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    Old 03-12-2009, 10:25 PM   #1
    peanutsaunt916
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    Arrow Sinus Tachycardia / PAC's & PVC's Support

    I can't find any support groups out there for people with Sinus Tachycardia / PAC's & PVC's....

    I am 28, I wish there was a cure for this, I don't like taking meds but I decided to start taking Bystolic (only med that doesn't make me more tired than I already feel) since it seems to have gotten worse. I feel so fatigued most all the time, especially in the morning.

    Hoping to start a thread here, having people to talk to with the same issues, would be great.

    Last edited by peanutsaunt916; 03-12-2009 at 10:34 PM.

     
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    Old 03-13-2009, 02:47 PM   #2
    sam78
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    Re: Sinus Tachycardia / PAC's & PVC's Support

    there are many many threads on here about inappropriate sinus tachycardia. you might search it read through some of them.

    Also I sent you a private message with a website for a support group.

    Last edited by sam78; 03-13-2009 at 02:51 PM.

     
    Old 03-14-2009, 10:26 PM   #3
    laserred02
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    Re: Sinus Tachycardia / PAC's & PVC's Support

    I am 25 and I have PVCs/PACs and they are driving me crazy. I have had a full cardio workup: blood tests, echocardiogram, event monitor, holter monitor, and the cardiologist tells me not to worry. However, lately I have been getting more than one PVC in a row, or at least that is what it feels like. The doctor still says I'm fine, but of course I worry. Anyway, I just wanted to let you know you aren't the only one that is young and has this condition. Everyone says it is benign, but the feeling is anything but. I hope knowing there are a lot of other people dealing with this will help you, I know it has helped me.

    Take care,
    Pat

     
    Old 03-21-2009, 05:21 PM   #4
    sunnydeeelite
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    Re: Sinus Tachycardia / PAC's & PVC's Support

    I can't believe I found a board where people are actually currently posting. Everything else seems to be a few years old!

    I too have suffered from PVC's since I was around 17. I'm 39. Now, my daughter is suffering from them, she's 18. About a month ago, they hit her like a train with no brakes. They lasted a few days, then happened only a few times a day that she could feel. Then, a few days ago, she began feeling 3-4 in a row, some every other minute, some a few every hour, but frequently.
    I took her to the doctor, they did an EKG, and he said it was depression.
    He said if they kept coming back, or more frequently, we could do a Holter monitor. So, we went back on Friday. He AGAIN said that we would be wasting money if we ordered expensive tests, that her problem was stress and depression. I almost had an episode of TACH right there. And, I won't even go into the problems I'm having with a cardiologist who charges me $75 a visit for MY problems. They did no blood work ups, I had to demand they do blood tests to check her thyroid, potassium levels and electrolytes.
    We'll see what happens when the results come back. In the meantime, I'm taking her to a cardiologist and getting a second opinion.

    At this point she is trying not to allow it to debilitate her. She's out with friends right now and trying to keep her mind off the fact that they are happening so frequently and yet she's supposed to believe that is normal, suddenly.


    Mine started with PVCs. Then, later in life, I had episodes of racing heart, especially at night in my sleep (which awakens me). Was diagnosed with Mitral Valve Prolapse. Had panic attacks. Started taking Paxil, they helped, but still had tachycardia. Stress seemed to trigger it sometimes, but sometimes not! I went from 2000-2006 with NO racing heart, maybe a few pvcs, then BAM, in 2006, it hit me again. Now, it's everyday! In the last two days I have also had many pvcs. Seems this might be hereditary. I had always felt comfort that my daughter never had problems, that it might have skipped her. Now I am devastated, and my symptoms have become worse.

    All I can say to you guys is that I have been having these for over 20 years and I am still here. Had I know I would live this long, I wouldn't have spent (WASTED) so much time worrying and thinking every day was my last! I developed horrible anxiety over this, I was not able to leave my house for awhile! And of COURSE, now I am thinking, "Okay, it was benign all those years, now it's progressed and I really AM going to die!" but no, I wake up every day. I was sent to the hospital in Dec. with a heart rate of 180. They wanted to give me a drug to stop my heart and get it back into a normal rhythm. Of course, at the time, the paramedics said it would make me feel a little weird but bring it down. I said NO WAY! I'm glad I did, the ER doc said it was SVT and that I could have sustained that for a little while. He also said that they usually try to hydrate to bring it down first.
    Just last night I woke up with the TACH and had to massage the artery in my neck and burp to get it to slow down. Typically I would be holding my chest like Fred Sanford, saying, "Elizabeth I'm COMING TO JOIN YA!" with my hubby going, "BABY, CALM DOWN! OH MY GOD, PLEASE!" scared to death himself.
    But I have learned now to remain CALM, as getting upset WORSENS IT. Even the PVCs. STOP THINKING ABOUT THEM! Thinking about them will not save you. Obsessing will not help you at all. It will take valuable time from you.
    Of course, I say this but I am the worst. I am working on it though.
    OH, also, they put me on a beta blocker (generic Toprol) and it made my blood pressure go dangerously low (because I am again on Paxil and you are NOT suppose to take those two together unless under close supervision!) so they took me off. It didn't help me anyway.

    I have noticed that the following things truly have helped me.

    EXERCISE, even just a brisk walk in the sun for 10 minutes!
    Multi Vitamins
    Stress management (******* has alot of GREAT relaxation videos!)
    No heavy meals! Light meals all day, and eat RIGHT! Bananas especially!
    No tight clothing
    Breathing with diaphragm, not upper chest
    Go to bed at the same time, get up at the same time, everyday! Getting TOO MUCH SLEEP makes me have more pvcs!
    No alcohol
    No caffeine!
    No chocolate

    I hope I can help someone here. Just remember you are not alone, and you WONT die from this.

     
    Old 04-13-2009, 12:49 PM   #5
    cucci
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    Re: Sinus Tachycardia / PAC's & PVC's Support

    I know what you're going through. I have SVT with 2 failed ablations. I was on digitalis and the maximun dose of toprol & still had break through episodes. I stopped all meds & live with this day & night.

     
    Old 04-30-2009, 09:41 AM   #6
    meg1550
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    Re: Sinus Tachycardia / PAC's & PVC's Support

    I started experiencing PVC's about two years ago when I was 21... they literally came out of nowhere and were happening 3-4 times per minute for about a week straight. I went to the doctor... had an EKG - normal, ECHO - normal, lab work - normal... wouldn't you know it that my syptoms would disappear exactly when I'd want them to act up! We finally did a 24-hour Holter which showed my doctor that I wasn't crazy and was indeed experiencing PVC's. I started taking propanolol but had to stop after about a week... I was so tired and lethargic that I was scared to drive my car. Luckily the medicine, for even a short amount of time, seemed to have pushed Reset on my heart and my rhythm was normal up until a few months ago. I would still experience palps every once in a while. Some weeks were great, but somedays would be worse than others. Several weeks ago had a bad "episode". My heart was racing erratically, I nearly blacked out, and I tasted metal in my mouth... I had two of these episodes and they each lasted about 30 seconds. My coworkers called an ambulance, I had the same run of tests performed, and wouldn't you know it... nothing showed up! I had another Holter, this one for 48 hours. My results came back showing I was experiencing PAC's this time. Has anyone else experienced anything like this... or had their PVC's turn to PAC's? It's so nice to hear from other people who are going through this... sometimes I start to feel really crazy, because for as "common" as these are, I don't know anyone else who experiences this! Good luck to everyone! Also, does anyone have any thoughts on palps being related to food or diet?... I have acid reflux pretty persistently... any relation?

     
    Old 05-02-2009, 05:51 PM   #7
    hyper35
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    Re: Sinus Tachycardia / PAC's & PVC's Support

    Meg,

    Your not alone. I have the same symptoms and fears. I had every test thats possible and also an ablation attempt with no difference. I struggle with these PVC/PAC's daily.
    I have had them for many years. Just know your not alone and there is actually others who truly understand how you feel. Good Luck

     
    Old 05-14-2009, 07:01 AM   #8
    sunnydeeelite
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    Re: Sinus Tachycardia / PAC's & PVC's Support

    YES, tachycardia can be related to reflux. I just saw an Upper GI doctor who told me that. From what he told me, a lot of people with irritable bowel syndrome have reflux and it irritates the nerves surrounding the heart and sometimes puts it into abnormal rhythm. Not everyone who has reflux gets this, but if you are prone to irritable bowel (which is mostly caused by a hyperactive nervous system!) this can happen. My symptoms are mostly racing heart (up to 180) and it seems to come frequently with reflux and stomach upset. I went off Paxil for a little over a month, then went back to a higher dose and my symptoms went away. My stomach immediately felt better, and the tachycardia during the day stopped. There is more serotonin in your stomach than anywhere else in your body. Sometimes when you have an serotonin imbalance, your stomach can get upset first, then it makes your heart race (mine especially after a huge meal, so now I eat small ones) then comes the anxiety, etc..... it's a vicious cycle.

     
    Old 05-19-2009, 09:25 AM   #9
    tamlis
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    Re: Sinus Tachycardia / PAC's & PVC's Support

    I have suffered with this off and on ever since my 20's and I'm in my 50's now. I was taking Inderal which was helping but was making my heart rate to low and having trouble breathing. So my doctor took me completely off and put me on a cardiac event monitor that I have to wear for 30 days and sure enough my tachy was back. Anytime I do anything it will jump up to 120-130 beats or more and sometimes I will just be sitting. When it happens I get a flipping sensation in chest and it will take off pounding and racing. I get out of breath and weak and can do nothing until an episode passes . It will wake me up in the middle of the night and also is triggered alot by eating. My heart pounds so hard my chest hurts bad and I feel like crap. When it gets really high I feel like Im going to throw up, my chest hurts and arm, I feel like I'm going to pass out and I can't breathe. Lately this has happened almost every day...(I still have tachy every day altho sometimes not as bad as other times)

    Are there any other meds besides Inderal (or Bystolic my insurance makes me pay a outrageous price for this)?

    Yes, I would love to know of a support group online as well. Thanks for starting this thread

    Last edited by tamlis; 05-19-2009 at 09:44 AM.

     
    Old 05-20-2009, 06:49 AM   #10
    ACE28
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    Re: Sinus Tachycardia / PAC's & PVC's Support

    Bystolic is probably the best of the bunch when it comes to energy levels.
    The first month or so you may get side effects while you adjust to the med.
    Heart rate control with Bystolic is great even at a dose of 2.5 mg a day. If you are taking 5mg a day you can split the tablet with a pill splitter and try 2.5 mg a day. The heart rate at 2.5 will soon adjust to the same as the 5mg. dose. This can save you some money.

     
    Old 05-20-2009, 07:42 AM   #11
    sunnydeeelite
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    Re: Sinus Tachycardia / PAC's & PVC's Support

    I get the same feelings of weakness, Tamlis. It sounds like you are having the same symptoms as me. Have you ever been treated for reflux or irritable bowel? I've noticed when I'm not anxious and my stomach isn't reacting to the stress, I don't have the heart symptoms. But when I do, I get chest and stomach pain, feel like I'm going to throw up and my stomach feels full. Eating small meals all day has helped this. Tachycardia isn't always caused by misfiring in the heart. It can be caused by hormones and chemicals in the body as a normal reaction to stress. Mine has woken me up at night as well, near the 200's. My stomach will be hurting, I will drink cold water, burp and it goes down. Have they told you where this is coming from? It it truly coming from the sinus node? It is so unsettling, I know. Have they treated you for anxiety? Sometimes when you treat the underlying cause, you get rid of the symptoms.
    You are not alone. We need some type of support network, where we can call on others when we have these attacks to help calm us down. I have been to the ER 4 times in the last 2 years. Each time my high hr came down on it's own (it was up to 180) and I could have saved a lot of money by staying home. But, you never know with this so better safe than sorry.

     
    Old 05-20-2009, 07:26 PM   #12
    jamescott
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    Re: Sinus Tachycardia / PAC's & PVC's Support

    Glad you found the board. I have been here on a semi-regular basis since December 2008 which is when my PVC episodes began. There are many of us who suffer from these supposedly benign occurences.

    I do the same as many before have mentioned - reduce stress, eat right, exercise, etc. I find I have more instances when I eat a heavy meal, particularly spicy foods, or drink alcohol. I usually "behave" but sometimes I cave in and eat what I shouldn't, drink a few beers and then suffer the consequences with multiple PVCs all night. I'm actually learning to cope because there are a lot of worse ailments one could have.

     
    Old 05-21-2009, 06:21 AM   #13
    sunnydeeelite
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    Re: Sinus Tachycardia / PAC's & PVC's Support

    I have had PVCs since I was a teenager. They are totally different than the bouts of racing heart that I get. Some things I have noticed is that I get one when I raise my arms above my head, when I strain to pick something up, when I'm stressed, when I've been dehydrated and when I've drank a lot of caffeine. I don't drink that anymore. I'm starting to wonder if this happens because the heart is affected physically, like with an enlarged stomach (could it be overcrowding the heart?), by the diaphragm or lungs (sometimes when I take a deep breath). Could the heart actually be jarred or bumped, then skip a beat? Also, could it be the adrenaline that we must have to be able to lift our arms or any other movement?
    My daughter (she's 18) just had an episode of these. I was upset because it looks like she's inherited this from me. I noticed she was stressed (although she denied it), wasn't sleeping and had no appetite. The doctor first wanted to put her on antidepressants. She refused (I supported that). we took her to a heart specialist and she wore a monitor (the kind where it calls in an EKG immediately). They were not serious but were happening a lot. I started reading about nutrition and thought she might have some vitamin deficiencies. I began force feeding her supplements (just vitamins, no herbs!)
    and within one week, they were gone. Since I've been taking them, I havent had any unless I move around like I described above. With my daughter, she could be sitting doing nothing and they would happen.

    If anyone reads this and is freaked out or scared, please believe these really are harmless. It is unsettling because it involved the heart, I know, believe me. But no two hearts are alike. No two hearts beat the same. Some people have PVCs that they dont even feel, LOTS of them, and they are not affected. Some people are more sensitive and feel every one of them.
    The stress of worrying about them can make them worse, so its best to take a vacation from worrying and I bet they will get better! :-)

     
    Old 05-22-2009, 06:00 AM   #14
    scott1965
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    Re: Sinus Tachycardia / PAC's & PVC's Support

    Quote:
    Originally Posted by sunnydeeelite View Post
    I can't believe I found a board where people are actually currently posting. Everything else seems to be a few years old!

    I too have suffered from PVC's since I was around 17. I'm 39. Now, my daughter is suffering from them, she's 18. About a month ago, they hit her like a train with no brakes. They lasted a few days, then happened only a few times a day that she could feel. Then, a few days ago, she began feeling 3-4 in a row, some every other minute, some a few every hour, but frequently.
    I took her to the doctor, they did an EKG, and he said it was depression.
    He said if they kept coming back, or more frequently, we could do a Holter monitor. So, we went back on Friday. He AGAIN said that we would be wasting money if we ordered expensive tests, that her problem was stress and depression. I almost had an episode of TACH right there. And, I won't even go into the problems I'm having with a cardiologist who charges me $75 a visit for MY problems. They did no blood work ups, I had to demand they do blood tests to check her thyroid, potassium levels and electrolytes.
    We'll see what happens when the results come back. In the meantime, I'm taking her to a cardiologist and getting a second opinion.

    At this point she is trying not to allow it to debilitate her. She's out with friends right now and trying to keep her mind off the fact that they are happening so frequently and yet she's supposed to believe that is normal, suddenly.


    Mine started with PVCs. Then, later in life, I had episodes of racing heart, especially at night in my sleep (which awakens me). Was diagnosed with Mitral Valve Prolapse. Had panic attacks. Started taking Paxil, they helped, but still had tachycardia. Stress seemed to trigger it sometimes, but sometimes not! I went from 2000-2006 with NO racing heart, maybe a few pvcs, then BAM, in 2006, it hit me again. Now, it's everyday! In the last two days I have also had many pvcs. Seems this might be hereditary. I had always felt comfort that my daughter never had problems, that it might have skipped her. Now I am devastated, and my symptoms have become worse.

    All I can say to you guys is that I have been having these for over 20 years and I am still here. Had I know I would live this long, I wouldn't have spent (WASTED) so much time worrying and thinking every day was my last! I developed horrible anxiety over this, I was not able to leave my house for awhile! And of COURSE, now I am thinking, "Okay, it was benign all those years, now it's progressed and I really AM going to die!" but no, I wake up every day. I was sent to the hospital in Dec. with a heart rate of 180. They wanted to give me a drug to stop my heart and get it back into a normal rhythm. Of course, at the time, the paramedics said it would make me feel a little weird but bring it down. I said NO WAY! I'm glad I did, the ER doc said it was SVT and that I could have sustained that for a little while. He also said that they usually try to hydrate to bring it down first.
    Just last night I woke up with the TACH and had to massage the artery in my neck and burp to get it to slow down. Typically I would be holding my chest like Fred Sanford, saying, "Elizabeth I'm COMING TO JOIN YA!" with my hubby going, "BABY, CALM DOWN! OH MY GOD, PLEASE!" scared to death himself.
    But I have learned now to remain CALM, as getting upset WORSENS IT. Even the PVCs. STOP THINKING ABOUT THEM! Thinking about them will not save you. Obsessing will not help you at all. It will take valuable time from you.
    Of course, I say this but I am the worst. I am working on it though.
    OH, also, they put me on a beta blocker (generic Toprol) and it made my blood pressure go dangerously low (because I am again on Paxil and you are NOT suppose to take those two together unless under close supervision!) so they took me off. It didn't help me anyway.

    I have noticed that the following things truly have helped me.

    EXERCISE, even just a brisk walk in the sun for 10 minutes!
    Multi Vitamins
    Stress management (******* has alot of GREAT relaxation videos!)
    No heavy meals! Light meals all day, and eat RIGHT! Bananas especially!
    No tight clothing
    Breathing with diaphragm, not upper chest
    Go to bed at the same time, get up at the same time, everyday! Getting TOO MUCH SLEEP makes me have more pvcs!
    No alcohol
    No caffeine!
    No chocolate

    I hope I can help someone here. Just remember you are not alone, and you WONT die from this.

    But, don't you get scared about the possibility of stroke?

    That's what bothers me more than anything. I suppose I could live with the PVC's, skipped beats, etc. But, according to everything I've read, that's what they say you have to be concerned with: the clotting that can come with the symptoms (blood doesn't move through the heart like it should), which can raise the possibility of stroke.

     
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