses--, and/or research past posts for Dr's in your area.
    My guess is that "TICKER" will post soon---she's very helpful...
    Hang in there......there is hope
    All the best-
    Doug

     
    Old 06-05-2008, 03:41 AM   #3
    zandvoort
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    Re: Possible Lyme's Disease

    Hi Lyme Girl- welcome to the board.
    Wow- what a story! To finally get someone to test you and you are positive! I have never been positive but was clinically diagnosed by an LLMD. I agree with Braveheart. Please try to find an LLMD that is a distance you are willing to travel for help. It may be a few hours but your health is worth it! Some people travel accross the country to see a good doctor. If your infectious disease person does not specialize in Lyme, You are unlikely to get any better reaction from him/her than you have from the rheumatologists you have seen.
    The best thing you can do for yourself is research. As you have experienced, it is a mis-understood disease and you have to be educated and be your own advocate.
    Best of luck!

     
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