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  • Is Adrenal Insufficiency severe enough to warrant Short-Term Disability leave @ work?

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    Old 05-11-2008, 12:11 AM   #31
    orion
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    Re: Is Adrenal Insufficiency severe enough to warrant Short-Term Disability leave @ w

    Quote:
    Originally Posted by Cat2008 View Post
    Hi,
    I do think the psych problems are unrelated I have several endocrine disorders ...
    It has been shown that depression and low thyroid are related. Low growth hormone leads to self social isolation and a type of depression known as apathy. Low testosterone is associated with depression.

     
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    Old 05-12-2008, 07:57 AM   #32
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    Re: Is Adrenal Insufficiency severe enough to warrant Short-Term Disability leave @ w

    Quote:
    Originally Posted by TheAntiEndo View Post
    @Cat2008 -

    Was your job more of a manual / physical nature, scientific / research / development, or administrative / service related?

    I may still be able to physically move, but since my job is more mentally intensive, would I be eligible for Leave if I am unable to complete my job function because of interrupted memory / congative function / depressed mood caused by lowered cortisol and high ACTH, (did you know high ACTH has a direct effect on the CNS aside from stimulating the adrenals and can cause attention problems?)

    Hi,
    No my job is more mentally intensive, I work for an airline and manage and update (soley me) their website. I have to write html/javascript as well as design and produce animations and pdfs for our site.

    I joined on a Grad programme directly from uni and so have been here 12yrs now and have worked in several roles whilst on training. I am not cut-out for physical work as this is my expertise however I make up for physical by doing swimming / playing badminton...

    I am sorry that you are experiencing what you are. As mentioned I have the thyroid, parathyroid, adrenal, amongst other illnesses and have never experienced what you have. Even when my thyroid went underactive and was undiagnosed for 18months.

    I do hope you receive the appropriate tests and medication if required like mentioned in my other posts to you.

     
    Old 05-12-2008, 04:16 PM   #33
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    Re: Is Adrenal Insufficiency severe enough to warrant Short-Term Disability leave @ w

    Hi TheAntiEndo. Great screen name!

    I am very sorry you and your family are going through so much. I have Lyme disease and adrenal fatigue. I have had many of the symptoms you list.

    Have you ever had saliva testing done? This test checks cortisol and hormone levels at four different times of the day. I had mine done at ZRT Lab and it was very telling. It tests cortisol, testosterone, estrogen, progesterone, estradiol, and DHEA. Hormone deficiencies can cause many different symptoms.

    From what I understnad, some Lyme doctors believe Lyme can be sexually transmitted. Do you think it is possible you and your children could also have Lyme? Lyme disease can be passed through pregnancy and breastfeeding. Sometimes multiple family members are infected with Lyme because they are in the same areas at the same time as infected ticks are.

    Is your wife being treated by a Lyme knowledgeable doctor? Has she been tested for the co-infections ticks can transmit: Babesiosis, both types of Ehrlichiosis (HME & HGE), Bartonella, and Mycoplasma? This is important. Many people who have Lyme are co-infected. If you need a doctor recommendation, let me know.

    I think the symptoms of both adrenal fatigue and Lyme can be severe enough for someone to be unable to work. There are different levels of adrenal fatigue.

    If you have not had the saliva testing done, I highly recommend it. Sometimes it is better to see a doctor who is not an endo. They are often more open. To find a doctor in your area who may be familiar with adrenal fatigue, try calling compounding pharmacies. Doctors knowledgeable about hormone deficiencies often use these pharmacies.

    Do not give up! You know when something is wrong. Keep at it, you will get answers.

    Last edited by ticker; 05-12-2008 at 08:33 PM.

     
    Old 05-13-2008, 11:02 AM   #34
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    Re: Is Adrenal Insufficiency severe enough to warrant Short-Term Disability leave @ w

    My ACTH varies from 1685 to 1801... darn... no wonder I cannot concentrate....

     
    Old 05-13-2008, 09:14 PM   #35
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    Re: Is Adrenal Insufficiency severe enough to warrant Short-Term Disability leave @ w

    ticker -

    I've already had a saliva test done @ Diagnos-Techs. Showed "flattened" rhythm where the morning was 1/2 as low as the minimum, but the midnight was about the same level as the morning but "Elevated" for that timeframe. DHEA was a 9 (of 10), T was low, E2 was high, Prog was ok; bloodwork confirmed DHEAs was high, T was borderline low, yet E2 was found to be ok.

    I had a Western Blot done a year or so ago, and it was completely normal, (not like the wife or kids results that were Positive). Wife had a co-infection panel done, but I haven't.

    We see a Lyme Doc that used to be one of the premier AIDS Docs in the Southern States that has moved on to Lyme treatment. Wife had been treated for several years, and she's now down to a "Maintenance Dose" of Antibiotics. Now, we're trying to get her Thyroid problem treated, (and that's a whole different struggle to get the amount of meds her body needs and not just what the Labs say).

    Every time I bring up the Adrenal problems to a Doc, they just keep tossing me over to the Endo's, (who just keep saying the same things and keep ignoring the saliva tests and obvious symptoms). I'll try a few compounding pharmacies and see if they have any clues.

    My body keeps getting worse and worse. Problem is, I can still move, and can (sometimes) still get up out of bed in the morning. It's hard to tell if my symptoms are just "normal" and I'm just being "weak", or if there is something really wrong that needs to be resolved before it gives up completely. Docs are so prone to think strange physical problems are psychological and toss you some anti-depressants, but I've been that route - and that ain't it.

    Quote:
    Originally Posted by rumpled View Post
    My ACTH varies from 1685 to 1801... darn... no wonder I cannot concentrate....
    Check out PubMed, and do a search for "ACTH attention". Here's one to start you off on:

    [url]http://www.ncbi.nlm.nih.gov/pubmed/3024062?ordinalpos=23[/url]

    Last edited by TheAntiEndo; 05-13-2008 at 09:17 PM.

     
    Old 05-14-2008, 10:10 AM   #36
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    Re: Is Adrenal Insufficiency severe enough to warrant Short-Term Disability leave @ w

    A loss of diurnal rhythm is actually a bad thing... that is more pointing, however, in my studies, to cyclical cushing's. At least, when I was testing for that, one of my best endos looked for the loss of the rhythm is something that he looked for if there were no distinctive highs or lows. I felt like crud for years (as you do) yet all my tests were normal but my tests showed a loss of change from morning to night.

    My posts are repetitive in saying how the body goes up and down (hence why I am not a fan of long acting steroids) so your loss would keep you in a low state which would feel like crud but I was having high nights (sleep studies showed I never went into REM) and low days... and over the years, it destroyed my health all while my tests looked pretty normal.

    Oh I had 4 AIDS tests... my healing was so bad that and my immune system so impaired that the docs kept thinking it had to be that so I kept humoring them and took the test over and over until the AIDS specialist they finally sent me to laughed and said... I have AIDS patients who heal better than you - I have no idea what is wrong with you but you can stop the HIV testing now.

    Thanks for the link!

     
    Old 05-14-2008, 05:55 PM   #37
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    Re: Is Adrenal Insufficiency severe enough to warrant Short-Term Disability leave @ w

    Howdy all!,
    This is my first time on. I have only had a pm cortisol done and it was at 1.4. The hospital thought it was an error that the Doctor wanted am and pm levels ran. I have been working half days for a month now because I am so ran down. I had my first Endo appt today and go tomorrow morning for ACTH test. Can anyone tell me what to expect tomorrow for results? The Endo today made me feel like I don't have really anything wrong except maybe an extremely low Vitamin D that was taken care of over a year ago. I'm a little frustrated now that I'm second guessing what's wrong with myself....I was excited to finally know what has been plaguing me for a few years and now I am pretty frustrated...Answers anyone?

    I also like the AntiEndo name..some people are so creative.

    signed, ServantMarie21

     
    Old 05-14-2008, 08:02 PM   #38
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    Re: Is Adrenal Insufficiency severe enough to warrant Short-Term Disability leave @ w

    ServantMarie21 -

    I probably won't be the only (just the first) to suggest you get a Saliva Cortisol 24-hour test. That, combined with the ACTH Stim test will give you, (although maybe not your Endo), a lot of information about your adrenals.

    I'm not really sure what I can tell you about what to expect for "results", (or what you're referring to). If you want to know about the test itself, it's a pretty simple procedure. Blood draw #1, inject synthetic ACTH, wait 30 minutes, blood draw #2, wait 30 minutes, blood draw #3. That's about it. It feels a little weird after a while b/c your Adrenals are faked into thinking you are under stress and need a heavy order of Cortisol. Depending on the lab doing to test, anything with a Cortisol reading of under 20 at the 30/60 minute draws needs more attention.

    I had one done a month or so ago. It wasn't done in the morning, but I've read a research study done saying it doesn't really matter what time of day the study was done - it should still reach 20 in "Normal" functioning adrenals.

    (Mine was 12 @ the 30 minute draw, and 15 @ the 60 minute draw. The Endo didn't like those numbers, so for some reason he's doing it again in early June).

    Make sure you don't just let the Doc tell you it was "Normal" or "Abnormal". Make sure you get a copy of the numbers, and see if anyone here has anything to say about them.

    There are a lot of good folks who have been down this road a while, and some (like myself) who seem to have been on the road a good bit but nobody told them they were on it and are trying to find something that remotely looks like a street sign to they can get their bearings. Ask all the questions you need - you will probably get more than a few good answers.

    (And sadly, you aren't the first/last one to get frustrated at the Endo industry. Blindly following generally accepted Endo guidelines at the expense of a patient's health and loss of quality-of-life is no excuse, but seems to be the norm.)

    Last edited by TheAntiEndo; 05-14-2008 at 08:09 PM.

     
    Old 08-31-2008, 03:51 PM   #39
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    Re: Is Adrenal Insufficiency severe enough to warrant Short-Term Disability leave @ w

    Hi ! I saw your post and was curious on what your symptoms were? I began reading this post and he described MY symptoms to a T but he is a man...and you are a woman so I am wondering what this is and can BOTH sexes have it? I do not have kids like the 2 of you but I was told by my endo that infertility, the lack of libido and all is tied to an adrenal problem ?and he wants to have me do a Cortysn test? ( I had to fill the rx as my pharamacy...it is a vial with a white substance in it) and they said they would inject it in me and then test me a 1/2 hour later and then see the results then and take it from there.....my symptoms are extremely tired....attention problems...breast discharge from right breast(gallachtoriha but ruled out cancer..however continue to have a BLUE discharge from right breast...going on 9 years now)...NEVER have been pregnant and not all that careful either... I have had an MRI done of my pituitary gland, no tumors.. all my other thyroid levels are fine just not the 17 hydroxytestosterone which is quite high he says at 791...have had it tested 3 times, 1st time 590, 2nd 719 and now 791 ...any insight? My endo did say I have Hashimoto's disease because he felt a goiter in myy neck and i am on 88 Levoxyl to keep it down so I can swallow....which just reminded me that I have SEVERE night sweats ( even during my afternoon naps...) Any insight?

     
    Old 09-01-2008, 04:32 AM   #40
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    Re: Is Adrenal Insufficiency severe enough to warrant Short-Term Disability leave @ w

    Forget short term leave from work. In 38 states that is ground for complete disability.

     
    Old 09-01-2008, 04:38 AM   #41
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    Re: Is Adrenal Insufficiency severe enough to warrant Short-Term Disability leave @ w

    In other words if you want, so little is known about the disease. You can collect disabled Social Security.

     
    Old 11-04-2008, 07:55 PM   #42
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    Re: Is Adrenal Insufficiency severe enough to warrant Short-Term Disability leave @ w

    chris14, Hey Bro, Can you tell me if Ca. is one of those states? I've been living with Addisons for 23 yrs. I'm 46 now, Working full time and getting sick often. To say I can not work anymore is a very hard decision for me right now. It's weighing very heavy on my mind latey. Being a man and a US Marine it's hard to say when. I know how it sounds, but thats how I truely fill. My Wife is behind me 100% on any decision I make, but still a hard decision. Tell what you think.
    Thanks, chargonzo

     
    Old 11-06-2008, 09:47 PM   #43
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    Re: Is Adrenal Insufficiency severe enough to warrant Short-Term Disability leave @ w

    Quote:
    Originally Posted by Cat2008 View Post
    Hi,
    The reason I ask is because I have APECED which is a collection of endocrine disorders and so I have Addison's Disease, Hypothyroidism, Hypoparathyroidism, thin bones, Diabetes - low blood sugar, enamel dysplasia, candidiasis, and nail dystrophy.

    I am 33yrs old and got Addison's Disease when I was 11years old. I live by myself, with my two children aged 11yrs and 4years and work full time in a very stressful job. I can't do much sports however I find swimming is very benficial and stress relieveing.

    What medication/dosage are you on because this would impact upon how you feel - palpatations and lethargy. Addison's Disease is not curable however with the correct medication you can lead a relatively normal and healthy life. I have a positive outlook as a result because what is the point in dwelling on things that won't go away. I don't smoke either, I drink socially, eat healthily and I too have credit card bills and a hefty mortgage however it is this that motivates me to go to work and do things because they won't go away.

    I have had about 10 Adrenal Crisis and have ended up in the emergency department however I have always recovered.

    I do think it is to do with the doses and medication yoou are on. If you got this sorted I'm sure you would feel alot better. I'm not a medical person however can speak from my own experience.
    I realize this is an old post but I wanted to jump in and say I am 23, I have Addisons, hypoparathyroidism, hypothyroidism, and am at a high risk for diabtes and have my a1c checked monthly!

    I am currently 5 months pregnant and in nursing school and am able to handle the stress of everything. I do my best to not let all of my disease hinder me from doing what I want, sure I have to take it easy more often than most but thats about it!
    __________________
    Polyglandular Autoimmune Syndrome
    Addison's Disease
    Hypoparathyroidism
    Hashimoto's

     
    Old 12-28-2008, 12:51 AM   #44
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    Re: Is Adrenal Insufficiency severe enough to warrant Short-Term Disability leave @ w

    I have the same blueish discharge from my right breast. It's been about 13 years for me. I'm glad someone else has it also. Whew.

     
    Old 12-31-2008, 01:54 PM   #45
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    Re: Is Adrenal Insufficiency severe enough to warrant Short-Term Disability leave @ w

    Wow Antiendo,
    your problem is identical to mine. I am a Police Officer and have suffered from evrything you listed for twi years. No one has been able to help me.

     
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