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  • Anyone else have a movement disorder?

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    Old 07-17-2002, 08:20 AM   #1
    writingmyway
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    Question Anyone else have a movement disorder?

    Just wondering if I am the only one here with hand tremors. I am 33, diagnosed 1 yr ago with SLE.
    Donna
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    Old 07-17-2002, 11:40 AM   #2
    scbagrrrl
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    Donna -
    I have some hand trembling in my right hand that comes and goes. I haven't bothered bringing it up to my rheumy - I already have enough on my plate.

    Have you brought it up to your doc?

     
    Old 07-18-2002, 09:22 AM   #3
    writingmyway
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    this is just a test, having trouble posting
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    Old 07-18-2002, 09:28 AM   #4
    writingmyway
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    Actually, I was sent by my neurologist to Vanderbilt Movement Disorder center in Nashville TN about 4 yrs ago, where they diagnosed Essential Tremor, and told me about brain surgery that could help. I'm a photographer (age 33), and the shaky hands were becoming a problem. They put me on numerous meds, that didn't help. Over the last 4 yrs I was sick, achy, etc. So my family Dr. sent me to another neuro and he did bloodwork and an MRI to rule out MS. When I went back he said my MRI was normal, but the bloodwork he did for Lupus was positive. So then he sent me to a Lupus specialist at the Kirkland Clinic in Birmingham Alabama, where they did more blood tests, that came back positive and did exams, etc. He said the tremors could be Lupus related, but hasn't ruled out Essential Tremor, although is doubtful that is is ET. I had to close up my photography studio last year, due to the tremors. People always thought i was really nervouse when I would take pics! Thanks for your reply!
    Donna
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    Old 07-19-2002, 03:01 AM   #5
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    I haven't yet been diagnosed with lupus, buthave many of the symptoms, including random tremors which come and go. I experience them everywhere, hands, stomach, legs, eyes, lips.
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    Old 07-23-2002, 10:06 AM   #6
    Music
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    Hi,
    I have tremours too, I was looking on this site
    because I get alot of Kidney infections , low grade fever and a Red coloring on my face I also feel tired all the time. I do have a brain stem injury too
    though. anyway Hope all gets better my doctor said the termours idn't due to my neck problems my hands and Head shake LOL the things PPL have said to me GRRRR
    when they see me shaking hehe make you want to Scream!

    Music
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    Old 07-24-2002, 04:56 AM   #7
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    Donna,
    That has got to bite. I'm sorry you're having such a tough time with this. Are there any other specialists that they can "pass you along to"? I'm seeing a hematologist later this week that specializes in autoimmune disorders. I'll let you know how that goes and a hematologist is worth a consult.

    Are you with your Rheumy - is he/she the BEST in your area? Has he/she consulted with other Rheumys? Have the docs left you hanging with "we're not sure" kind of responses? Have you tried contacting the Lupus Foundation or Arthritis Foundation to see if they can offer any suggestions?

    Just a bunch of thoughts. Hope they help... Keep us posted and GOOD LUCK!

     
    Old 07-25-2002, 02:49 PM   #8
    writingmyway
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    The dr I see is supposed to be the best in the state....Lupus specialist. He seems really good, and caring...etc....keeps a close eye on everything. The tremor part he sort of seems unsure of...the Speicialist in TN was sure it was Essential Tremor a few years ago, before I found out I had SLE. My Rheumy said Lupus can cause Tremors but not very common, so he hasn't ruled out the Essential tremor. So I have SLE and ET...but I can't help but wonder if I have ET or not. It is a action tremor where as Parkinsons is a resting tremor...I do feel so much better since I began seeing my Lupus dr....a year ago I was feeling horrible! Could hardly walk my legs hurt so bad, but he has gotten me feeling much better. I go back Aug. 14th....every 3 months now...was going every 6 weeks. Hope your appt goes well! Let me know !
    Thanks
    Donna
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