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    Old 01-22-2009, 02:21 AM   #1
    wissa
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    Smile annoying feet problems with ms

    Hi everyone!
    this is my first time on message board, so please excuse if I don't quite get this right.

    I am looking for anyone that can share their experiences with feet tingling etc when you have ms.

    I get annoyed and frustrated trying to work out if it is indeed related to ms or something else.

    Symptons are they both, right more than left, have a continues tingling even at night when in bed or sitting in recliner chair. Its not painful just an annoying irritating tingle. An often inbetween the big toe its worse.
    Its very hard to explain to the neurologist so I guess have other people explain what they have may show some similarities.

     
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    Old 01-22-2009, 07:07 AM   #2
    MSJayhawk
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    Re: annoying feet problems with ms

    Welcome to the board. Do you have MS? Tingling feet can be a harbinger for a multitude of possible problems- MS is just one possibility. Do you have circulatory problems or diabetes or a family history of either of them?

    When my feet tingle the most, it is usually when they are too warm. Do your feet tingle all the time or is it temperature related? When you are standing, do you get the same tingling feeling?

    Test different methods to determine the possible triggers, this can help your doctor determine a diagnosis quicker.

     
    Old 01-22-2009, 10:37 AM   #3
    popstarrdiva
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    Re: annoying feet problems with ms

    Hi there;
    Welcome! I am in the limbo stage. I do for sure though have RSD/CRPS (Reflex Sympathetic Dystrophy/ Complex Regional Pain Syndrome) I know that people with MS can have burning, tingling sensations in their feet, but did you ever hurt yourself before it started? Bump your toe, bruise yourself sprain your foot? RSD can come on from the smallest thing and it is uncurable. Not saying that this IS what you have, but just to be aware of it. Dr Shulman in California did a study that suggestd that people with MS have a higher chance of developing this than the general public. I am just trying to get the word out there so people know.
    Take care

     
    Old 01-22-2009, 03:41 PM   #4
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    Re: annoying feet problems with ms

    Welcome, Wissa. Feet tingling is one of the many sensory symptoms I have--almost all of my MS problems are sensory. I'm not sure if you have MS, but even if you do, it may be wise to make sure you have no circulatory problems.

    My feet, and other parts of my body, start to tingle really bad when I'm extremely exhausted, stressed out, or really hot. Once you figure out what triggers these feelings, you can attempt to avoid them. It's easier said than done, but I just do my best. Sometimes 12 hours of sleep will get rid of all my funky sensory symptoms.
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    Old 01-22-2009, 07:13 PM   #5
    jrsygirl
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    Re: annoying feet problems with ms

    I was diagnosed 2 months ago. All of my MS symptoms arte sensory. The majority is in my feet. THey tingle and buzz all day. It comes and goes from severe to very minor. It's worse when I am tired or on my feet alot at work. My MS attack started with waking up one morning feeling like I was walking on glass and pins and needles feeling in my feet. Sometimes the buzzing feeling in my feet goes up my legs. My neuro told me when the attack passes that some of these feelings might still remain.

     
    Old 01-23-2009, 02:54 AM   #6
    wissa
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    Re: annoying feet problems with ms

    Quote:
    Originally Posted by jrsygirl View Post
    I was diagnosed 2 months ago. All of my MS symptoms arte sensory. The majority is in my feet. THey tingle and buzz all day. It comes and goes from severe to very minor. It's worse when I am tired or on my feet alot at work. My MS attack started with waking up one morning feeling like I was walking on glass and pins and needles feeling in my feet. Sometimes the buzzing feeling in my feet goes up my legs. My neuro told me when the attack passes that some of these feelings might still remain.
    Thank you so much for replying, its certainly nice to hear others views and makes me feel a little less like I am going crazy. I was diagnosed 21 years after the birth of my second daughter and have mainly the sensory symptons but my feet are now an ongoing thing on a daily basis. Its very hard to explain symptons to a Neuro what you can feel and they can't see!!

    Quote:
    Originally Posted by april1848 View Post
    Welcome, Wissa. Feet tingling is one of the many sensory symptoms I have--almost all of my MS problems are sensory. I'm not sure if you have MS, but even if you do, it may be wise to make sure you have no circulatory problems.

    My feet, and other parts of my body, start to tingle really bad when I'm extremely exhausted, stressed out, or really hot. Once you figure out what triggers these feelings, you can attempt to avoid them. It's easier said than done, but I just do my best. Sometimes 12 hours of sleep will get rid of all my funky sensory symptoms.
    Thank you for your reply, yes as you can read above I have had MS for a while now. The tingling is definately associated with the heat and often I am throwing my feet in an out of the bed to try to cool down. My Neuro has put me on 1 tablet a day of Tegretol, have you had anything as such.

    Quote:
    Originally Posted by popstarrdiva View Post
    Hi there;
    Welcome! I am in the limbo stage. I do for sure though have RSD/CRPS (Reflex Sympathetic Dystrophy/ Complex Regional Pain Syndrome) I know that people with MS can have burning, tingling sensations in their feet, but did you ever hurt yourself before it started? Bump your toe, bruise yourself sprain your foot? RSD can come on from the smallest thing and it is uncurable. Not saying that this IS what you have, but just to be aware of it. Dr Shulman in California did a study that suggestd that people with MS have a higher chance of developing this than the general public. I am just trying to get the word out there so people know.
    Take care
    Nice to hear your thoughts, sometimes I feel that maybe its easier to put the symptons to MS rather than looking further, but from what I have read from this site and others there is certainly a pattern of MS sympton

    Quote:
    Originally Posted by MSJayhawk View Post
    Welcome to the board. Do you have MS? Tingling feet can be a harbinger for a multitude of possible problems- MS is just one possibility. Do you have circulatory problems or diabetes or a family history of either of them?

    When my feet tingle the most, it is usually when they are too warm. Do your feet tingle all the time or is it temperature related? When you are standing, do you get the same tingling feeling?

    Test different methods to determine the possible triggers, this can help your doctor determine a diagnosis quicker.
    Thank you for my Welcome to the board, yes temperature is definately a trigger, I have been known to sit with my feet in a bucket of cold water to stop the tingle out of frustration, it lasts for a while and then returns and yes when I am standing I still feel the tingles, its a real nuisance!!!

     
    Old 01-28-2009, 03:52 PM   #7
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    Re: annoying feet problems with ms

    Hey,

    I am a 3 yr RSD'er but about 1 year ago I got the numbness, tingling, and soreness (to the point that someone would hand me something and I would drop it) also but have never been told it was anything. They did do some CT's and MRI's but only found a benign tumor (cholesteloma Granuloma?? 15mm) and some spine dessicration and disc bulging but said that this has nothing at all with the numbness in all extremities. I have see a number of specialist and quite frankly I think they don't believe me. The tingleing has progressed to complete body pain, soreness and exaustion. Do you have any of these symptoms?? Or er, any Ideas??????????????

    Last edited by nasta25; 01-28-2009 at 03:54 PM.

     
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