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  • Vitamin B12 deficiency and extremely tired - the injections don't help much

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    Old 10-26-2008, 05:04 AM   #16
    bethsheba
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    Re: Vitamin B12 deficiency and extremely tired - the injections don't help much

    Quote:
    Originally Posted by help wanted :( View Post
    ...but nothing else has come up in my tests... other than candida but i think thats a seperate issue.... B12 deficiency is the only thing left that makes sense.. i just want an answer.. my health has been getting worse and worse and im afraid that if it is b12 which has been untreated for so long that it may have casued irreversable damage...
    help wanted,

    I doubt very much that b12 has anything to do with your real condition as problems with b12 are only symptoms of something else! (And I suspect your b12 levels are just fine!).

    Your symptoms are very common with people who have lyme's disease and, no, the candida is not a separate issue, it is a common symptom with lyme's patients. lyme's disease is in the UK...for starters they have found it in ticks in London's parks.

    I would hope that you would do an extensive search on the lyme's boards because I think you'll find a lot of company there.

    Best wishes.

    Last edited by bethsheba; 10-26-2008 at 10:02 AM. Reason: typos

     
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    Old 10-26-2008, 06:43 AM   #17
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    Re: Vitamin B12 deficiency and extremely tired - the injections don't help much

    bethsheba...

    why do you doubt i have b12 problems... when i have all the symptoms and m b12 level is too low!
    b12 doesnt have to be a symptom of something else does it? enough people on here have felt a lot better after treating the b12 and like i said all my other results were fine.
    i doubt very much its lyme disease and its very likely the candida came from all the anti bitoics i took as a child

     
    Old 10-26-2008, 06:50 AM   #18
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    Re: Vitamin B12 deficiency and extremely tired - the injections don't help much

    ive just read up on lyme disease and it really doesnt sound like me... and i doubt i could have it for 8 years..?

     
    Old 10-26-2008, 09:28 AM   #19
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    Re: Vitamin B12 deficiency and extremely tired - the injections don't help much

    Quote:
    Originally Posted by help wanted :( View Post
    ive just read up on lyme disease and it really doesnt sound like me... and i doubt i could have it for 8 years..?
    Some people have had lyme for more than a decade before it has reared its ugly head.

    I find it interesting that someone can spend less than two hours reading up on any one condition and determine that it doesn't sound like them...especially when infectious disease specialists and neurologists, despite years of education and experience, commonly misdiagnose lyme's disease and other illnesses.

    Last edited by bethsheba; 10-26-2008 at 10:01 AM.

     
    Old 10-26-2008, 09:30 AM   #20
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    Re: Vitamin B12 deficiency and extremely tired - the injections don't help much

    Quote:
    Originally Posted by help wanted :( View Post
    ...b12 doesnt have to be a symptom of something else does it?...
    Yes, it does.

    Last edited by bethsheba; 10-26-2008 at 10:01 AM.

     
    Old 10-26-2008, 10:04 AM   #21
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    Re: Vitamin B12 deficiency and extremely tired - the injections don't help much

    Hello help wanted!

    The tongue might feel sore after eatting spicy foods or look redder than usual,but some people will have a very pale tongue,gums and lips...it's different for each person.

    I would say it's safe to say you are not in peri-menopause...you're a bit too young for that....I was just wondering that's why I asked you.

    Your dr. was talking about you not having large red blood cells...the MCV on the labs..mine were fine too(in the middle of the normal range)so that is a mistake for your dr. to just go on that...it seems most drs. say the same thing....after all hematology is not their specialty.

    Low B12 is often mis-diagnosed as a "psychiatric" condition...you are not alone many of us have gone through the same thing as you.Is there any chance you can see a hematologist?You need those other tests,but if you can't get them then I would really just go buy the B12(liquid form...it's called sub~lingual B12)and see if you start feeling better..I'm sure you will!

    It's a real shame that drs. just dismiss low B12,but you have to take things into your own hands if you can't get the help from your dr.Maybe you could tell your dr. that you have a close relative that has a hidden (occult)B12 deficiency and that they said they had the same symptoms as you and their B12 level was almost the same as yours is now....that might help.Just say they had a high MMA level...sometimes you have to use "psychology"on the drs.(hahaha),but we all do what we need to do when it comes to our health!

    I feel so badly for you...I know because I went through the same things you are facing now.So don't give up...you have to be strong and persist 'til you geta dr. to listen to you.

    Post anytime...we are all here to help each other.I'm very concerned about you and I do hope you get in to see a hematologist soon or at least get your current dr. to order those other tests.

    Please take care

    Scout~

     
    Old 10-26-2008, 01:28 PM   #22
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    Re: Vitamin B12 deficiency and extremely tired - the injections don't help much

    bethsheba..
    infectious disease specialists and neurologists may have lots of experience and education, but they dont know my body or how ive felt for almost a decade, only i no that and all im saying is that from everything ive read my symtoms sound far more like b12 deficiency than lyme disease, and since i have a low b12 level anyway, i think thats a good bet. im not ruling out lyme disease, and maybe it is something i will persue if nothing turns up with the b12.

    scout..
    thankyou so much for your help and support.
    ik definelty going to push my doc for the tests this week and if not try and get her to refer me to a hemotologist.
    it may turn out that i dont have a hidden b12 deficiency, but i still need to know, its the top of my list at the moment and i match all the symtpoms. and even if i dont have it my b12 is still too low for my liking so ill be taking something to try and get that up.

    ill post if i get anywhere! thanks again

    Last edited by help wanted :(; 10-26-2008 at 01:29 PM.

     
    Old 10-26-2008, 01:54 PM   #23
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    Re: Vitamin B12 deficiency and extremely tired - the injections don't help much

    hi help wanted....your B12 is too low...I have been to several neurologists(including two from Rush University,Chicago Illinois) and they told me a healthy B12 level should be over 400.Yes there's a possibility you could lave Lyme Disease,but you could also have one or more of a zillion other health problems.

    Just don't get overwhelmed with thinking that you might have this or that.Your B12 is at the low end which is medically proven to cause neurological symptoms.My dr. said I was fine,but I wasn't so I went on my own to a hematologist and she said I wasn't fine.The B12 shots gave me back my health.I had all the tests to see what was causing the lower B12 and everything came out fine.The dr. then said it was most likely my diet.I have allergic bronchialasthma so I don't get a lot of dairy in my diet.My asthma symptoms went away after my B12 level went up.B12 is a Vital part of the central nervous system and when your level is low you start using the B12 that is stored in your liver.Alcohol,smoking,diet,IBS,fluctuati ons in hormones..these all can deplete your B12.

    Lyme is a very cruel disease,but so is cancer and a whole lot of other diseases.It's very difficult as we've heard to get a Lyme diagnosis,but you have to have been bitten by a tick and that's a fact.

    Just take it one step at a time....and starting with getting your B12 level up is a good place to start.

    Take care...I'm here for you Scout xx

     
    Old 10-26-2008, 04:19 PM   #24
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    Re: Vitamin B12 deficiency and extremely tired - the injections don't help much

    Quote:
    Originally Posted by help wanted :( View Post
    ...infectious disease specialists and neurologists may have lots of experience and education, but they dont know my body or how ive felt for almost a decade...
    Yes, that's true but 10 years is a long, long time to live with the symptoms you've described, without knowing what is wrong.

    Although stomach problems can cause vitamin b12 deficiencies (ie interfe with absorption), and some of your problems may be due to a vitamin b 12 deficiency, given the length of time your had these problems, and given the problems you've had, it sounds like something more is going on.

    Many conditions can cause the symptoms you're describing...I'm only telling you about one condition that you may wish to explore.

    I wish you well and hope you find a cure, and not just treatments for the symptoms.

    Take care!

     
    Old 10-27-2008, 03:29 AM   #25
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    Re: Vitamin B12 deficiency and extremely tired - the injections don't help much

    bethsheba, yeh thanks for that i will keep lymes in mind...
    i think theres something more going on too... but the trouble is my doctor thinks nothings going on becssue my labs were normal... she thinks its all down to IBS, anxiety and maybe chronic fatigue syndrome.
    now i no from what my stomach does to me that this is much more than IBS...
    and none of those conditions acoount for some of my symptoms... im just being ingored by the doctors and its being made out like its all in my head..
    thats why i have to explore every avenue that sounds plausable myself...

    im pretty covinced that candida is causing my stomach problems, and if i do have hidden b12 defic, then maybe thats contributing to them too... but ive had a candida test done privetly and the results came back with very high levels of candida in my body and my stool ph was too low therefor my body is too acidic... but again the doctors here wont treat candida becasue theres not enough evidence for it.. even my own doctor said, yeh it mite be candida causing some of your problems but i can treat you so go and get tested privatly.

    and i just really feel like theres something else going on aswell... i know candida can give you a foggy head etc but with the state of my head and nervous system i think theres somthing more. the reason i suspect b12 is becasue a lot of people have told me thats what it sounds like before, when ive posted asking for adive plus i fit most of the symptoms and my own b12 level is low... so i htink its more than fair to suspect it.

    i just dont know what else it could be...
    ive eliminated -
    ceoliac, lactose intolerance, allergies to mites/animal fur etc, thyroid (basic tests), full blood counts fine, ferretin is fine, h=pylori - negetive, liver functon - fine, glucose - fine, urine sample was clear, had an ultrasound of stomach/liver/pancreas etc and nothing was found, also had some blood tests for inflamation or something like that and that was normal..

    as you can see im trying to eliminate everything to try and get to the bottom of this... the only abnormal things have been the b12 and candida.

    does anyone have any more suggestions other than lymes of what my problems mite be?

    Last edited by help wanted :(; 10-27-2008 at 03:30 AM.

     
    Old 10-27-2008, 04:02 AM   #26
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    Re: Vitamin B12 deficiency and extremely tired - the injections don't help much

    Quote:
    Originally Posted by help wanted :( View Post
    ... im just being ingored by the doctors and its being made out like its all in my head..
    Well, we definitely know it is not all in your head!! How very frustrating it is to have doctors who ignore or who dismiss our symptoms and our concerns! And who are not honest with us about their lack of knowledge.

    Although you may not know what's causing the candida, there are some things you can do to help yourself...limit carbs and sugars, and eat yogurt with active cultures. This may be difficult as sometimes people crave sugars and carbs when the bacteria in our systems is out of balance. It may be helpful to look for more info on diet and candida.

    I'm going off the boards now as it is time I get back to my work.

    Take care, help wanted. I do hope you find the answers to your health, .

    Bethsheba

    Last edited by bethsheba; 10-27-2008 at 04:05 AM.

     
    Old 10-27-2008, 05:51 AM   #27
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    Re: Vitamin B12 deficiency and extremely tired - the injections don't help much

    hi guys..
    saw the doc today, a different one to normal and guess what... he completly dismissed the B12 issue! surprise surpirse... said 272 was fine and my MVC was well in range so it cant be the problem,i told him id spoken to people with b12 levels higher than mine who have been treated for low b12 or have been found to have a hidden deficiency - he started going on about how theres a whole big industry in america of giving people b12 injections just to make money.
    then i tackled candida... and he said not to belive it becasue theyve never actually seen candida in the gut in a colonoscopy or endoscopy.. its only ever in the mouth, vaginal thrush or in the asophugus... so he basically fobbed me off with candida being a fad as well.

    i am sick of getitng NOWHERE!
    it felt like a councelling session he just keot going on about my past, family events my anger towards my father etc and bascially said nothing about my health... but said a lot about chinese medicine and the conection between emotionl health and the 'chi'. so i think its safe to say he thinks its all in my head to.

    i gave him a list of symptoms and it semed like as soon as i looked at them he pretty much decided it was in my head.

    feels like im just meant to be ill, ill never be able to have my own life.

    he wants me to go back for another 'chat' next week.... in the mean time i was given more anti depressants and sent on my way... horay!

     
    Old 10-27-2008, 08:27 AM   #28
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    Re: Vitamin B12 deficiency and extremely tired - the injections don't help much

    hi help wanted...What A Nut that dr. sounds like!First of all did you mention how an MMA test will point to a hidden B12 deficiency????Next you said you have a high acid count in your body...so that right there is "evidence" ...because B12 neutralizes the acid in the body.

    Sorry I don't know what else to say except you need to see a Hematologist....and NO the medical industry is not trying to PUSH B12...that dr. is very ignorant and "out of his league"..was he a GP?Lt me tell you this>I would find a dr. to do the MMA,Homocysteine and folic acid tests for you and if they come up elevated I'd go talk to an attorney and file a misdiagnosis case against that dr.That's my opinion.

    So sorry you had to go through such humiliation from that dr.Oh yes and by the way you should have told him that the medical industry is PUSHING anti-depressants on everyone to make more money AND the drs. who hand them out are just too plain old lazy to investigate their patients symptoms.

    Don't give up.....try to find a dr. that will take your symptoms seriously..I'd call a hematologist's office and tell them you have a low end B12 level and your sister is a nurse and said you need to get those other tests(I know this sounds funny,but you need those other tests).Just ask them if they could ask the dr. if it would be a possibility that you have an "occult" B12 deficiency...that way it sounds like you are not telling them you know you have one,okay?

    I wish you well...post back....we're here for ya!Take care!

    Scout~

     
    Old 10-27-2008, 05:32 PM   #29
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    Re: Vitamin B12 deficiency and extremely tired - the injections don't help much

    hey scout,
    yes hes a GP. i tried to get out as much about the b12 as i could but he was just dismissing eveything and wasnt really making sense with what he was saying so it was hard to make a stand!

    it reallyt did feel more like a councelling session than a doctors appointment.. he kept pausing and looking at me and storking his chin like he was waiting for me to do something.. i felt like an animal in a zoo. he kept asking me how i felt and i said frustrated becasue im not getting anywhere and he said 'yo look upset' it was like he was trying too get a readtion out of me to prove im depressed. i know im depressed but thats becasue of the physical problems.. i dont no how many mor times i have to tell them that!

    as for the hemotologist...
    i really have no idea how i get to see one without getting refered by my GP here... i dont know if theres even a way for me to contact one.

    i was hoping that seeing a different doctor would bring up something new.. but they all just seem to be the same... im really losing hope!

     
    Old 10-28-2008, 10:51 AM   #30
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    Re: Vitamin B12 deficiency and extremely tired - the injections don't help much

    help wanted,i live in the uk ,my gp said the same to me that i dont need no treatment ,my b12 is or was 227 said my symptoms sounded like i have problems with my nerve endings so is sending me to see a neurologist,what level must we be befor doctors will take any notice why check b12 if they dont know what to do with it,how low must we go,i only hope the neuro will listern to me take care shirley

     
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