It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board

  • Finding Best MD for RSD/CRPS, SGB Relief, Meds

  • Post New Thread   Closed Thread
    Thread Tools Search this Thread
    Old 05-19-2009, 07:07 PM   #1
    PrazB2JC
    Newbie
    (female)
     
    PrazB2JC's Avatar
     
    Join Date: May 2009
    Location: USA
    Posts: 2
    PrazB2JC HB User
    Finding Best MD for RSD/CRPS, SGB Relief, Meds


    I, too, have RSD/CRPS. Started in right hand after carpal tunnel surgery. Spread up arm into shoulder and lower neck. Migrated to left hand and spread to match the right. I saw countless doctors in and out of state. No help, in fact, some said I needed psychiatric help! I'm sure many of you can relate. My opinion, only after trial and error treatments, meds, etc., is that I have no faith in rheumatologists, family MDs, or orthopods. RSD is NOT their specialty, nor do most know the signs/symptoms/severe pain involved with RSD. My neurologist diagnosed and sent me to a pain clinic. Terrible experience as they wanted to perform a block on the day of my initial exam!!! I refused and went home to research the MD who was to have performed the procedure. To my horror, I found MANY complaints of various types, comments from very unhappy patients, and a couple of pending lawsuits! Finally, I took my care into my own hands, found a reputable pain clinic, and double-checked each physician's bio, background, history at that clinic. I chose the anesthsiologist who had performed the most SGB (Stellate Ganglion Blocks) and read patient blogs about their success rates. After a very lengthy consultation, we decided on the SGB's. The first three blocks worked for a couple months each. Fourth didn't work at all. Fifth, and I'm pleased to say last, injection was in February of 2009 and I'm in remission bilaterally. Praise The Lord! Will my pain-free state last? Maybe, maybe not. My point is for those of you with, or think you may have, RSD/CRPS, please check out the following BEFORE you go any further in your quest for answers and help:

    1) See an anesthesiologist at a reputable pain clinic FIRST for a correct diagnosis.
    2) Research the physician's background and ask him/her how many procedures they've done regarding RSD treatment(s); ask about all options.
    3) Do not be afraid to try blocks or other procedures if you're working with an RSD-qualified physician. I was given the option, if the SGBs didn't work, to get Lidocaine infusions in both arms.
    4) Beware of the side effects of ALL medication(s) prescribed; some are actually worse than the pain you're in!
    5) See a psychiatrist (best thing I ever did) and they can coordinate your pain management and treatment with your anesthesiologist. My psychiatrist is very well versed in RSD/CRPS and communicates on a regular basis with with my pain clinic/physician.

    God Bless You & Good Luck!

     
    Sponsors Lightbulb
       
    Old 05-20-2009, 05:49 PM   #2
    sharon1030
    Senior Veteran
    (female)
     
    sharon1030's Avatar
     
    Join Date: May 2002
    Location: NY
    Posts: 3,176
    sharon1030 HB User
    Smile Re: Finding Best MD for RSD/CRPS, SGB Relief, Meds

    Hi and welcome to the board. You've given some great advice. Congrats on the remission. I hope it stays that way for the rest of your life!

    Sharon

     
    Closed Thread

    Related Topics
    Thread Thread Starter Board Replies Last Post
    Crps into remission and back again Guysgal Reflex Sympathetic Dystrophy (RSD) (CRPS) 5 10-29-2012 09:26 AM
    Cold CRPS plus xaviermlm Reflex Sympathetic Dystrophy (RSD) (CRPS) 21 12-08-2010 02:03 PM
    Crps? afadave2 Reflex Sympathetic Dystrophy (RSD) (CRPS) 7 12-08-2010 01:58 PM
    Oh no....I lost my pain meds.... schao Pain Management 27 04-28-2010 09:23 AM
    RSD / CRPS I or CRPS II lcheyne Reflex Sympathetic Dystrophy (RSD) (CRPS) 12 07-08-2002 07:23 AM




    Thread Tools Search this Thread
    Search this Thread:

    Advanced Search

    Posting Rules
    You may not post new threads
    You may not post replies
    You may not post attachments
    You may not edit your posts

    BB code is On
    Smilies are On
    [IMG] code is Off
    HTML code is Off
    Trackbacks are Off
    Pingbacks are Off
    Refbacks are Off




    Sign Up Today!

    Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

    I want my free account

    All times are GMT -7. The time now is 07:46 PM.





    © 2020 MH Sub I, LLC dba Internet Brands. All rights reserved.
    Do not copy or redistribute in any form!